Taxotere/Cytoxan starting February 2012.
Comments
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woodburns: Okay, I checked my oil. I have Cuticle Oil Avocado "E" for Nails & Skin (No Lift Nails). I did almost buy the Tea Tree Oil, but it is made from the Melaleuca Tree (I tend to suffer from allergies when these trees are in bloom) and with reading the back label I chose not to get the Tea Tree Oil. I did start to use my oil today. Thank you again for posting this as it was a reminder for me
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Hi my friends,
I went to high school with this woman. Her blog has lots of great information.
Today she has a guest blogger who is an amazing young breast cancer survivor who has taken on an amazing challenge and is volunteering around the world. I thought you might enjoy it.
tamiboehmer.com
Also, I realized that many of you are having problems with scalp pain/dryness.. I'm sorry I didn't post this before. I'm using a product called Nioxin. My wig lady told me about it. I'm using the shampoo/conditioner now. Then, someone in my support group said they also make products to help with regrowth when they finish. Just thought I'd share that in case it might help.
Kim -
Wow! If you either click on the more info below her blog listed on my last post or go to or go to
www.afreshchapter.com
You'll see more about this amazing woman. Very inspiring. -
Bonnie: I also got a little rash, between my thunb and index finger on my right hand. It doesn't itch, but is still there a couple of weeks later. Chemo gives us odd little SEs, doesn't it? I;'ve had no trouble with my nails, however, and I'm 10 days past TX 3 of 4. Hope I don't get them too.
Woodburns, good luck tomorrow. Many of us lost some of our anxiety once we got in the chair and through an infusion. I hope your SEs are all mild. My best advice is hydrate like crazy the day before through day 3, and exercise when you get home. The sooner you can flush the TC out of your system the better. Also think about taking a stool softener -- for me constipation from the drugs they give to prevent diarrhea has been a problem the first few days. Also, some of us switched to Biotene toothpaste and mouthwash right away. That may help make the mouth SEs better.
Silvia, how I feel for you. This is my first rodeo with cancer, but now that I have only one chemo treatment left, I found myself worrying about "did we get it all" and about the side affects of the aromatase inhibitor I'll have to take for so long. But if we let worry take over, what do we have left? I remember in the darkest days after getting my diagnosis thinking, "Cancer, you may cause my death, but I'm not gonna let you take my life." So I try each day to focus only on what makes my life worthwhile. You ladies are among the blessings,
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Hi!
Kim48: I was looking at the Nioxin ingredients and I I choose NOT to use any products with Sodium Laureth Sulfate and Sodium Lauryl Sulfate. I started this some time ago. Here is a link (one of many) in why NOT to use products with these ingredients... www.natural-health-information-centre.com/sodium- lauryl-sulfate.html (if you scroll down just a little you will see in bold about Breast Cancer where Estrogen is known to be involved). I just wanted to pass this on out of concern. Thank you for sharing the blog sites. Great stuff!
AnnTop & others who wrote about rash: I went to see MO today. It appears it has NOTHING to do with Chemo. She said it looks as though I have brushed up against something. She asked if I've tried any new products, out in the woods, etc... I have no blisters and she ruled out Shingles. Also, it's only on one side no where else. So, she gave me a scipt for a topical steroid ointment. As she was getting ready to tell me what she was going to give me I interrupted her and said NO steroids...LOL...She laughed and went on to say what she was prescribing!
DonnaDS, NikkiEliz, & woodburns: Tomorrow, right? Wishing you the best!
Hope all SE's are subsiding,
Bonnie
When you get into a tight place and everything goes against you, till it seems as though you could not hang on a minute longer, never give up then, for that is just the place and time that the tide will turn ~ Harriet Beecher Stowe
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Bonnie, Thanks so much for the information. Very scary. It looks like I need to keep reading. So much to learn. Do you have other good sources? I've been reading about plastics, soy, and I'm eating organic as much as possible.
Good luck to all who have treatment this week. -
Kim,
You are more than welcome! I read a lot from naturalnews.com. You can type what you're looking for in the searchbox on the top right side. I also like healthranger.com as well. He writes quite a few articles for naturalnews.
