Taxotere/Cytoxan starting February 2012.

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  • firstcall
    firstcall Member Posts: 499
    edited March 2012

    Bracing for T/C #2 on Friday.  I appreciate each of you sharing your experiences, it is helpful to read about your treatments.  For me the week after was a challenge, and I'm preparing for that again.  I plan to work, but will shorten my days a little next week.  I hope everyone is feeling better. 

  • Skydiver
    Skydiver Member Posts: 1
    edited March 2012

    Good Morning! I have been reading all your posts, since I can't sleep. I started chemo on March 2nd, but if you don't mind, I would like to join your Feb group. I am on day 5 past my first TC infusion and yesterday was my worst day yet. I ached all over and was so tired. It didn't help matters that I also started my period. My MO said the chemo might put me in menopause, which didn't sound good at the time...but right now it seems that my chemo SE's are intensified by my period, so maybe menopause wouldn't be so bad. (smile)



    Like many of you, I did a preemptive strike, and had my hair cut short last week. If I have the energy tomorrow, I am going to take a long lunch break and buy a wig. Hope I can find something that doesn't look too silly!

  • lmlola59
    lmlola59 Member Posts: 146
    edited March 2012

    Morning to all,

    Ulightup and Kim48 hope today's infusions go well and you both have limited SE's

     Kim48 # 3 I csn't even imagine how that must feel sitting at 1 week out of #1 

    Ulightup I did not realize this is your second time battling this disease,you prove to us all how strong we can be Bless you.

     To all the work out wizards on this post I have also managed to work out each day since TX but there is no doubt I can not handle the intensity I was doing before.I think I would rather do 45 mi Intense and not be down and out for the rest of the day then a long hall workout and be wiped out for possibly a few days.Like you I am trying to feel each day out and be smart.I have an appointment tomorrow with my Mo to check my counts and not sure if I push to hard if this this will mess with that trying not to get the evil Nalasta shot

    Bonnie hope you are still doing well seems my turn around day was yesterday and just hoping it continues.I am a bit surprised you are not taking the steroids for more than Infusion day was this something you brought up due to their effects on your breathing? Or just your Mo's thoughts on this? I think I actually welcomed the steroids for a few days my daughter said I was cleaning and doing more than usual.I was a bit worried about the crash not sure if that happened.Keep us posted on how this works out for you.

    Bonnie also love the quotes at the end of your post

    Kim48 will be looking forward to yours  

    Shera hope you are doing better and getting the care you need


    Skydiver welcome aboard I am sure as you read through this thread that many of us or on the cusp of March so you will definitely feel at home here.I am on day 9 past TC1.I was very achy on days 5 and 6 felt very tired and crappy days 7 and much better so far since day 8 Hang in there and hopefully it shall pass.But please don't hesitate to cal your MO if it does not.We are not suppose to suffer in silence.I think the more we complain the more they will be aware of if nothing else.

    I am 52 so I am told I will go into automatic menopause which is fine by me.I had my period the week before Infusion and still had some on infusion day and figured well that is normal as they were longer now due to my age .But 9 days after that I still have annoying spotting what the heck.I still have not had any hot flashes as I was also told I would get ,those I am not looking forward to.You are another brave soul to take the bull by the horns and cut the hair ahead of time.I have still not started losing any but check the pillow and the drain religiously every day.Also not really styling my hair as usual and does look like crap.I was suppose to get my roots colored yesterday but of course did not go so that is really bugging me.Oh well whining won't help.

    I did however  even though I won't wear them I think outside of the house buy  some pretied bandannas from doubleheadersusa.com .I found them to be cheaper than other sites and I know the pretied look a bit funky as they hang down on both side but i thought I could pull the 2 side together and tie in the middle.Just received them and threw one on and I think it may work.I like the material and like the color selections.It was also free regular shipping and even though they say up to 2 weeks I got mine in 5 days.

    Quick question I remember reading it but don't remember who posted about the rash.I started with one on Mon and tried the vitamin E I saw posted.Did you guys have any luck with that? Has not yet worked for me .I am trying some aloe from my plants leaves  today and see if that works  an let you know.If not I will show MO at tomorrow appointment 

    Time to stop flapping and get to workout might think I was till on steroids 

    Have a SE free day all 

  • A_FIGHTER
    A_FIGHTER Member Posts: 109
    edited March 2012

    Good Morning such Wonderful Women,

    shera: Sorry to hear you're in the hospital! However, the upside is you're in no pain and in good hands! Hope you are out soon! Hang in there!

    robo47: Hi, thank you for popping in. Congratulations on being done and feeling so muc better!

