Early Stage Natural Girls!

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  • Kaara
    Kaara Member Posts: 3,647
    edited December 2011

    What really blows my mind are the people who put so much trust in their doctor that they don't do any research on their own for reinforcement, or don't even ask questions about the grade, or staging.  My friend had colon cancer and she knew nothing about her disease.  She did everything her doctor and family told her to do, and when she was done with treatment, went right back to the same old habits she had before...red meat...sugar....alcohol...carbs....and no exercise.  I asked if her doctor had suggested she change her diet and she replied "he said to do whatever I wanted".  Now there's a doctor I want to stay away from!  Fortunately she's still doing fine five years out.

    I don't see how a positive diet change or exercise program could hurt anyone.  If you have diabetes and have to control sugar and carbs, you do it as part of the treatment for the disease.  The same is true of cancer...control the things that feed the disease and you have further reduced your risk of recurrance.

    Definition of insanity..."doing the same thing you did before, expecting different results" 

  • Kaara
    Kaara Member Posts: 3,647
    edited December 2011

    Luna5:  You mentioned you have a hormone balancing specialist.  Are you still taking hormones after your dx and treatment?  I was taking BHRT and was taken off them when I got my dx.  My hormone specialist said wait until after treatment and we will revisit the issue.  My BS says NO WAY, and I know they are going to want to put me on anti hormonals which I am reluctant to take because of the SE's.

    I see that your tumor was hormone positive as was mine, so I'm looking for some feedback on the benefits of balanced hormones vs no hormones in the body.  I've been off mine for less than a month, and I already feel the symptoms returning...hot flashes...insomnia...irritabillity....low libido. 

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited December 2011

    Thermograms cannot be used to predict breast cancer. There is no predictive test for breast cancer. There are only tests that uncover risk factors  (not predictions) in individuals. And thermograms are not amongst them.

  • Kaara
    Kaara Member Posts: 3,647
    edited December 2011

    1Athena1:  Maybe "predict" is not the right word, but thermography is certainly able to show areas in the breast that might be suspicious of early formation of breast cancer.  It can accomplish this long before a mammogram can, and with less harmful SE's since there is no radiation involved.

    It would be "my choice" as a tool to use in the future, along with other diagnostic tools. 

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited December 2011

    And that's fine. I'm just correcting Leia's statement about prediction, because that is a strong and inaccurate word.

  • Luna5
    Luna5 Member Posts: 738
    edited December 2011

    Kaara ..  I did not do hormones until AFTER I had BC.  I went through menopause before age 45...not really exactly sure when as I had no big side effects.  Once about 11 yrs ago my gyno recommended premarin for some dryness but when I read that it is from pregnant mare urine, I didn't use it.  After all my research about BC ...  I wanted to know what my hormones were.  Turns out I had almost no (.4) progesterone which is needed to tell "bad" cells to commit suicide (apoptosis) and thereby balancing the estrogen.  I couldn't understand why an onco would push estrogen lowering meds if She/He didn't know what my estrogen was ... How would He/She know if the drug was working???  So for 18 months I supplemented with bio identical progesterone and lowered my estradiol and estrone with various supplements including DIM, I3C, Quercetin, etc.  I got them so low that my skin started drying and  aging quickly so then I added bio identical estriol which is the "good" estrogen (cannot convert into estradiol or estrone) because I need some estrogen.  I also added some bio identical testosterone because I had less than 5 and need around 70.  Need some testosterone for my brain.  My estradiol is currently less than 5 which is about the same as a 5 yr old girl and my estrone  stays in the 30s or 40s.  My doc says keeping it under 100 is good.  I believe if hormones caused cancer girls going through puberty and pregnant women would be getting the cancers, not post menopausal women like me.  I believe it is the balance that is important.  Pregnant women have tons of progesterone that balances their estrogen.  I almost completely avoid dairy and non grass fed beef to avoid all the fake hormones and antibiotics.  I avoid hormones in plastics and in lotions and cosmetics as much as I can...mostly use unrefined, cold pressed coconut oil as my main lotion and make up remover.

    Kaara I go to a specialist in bio identical hormones.  He is board certified in Obstetrics, Gynecology and Holistic Medicine.  He was a compounding pharmacist before he went back to Med Sch so has his own pharmacy.  He has written a few of books on hormones and is respected in the field.  He firmly believes that progesterone is protective against cancer and of course always monitors my D3 as well.  It is probably past time to  test my 2:16 ratio also.  In the old days BC was treated with progesterone or so I am told.