Have a good night,
Bonnie
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Thank you all for the wonderful welcome and encouraging words. I have drank 96 ozs of water so far. I was home today and this morning just had to get out. Does the steroids give you energy? I bought 2 new shirts for the chemo days, and 3 more scarves. Sad thing is I was in a mall that I was not sure where the restrooms where. Yep, after 64 ozs of water I had to find it and quick. If you can imagine a 56 year old woman acting like a 2 year old that is still learning when they need to go. I would have to stop every so often to get control. I made it, but barely. LOL!! Can just imagine what people were thinking! I took the steroid at 5:00 PM for the second dose. Once again thank you for that tip.
NikkiEliz - Thank you for the pics.
NikkiEliz and DonnaDS - Will remember you both tomorrow. Hope your SE's will be light. I am sorry to say this, but it is comforting to know someone that is going to be doing this the same day.
AnnTop - Thank you for the advice about the water and exercise. I started using biotene toothpaste and mouthwash. I really do like it.
A-Fighter - Let me know how your nail oil does for you. I tried the Tea Trea Oil and boy does it stink. But stink or not, I'm using it.
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Woodburns, Donna and Nikki,
Good luck and thinking of you. -
Woodbuns, Donna and Nikki, I wish you well too. I'm day 3 from treatment, and doing ok. I did go to work today, but came home a little early. I'm not sure who else is receiving treatment this week, I hope you'll post how you're doing.
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Good luck tomorrow ladies - may you all have light SE's and be okay :-) 5 days out from 2nd treatment and doing well. Alittle bone pain yesterday obviously from the taxotere since no neulasta. My son came home last night and said.."ah..no offense mom..but you don't look too good"...lol. Way to make me feel good. I think that was my worst day cause today I felt much better. I found a big difference this go around without the shot....now hoping those counts stay up.
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Thanks everyone for the well wishes! T minus 8 hours until Round 3 starts for me! For everyone else heading in tomorrow too, best of luck and my thoughts are with you. For everyone who is doing round 1 or 2 this week (or has just completed), I find that nerves wise at least I am much less nervous about the actual chemo this time than any of the others since I know what to expect. Also, I was given new things to try and lessen the bone/muscle pain I've been having each time so I'm hopeful that will help.
I'm going to try the Claritin D, but also my MO gave me a prescription for a drug that's more of an anti-inflammatory (Like a stronger Advil) instead of the Tylenol 3 with Codeine I was taking (though if the pain in still bad I can ALSO take those without anything interfering which is good to know). She also said that the some of the pain as well as nausea and some dizziness I had for a couple days right after going off the steroid may be caused by withdrawal symptoms from just cutting off the steroid after taking 4 a day for 3 days straight so she suggested the first 3 days I'd usually take none, to just take one a day, when I wake up, to wean myself off of them and hopefully make all those SE's disappear or at least not be as bad.
Woodburns: I was told that the steroid (I'm on Dexamethasone, not sure what you are on) can cause you to be a bit ‘wired' and have trouble sleeping. I find this is the case for me. Wore the first day or two I'm on them, then it gets to be ok usually. My MO said if I have trouble sleeping on them, I can take the second 5pm dose early so that it's further from bedtime, so I sometimes take it at 2 or 3 which she said is fine with the other dose being at 8am.
I got yet another wig the other day, not too expensive but not super cheap like the crazy coloured ones I got, and another natural type one, but this time I'm a red head! Hehe I'll post a pic soon. Also if anyone wants to add me on facebook, I'm under Nicole Bontoft on there. There's an album of my hair cutting and other wig funny photoshoot-in-my-living-room pics on there called I'm-So-Not-Ready-To-Be-27-So-Let's-All-Cut-My-Hair?! Since the chopping took place on my 27th bday! Honestly, one of the most fun/best birthday's I've had in years which I wasn't quite expecting.
Ok. Going to down some liquids and then TRY to get to sleep.... Ga.... Luckily I'm only a 15 mins drive from the hospital so I don't have to get up TOOO early. Haha. Sweet dreams all! And good luck again to anyone heading in for treatment this week! *hugs*
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NikkiEliz , DonnaDS and woodburns wishing you all an uneventful time today with limited Se's
NikkiEliz round 3 Yeah you go girl
woodburns I also use the Biotene toothpaste and rinse and have decided I also like it.My teeth looked whiter not sure if is because I started using it after a cleaning or not.But hey who knows maybe I will stick with it .OMG 96 Oz of water I don't think I would have been able to leave the bathroom never mind the house.If the steroids didn't keep you up the water may have.