    Kim48: Thank you!

    Kim48 & Ulightup: Good luck today. You are in my thoughts and prayers! I'm sending positive thoughts you're way!

    Skydiver: Welcome!

    Neli: How are you? 

    lmlola59: My Mo has known since the beginning I've been apprehensive about the Steroids. She made me feel better in saying I would be on them JUST three days and would be out of my system by Thurs. She didn't think the breathing issues were from the Steroids. However, my face breaking out immensely (chin) was due to Steroids. Before going to second treatment I heard from a couple other Cancer patients (not BC) say they chose not to take any steroids as they didn't want to add any addtional side effects and would deal with what was to come from just the Chemo.  After hearing this I was really bothered again with taking the Steroids. When I met with MO on Monday before infusion we discussed and she mentioned it before me saying anything about not taking the Steroids on the day after. I probably have done this all backwards, for me, since getting Chemo is cumulative...meaning I should have started with no Steroids and then added if need be for each infusion.  

    Last night I was able to sleep again with no Tylenol PM. I did wake up at 12:29 am and thought, "Oh no", but I was able to go back to sleep. I did find my self stripping thoughout the night...LOL...I've been going to bed cold so I had socks on, a long sleeve shirt along with pajama pants. By the time I woke this morning I was sockless and shirtless...LOL. 

    My eyes are bothering me this morning. I noticed this last time as well...feels as though eye lashes in my eyes and heaviness to them. 

    No mouth sores and nose issues as last time, as of yet. Supposedly, tomorrow may be down day since I didn't take Steroids on Tues.  

    I had plenty of energy this morning for Boot Camp! We will see how the rest of the day goes. I am taking MO advice, somewhat, and will NOT run today...LOL...tomorrow hopefully Laughing.

    I did have my Girls on the Run meeting last night and ran again (2.6 miles)...So yesterday I actually ran 5.25 miles Wink Hence, another reason for the break today!

    Hugs Ladies,

    Bonnie

    "In helping others, we shall help ourselves, for whatever good we give out completes the circle and comes back to us"   - Flora Edwards

  • lmlola59
    lmlola59 Member Posts: 146
    edited March 2012

    Bonnie very interesting on the steroids I have also developed 3  big zits that I never related to the steroids but I do not ever get them anymore at my age at least not like these.Also do you believe the rash could be related to the roids? I never really gave them much thought I am going to look at what I was  taking and see what the possible side effects may be.

    Also have had no mouth issues not even much of a taste issue but I have been diligent in using the Biotene paste and rinse and also in between rinse with the baking soda/salt.Not sure if that is why or not.No eye issues as you have experienced and for me weird but the sinus problem I have  had all my life is gone,guess the drying up for me is a benefit. I have always done the neti rinse so I continued with this maybe this also helps.Very funny about the little striptease act at night Ha Ha.For me it is simply covers on covers off over and over.But I live in New England and the temp is only on about  59 at night in my bedroom.This could explain why no real night sweats I am sure this will change as the weather warms.  

    I am going to ask some of these questions tomorrow  when I see MO 

    Bonnie I have to ask what you do for a living watching your post and get the feeling you are either in HR or some type of Health Care Organization thing where you set up runs and weight loss and were working at  a Heath Fair I believe you posted.You don't have to answer if you don't want just curious from all the things you organize.

    Great day to all 

  • Myleftboob
    Myleftboob Member Posts: 1,469
    edited March 2012

    Hair, hair, hair, friggin everywhere!  Literally, except my head!!  I know we're all struggling with the wig issue.  I keep trying to keep in mind that lots of my black lady frieds wear wigs all the time and they rock them!  My sister has a co-worker and she was telling me recently how she's known this gal for years and just though she took alot of time with her hair as it always looked so great.  It wasn't until she was talking to her about me and  my situation that she told my sister she's been wearing wigs forever because she hates weaves.  That I can appreciate.  I worked with another lady that had weaves and how she did it I'll never know.  Its very painful and very time consuming to get done.   My sister was so surprised.  They had a good laugh about it!

