Has anyone started a Dec 2011 group?
Comments
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LOL, I'm not sure what she considers young, but at 38, she must consider that young, so I'm sure 44 would be young, too!!!
Whata....Here is my timeline of events... 10/7 mammo/US, 10/10 met with BS, 10/12 biopsy, 10/14 DX, 10/26 SN biopsy, 11/10 BMX, 12/1 port placement, 12/14 Start chemo. Somewhere in there I had an MRI, too...
My dr's wanted to make sure they knew exactly what they were dealing with before the actual surgery to make sure I had the right treatment plan in place.
In regards to my last post, I think I am just emotionally drained from feeling like crap. I finally broke down and had an all out cry and anxiety attack at 4am this morning. So, even though I feel like garbage, I am going to clean up some of this mess and take back control. Maybe that is what it is. I don't know. My friend is coming over tomorrow and we are going to lay in bed and watch a movie and put the final touches on her wedding. I'm a photographer and I am shooting her wedding in a month so I NEED to be better!! I just want to be normal again, whatever that means.
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Whatashocker, I was dx'd in August but didn't start chemo until December. I had two surgeries -- first the lumpectomy and sentinel node biopsy, then an ALND where they removed 15 more lymph nodes. And then it took me a little while longer than normal to decide on chemo because of other health issues. So that explains the delay for me ....
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Whatashocker how are the blisters on your feet? Have heard of hand and feet problems, mine are super dry and cracking, feel funny, little nueropathy.
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Flislander, the blisters are still there, but healing 'slowly'. It is driving me crazy because I need to get on the treadmill to get rid of some of my tension/anxiety. Today, I went on anyway with one shoe on and one shoe off. I know the se was dry skin but I have blisters on the back of my feet and on the bottoms. Very slow healing.
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Lori - - I'm not THAT far from you. If I can help you with ANYTHING, please let me know. Road trip! I believe occasional breakdowns are cleansing. I hope you have fun with your friend. Movies and girlfriend time sounds better than anything a doctor can prescribe!
Whata - - hope your feet feel better soon. Blisters sound so painful/uncomfortable (among other things, huh?).
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Hi ladies, had 3rd taxol today and a little buzzed on steroids. Catching up on reading posts.
Rachel I hope your thrush is resolved or gone.
I had thrush and mouth sores throughout most of AC. Took probiotics/acidphilus ate yogurt hoping to help but who knows. Does anyone else take probiotics or been told not to?
Dougieswife when I read your about being admitted for treatment I completely related. I often thought the same going through AC.
Whata, I don't have blisters, but still have a llumpy rash on my hands that sometimes itches, sometimes hurts courtesy of, yes, AC. It is improving, but I have to be really careful not to aggravate it. The rash on my back took over a month to resolve so I have to be patient. Onc
believes I had toxicity to that chemo.
There are a few ladies who havent posted here for a while and I hope they are doing and feeling well.
Goodnight to the rest of you and feel well,
Laura -
Hope everyone is having a good day. I'm actually on vacation with my family. It's been a nice trip but the fatigue is so bad. Thank God my mother in law is here to entertain and play with my girls.
My eye is all cleared up but I'm still on the antibiotics. Not looking forward to #5 on Tuesday. -
Laura, congrats on making it through another treatment. Check it off the list!
Lori, I am truly hoping some GF movie/ wedding planning time will help you feel somewhat normal. The mesy house, as soon as I gave up control of what I could & could not do, that helped me. I can live with a messy house, wy down on my list of priorities. I'm like you, would rather not have to worry about my meals. While my DH has been great at caregiving, he is no cook, & I do worry about eating healthy meals. All the friends & realitives who were so great at bringing meals after surgery & when I first started chemo have all felt like they have done their share, not that I'm complaining, but it would be nice to still have that support system.
Whata, so sorry to hear of your problem with your feet, you sure don't need that on top of everything else.
Wishing everyone a good nights rest. -
Markat - glad to hear you are enjoying a vacation.
Glad also that your eye is healing. I'm with you about not looking forward to tx #5...mine is on Thursday. Have a good weekend and enjoy the rest of you family vacation!
Gracie & Lori - my house seems to be a mess all the time too, and I am a neat freak! My DH tries to keep up with it, bless his heart. He is like yours Gracie, not a cook. I find that if I don't cook dinner, it's either take out or going out and that gets expensive as well as not healthy. I have not had the luxury of anyone bringing meals over....sure would be nice. I'm just not the type of person to ask for help. Oh well, I can do this...only 2 more txs left.
Hope everyone has a wonderful, SE-free day!
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Laura - The thrush is turning the corner, but I'll be taking the medicine through the weekend.
Lori - Sorry all of this hit you so hard just now. I think I may be getting to that point. You're so right about feeling like we've lost control. Enjoy the movie/GF time, and I'm sure you will find a way to take back control of some things - but give yourself some slack.
Markat - A vacation! That's great. I hope it puts you in a good place going into #5.
Whata - Glad that there's at least some healing on the blisters.
