I say yes, you say no, OR People are Strange

luv_gardening

Susie, the "offender" you refer to is a BC sister who you are aware is in great distress and she deserves kindness and appropriate help. Everyone has the right to refuse treatment and it doesn't make them stupid, maybe just scared witless.  Her remarks were triggered by the unkind comments in your deleted post, and I suggest you delete the offensive words above too as she can easily find them.

This is first and foremost a support site.

suzieq60

Joy - I don't think my comments were unkind, just probably truthful. I'm all for complementary treatments but HER2 is SO serious, one cannot afford to give herceptin a miss.

luv_gardening

I'm worried too, but I find the best strategy with such people is to let those who are able to empathise and befriend them gradually bring them round to realising there is too much at stake to not use the harsher treatments.  None of us want to let a BC sister with such an aggressive cancer go without sufficient treatment.  Being harsh is just going to cause her more emotional turmoil at a time when she is barely coping.  Most people, when opposed, just dig their heels in more. Being more subtle takes longer but often pays off. 

There are a few more moderate women on those forums who do our best to help our BC sisters make more sensible decisions so you needn't worry too much.

Momine

Joy, that is good to know.

YramAL

Well, the good news is, my carpet is covered for the sewer problem under my family room floor. Bad news? The repair to the sewer is not. Kind of what I figured. Plumber is coming(again) today to give us an estimate for the repair. I'm sure it won't be small. Sigh.

Mary 

Wabbit

susie ... you might as well beat your head against a brick wall you know.  Same headache ... same results.  You have some over there encouraging others to forgo conventional treatment ... and that is what they want to hear so everybody else is pushed away as troublemakers.   I can only wish them luck and hope that most are early stage enough that their odds are reasonably good either way.  The ones who decline surgery are especially scary but at some point the tumors become inoperable anyway so trying to change the person's mind becomes futile.  I don't like to see it but people are going to do ... or not do ... as they please. 

Mary ... hope the news today is better than what you probably expect. 

We've got freeze warnings for tonight and tomorrow night.  Was hoping it wouldn't happen but knew it most likely would.  Will be covering plants and flowers tonight.  We ended up with a weeping willow tree by the water - a weeping cherry tree - and a magnolia shrub to replace our big tree.  All planted ... but now I have to wait for them to grow. 

ETA:  Joy ... I think your approach is a good one ... but I used to consider this an 'educational' site as well as a 'support' site.  Not so much anymore in view of some of what is posted nowdays.  I do think some see 'silence' as indicating agreement and do believe that erroneous 'facts' need to be disputed.  The trick is to not overdo it I guess. 

  

Bren-2007

Happy Afternoon Everyone!

The wind is howling today ... not going to walk the dogs as my allergies are going crazy.  I'm going to call the doctor and see how soon I can get another allergy shot.

Mary .. That sucks.  I hope it's not too expensive.

Rabbit .. I have a couple of weeping cherry trees and they are so beautiful in the spring.  They grow like weeds though!  I had one next to the house I had to take out.  That crazy tree grew to 20 feet in less than three years.

Susie .. All you can do is share what works for you.  There will always be people who think they can cure their cancer through diet and alternative treatments.

Joy .. You seem to have a very caring approach to the whole situation.

Covert .. Have you heard from the doctor yet?  Thinking of you and hoping for benign resutls.

Hope everyoone is having a good day. 

hugs,

Bren

Anonymous

susieQ I don't think you need to be told what to do or say on a thread in a "public" ( tho not on the active list) Forum.  I think that communication, if given, should be in a PM to you.  Now that we've all read it - let's agree to just leave the people who are SO OFFENDED by good medical sense, alone.  Really.  Just a waste of time.  If someone doesn't understand the seriousness of a diagnosis of HER2NU+ , there's really nothing we can say that will help.  Time to be grateful for all the good support we get from friends here, 

SPEAKING OF FRIENDS - sending a very BIG HUG to Blue.  Hoping you are having sunny days.

Enjoyful

Mary - YIKES!  They always charge so much.  I hope they go easy on you.  Ask for a discount  (springtime discount, buy one get one free, cancer discount, discount for a smile, Happy Tuesday Discount!).  I always do and sometimes it works.  Mostly they just laugh at me.

I just read something about baking soda and spider venom as cancer cures?  The article didn't promote these things, just told about the lengths that people will go to to cure their own cancers.

Worried and waiting to hear from our Covert lady....

Scoot 

Anonymous

More wishes for the MOST BORING lack of news, from our Covert Lady - all B's...B9, Boring, and more boring...

weather report from western ma - imagine, possible SNOW tomorrow night. Truly enough to make a person giggle...perhaps we can send it south to my friends in DC, Athena, that be ok with youI know some kids near you in Bethesda who would LOVE to see snow again!

suzieq60

It's getting colder, we had to use a blanket last night for the first time.

Sunflowers - I know I'm very blunt sometimes, I think we have to be on occasion.

Couldn't sleep last night and ended up finally dropping off after midnight, now I'm up at 5:30 and trying to decide if I should go to work - guess I'll have to.

I hope you all will come with me in my bag to the breast clinic tomorrow. Athena - no Zebra remains this time - too smelly. I'll provide chocolates

covertanjou - hope you were really boring

Sue

Bren-2007

Wow Scoot .. who knew!  I should have let that HUGE wolf spider bite me!  Crap .. I killed the cure.

hugs,

Bren

rosemary-b

It is snowing here. Boo.