  • Kim48
    Kim48 Member Posts: 73
    edited March 2012

    Sitting in my third tx. My son is with me! He's quite bored, but glad he's here!



    Mtleftboob, So sorry about the hair. I like my wig, but so glad it isn't a forever thing! Can't imagine doing it on purpose!!!



    I don't like steroids either. They make my face bright red! However, I'm allergic to everything so don't want to risk it.



    I've been walking 2 miles a day. My physical therapist told me of a study that moderate walking 3-6 hours per week cuts chance of recurrence by 50%! I like that! We all need to commit to moving! Even if you are having issues now, you can start after chemo!



    Upright up, cool that you are a physical therapist. I go to a fabulous place called Turningpoint. They only treat breast cancer patients. I've been treated for range of motion and for muscle pain from TE. Can't wait to get those out! Now working with bands for strength. They are fabulous. Nope your tx is uneventful!



    Had to slow down treatment, heart racing a bit and legs tingling. Ready to get out of here, but a couple hours to go. They are always going to stay slow with me now. It happened last time, too.



    Welcome Skydiver. This is a great group. We're glad you're here.



    Everybody have a good day!







  • Kim48
    Kim48 Member Posts: 73
    edited March 2012

    Sitting in my third tx. My son is with me! He's quite bored, but glad he's here!



    Mtleftboob, So sorry about the hair. I like my wig, but so glad it isn't a forever thing! Can't imagine doing it on purpose!!!



    I don't like steroids either. They make my face bright red! However, I'm allergic to everything so don't want to risk it.



    I've been walking 2 miles a day. My physical therapist told me of a study that moderate walking 3-6 hours per week cuts chance of recurrence by 50%! I like that! We all need to commit to moving! Even if you are having issues now, you can start after chemo!



    Ulightup, cool that you are a physical therapist. I go to a fabulous place called Turningpoint. They only treat breast cancer patients. I've been treated for range of motion and for muscle pain from TE. Can't wait to get those out! Now working with bands for strength. They are fabulous. Nope your tx is uneventful!



    Had to slow down treatment, heart racing a bit and legs tingling. Ready to get out of here, but a couple hours to go. They are always going to stay slow with me now. It happened last time, too.



    Welcome Skydiver. This is a great group. We're glad you're here.



    Everybody have a good day!







  • RuthieG
    RuthieG Member Posts: 34
    edited March 2012

    I've hesitated on joining because this group seems to be so good on keeping up with everyone... and (although this may sound odd) I am getting very stressed lately about anything else to keep up with!  So I'm going to do my best, but if I'm absent for a while, I'm sorry.

    I started TC on 2/9.  First round didn't really give me any indication of what to expect because I was hospitalized for dehydration on day 4 and on day 10 I ended up having to have my lumpectomy site opened back up, cleaned up, and re-stitched due to uncontrolled bleeding.  So that round, I never really felt "myself" until about two days before TC#2, which was 3/1.

    This round is proving ok -- was pretty much in bed all weekend with joint pain, lots of fatigue Mon & Tues, and feeling more like myself today.  I'd guess I'm about at 80% energy, and just some low-grade nausea pretty much full time.

    I'm envious of those of you who have been working out so much... I've been so anxious to get active again, but due to my surgical set-backs, I've been sidelined since mid-January!  This really stinks because I teach tap dance part-time, and that has been a major no-no from my surgeon.  He gave me clearance to start back next week and I can't wait.  My students have had me there, but I have to sit down and have an assistant be my feet for me.

    Hair -- I got it cut in a pixie cut on day 8 after TC#1, and it started falling out in clumps on day 16.  Shaved it that night.  Now I have nice smooth areas on my scalp, along with stubble still in places.  I'm pretty comfortable bald or just in a buff (planetbuff.com -- that's my favorite head cover!), but I have a wig that I wear to my full-time job.  I'm in corporate training, and I don't need everyone here thinking about "what's wrong with her" instead of what I'm saying.

     Most troublesome SEs for me have been Neulasta bone-pain, chronic headaches, fatigue, and stomach issues (walking the tightrope between constipation and diarrhea... no fun).

    OK, so that's me.  It sounds like an incredible group of people here... I hope to be able to keep up.  But with full time job, part-time job, (oh yeah, and I'm also a Cubmaster for a fairly large Cub Scout Pack, along with being a Den Leader in it), plus 4 kids... lets just say I get pretty freaked out at the idea of adding any new responsibilities at this time.  :-)

    Best wishes for lessened SEs!