Bonnie thanks for the website will check them out today.I suppose it is good to know the rash is a natural thing and not an SE should clear up quickly now.Is this the name of the oil you use" Cuticle Oil Avocado "E" for Nails & Skin" or is there a brand name? 1st Se have not had any problem with the nails but I did put in ice and put a generic brand Aquophor on at night with cotton gloves ,also put on my feet and toes and so far baby soft,except my big toe is a little rough to the touch.
To all of you that are some days out from last TC sounds like you are doing well don't see any bad post from you guys keep doing well.
Has anyone gotten one of the wigs that is heat resistant they come under many brands .I tried one at the salon and was going to get it but it was just to puffy.I am really trying to find one on line and I think my hairdressing can cut it down some for me but I am not sure if she would know how to thin it.They are either 30/70 or 50/50 synthetic/human hair. Care is like synthetic but can take up to 350 degrees without damage.Can curl or straighten and you don't have to worry as much if you open an oven,dryer ETC. I have also been trying to hold on till my hair is completely out and see if I am going to have to get it made smaller.I got an average but every time I measure my head I am not sure if it is going to be to big on some of the measurements.Day 15 and really shedding.
Great day to all
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Morning Ladies,
woodburns: I will keep you posted.
lmloa59: The brand name is No Lift Nails.
The rash! I had a Eureka moment last night looking out to the patio from the kitchen. It dawned on me...Ding! Ding! Ding! Bullseye! On Friday afternoon I repotted some orchids. I used moss and the bark for replanting. We went to dinner that night and I don't recall a rash at that time. I believe it started late Friday night early Saturday morning. I believe this is what caused the rash. My friend who finished Chemo, but is still doing the Herceptin was told NOT to do any planting, do not go barefoot, etc... and to wear gloves doing dishes, cleaning, etc...I will email my MO and see what she says. I did talk infusion nurse at Boot Camp this morning and she agreed that something from repotting caused the rash. Now, would I normally have a reaction to something like this, I don't think. Perhaps immune system down and can't beat stuff like this (bacteria or what have you). Hence why we are told to be careful on certain days, this was 4th day post infusion.
Have a great day Ladies,
Bonnie
Life is an opportunity, benefit from it
Life is beauty, admire it
Life is bliss, taste it
Life is a dream, realize it
Life is a challenge, meet it
Life is a duty, complete it
Life is a game, play it
Life is a promise, fulfill it
Life is sorrow, overcome it
Life is a song, sing it
Life is a struggle, accept it
Life is a tragedy, confront it
Life is an adventure, dare it
Life is luck, make it
Life is too precious, do not destroy it
Life is life, fight for it
~ Mother Teresa
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I will have my first chemo tx on Monday. Having my port put in the Thursday after. MO gave me a script for Dexamethasone to take day before, day of, and next day after. Thanks for posting all this info everyone. Some of us would still be confused if not for you all!
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Hi I start next round of chemo Taxotere this Friday. My arm can't be used anymore so having a port on Thursday and chemo next day. I am very worried about the port as I will have chemo and cold cap as well. Good luck to everyone.
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I have a PICC line in my arm that they put the chemo, draw blood, do everything from and I love it! Makes it much easier and I don't have to worry about as many needles! yay! It's a thin tube that goes in a vein in my arm and runs up my arm and down into my chest near my heart. Haven't had any problems with it. The only thind I don't like is the plasticy protective bandage type thing can get a bit itchy close to dressing change time, and I can't get it wet so it's tricky havign a bath and I gotta cover it with a plastic sleeve when I shower. But all in all I'm glad I have it!
Round 3 complete! Woot! Everything went well. Bad days usually don't start until day 4, so fingers crossed they aren't to bad this time. Hope everyone who had treatments today had an easy time of it! Thinking of you!
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Nikki congrats on your 3rd round complete! And thanks for the pics you posted a while ago, you look so pretty!
Woodburns and Donna - how was your treatment today?
Bonnie, Kim48, Imlola, AnnTop - thanks for your encouraging words. Usually I am taking this ordeal with a positive outlook, but I have some dark moments. The visit with oncologist is one of them. There I realize that I am a patient, with a very serious disease, even though I feel healthy and strong most of the time.