I'm hanging in there. Of course the #1 SE of the medicine they give you for thrush is.... diarrhea. At least I can assume that's my problem, and not the norovirus hitting all the local college campuses, including the one I work at. My white gloves have become part of my daily wardrobe; I'm not quite ready to don a mask, but it wouldn't take much.
Trying to prepare for a visit from some friends... a good friend I knew when I lived in Russia (I worked there for 3 years) is going to CA for a conference and wanted to visit the east coast on his way. Of all times! But I haven't seen him in over 10 years, and he was one of the really great people who helped me so much when I was there. If you've ever lived abroad, particularly in that part of the world, hospitality is a huge thing, so I really couldn't turn around and say 'uh, no...' I've arranged for him and his girlfriend to stay at a few friends' house (the immunity thing had to take precedence), but I still need to pick them up at the airport and plan some things for them to do. At least I can take a day or two of work off (not that I have many left). So that's my weekend.
Have a good, SE-free weekend.
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Rachel - It sounds like having your friend from Russia may just be a small blessing in disguise to take your mind temporarily off all this crap! I say enjoy and have a wonderful weekend!
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Kelly - Thank you. I hadn't stopped to think of it that way, and I like that.
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Rachel, I agree with Kelly. I hope you have a wonderful visit with your friend, especially since you haven't seen him in so long. So happy you were able to make other sleeping arrangements.
Have a good evening everyone.
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Rachel have fun with your friend.
This trip has been good for my spirit. It has let me forget that I have cancer for awhile. I am glad that I am on the antibiotic here...just in case. -
Well, sounds like everyone is having some interesting SEs but also some fun "cancer free" outings. Hope you all find something pleasurable this weekend.
Went for my next to last taxol yesterday and they turned me down! I've got nueropathy in my feet so they are delaying till next week. Drinking clear fluids with L Glutamine so hopefully that will help. Seems to be improving. However, this delay screws up my schedule big time. Had a mastectomy surgery date of 4/13 but that will now have to be pushed back. My nephew is getting married and I'm afraid my surgery recovery will interfere with that date (out of state wedding). We shall see.
Whata - as far as my dates, mammo and biopsy on 8/26, official word on 8/31, first oncologist appt on 9/15, met with surgeon on approx 10/1, lumpectomy 10/21, they found more than they expected so additional follow ups with surgeon and I changed oncologists. First chemo 12/1. Mastectomy in April sometime. Will find out the new date in mid march. Told I will need one month of recovery and then radiation will begin for 6.5 weeks. Wait 6 months and then DIEP reconstruction #1' wait another 3 months for DIEP revisions. So, will still be dealing with this crap this time next year. Oh, and no caffeine or chocolate fr 6 months prior to DIEP! That is going to be hard! -
CRAP, CRAP, CRAP......now my freakin left hand fingertips are numb!!!!! DANG IT!!!! It's not painful but it is annoying as all get out!!!!
Definitely feeling emotionally better today!!! GF time helps!!! Having a girls night out toinght, too. I just hope I don't feel like the token "cancer chick"...I'm still me...I just have a wig on...but I'm still me.
Hope everyone has a fantastic weekend!!!!!!!
Oh..mardibra....did your MO tell you to do the L Glutamine??? My MO poo-poo's any supplements but I CAN'T have my treatments delayed at all...I have a wedding to shoot!!!! I'm about to go out and get some on my own just to try and get this cleared up...but I will be calling them on Monday. I told the nurse yesterday that my feel went numb the day before and she said if it gets worse to make sure I call them back...so I guess I'm calling them on Monday.
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Dougieswife - yes, MO had me meet with the nutritionist who told me to get pure L Glutamine (no fillers) and take 15 grams 2x a day by mixing it with clear fluids - water, apple juice, etc. not sure if that is doing the trick or if is going away onits own. Certainly can't hurt so maybe it's worth a try so you can snap wedding photos without numb fingers!
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Mardibra I'm sorry you had to delay but that is great news about the glutamine helping so quickly.
My onc also approved me using it, 4 days between weekly txs.
Dougieswife hoping you had a great girls night out!
Rachel your busy schedule! I hope you really enjoy your time with your friends.
Markat so glad your trip lifted your spirits.
It is wonderful to see many who have been through so much finding joys and blessings, friends, trips, family time. Through the terrible SEs and stresses, there is amazing strength and healing.
Big Hugs, Laura -
Good morning ladies! We got snow last night and I have been sitting in the kitchen, watching out the window as the birds gather and play. There must be about 20 blue jays, cardinals, and even a yellow canary! I spotted 2 chipmunks fighting which to me means spring is not far from here! My cat is loving it too, I've never seen her eyes so big! I hope eveyone finds some simple joys to enjoy this weekend......takes my mind off stupid cancer.
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Kelly - Sounds like paradise to me! I put my feeder up right before last weekend, and only now have the birds really been using it. The squirrel, on the other hand... (mind you, I'm a second-story balcony apartment. I've given up chasing them away). Enjoy the visitors. The chipmunks must be adorable.