  • silviazara
    silviazara Member Posts: 111
    edited March 2012

    Hello all, I had a lots of reading to catch up with and I am sorry I can't possibly keep up with everyone.

    For those with bad side effects I hope you will feel better soon!

    As to the hair, I still didn't shave my head, it is buzz cut and it looks just like a very short hair. I don't use the wigs but I am in love with the little caps I don't have to tie and they stay on! I can do all the sports wearing them as I do yoga and tennis with no problem! They are also cute and I get compliments from random people on my nice accessory . ;-)

    http://www.turbanpluswholesale.com/Merchant5/merchant.mvc?Screen=CTGY&Store_Code=TPW&Category_Code=ABY

    I am doing pretty well, I have no SEs at all. My next infusion is next Thursday and I am dreading it as last time I got so sick the next day.

    I see MANY new faces and would like to say WELCOME!!! So glad you joined us at this forum.

  • Ulightup
    Ulightup Member Posts: 57
    edited March 2012

    Just wanted to say thanks to everyone participating in this forum. I feel so much support and everyone gives me strength.

    Welcome RuthieG- this is definitely a nice support group. I'm glad you are following docs orders regarding exercise. Soon you will be returning to dancing and I'm sure you will even more gratification/ apprection for your body. Have you ever thought about holding dance class for breast cancer patients after you are done with treatment. Exercise is so valuable ...decrease cancer related fatigue from chemo and radiation, decrease tightness in the muscles and improve Rom. I teach yoga n pilates to breast cancer pts and they are so happy when they realize they can do something empowering during treatment.



    Take care everyone

  • Leveled
    Leveled Member Posts: 77
    edited March 2012

    I am starting next week on the 15th. Was wondering how everyone has dealt with the t/c combo. I am so scared any advise would be appreciated. Leelee

  • AnnTop
    AnnTop Member Posts: 70
    edited March 2012

    Hi, all, and hope all everyone's SEs are light today. I'm day 5 past TX 3, and this one is a little tougher. Others in the Dec 2011 TC group said one TX period may kick your butt more than the others, so maybe this is mine. I'm managing work, but working out at the end of the day seemed too much the past couple of days. I think it's the Neulasta (make that Neu-nasty) shot making me achy, although the Claritin helps a lot. But today is better and my tastebuds are starting to recover too.

    Headcoverings: I have a cousin who is a new doctor, and she sent me the cutest scrub hat from Blue Sky Scrubs: http://www.blueskyscrubs.com/categories/Scrub-Hats/Scrub-Hats-for-Women/. I would never have thought of it, but it makes a great scarf. They have lots of cotton prints in lots of colors. Not as cheap as a bandanna, but maybe worth checking out -- or look at your local scrubs shop.

  • AEM47
    AEM47 Member Posts: 297
    edited March 2012

    Hi everyone - I'm on a fact finding mission.  My 2nd TC is tomorrow morning.  I'm concerned about the neulasta shot just being given indescriminatly. Ok, my understanding is the count needs to stay with 4000 - 10000.   Before Chemo, my count was 11000+  I've always run on the high side all of my life...so this was nothing unusual.  Had the first treatment, neulasta the next day and at day 7 which is supposed to be the low time (correct me if I;m wrong) the count had only dropped to 10.23.  On the 14th day it went to a whopping OVER 30,000.  My red count stayed relatively the same thru-out going from 45 to 42, but my platelets took a nose dive going down about 150 pts. 

    Does anyone have their actual numbers?  I am alittle disturbed that the white count would be booted to that extreme.  I'm wondering if I even need it and certainly don't want a bunch of possible immature/malformed white cells floating around unnecessarily.  I also believe that I read somewhere that the white count can actually kill off platelets if the white is high.  Does anyone have any information on there own counts. Or any experience with this?  I would rather forego the shot after seeing that ridiculous count.???  Thoughts anyone ?

  • ColdenMom
    ColdenMom Member Posts: 114
    edited March 2012

    Hello Welcome to all the new ladies!