    Research progesterone and its function in your body.  It was an eye opener for me!  I think it is also referred to as the "feel good" hormone.  I felt fine already so I don't see a difference.

  • Sandeeonherown
    Sandeeonherown Member Posts: 1,946
    edited December 2011

    just joining now because I have decided arimidex is NOT for me...and since tamoxifen caused a blood clot (which caused a heart attack) last spring, just four months after starting it...I have not come to this decision lightly. It took my from the heart attack to October to process the idea of trying another hormonal....and then two weeks of walking around with the prescription in my pocket befor ei tried it...only took it for 7 weeks but my hands, chest, back and arms swelled...I have been incredibly fatigued and my sleep was lousier than the usual lousy....they put me on a NSAId for arthritis because of my back and hand pain...and with the heart meds I am not supposed to be on nsaids...i have been an emotionaly basketcase off and on for 7weeks...made some major decisions at the same time...partially based on how overwhelmed I was at the idea of taking arimidex. (ie. didn't buy the perfect house, quit a big part of my job and cut my stress in quarters)...anyhow, saw my breast surgeon for a one year post surgery chat and exam...told her what was going on and ended up in tears and she said 'go off of it'...agreed with my pov that it in my case it is a preventitive medication and if it is causing more crap than it is helping me then....don't do it...I felt so relieved...one week later,my fingers are almost the regular size..arm and chest are still swollen but it is coming down.

    So what am I doing instead?

    taking 4000vit d daily (I live in nova scotia); 1500 calcium and 750 magnesium; 100mg CoQ10, trying to drink the right amount of water...

    taking a dendelion concoction from my naturopath to detoxify and a valerian cocktail with my zopliclone to sleep....it has stopped me from waking at 4am...I go to a lymphodema massage therapist and do self massage as well....I switch bras and take off the wire ones when I get home (mainly in the last 7 weeks as the breast and chest area is swollen again...I surround myself with people I love and people who love me...I do my best to rid myself of unwanted waste thoughts and I lay in bed first thing in the amand review all the things I am grateful for ...including being alive.

    I have done the candidas diet before and it is hard but great..you feel great and energized. I am doing something similar starting in january...january because I have to get the juicer, get organized and be in my own hoome. essentually going to try Kris Carr's diet in Crazy SexyDiet...I figured out today that if I can beat cancer and a eart a ttack and marital breakup, I can lose 20 damn pounds and not eat things that are bad for me!.I need to go back and read through all of this but...thought I should say HI!

  • Kaara
    Kaara Member Posts: 3,647
    edited December 2011

    Sandeeonherown:  Congratulations...you have just taken charge of your life!  You go girl!  Sounds like you have been through a lot over the last year or so, and now it's time to take some positive steps to get your life going on the track you want it to go on. 

    When cancer kicked me in the head, I made a decision to change my diet and lifestyle, although it wasn't so bad before.  I'm on a gluten free diet, take most of the same supplements you do, exercise, do juicing daily, and try to keep my stress levels low.  I also have an app't with a holisitc physician to help me stay on track.

    You will get a lot of comfort and support on this site so I'm glad you joined.  

    All the best to you...have a wonderful holiday and a happy New Year! 

  • vivre
    vivre Member Posts: 2,167
    edited December 2011

    Sandee-Life is a never ending path full of forks in the road. Everytime we decide which fork to take, we change our destiny. All of us here have collided with a major detour. There is no right-of way to go fpr everone. There is only the path we each select. Even when we choose the wrong way, we can still keep going to the next fork. Every detour teaches us something that will help us to make a better choice at the next intersection. So way to go girl! You may have hit a lot of detours, but you still picked yourself up and keep looking for the right direction. You may have taken the scenic route, but welcome to the pathway to holistic health.Taking the steps to putting our lives in our hands is very powerful. 

    There is a lot of sunshine on this path. Soak it all up. And remember never look back, except to  learn.

    If I have learned one thing in the past few years that I truly believe with every fiber in my being, it is that no doctor, no pill or treatment can get us well and keep us safe from cancer. There are no guarantees of course, but I know that the human body is an amazing thing and every cell in us will thrive when it is nourished. Feed you soul good thoughts. Feed your body good food and you won't just survive, you will thrive.

    It is so great to be nearing 60 and feel better than I did at 25. I have no aches and pains. I am back to my wedding weight. I have leaned to let go of all the hurts and forgive and forget and appreciated all the gifts I have been blessed with. My only regret is that I did not choose this path a lot earlier. I sure took a lot of detours! But I love being on the path I am on now, and walking it with so many courageous women who understand.

