Alternative Treatment

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  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited March 2012

    Essa, from my research they are highly linked. I was taking 2000 IUs of D3 before bg dx but I upped it to 8000 IUs. Of course we will have to keep an eye on blood levels since A,D, E, and K are the fat based vitamins that can reach toxic levels. I had bought iodine prior to dx but it is at my house. My naturo doc wants me to take iodine too. I had originally bought it hoping to improve my depression, thinking the synthroid wasn't really cutting it. Anyway, I am glad I didn't let them drag me into chemo. And if any further tests show any active cancer, I will be looking for the IV vit C, the UVB, and the h2o2. For now, I'm using nutrition and lots of supplements.

  • Kaara
    Kaara Member Posts: 3,647
    edited March 2012

    dunesleeper:  I'm doing weekly Meyer's cocktail IV which includes vit C and other vitamins and minerals, plus some cancer support additives as the dr. calls them.  At the end I get an additional injection of alpho lipoic acid and glutathione which boosts the ability of the antioxidants to work more effectively.  I think it's kept my SE's from my tamoxifen to a minimum.  From what I've heard, they could be much worse.  These IV's are not inexpensive but worth it I think.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2012

    Joy, your point re diarrhea and malaria.  You and I both know that this is due to overpopulation, sanitary conditions and POVERTY.  No need to blame traditional medicine...

    "There's a great thread on the Stage III forum of women who have not had progression despite massive tumours and many nodes. It's worth reading every now and then to provide hope and encouragement".  Do you mean they did not do conventional therapy ?  If so, what is the thread called Joy ? thanks

    Kathy, let us know what your second opinion says.  We'd like you to stay with us Wink I admire you and Dunesleeper and Kaara and Essa for taking the time to study your options and not give in to the conventional fear mongering, so so wise !

    Essa, real glad your second UVB went well - thanks for the link, will try to find the essence Colchicum autumnale , no harm there, prutty prutty flowers 

    Dunesleeper - I've been reading Ty Bollinger on the net, real good info.   

  • Momine
    Momine Member Posts: 7,859
    edited March 2012

    Sunflower, I read the blog post from the woman with the horrible SEs from rads. I don't think that is typical. It is certainly possible and some people will have at least some of those SEs, but not all of them.

    Both my PT and my rad onc were very good about protecting my arm during rads, just as one example. 

  • Momine
    Momine Member Posts: 7,859
    edited March 2012

    Dune, or others, what is iodine supposed to do for you?

  • 12345678
    12345678 Member Posts: 81
    edited April 2012

    Maud - and everyone - thanks so much for your encouragement.  You have each given me ideas about how to come to the best decision for me.

    Today, I am leaning much more toward alternative and I will explain why in some later post, but I know, for me at least, it has to be a very personal, intuitive decision based on all the available information I can gather.

    It is just shocking the more I learn about conventional treatments, doctors, $$$, Big Pharma and the FDA.  Just shocking!!!  I can't imagine how these men sleep at night!

    Perhaps if enough of us research, study and unofficially conduct our own private trials we will, in time, be able to help others of us who choose to follow a similar path.

    I know there is an answer to every problem.  God help us!! 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2012
    Momine - google it Smile
  • Momine
    Momine Member Posts: 7,859
    edited March 2012

    Maud, I have to no avail. That is why I was hoping that maybe someone here knew.

  • 12345678
    12345678 Member Posts: 81
    edited April 2012

    Momine -

    Here's an article from Life Extension re: the role iodine plays in helping thyroid function and breast cancer.  Hope it helps!

    http://www.lef.org/protocols/prtcl-145d.shtml?source=search&key=iodine 

  • 12345678
    12345678 Member Posts: 81
    edited April 2012
    Momine - If you have any trouble clicking on the link, just go to www.lef.org and type in iodine in the Search engine; or Google "Life Extension" in Ft. Lauderdale, FL. Wink
  • 12345678
    12345678 Member Posts: 81
    edited April 2012

    Okay, I'm trying to paste the link again on a different browser.  See if this works...

    http://www.lef.org/protocols/prtcl-145d.shtml?source=search&key=iodine

  • 12345678
    12345678 Member Posts: 81
    edited April 2012

    Yep, that last link works.  You can spend hours on "Life Extension" and get all kinds of valuable and validated information from articles and study information you can trust.