    Leveled, my second treatment is on the 15th as well (I believe Silvazara is to). It seemed to have ranged with everyone how their TC treatments went. I had minimal SE the first time but will say Day 3-5 I was not myself. Lingering headache, felt kind of weak, sleepy, no nausea. I did take Claritin D the day of chemo and 6 days following my Neulasta shot and that seemed to have worked for bone pain. Take a peek at many of our posts - we're a good group and leave some pretty informative posts. Good luck!



    Ulightup - I was actually dc'd from PT a couple weeks ago. I was going for stretching and light weight lifting. My range of motion on my left side was pretty poor following the mastectomy but we got it back! I'm feeling pretty good with no real pain from the TE's. I go for fills weekly about 200-250cc each time. It's going well. I didn't realize either that this is your second diagnosis with BC!



    Bonnie - you cracked me up with the striping during the night... I'm the same way! I was always cold before this and would be bundled for bed even with a warm rice sack on my feet... Lol! Not anymore!



    Everyone who just went through their next treatment I hope for minimal SE for you this week!



    I've had this lingering cold since February 10th or so... It's still not gone and last night I started a productive cough and major nasal drainage. This morning I woke up to a raging cold sore! I've never ever had one before, I do get canker sores in my mouth from nerves but never the cold sore. My immune system must be a little compromised. I did call my MO and they placed me on an antiviral and told me to watch for a fever or changes in my cold - I may need an antibiotic too. Hopefully I can vitamin C this out of my body! What the heck!



    Has anyone had bloody noses? I've had a few since my first treatment and understand that it is a SE from TC.



    Myleftboob, the clippers need to come out tomorrow or Friday night for me! I am shedding majority!



    Thanks everyone for adding the scarf websites - I need to get a few more! Did anyone get any scarfs from chemo beanies? Do you like them? I was going to check them out.



    Silvazara- glad you checked in... I hadn't seen a post in a bit from you, just wanted to make aure all was well.



    Neli and Shera - how are you both doing?



    Take care!



    Kelly

  • A_FIGHTER
    A_FIGHTER Member Posts: 109
    edited March 2012

    Hi Ladies,

    AEM47: Wow, I just got off the phone with a woman I haven't met personally yet. She was talking about how she received the Neulesta shot and her counts went WAY up and is causing problems! One thing she mentioned is her anxiety level is high.

    I was telling her it seemed that some people are just being given the shot no matter what. I was told I would probably not need the shot and they would monitor me by my bloodwork each time.

    My Levels for First Infusion: WBC 13.2

    Second Infusion: WBC 15.8

    The printout shows these are high. I was told it was due to the Steroids. If I wasn't taking the Steroids it would obviously be lower, but was told not too low in which I would need a shot.

    Wishing you the BEST tomorrow! Be your own advocate! 

    Thank you ladies for all the sites for hair accessories! 

    lmlola59: Unfortunately, for me, the Biotene didn't work. I work for and participate in the Boot Camp (I handle the Administrative Part). We sponsor local events as well as Auction off Camps for local organizations. I have a couple certifications in Exercise & Nutrition. I also work with the company Isagenix. I was an Elementary School Teacher before this for 17 years.

    Kim48: Congrats. on #3 being done! Way to go! 

    RuthieG: Welcome! Thank you for giving the update on how you are doing. Cheers to getting back to exercising!

    Leveled: Welcome! Being scared is okay, it's unknown territory. I found that after having the first one in my pocket there is now less anxiety. 

    Gayle56: How are  you? 

    firstcall, myleftboob & gobucks: Thinking about you! Friday, right?

    I'm noticing my scalp is dry. Anyone else? If so, what are you using to help with this? I had a friend tell me she used Olive Oil. Thoughts?

    I felt a bit tired today. I was still able to do Boot Camp. I also rested on the couch twice today. I tend to feel the effects in my face more than anything. It will be Day 3 Post Second Infusion. Supposedly, tomorrow may be the start of my down day(s) since I didn't take the Steroids the day after treatment. We will see what happens. At this point I'm still planning on Boot Camp in the morning.

    Stay Strong Ladies! Laughing

    You have to accept whatever comes and the only important thing is that you meet it with courage and with the best you have to give   ~ Eleanor Roosevelt

    Thinking of each and every one of you,

    Bonnie 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2012

    Coldenmom - I got 3 from chemobeanies and love them.  Nothing but complements from everyone and the best is they fit really well and are already tied so I don't worry that they will slide or blow off.

    Preparing for 2nd TX tomorrow - so need to get the blanket and chemo bag together.