  • painterly
    painterly Member Posts: 602
    edited December 2011

    I am due to have my estrogen levels tested in the next few weeks, but I noticed a gal reported on another thread that "there is no scientific basis to support the use of saliva testing"Frown

    http://en.wikipedia.org/wiki/Bioidentical_hormone_replacement_therapy#Salivary_testing_and_compounding

  • Kaara
    Kaara Member Posts: 3,647
    edited December 2011

    vivre:  Very well stated...thanks!

    painterly:  Scientific basis or not.....I had my hormone levels tested (for the first time I might add) through both saliva and blood, and then had BHRT compounded specifically for my needs.  I was on them for nine months before I got my bc diagnosis and I felt remarkable!  Prior to that I had been on synthetic estrogen for 20 years, and I always had some kind of symptoms and didn't feel right.

     Of course, now I have been taken off the BHRT because my tumor was HR/PR+.  I'm still not convinced that eliminating all the estrogen in our bodies is the answer to keeping our bc from recurring.  I am going to be meeting with a naturopathic doctor tomorrow and and I will ask him about this and report back what I've learned.

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited December 2011

    Kaara, am glad you found my Einstein quote so interesting that you posted it here.  Very intuitive of you.

  • Sherryc
    Sherryc Member Posts: 5,938
    edited December 2011

    SAndee good for you for taking charge.  You have had some bumps in the road for sure.  I hope the DIM and other things work for you. And remember your 24 hour rule.  You are always good about listening to your body so this adventure will be a good one for you.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited December 2011

    Kaara - taking HRT can cause breast cancer - 20 years is a long time to be on it.

  • Sunny-One
    Sunny-One Member Posts: 2
    edited December 2011

    HI - I just joined a few hours ago and have been reading and learning ever since.  One of the questions  have is about flax seed / flax oil. I read a book by Dr. Johanna Budwig, a German chemist and cancer doctor who devised this "smoothie" to eat every morning.  The phytoestrogen's in the ground flax help protect the breasts by producing the same effects as anti-estrogens (such as Tamoxifen).  I was prescribed Tamoxifen then began reading non-toxic ways to prevent recurrance stopped taking it.  Also a Canadian (woman) doctor prescribes 2 tbsp. of ground flax seed in her "breast cancer muffins" and it slowed down tumour growth.  Everything I've read and researched has said that (freshly ground, organic) flax seed / organic flax seed oil gives a protective effect of alpha-linolenic acid.

    Last week I went for thermography (rather than a mammogram, as mammogram's have so much bad press about radiation, and with 16 rounds of radiation 2 years ago I decided this might be a safer examination).  The results came back with a neutral (which is good) but the tech. who did the pictures told me I should avoid flax, because of the phytoesgrogens, same as soy.

    Does anybody have knowledge about flax and breast cancer - whether it is good or bad?

     Also I am very please and grateful I discovered this forum.  The book I found this website through is Bill Henderson's  Cancer Free - A Guide to Gentle, Non-Toxic Healing.

     Thank you

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited December 2011

    FRom what I've read flax seed is ok for triple negative bc but a big no-no for the positive receptor bc.

  • Titan
    Titan Member Posts: 2,956
    edited December 2011

    I have heard that Blue...I'm triple negative so I take flaxseed...I wouldn't take it if I were er/pr positive.

  • stage1
    stage1 Member Posts: 475
    edited December 2011

    Sunny, there is a flaxseed thread on this site, I think two threads.  I took flaxseed oil for dry eye for two years before I came down with BC.  My doctor says not to take them, the evidence is inconclusive.  Talk to your doctor, most don't know too much about supplements, so you have to do your own homework, there are studies.  I decided not to take them anymore.

  • stage1
    stage1 Member Posts: 475
    edited December 2011

    I agree with Titan.

  • Luna5
    Luna5 Member Posts: 738
    edited December 2011

    Sunny-one  I have read and read and even bought organic flax seed and a grinder and then decided not to use the flax because ... I wasn't doing the total Budwig protocol .. and anytime I find a lot of oposite info like you do with flax and soy ... I avoid them.  There is so much else that is good and proven.  Example:  I can't find any negatives on curcumin/tumeric ... so I do tons of organic tumeric and also take a good brand of bio curcumin.