    I first discovered it after reading Suzanne Somers' book "Knockout".  I can't say enough good about them.  Click on the Health articles' tab and search your heart out! 

  • 12345678
    12345678 Member Posts: 81
    edited April 2012

    I should probably also show you that after clicking on the "Health" tab, to click on "All Health Topics" and it will bring you down to a huge list of protocols for various things including cancer.  

    Smile 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2012
    Thank you Kathy, you are a very kind soul Innocent
  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited March 2012

    Kaara your tx sounds great. Even my naturo doc balked when I asked about IV vitamin C. I definitely need to learn how to hook up with an alternative doc who will do those kinds of tx  . . . or IV H2O3. However, I don't really know where I stand with cancer right now. I had the mastectomy and node removal. I have changed my diet entirely. Unfortunately I am lagging way behind on the exercise (and this is frustrating me). With all the pills (supplements) I am swallowing, I ought to feel like a million bucks and be full of energy and zest for life. Yawn.

  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited March 2012

    Momine, all I know is that hypothyroid is linked to cancer. Conventional medicine treats that with synthroid, but according to my naturo doc, the levels they look for are low for optimal thyroid function. And then there is the T3 and the T4 and the TSH. Too confusing for me. I just know that some people recommend supplemental iodine to help the thyroid function better.

  • abigail48
    abigail48 Member Posts: 1,699
    edited March 2012

    great info, joy!! many years ago a penpal sent me some scullcap, she's a mo farmer's wife & grows many organic herbs herself.  I must still have the scullcap, I researched it at the time & remember something about special dreams

    Re:  that:  sleep is a powerful curative.

    & I've been wondering:  they used to say cancer was a virus, if so & it's not genetic damage, it can indeed be cured.  antivirals wreck the liver, but I wonder if anyone of us has been using them

    off to work for a few days agin tomorrow, then here for over 2 weeks

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012
    Abigail, don't forget to pack your rosemary oil on your way back, see you in a few days Wink
  • abigail48
    abigail48 Member Posts: 1,699
    edited April 2012

    had to come back downstairs & do a bit of research on skullcap.  nothing about dreams, I guess something else, but this was a quick look.  I guess joy said "mint"  not good for someone taking homeopathies I guess.  one book said a remedy for infertility, not good ?? another said promotes menstuation, not good or an aboritificant??? it's a nervine, good for insomnia any nervous complaints, & can cure mad dog bites, that's what all the booka I've looked at in the few minutes say.  good for epilepsy.  nothing about redusing blood to our trouble but no doubt the writers of those herbals didn't know that then

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    Here's a particular page at LEF with bc halfway down page.  For meI chose Detoxamine iodine, I did not test well for Iodonal or the other main brand at least not this time.

    http://www.lef.org/magazine/mag2011/oct2011_The-Silent-Epidemic-of-Iodine-Deficiency_01.htm?source=search&key=iodine

    Supporting the liver, no matter what we are doing, that is imperative.  Abigail, I am not disagreeing in the least, but wondering what antivirals are you referring to that wreck the liver?  Because there are natural ways too.  And to not deal w liver support is to wreck it as well.  I need to do more.

    Am not saying cancer is only this, but there are scientific theories that it is many things, sometimes a host aat once.  I prefer to act as if it is all in my, and transition to different ways to treat me and build up, heal and cleanse. I must admit, I do not have one original idea, thee thoughts are from two decades of reading and belief, then got hit w bc and started to knuckle down to what I needed to already know. 

    The Vit C. h2o2 and UVB are all antivirals, antibacterial, antifungal and much more.  Also the protocols with MSM/collodial silver, MSM/olive leaf complex, MSM/LIPH water.  The one protocol I ended up w after the bioenergetic test was mainly for bacteria for me... hardcore to hit bacteria.  Which supported my own intuition that for me it was more bacterial, not only that but moreso. 