So I have my round 3 on Thursday. I didn't buy Emend since even with insurance it's $200 ... I think I rather throw up than spending this much money for 3 pills ... Let's see how it goes this time. I just hope for no high fever again.
Neli - what is new with you??
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I finished my first round of chemo today at 4:00. I am amazed at how far they have come in cancer treatment. I had no adverse reactions to either of the treatments. I did not even feel the IV being put in. I know the SE's are still coming, but I am grateful for today. I came out feeling as good as when I went in, just no longer nervous. After we left, my husband said why don't we rent GI Jane and when it is over shave your head. My first instinct was to wap him in the back of the head. But the more that I have thought about it, I think after I get my wig thinned I am going to go ahead and let him shave my head. Do it on my own terms.
Diamondslayer - I will pray that your first treatment will go as smooth as mine did.
Ali68 - Will keep you in my prayers.
Nikki - I am glad all went well with you too, today. The steroid I am on is Dexamethasone too. I had taken a Claratin D too. I had taken it before and remembered that it caused body aches then too. So torn about keeping taking it. I think I will skip it tonight and see if that makes a difference. So day 4 is the worst? Is it body aches, fatique?
DonnaDS - How did it go for you today? Your in my thoughts and prayers.
I am praying for everyone here.
Thank you again for all your support and tips.
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Woodburns
Glad to her your TX was uneventful. Don't forget to keep drinking your water. I had my hairdresser shave me head yesterday, I wasn't ready til then. It was day 3 after my 2nd TX too. While it feels a little weird, its also kind of liberating AND it beats having it shed like crazy. I also had him thin and trim the length of the wig so it was more me.
Take you anti nausea meds as directed and get the rest your body asks for.
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Nikki, Congrats on Round 3! One more!
Woodburns, So glad you got through tx 1. I think it is a huge relief to put that one behind you. The unknown is so frightening. Are you getting the Neulasta shot tomorrow? Most of us take Claritin to help with bone pain from that shot.
Silvia, glad you are doing ok. I am positive 90% of the time, but sometimes it just hits you. I think that it really hit me that I had cancer after the surgery was over. There's something very real about going to an oncologist.
Ali68. I have a port. I also got it one day before chemo. It was sore for a couple of days, but I felt nothing as far as the chemo itself went. I've had no problems since. I have bad veins, so glad I have it. Good luck.
New side effects for me this time.. A few hot flashes. My husband is amazed because I'm always cold!!! Also, more trouble sleeping
Last night I was up until 2:00. I have a cold, too. That's not helping. I was hoping to avoid these SE! Oh, we'll. Could be worse!!
Goodnight all. -
Firstcall Thank you for your words about Goliath. Had treatment #3 today and that is exactly how I am feeling today. We can do this
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Hello Ladies!
I'm glad to hear that thus far everyone seems to be having minimal SE's. I have my second treatment on Thursday. Silviazara- I know what you mean about going to your MO and feeling like a patient...when you feel relatively healthy it kind of brings you back to the diagnosis. I cannot believe the Emend was that expensive! Can you MO arrange for a sample dose??? Mine did that for me when I had Hodgkins. Ugh... So frustrating that there's a med out there but it's outrageous!
Diane, Nikki, and woodburns- hope you're doing well this evening!
Neli- I hope you are doing okay! We haven't heard from you in a bit!
Glad so many of you friended me on Facebook! You all have beautiful families as well! Thank you for the compliments too! I love placing a face to you...
My fuzz fell out yesterday and today. My husband took it right down to my scalp tonight... I just didn't want the patchy look. I attended the Feel good look good session yesterday, it wasn't too bad. I learned two things... How to draw eyebrows and make them look natural and how to tie a fancy scarf
To share one of the quotes I put on FB the other night....
Life Is A Challenge – Meet It! Life Is A Song – Sing It! Life Is A Dream – Realize It! Life Is A Game – Play It! Life Is Love – Enjoy It!