HER2+ is scary sh*t. I know we all want the best for everyone. I do know though that my onc is a compassionate man who gives his patients the treatment that has been proven to be most effective. 

Susie I will be with you.

Ang7

Some of that is downright scary.  We can all make our own decisions but it irks me when blanket statements are made against chemo/rads.

3monstmama

Bren don't do that!  i fell off my chair laughing at the thought of you squishing the cure.

honestly today I needed the laugh.  Our friend is in hospital with a serious bacterial infection that I presuming got in because his stupid chemo made sores all over his body. I'm so sad for him and his family.  I just am keeping my fingers crossed that he will get better soon.   Frankly if some people want to abandon treatment with a track record in favor of baking soda, lots of brocelli  and what have, so be it--who am I to keep them from their choice?  But just like the people riding motorcycles without helmets, you may feel you should have the right to do it but if you should crash while in your state of helmetless, don't expect me to foot the bill.

 Susie fingers crossed. . . .

Anonymous

SusieQ - I know you post from your own experience out of CARING deeply about what happens to other women, but I think it's PAST TIME we all understand that it's just not appreciated.  Really.  I feel worse about how some of the women I really care about are treated by other posters - than I do about what new "theories" are being expounded - squooooshing spiders in baking soda, or whatever someone chooses to pursue, is less important than the emotional well being, feelings, of the good women who keep trying to help.

I hope whoever has Her2+ will use EVERY possible medicine ( Herceptin) or whatever else is available.  Chemotherapy was difficult, and 5 years later, I am still deeply grateful for the good docs who guided me through it.  Haven't got many nice things to say about the SE's of Arimidex, except I am loving being ( as a friend keeps reminding me when I whine about feeling tired, creaky) on "this side of the grass." AND, I LOVE having Acupunture treatments too

suzieq60

I'm not so worried this time as it's only 6 months since the last one. Let's hope the Aromasin is doing it's thing. I'll see if the vollies (volunteers) recognise me with my new hair. It was so weird last time, that they recognised me - lovely ladies doing a great job - I would love to do that when my working time is over - they show you to the dressing room and give you cake and generally help out.

suzieq60

Sun - Hey, I eat lots of bananas and get lots of sun, but I still got bc - go figure. I'll have to make sure I start a spider collection, you never know when it will come in handy - we have some lovely ones over here

Ang7

Susie~

I eat lots of bananas also...

lassie11

They give you cake when you get a mammogram Suzie!?!!?   Can't say anything that luxurious happens when I get my mammogram. All I can hope for is just a mammogram (no cake and better still, no recalls, no invites to the ultrasound room - just a mammogram).

covertanjou

B9! B9! B9!.  I am so thrilled that the bx is b9.  Thank you to everyone for your good thoughts.  I may need another bx for some ADH found on another bx in Feb, but at least the MRI biopsy is B9.  

(((HUGS)))) and love to everyone. 

rosemary-b

I just feel lucky they give me a gown when I get a mammogram. I would love cake. I know sugar is bad for me but so is givin up all the good things in life.

Anonymous

YEAH, B9...what lovely words,,,,,congratulations!  Celebrate - bartender????  On the house in honor of B9....

1Athena1

Hurrah for covert!!! Beautiful news...

BTW, the mods have a thread in the comments section where they ask what our favourite threads are. I know some don't like us, but I refuse to act as though we were a secret, so I proudly put in a word for us.

Bren, if you do speak to our thread leader, please send her a hug.

Missing Barbara, wondering if she has heard anything re: a possible prospect, how she is doing, etc....

YramAL

Covertanjou-so happy about the B9 news! Yay!

Susie-We will all be with you tomorrow for your mammo. Fingers crossed for boring results.

I read over on the alternative board every once in awhile if I want to get my blood pressure up, but most of the time, it's just not worth it. You can't save people from themselves. Sad, but true.

Plumbing bill will not be cheap, but it will be less than half the cost my brain was imagining. Just about the same amount of money as my husband's June bonus. Funny how that works.

Mary 

suzieq60

The cake is only prepackaged stuff - probably fruit cake, they have cookies too, tea coffee etc. They have it mainly because you are stuck there until they are finished with you - could end up all day.

Covertanjou - HURRAY!!!!!! I don't think I've ever met anyone so boring

1Athena1

Susie, no zebras from me - I promise!

ETA: Sun - I'm happy to get snow. Just learned of a work-related deadline I have for July. First thing in my head was "yuck - July weather in DC!"

Bren-2007

Yay Covert!  I'm so happy for you.  What great news!

hugs,

Bren

riley702

Congrats, covert!

Rabbit, I just came in from covering my flowers (annuals in hanging baskets I bought last week) with some old clothes that were destined for the rag bag. I tucked the pots under some bushes so the wind wouldn't blow them over and tucked the cloth underneath so it wouldn't blow off. Crossing my fingers...

covertanjou

Thanks everyone!  I am thrilled with the good news.

One of my sisters has decided I need to see her naturopath, who can apparently cure cancer.  I shouild go see him and he will cure me of all my precancerous cells....UGH.  I politely told her to f*** off.  Have I mentioned I don't get along with her?  She is a true believer in crystals, fortune-tellers, etc.  I can't stand that stuff.  

Anyway, I am curently having a latte with Baileys.  Yummy!!  Anyone want something?