    The other theories are that cancer may also be bacterial, meaning the bacteria has entered normal cells.  And that it may be fungal, same or that the fungus is around the cells and formed the tumor.  Of course, there is the sugar feeds cancer, but does it cause cancer. 

    Then there is the MDR multi-drug-resistant cancer cells with the pump inside to push any drugs away from the crown of the abnormal cell which can end up with a fullfledged drug reissstant tumor, but there is also hope for that kind that need addressed with PawPaw or something proven like this. 

    And bacterial, viral, fungal conditions, there is the Rife machine or even better the VIBE machine.

    Back to the iodine, thyroid, Vitamin D3 and breast cancer.  Wish I had known all this when  I was dx w the thyroid.  Just was lost in a fog and memory block and could not pull it together while this got away from me, but now that I know, I have been told by integrative md to take 8000 - 10000 IU of D3 ea day, so use sublingual.  Am on teh iodine, thyrotain, and still on synthroid until better, but will be weaning to get better, cannot heal while on it I think.  I take selenium in my ActivaMune, so helps.  And the one thing that troubles me is the DIM (ActivaMune) has the cruciferous veegs I need for my ER+ but does it work against my thyroid issues?  Am off once again to the thyroid thread and DIM threads.

    We will be moving all month, in fact all summer probably because no pressure is best.  Drovee aall around the aarea there today to do creative flow of should we or should we not, and we SHOULD LADIES AND GENTLEMEN !!! I love it more than I thought I would, lovely area, all classified forests and wildlife habitats registered.  Perfection.  Thank you universe! I feel so taken care of.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    Dunesleeper, w recent surgery, you need rest and to be careful not to develop LE.  I wasn't, I pushed, I got it, I am sorry I did not know about it before.  So I hope you give you a break on the exercise, mild movement and gentle walks are really necessary, but know what you are doing before you begin the housework and real exercise. 

    Abigail just said it, sleep is a powerful curative.

    The mint and homeopathy, yes not good because the mint can anctidote (interefere with, obstruct or cancel) the 'cure'.  Also coffee, vinegar, smoking, sex?, strong odors, and more, though all is controversial between homeopaths.

  • Momine
    Momine Member Posts: 7,859
    edited April 2012

    Kathy, thanks very much. What I get out of that is that it is not good to have a malfunctioning thyroid, a malfunctioning thyroid MAY contribute to breast disease and taking iodine can help regulate thyroid function. This would also suggest that if you have no signs of thyroid problems and you eat fish and sea salt, then there is probably little or no reason to add iodine in the form of supplements.

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited April 2012

    Essa, the population studies are important.  They are showing aspirin and maybe metformin are helpful, subject to further studies.  There are quite a few studies showing some effects of insulin, diabetes and high or low starch diets.  There are theories about how we may be able to starve cancer by cutting back on sugar and carbs or fasting for part of the day, then taking either antioxidants or substances that stop the cancer from using glycolysis for energy so it starves to death.  The Chinese herb I mentioned apparently works by stopping the cancer from using glycolysis which is normally its chief means of gaining energy.  This may explain how some people are able to recover from cancer after using the extreme juicing, almost fasting, coffee enemas, alkaline diet etc, but the good results are limited to a few and we need to know exactly what the actual combinations are that work.   Of course the researchers don't know or care about alternative diets but they may be led in that direction eventually.

    Before my diagnosis I was a little overweight, about 6lbs over the accepted "normal" weight.  I never smoked and rarely drank, ate lots of healthy foods, didn't use HRT, but I didn't exercise enough, and yes, it hurts to see the simplistic studies that seem to blame us while many have far worse habits and no cancer.  It's just not that simple.  We need the data without any implication of guilt as there are too many variables and unknowns to start pointing fingers.