Lori and mardibra - So sorry to hear about the neuropathy. I'm watching mine really closely. I might try acupuncture, and ask my MO about neurontin. If all else fails, I'm going to go rougue with the L-carnitine...
It's beautiful and sunny here... another unusually warm day. But too much to do in straightening up the apartment, cooking dinner and doing some work since I need to take time off to show my visitor around. My host for tonight got sick, so I may have to let them her stay here (my friend's visa got delayed, so just his girlfriend got on the flight. I've never met her before. This should be interesting. Hope I don't freak her out with cancer stuff. You never know how different cultures deal with 'awareness,' etc, and I have a feeling that Russia is probably behind the curve on that, but I could be wrong. Maybe some things have changed since I was over there in the 90s.
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Sorry about your friend's visa...will he be able to come at all Rachel? That would be awkward housing and entertaining a woman from another country that you've never met! Hope it all works out.
We had trouble with squirrels too but put a squirrel dome on the pole to our feeder. It keeps them out and even provides some added entertainment as we watch them try in vain to climb to the feeder! It's funny, but the activity in my yard always increases tenfold on snowy days. You'd think they would all be out there when the weather is nice too.
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Kelly, your yard sounds like a beautiful place. Chipmonks so early! Maybe spring isnt so far off. It snowed a couple inches here on Friday too. Just enough to be pretty.
Rachel, hoping your visitor works out without you getting too exhausted. Your energy and hospitality is amazing.
Laying low today, hugs to all.
Laura -
Hello everyone, all is quite here. I am hoping everyone is out enjoying life. I am on my way in for #5 tomorrow. I am glad to get that out of the way because 5 leads to 6, which for me is the final one in this step. Than on to the rads. I have noticed the hostess for this topic has not been on, Darlam. I do think of her often and hope she is doing well.
I just wanted to touchbase and say hello and hope everyone is coping as well as they can. I have ventured from time to time out of this topic and it is often to much information and it makes me feel overwhelmed so I am going to try and just stick to our group.
We are all here to support one another through so I am sending out positive vibes to all hoping that it is quite here because everyone is out living their lives.
Wish me luck on #5. Everytime I go I have the same terrified feeling:(. -
Whatashocker - I am sending good vibes your way for #5 tomorrow. I have #5 on Thursday so we are both almost done. I have the same feeling of dread. I feel pretty good, especially the week before and it is very hard to drag myself in for more torture. But I guess we have to keep our eye on the prize. Good luck tomorrow...I'll be thinking of you!
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Whata and Kelly, I'll be with you on Thursday. #4 of 12 so I have a way to go.
I too have been thinking the same, hoping everyone we haven't heard from is doing well, keeping busy and living their lives.
I think the AC did such a number on me and so frightened me that I have become somewhat of a recluse. My social life consists of dr. Appts.
Yesterday I actually forced myself to go to the look good feel good class. It was good to be out with women who all understood and take our wigs hats scarves off and be comfortable.
I think it did lift some spirits, even if only for a little while.
Ok, a good day to all.
Laura -
Oh sorry Whata I just realized your #5 is tomorrow.
Be thinking of you.
Laura -
Positive vibes for you tomorrow Whata and for you Kelly for Thursday.
Laura that's great that you went to the program!
I had number 5 of 6 today. I'm a little scared because my liver enzymes were really high today. The nurse didn't seem too concerned but I have to go back next week for more blood tests. I didn't even drink at all on vacationI'm really scared.
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Markat, if the nurse wasn't to concerned than you shouldn't be either. Perhaps it is because you are doing chemo? I have low blood pressure, I have never had it before. That concerned me but the medical team wasn't concerned either. Onc said it is normal when doing chemo. Either it goes high or it goes low while on chemo.
Hope your se's aren't to bad. Good job on #5.
I think the liver works harder trying to process the chemo. -
Markat, my enzymes are high too. Weren't prior to chemo. Onc says its pretty common on chemo.
I will try taking milk thistle once done with txs. Supposed to help cleanse the liver.
Feel well,
Laura -
Hi Ladies! I had round 4 TCH on feb 16 and it has been downhill from there. My SE which were pretty bad got worse and then my hands started changing color. Went to the dr and the taxotere ended up creating some type of burn. It looks bad. So last week the dr had me scheduled for iv antibiotics for a week to avoid a skin infection. Started tuesday. On Wednesday I woke up with a slight fever but was going to go in and get my antibiotics within a couple hours so I did not call the dr. I just took a Tylenol. By the time I got there my temp was 97.5. I was fine one minute, then shaking uncontrollably the next. My fever spiked to 104.1. I was tachycardic, and an ambulance had to take me to the ER. My WBC was .5 and I ended up in the ICU for 2 days because my blood pressure was so low and I had bacteria in the blood and urine. I also had two blood transfusions because I was so anemic. I almost went into kidney failure. I got home last night. My body is really weak. I am having problems walking so home health is coming in and I am getting physical therapy. It's scary how to think I almost died on Wednesday. So, ladies, here's my PSA for the day: take your temps when you feel the chills, listen to your bodies, and communicate with your drs. Take care.
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