    ((hugs)) and easy SEs wished to all

  • AEM47
    AEM47 Member Posts: 297
    edited March 2012

    A_FIGHTER  - That is very interesting because for the first time since the treatments have started I too am getting anxiety.  I did take 2 lorazipan when I had to buzz the hair but other than than, I haven't had to take it....up untill the last few days.  I've got a terrible uptight feeling.  It's definitely anxiety but I cant figure out why.. I wonder if that has something to do with it.  Either way, I feel 30000 is a unbelievable count and I should not have a count like that.  It can't possibly be good for you and I think I am going to refuse the shot this go around if the MO doesn't suggest it herself. 

    I also tried Olive Oil today and what a relief from the dryness..try it Laughing

  • NikkEliz
    NikkEliz Member Posts: 38
    edited March 2012

    Hi All!

    I too want to thanks everyone for participating int his group. I've had a lot of support from friends and family through all of this but it's not the same as having the support from all of you who truly understand everything that we go through. So thank you all, from the bottom of my heart.

    Bonnie: I've noticed my scalp gets dry a lot too. I also had olive oil suggested but haven't tried it yet. I've just been using a moisturizer, same type i'd use on my face. I find it helps quite a bit. Perhaps I'll try the olive oil and compare!

    AEM47: I was told that I have to have the shots. Never thought to question it. I've had to go in to emerge a couple times for fevers (no infections thankfully, probably just caused byt he shots) and between the blood work done there and the prechemo blood work, my counts have been as low as 2800 and as high as 17000. I thought 17000 seemed a bit crazy high but 30000? Also there are 2 number associated with the white counts, the actual White Blood Cell count and a Neutrophil count. I didn't know this until my last meeting with my MO. Perhaps the different people telling you counts numbers are sometimes telling you one and sometimes the other (that's what happened with me, but no one explained to me that there are actually 2 different numbers they are looking at.). My MO was always going with the White Blood Cell count and the emerge doctors were just teling me the neutrophil counts.

    To everyone who had another treatment recently: Congrats! One more down!

    To those those with one comign up: I'll be thinking of you. *fingers crossed* for light Se's.

    My next treatment is Tuesday. yay! It'll be 3 down and only one more to go after that! Woot!

     Bonnie: I to the 'stripping act' when I sleep too! Good to know it's not just me! haha

    hope everyone had a good day and has a good night! 

    -Nikki 

  • firstcall
    firstcall Member Posts: 499
    edited March 2012

    AEM47 - Don't forgo the neulasta shot.  Talk about it with your MO, but your counts were good.  This T/C stuff is hard on the bone marrow, and your bump is likely short lived, and protective of you getting a serious infection. 

  • Gayle56
    Gayle56 Member Posts: 277
    edited March 2012

    Thanks for checking on me Bonnie.  I went back to work today and hopefully will make it through the rest of the week.  I am still having stomach issues, awful taste in my mouth, and not much of an appetite but I am trying to just push through all of it.

     I am too tired to go through every one individually but I hope you all have easy SE's and those have txs this week good luck.

    I  am always thinking of you guys and sending good thoughts even if I don't post.

    Gayle

  • firstcall
    firstcall Member Posts: 499
    edited March 2012

    Bonnie - yes, I'm on for Friday.  Working all week, and half day Friday.  I'm bracing myself. This one marks my half way mark (2 of 4).  Lots of hair in the drain this morning, and pretty sore scalp. 

    I hope everyone is doing well, I appreciate you sharing

  • AEM47
    AEM47 Member Posts: 297
    edited March 2012
    I think I'll have to have the discussion with her tomorrow. It just seems sooo high and it seemed to be ok a week after the treatment.  Now with steriods started, I was told it would go higher.  I'm just not comfortable with the numbers - plus, I deliberately went out of work for the three months of treatments so I could minimize my exposure to things...maybe some sleep would be in order Undecided Good nite everyone and hopefully everyone having treatments over the next couple days has an easy time !!
  • A_FIGHTER
    A_FIGHTER Member Posts: 109
    edited March 2012

    Morning,

    mthrdee: Thinking of you today!

    AEM47 & NikkEliz: Probably will try Olive Oil today or perhaps Coconut Oil. I was also told Baby Oil.

    NikkEliz: Excellent, #3 next week! Woot, Woot!