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited April 2012

    Kathy, I was assuming when I said,

    There's a great thread on the Stage III forum of women who have not had progression despite massive tumours and many nodes. It's worth reading every now and then to provide hope and encouragement. 

    that you realised I was talking about hope and encouragement, not treatments.  If fact if you believe that chemo and other conventional treatments are not as good as they are made out to be, and the women of the stage III thread may not be eating as healthy as a dedicated alternative person, then you can take even more encouragement from seeing these women survive so long after whatever treatments they chose to do.  Hope is possibly an important factor for those who survive long term as our moods directly affect our biochemistry.

    At the very top of the stage III forum there's a pinned thread "Stage 3 Five Years+ Out-Check In ! " and another unpinned thread called "Positive nodes with long term survival" where I see DianeEssa and Momine have posted recently so it seems we are in good company.

  • 12345678
    12345678 Member Posts: 81
    edited April 2012

    Wow, Joy! Thanks!! That definitely gives me hope!...Just at a time I need it most! I have been so sad lately, even now. I just read about MJB and can't get her out of my mind. Such a tragedy! Does anyone think she died way too early as a result of complications from the chemo?



    I cannot thank you enough for your message this morning. It was truly God working through you at just the right time for me, in just the right way. Thank You!!



    Love,

    Kathy

  • Kaara
    Kaara Member Posts: 3,647
    edited April 2012

    KathyS7:  I don't think MJB died from chemo complications as much as from neglect on her dx and treatment.  She survived the first round of treatments, but ignored a pain in her shoulder that continued to get worse.  She didn't see a doctor for it until it was too late and by then the bc had spread so far that it was out of control.  It was very tragic and sad.  Something similar happened to a friend of mine with lung cancer.

     The take away lesson in all of this is once you have cancer, you can never just ignore the little aches and pains that persist.  They must all be checked out as though they are serious..even if they turn out to be nothing.  We all do it...I am famous for ignoring pain long enough that it just goes away on it's own.  I can no longer afford to do that.  Any progression caught early enough can be controlled.

    One of the most inspiring stories on BCO is that of Marybe (you can read about her on Between The Red Devil and the Deep Blue Sea thread)  She is amazing in attitude and perseverence.  She has followed a very conventional path, does nothing alternative, doesn't particularly eat healthy or do a lot of exercise, yet has lived with mets for many years.  She is now taking a very strong chemo drug (something they call the red devil) for liver mets and seems to be again winning the battle.  She handles these powerful drugs with little or no SE's that she complains about.  Her story is a must read for anyone facing a long battle with bc. 

  • abigail48
    abigail48 Member Posts: 1,699
    edited April 2012

    yes I think the mega green tea I take is an antiviral.

    re:  bacterial cause.  many years ago I read of a dr. invented a color machine cured cancer.  he said cancer was a permeable/non permeable bacteria, (I forget this story), that it was greenish blue in color & that his machine cancelled it out with (another? color.  fda zapped this man good as I recall as he did with th orgone chambers

  • 12345678
    12345678 Member Posts: 81
    edited April 2012

    Thanks, Kaara! I'm seriously considering not doing chemo even as a Stafe IIIC w/12/12 nodes positive.



    It is The Red Devil that my MO wants to give to me. I think it's way much, too soon. That's why I'm getting a 2nd opinion Tues.



    They took the tumor out w/clear margins and I'm on anastrazole, which has been working. I think I should save The Red Devil for when I have mets. I hear you can only take so much in a lifetime because of its toxicity.

  • Kaara
    Kaara Member Posts: 3,647
    edited April 2012

    Kathy:  Yes, if you read her story, she is getting fairly low doses of it, and so she is being allowed to continue as long as it seems to be working for her.  They will monitor her very closely.  She has been on practically every other chemo drug and this one was the last one she was given, and the first one that has actually worked well for her, at least it has greatly reduced her tumor markers, not necessairly the tumors themselves, but she is stable and doing well.

    It's such a tough decision....I feel the same way....I don't want to bring out the big guns and use them as an overkill now and then need them later and they won't be available to me.  Again, you are wise to get that second opinion. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    Kathy, it is striking how similar your diagnosis is to Joy's.  I believe she did only two rounds of chemo and it did not include the red devil which I can tell you is BRUTAL

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