  • stage1
    stage1 Member Posts: 475
    edited December 2011
    Good advice, Luna5,So much contradiction, what we have to deal with, trying to figure out what's what when it comes to good for us or not good for us.  Common sense must prevail.
  • Kaara
    Kaara Member Posts: 3,647
    edited December 2011

    susieq58:  That's what my integrative doctor said yesterday...20 years on synthetic hormones will give you higher risk for bc.

     He prescribed iodine for me to take twice daily, vitamin C and another vitamin I can't spell for immune boosting, and I am going to begin getting a weekly infusion of antioxidants which will keep my body strong and able to fight recurrance.  He's not a fan of rads, particularly since my bc is on my left side where my heart is and I have a mitral valve prolapse.  I would be putting myself at serious risk unless they can figure a way to do it without involving my heart.  I'm getting two oncos opinions, but right now I'm leaning towards not doing rads.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited December 2011

    Kaara - I only took them for 4 years but I was on the pill for many many years before that, so that's what I blame. The pill is 5 times the strength of HRT. My surgeon said that highly ER receptive BC is an indicator it could have been caused by the hormones - both of mine were way over 90%

  • Kaara
    Kaara Member Posts: 3,647
    edited December 2011

    susieq:  That too..I was on the pill for twenty years before I went on HRT after my complete hysterectomy!  I had a double whammy...but was still able to keep bc at bay until I had a series of illnesses several years ago that put me over the top.  

    I am keeping my body in optimal condition now to prevent that from happening again. 

  • Kaara
    Kaara Member Posts: 3,647
    edited December 2011

    luna5:  Thanks for that information on progestrone.  I also had zero in my body when I was evaluated by my bioidentical doctor last March.  He put me on progestrone and an estrogen patch and took me off the synthetic.  I was feeling just wonderful until the bc dx and then he wouldn't renew the prescription:(....said we would revisit later, which translated, means he doesn't intend to do anything.

    My new integrative doctor is cautious, but said he believes that a combination of progestrone and estriol would benefit me; however, he wants to see my blood work and some other things before he makes that decision.  He's got me on infusions of antioxidants and I'm taking iodine and some other supplements to prevent recurrance.  I'm also getting a termography scan to make sure there aren't other suspicious areas lurking.

    I feel like I'm moving in the right direction and doing everything I possibly can to keep from having a recurrance. 

  • Sherryc
    Sherryc Member Posts: 5,938
    edited December 2011

    We celebrated most of our Christmas last weekend.  I got enough money that I am ordering my water distiller today.  Can't wait as I have wanted one for a long time.  We have really crappy water here. I have been using a whole house filter system that looks gross when you change the filters but even with that we still have bad water. I think I may have enough money left over to purchase a cheaper juicer and start some juicing.  I'll wait and see on that one.

  • Kaara
    Kaara Member Posts: 3,647
    edited December 2011

    Sherryc:  Just a suggestion...don't buy a cheap juicer because you won't be satisfied with it, and they have so many parts they are hard to clean.  I like the Omega juicer or the Champion juicer...both work very well and will grind up everything but the kitchen sink with little or no difficulty.  You get lots more juice too, so in the end, you don't use as many veggies and fruits.  It will pay for itself in the end.

    I have to get a water filter...my integrative doctor has stressed this many times.  I'm going to look into it after the first of the year.

    Whatever you decide, good luck, juicing is wonderful...nutrient dense...my doctor calls it. 

  • FLwarrior
    FLwarrior Member Posts: 977
    edited December 2011

    Sherryc, What a great way to spend your Christmas money!  Please let us know how you like the distiller.  I also think it would be nice to have a distiller. I hope you are very happy with it. 

    Have you thought about what type of juicer you would get if you have enough left to buy one?  I have one of the lesser expensive juicers.  I bought the Jack LaLanne Power Juicer and it works great, but it is a "pain" to clean...too many pieces.  Because of that I don't use it as often as I should.  It does work very well though and retails for about 100 bucks.

  • Sherryc
    Sherryc Member Posts: 5,938
    edited December 2011

    Thanks for the thoughts on juicers.  I will just have to wait and see what I can afford and maybe wait just a little bit and save some money so I can get a really good one.

  • MariannaLaFrance
    MariannaLaFrance Member Posts: 777
    edited December 2011

    I was also on birth control pills for 11 years prior to BC diagnosis. Strangely, when I asked my OB about the prescription (which we changed from a high progesterone dose to a higher estrogen one), I asked her what the risk was with taking a pill with higher estrogen.  

    Her words "Slightly elevated BC risk."

    Though the Birth Control was convenient, I do regret taking it for so long. 

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