Chemo May 2011

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  • Elizabeth1889
    Elizabeth1889 Member Posts: 1,036
    edited January 2012

    Laureen, I happened to be thinking about you today and wondering how you were doing.  It sounds like you are doing well.  Good luck in pre-med classes.  You will have much empathy to offer your patients.

  • Patriotic
    Patriotic Member Posts: 281
    edited January 2012

    Hi everyone! Happy New Year. Glad everyone is doing ok, all things considered. Here's to putting this crap in the rearview mirror in 2012!

  • justme1
    justme1 Member Posts: 223
    edited January 2012

    Not sure how to ask but are u ladies having burning in your umm girl parts when u have intercourse ?  If so why ? and how can this be fixed ???

  • MamaV
    MamaV Member Posts: 907
    edited January 2012

    justme1 - it's probably from dryness.  You take tamoxifen right?  Fix it with LOTS of lube :)

  • twistedsteel
    twistedsteel Member Posts: 156
    edited January 2012

    Ask your MO about Estring, vagifem and scream cream... Do a search here for scream cream and the recipe for a compounding pharmacy to make w an Rx should be in the found postings somewhere

  • Cyborg
    Cyborg Member Posts: 848
    edited January 2012

    Hey KAT! Found out on Friday ( the 13th - boooo) that I am having round three of cellulitis! Agh! I have gone to my GP and I guess the whole medical field was thinking it wAs a result of rads and healing from rads...

    Anyway! Since going off of the Effexor my sex drive is much better. But I sure cried a lot!

    Now, I'm in an organization frenzy...

  • Beaglesgirl
    Beaglesgirl Member Posts: 287
    edited January 2012

    oh wow Cyborg I never even considered that my sex drive and my antidepressants were the connection. A very basic place to start, don't know why I didn't remember that! So glad you mentioned it. 

    Thank you so much Wink

  • MamaV
    MamaV Member Posts: 907
    edited January 2012

    Seriously cyborg - round 3?  you can't get a break!

  • justme1
    justme1 Member Posts: 223
    edited January 2012

    Tamoxifen isnt what i take but its like that does the same thing . I will try anthing to relieve that burning .OH me i just want a normal life back thats all.

  • Cyborg
    Cyborg Member Posts: 848
    edited January 2012

    I'm burning after sex too... Agh. Boyfriend looks happy though !

  • twistedsteel
    twistedsteel Member Posts: 156
    edited January 2012

    Seriously, ask your MO about estring.

  • 40-years-old-now
    40-years-old-now Member Posts: 309
    edited January 2012

    No fair... Pout

     I am on a no sex for atleast another 2 weeks. Already been 5 or 6.

    Had partial hip replacement because tumor in femur fractured it. I walked aroudn on it for 6 weeks broken ( as far as I can figure).

    I dont like my hip precausions.

    Need to find possions that dont bend leg more then 90 degrees, dont put leg out or in to far, basically keep leg straight and dont spreed the legs. Any ideas????

      I need some nookie!!!!

  • MargieC
    MargieC Member Posts: 394
    edited January 2012

    justme1---  I was having the dryness - burning feeling and my ONC and OBGYN (just happen to see both of the in the same week so asked them both) told me to use lots of lube - my OBGYN recommended old fashion KY - nothing with the "sensation" stuff.  It has worked great for me.

  • justme1
    justme1 Member Posts: 223
    edited January 2012
    i will have to go shopping Cool 
  • bak94
    bak94 Member Posts: 1,846
    edited January 2012

    So far no tamoxifen for me but the same problems, plus no desire whatsoever. I am on effexor and wonder if that is the problem. I only seem to be happy being lazy watching tv on the sofa! I think to much antidepressant can cause that, content with doing nothing.

    Laureen-congrats on work and school! I started back to school beginning of this year.

    Hi 39 years old, Cyborg, Justme, Margie, twisted, MamaV, Beaglesgirl, Patriotic Elizabeth and all others!

    How are the mastectomy girls doing? I still haven't started rads due to ongoing infections:(

    Cyborg, did you get cellulitis after rads? Is that an infection?

  • Cyborg
    Cyborg Member Posts: 848
    edited January 2012

    Bak94 this is my third round of cellulitis. 2 during chemo and one five months after completion of rads. But I'm better. Breast still needs to be looked at by BS. My Gp didn't write urgent on the referral. I hope you are in healing node and dong get this.



    I also had/ have deminished desire and I don't want to lose my relationship. Kinda worried about that!