    Gayle56: You are MORE than welcome! Thank you for checking in Laughing

    firstcall: Yeah! You'll be half-way done!! Wahoo!!

    Coldenmom & NikkEliz: No stripping last night!! LOL 

    I did Boot Camp this morning. I'm still just experiencing some sluggishness.

    I want to share this video. I will tell you it could be VERY emotional for you (tissues may be needed) to watch, but it is VERY moving. I saw this for the first time last year and NOW it takes on a WHOLE new meaning for me www.youtube.com/watch?v=W_yivlcCpB4&feature=related

    Hugs,

    We all have big changes in our lives that are more or less a second chance ~ Harrison Ford 

  • NikkEliz
    NikkEliz Member Posts: 38
    edited March 2012

    Thanks so much for that video. It's amazing. *hugs* Made my day, even though I'm in tears. haha

  • Myleftboob
    Myleftboob Member Posts: 1,469
    edited March 2012

    A_FIGHTER

    I'm going to watch that a bit later, afraid I'll start crying and won't stop!  But I will watch for sure.

    Well DX 2/4 tomorrow!!  Right now have to run to the wig shop.  The one I wanted is on back order and I have a feeling I'll have no hair in a few days.  My MO was amazed at what I had left but it's all going to go sooner or later.  Im think mabey a couple of fun ones vs one really expensive one.

  • lmlola59
    lmlola59 Member Posts: 146
    edited March 2012

    firstcall, Myleftboob & Gobucks Thinking of you and hoping for the best to you all tomorrow

    RuthieG and Leveled Welcome to the site and hope you find some comfort and Insight 

    Bonnie will definitely be checking this out 

    AEM47 I also didn't get the Nalasta shot on first TC but just came for my 10 day after appointment and my WBC count is low so I will be getting it on round 2.I don't really know how to compare to what you are getting  for numbers as they talk to me in numbers as 1 or 1.5 I do believe as what NikkiEliz says is correct they take 2 numbers I think 1 is WBC and the other was Gran% and multiple them and then  divide by 100 or something like that .They did explain it to me during my infusion but I kind of forget now.My platelets are fine so no shot now as the WBC should be going up but I don't want to end up in the hospital seen to many on these sites that have. 

    Had to get a antibiotic for the acne MO was more worried about that than the rash she says it shows a sign of infection.She also made fun of me and said I was vain because I almost didn't do this whole journey based on the hair loss,and how it figures my 2 big SE's are about vanity a rash and acne.We did get a chuckle out of that because I can't deny it.She didn't think the rash was chemical related more about the hair follicles and may happen when I loose the hair,GREAT.Cross my fingers on that one.Hair is still hanging in there but I no longer style it,not in denial just trying to hold on to what I can before it begins.

    Gayle56 hope you are managing ok,not easy to continue as normal and work when you feel awful.Hope you feel better soon. 

    Hope everyone has a good evening  


  • Gayle56
    Gayle56 Member Posts: 277
    edited March 2012

    Day 11 after TX #3 and I finally felt human.  I am able to actually enjoy what I am eating.  Of course the fatigue is still there but there isn't much one can do about that.

    Hope everyone is out enjoying some nice weather and having minimal SE's.

    Gayle

  • lmlola59
    lmlola59 Member Posts: 146
    edited March 2012

    Gayle wonderful news and you are so close to being done YAHOO

    I forgot to post yesterday that  I did ask my MO about increasing the dosage and she said no it is definitely based on weight and height if anything they would decrease it if you are really not tolerating it.She did say if you were for instance at say 132 and went to 131 they would not adjust but if you went down to 129 would.

    Also on the WBC I am not taking any steroids the day before my infusion they just start them before so if it is true that the steroids bring them up I wouldn't get this benefit

  • Kim48
    Kim48 Member Posts: 73
    edited March 2012

    Oh, my friend, It's not what they take away from you that counts - its what you do with what you have left. ~ Hubert Humphrey



    Good morning my friends. We have all lost so much. Our peace of mind, many our breasts, our hair. But I hope we have learned many lessons as well. I've learned how many amazing people I have in my life. I've always been positive, but have even learned more that the small stuff just doesn't matter!



    I am on Day 3 of my 3rd T/C. So far, just a bit tired. Last time I started feeling bad on Friday night, so I'm prepared as much as possible. Planning to walk today.



    Thinking of all of you.



    Kim :)

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