Good night all! -
A_Fighter Thanks so much for the good thoughts. TX#3 today was uneventful. Would be nice if it continues that way. Thanks also for your research on Nioxin and other ER+ dangers. Its an amazing world of info. Yeah Harriet Beecher Stowe
To all others sendings their support, thank you. I was a little anxious about this treatment until today. I guess I felt all your thoughts and prayers. Now I am feeling positive. Shingles are mostly gone,feeling good, and its onward and upward
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Woodburns: For me the last 2 times my worst SE hit me day 4, bone pain, fever each time that sent me to the ER. But that's always when the Dex is out of my system so hopefully that's the main cause and weening myself off them more will help. I'll let you know! I took charge and buzzed my head as soon as my ahris tarted to fall out a little bit, like I'd run my fingers through my hair and each time have liek 6-10 strands of hair in my hand, so friends over, hair chopped, made it a whole fun day. Highly Recommended. I kinda want to grow my hair long again (once it grows back) JUST to get to do it again! hahaha
Still feeling good so far, a bit wired from the steroids. GOnna go crawl into bed and watch a movie on my laptop and then try to sleep...if thesee darn hot flashes will let me! ga! hehe. I had one the same time as my mom in the car yesterday, and was like, "I get them so often it's crazy! Like close to 20 a day!" She didn't believe me, so we started counting them as they came. Had 17 from that point until I went to sleep. Didn't count the ones that woke me up throughout the night. Grrrr. I'm usually really cold too. So it's kind of a weird feeling to randomly feel so warm! And then a little bit later, cold again. haha
Sweet Dreams everyone!
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Hi Neli,
Hope you are doing well. I had a mastectomy of
my left breast, my cancer is very similar to yours except
my tumor was 3cm.
Did you start the Taxotere chemo yet? It looks like I will
start in mid Aprii. I am so scared of the chemo.
How are you feeling now? I said a prayer for you.
Mimi -
OK, where is the "chemopause" I was expecting? Period started today after two rounds of TC already???
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Hi Ladies,
JoanQuilts: Thinking about you today! Sending good thoughts, prayers, & positive energy your way!
diamondslayer: Welcome! Glad you found us!
ali68: Hi! Sorry to hear about your arm.
NikkEliz: Wahoo, Round 3 done!
silviazara: You're welcome! Keep your chin up, Round 3 is almost here and it will be over before you know it!
woodburns: Yippee, Round 3 under your belt! Too funny about your husband.
myleftboob: Cheers to it being liberating and it beats having it shed like crazy!
DonnaDs & Kim48: Another one down, YEAH!
DonnaDS: You're welcome!
ColdenMom & silviazara: Check this website out. I've heard really good things about it. It helps in reimbursing for medications. You will need to provide them with some paperwork and such, but may be worth looking into. www.copays.org
RuthieG: LOL! I thought so too. I got mine first round and I'm really hoping I won't get it again!
Neli: Miss you!
Well, I am nine days out from second infusion. I have NOT had a down day. I also did NOT have the chin breakout, bloody nose issues and mouth sores this time! Wahoo! I did start using the "Magic" mouth wash as I was getting a different feeling inside mouth, perhaps sores were coming. I do seem to get a little fatigued early morning/early afternoon. A power nap has been helping. I'm wondering if running the Cytoxan slower is what has helped with less SE's this time.
I'm thinking about running a 5K this weekend just for fun. I need to wrap my head around the fact it won't be a "real" race for me. I'm NOT 100% sure yet!
Hugs,
Bonnie
Everyone has inside them a piece of good news. The good news is you don't know how great you can be! How much you can love! What you can accomplish! And what your potential is! ~ Anne Frank
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Hi, everyone -- Hope this warm weather is where you are too -- Nashville feels like June!
Silvia, this is controversial, but if you have access, medical marijuana (or even non-medical) is great for nausea and may be cheaper than the Emend. Helps with appetite too. I know MJ is not legal in most states, but one of my doctors actually recommended it (not the MO)
Kim48 -- I had hot flashes too after TX 1 and 2, but haven't had them after 3. Go figure. I have had more fatigue, however, than the first 2 rounds. Each one seems a little different -- I hope TX 4 is better.
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ColdenMom, Kim48, Leveled, & Silviazara: Good luck! Wishing you the best and hope everything goes well!
ColdenMom & Kim48: Just think you'll be half-way done! Wahoo!
Leveled: Hopefully, you'll feel much better with one under your belt & less scared.
silviazara: Wow, Round 3 will be outta here! Wahoo!
Sleep well!
Hugs,
Bonnie
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