  • pminxy
    pminxy Member Posts: 44
    edited January 2012

    To Cyborg and other fellow chemo patients endurers and fellow side affect Sufferers, Please don't let your lack of desire and other things get you down -for it is as you know the chemos fault not yours, Cyborg have you talked to your cancer team about this as there is help available to possibly kick start things and get things going- Also I know it is hard to get the other half to understand it is not you but the treatment because sometimes the handiest source is the easiest to blame-the other person not truly realising how devastating or frustrating this is for you! I am having palliative  chemo and it is as effective as killing chemo in killing or lowing natural urges that consenting people have.If you feel you can't talk to your cancer team first experiment with available options and then if that doesn't work take it to the next step though  I feel sad that you are in fear of losing your other half because of this I thing you need to talk to each other if you haven't already and maybe hatch a plan of your own even to kick start things or see where you are at-remembering that there are many forms of intimacy besides the regular one and they can be just as interesting/fun, I wish you love luck and laughter with everything and be good to yourselves Chemo is a destressing thing to deal with but its side affects are worse some times but remember for the most part they disappear in time.

  • 40-years-old-now
    40-years-old-now Member Posts: 309
    edited January 2012

    I must be weird. I have a great sexual desire; HOWEVER I am not allow sex because of the new hip. "dont spread your legs" . Even during chemo we had sex about every 3 weeks. UGGG

    But I do agree with depressed. I am depressed because I can do anything

  • 40-years-old-now
    40-years-old-now Member Posts: 309
    edited February 2012

    My baby turned 7 today!!!

  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited February 2012

    Happy Birthday Katrina!!!

  • Cyborg
    Cyborg Member Posts: 848
    edited February 2012

    Thanks for the encouragement . My breast infection . My onc doesn't think it's BC but he still wants to have me see BC and rule that out... WHAAAAAAT...

  • Beaglesgirl
    Beaglesgirl Member Posts: 287
    edited February 2012

    thanks for the encouragement pminxy! I agree with your sentiments- I was told no sex for 3 months after my hysterectomy in December. It is so important to keep the itimacy going while the sex is on the back burner. Its difficult but very important to the health of our relationships.

    Cyborg- I am so sorry this hiccup. Keep us posted please! 

  • Cyborg
    Cyborg Member Posts: 848
    edited February 2012
  • justme1
    justme1 Member Posts: 223
    edited February 2012

    hello Ladies

    Just checking in . I am doing ok got a few stressful things happening with my kids it takes the focus off me . But the worry seems to highten my bone and joint pain. My feet are still painful by the end of the day and not real good at the begining .I am keeping on keeping on .Trying to get used to my new me. Somedays i hate it i wish i had my old body back the one that i could walk /run and not be in pain .But it had cancer and that deadly so here i am cancer free in a painful body . I am alive .  I did line a appment up with a primary care giver  .I didnt have one never sick till this. Hope i can get some ease on my arm the one where i had a pic line has a catch in it sometimes i cant reach out . Yea my other arm is still sore from surgery and now this. I  am going to discuss the burning sensation i have in my umm woman area . If anything touches up there its burning not sure why that is ? I dont even know how to seach that on line.LOL Anyways hope your saturday is fantastic i am going to try and make the best of mine.

  • ---
    --- Member Posts: 197
    edited February 2012

    Hello Ladies,

    I am pasting the link to "I'm Gonna Love You Through It" video of Martina McBride - very touching.

     http://www.youtube.com/watch?v=WxIt70j_SPk&feature=share

    Laureen 

  • 40-years-old-now
    40-years-old-now Member Posts: 309
    edited February 2012

    Justme1- sounds like a UTI (urinatry track infection)

    I got the flu shot in Nov. Got the flu in Feb. UGGG!!

    The whole family. daughter had it worst. puking all night long for 2 nights. I took night shift, daddy took day.

    I am tire.

  • justme1
    justme1 Member Posts: 223
    edited February 2012

    39 year old   oh noooooooo sorry bout flu . I didnt get my shot hope  it passes us by. Bout me i dont think it is its just inside me trying not to get so graphic . sorry

  • MamaV
    MamaV Member Posts: 907
    edited February 2012

    Laureen ... Isnt that the best?

  • ---
    --- Member Posts: 197
    edited February 2012

    MamaV,

    Yeah, I really enjoyed that video:-)  Touched my heart.

    Laureen 

  • MamaV
    MamaV Member Posts: 907
    edited February 2012

    Laureen - hows your hair growing?  I measured today, mine is 2 1/2 inches in front and 2 3/4 inches in the back!  Really missing my long hair!

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