Early Stage Natural Girls!

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited December 2011

    I read somewhere on these threads that if you do rads it takes awhile before you can get an acurate themography because the radiation shows up as heat activity on your breast.  I can't remember who posted that.

  • peggy_j
    peggy_j Member Posts: 1,700
    edited December 2011
    Re: do bras cause breast cancer? 
    I first heard this 15-20 years ago, that wearing a bra and/or an underwire bra put you more at risk. After investigation, it appeared that this is a correlation, not a cause, that women with larger breasts are at higher risk for BC (and more likely to wear bras and underwire bras).
     
    Here's a NYTimes article: Q & A Bras and Cancer 
     
    I could not find a single study on PubMed that looked at whether bras cause cancer but I found this: 
    A prospective study of breast size and premenopausal breast cancer incidence. 
     
     
    BTW, if you believe Wikipedia, they discredit the authors of that study and book. There maybe other sources/opinions but FYI.
     
    Dressed to Kill is a book by Sydney Ross Singer and Soma Grismaijer that proposes a link between bras and breast cancer. According to the authors, the restrictive nature of a brassiere inhibits the lymphatic system. The book's claim that bras cause breast cancer has been dismissed by the medical and scientific communities; the National Cancer Institute,[1] the American Cancer Society,[2] and the National Institutes of Health[3] have all concluded that there is no link between bra use and breast cancer. 
     
    (wikipedia includes the sources of footnotes if you want to read the studies) 
  • Hindsfeet
    Hindsfeet Member Posts: 2,456
    edited December 2011

    impositive, have you heard back about your scans? How do you think your IV treatments are going? Keep us posted as I maybe following your treatment plan...who knows?

    Princess, how are you doing? Just want you to know I'm thinking of you...and appreciate all your imput and encouragment. Stay strong :)

  • Luna5
    Luna5 Member Posts: 738
    edited December 2011

    Looking into cleaning up my water....ADVICE???

     Anyone have any experience with the water ionizer... Tyent 7070

    What do you recommend for the healthiest water???

    Thanks

  • MariannaLaFrance
    MariannaLaFrance Member Posts: 777
    edited December 2011

    Where did Princess123 go? I hope that all the BS did not drive her away.

  • Hindsfeet
    Hindsfeet Member Posts: 2,456
    edited December 2011

     2007, 2008 dx dcis highgrade, Jan 2011, mucinious stage 1, Sept 2011, IDC high grade her2+ (3+)er + pr+
    Diagnosis: 10/4/2011, IDC, Grade 3, ER+/PR+, HER2+

  • Kaara
    Kaara Member Posts: 3,647
    edited December 2011

    It is disappointing that princess would leave and allow those who have a bullying mentality to try and steamroll over this thread.  She had much to contribute, and I really felt that I received valuable information from her that was useful in my decision making process.

    People who use an intimidating and bullying demeanor to get their points across have just not matured to the point where they can have an intelligent debate without resorting to these kind of tactics.  This is the set of skills that they possess, and they use them freely for as long as they can gain ground by doing so.  Sadly, this is going on all around us...it starts in very young children, and if not stopped, continues well into adulthood.  Many times, several will gang up and single out someone who they perceive as weak and target them over and over....sad....because on a site like this, people are here to find support and comfort, not to just make comments on news articles and such.  Anyone engaging in this type of behavior on BCO should be prevented from making further comments.  I'm surprised it is allowed to continue unchecked, but in spite of that, there is a way to deal with it.  

     I have encountered this on other sites like Newsvine, which is geared to business and political news.  On that site, if you encounter someone who is using these tactics over and over, you can choose to "ignore" them, which means that you can eliminate any of their comments from your viewing.  I see you can do the same on here, so if I was bothered that much by the intimidting tactics, I would simply use that option.  Don't allow yourself to become a victim of these predators.

    I'll use a short story to make my point here.  I attended a seminar once where we engaged in an exercise whereby we were paired up with a partner and asked to tell a story of how we were victimized by someone else.  Everyone has one!  The key to the exercise and the aha moment came when the leader requested that we tell our story once again, but tell it from the perspective of "how we set ourselves up to become the victim"!  The message is that in most cases there are no victims...just people who set themselves up to become victims.

    Let's not let this thread become a victim of those who don't want this information to see the light of day! 

  • impositive
    impositive Member Posts: 629
    edited December 2011

    Evebarry,I am doing well!  I have 7 more days!  After that I will schedule my PET scan to check my progress.  I haven't been to my "blog".  I will be posting in more detail there about things.  I have been reading though!

    Luna5,  I have a Tyent 7070.  I like it and would recommend it except that the filters are expensive.  It costs me around $100 to replace them and because our water is really rusty, etc. I have to replace them more often than the recommendations say.  We are on a well so I also have to have a "re-mineralizer".  I found this out because I wasn't getting a high enough pH reading on my water testing.  They told me my water softener is taking out the minerals in the water and in order to get the high pH, you have to have minerals.  I chose the Tyent because during my research, it got the best reviews from customers and 3rd party testers.  Make sure when you do your research, you also check into the cost of filter replacement. 

  • Sherryc
    Sherryc Member Posts: 5,938
    edited December 2011

    Luna I have not done anything about my water yet exept I do have a whole house water filter system.  But one of my really good friends who is in to alternatives purchased a water distiller and they swear by it.  The one they got is all stainless and distilles one gallon at a time.  Takes about 4 hours.  They keep plenty distilled on hand. I don't now how that would compare to water with PH

    I am so sorry that Princess23 felt she needed to leave.  I found her information very valuable.  I don't always post alot on here but I do read what all of you contribute and appreciate the information very much as I am making baby steps in making changes.

  • Leia
    Leia Member Posts: 265
    edited December 2011

    impositive, as I wrote in the Thermography thread, I had my first thermogram in Setember. And I agree with you, the experience was incredible. Not pleasant no test is but way better than any mammo that I have ever had And the test, itself, is so much more rational.

    And again, to explain it, the thermogram is a predictive test. Do I have the POSSIBILITY of breast cancer. While the mammogram is a diagnostic test. What kind of cancer is it?

    In a sane world the thermogram test comes first; do I have the possibility of breast cancer? Because the thermogram can prove that conclusively; are there "hot spots" on the thermogram showing increased blood cellular activitiy. Which is a known indicator of a forming cancer. Any cancer needs blood vessels, to grow. And the thermogram will reveal them. 

    If the thermogram reveals no such "hot spots," the liklihood that you have cancer is nil. But if you do,THEN you should get a mammogram. To figure out what is going on. What is causing, the "hot spots."

    Today, it is all backwards.  It is the mammograms, first. Which then has created this entire universe, of problems. I've heard, 80% of "questionable" mammos, are nothing. Yet they all require additional mammos and biopsies. And then, some small subset of those are actual cancer. 

    We should just start with the thermogram. And eliminate the 90% of the women who don't have cancer to get to the 10% who might benefit.

    The thermogram is what I'm doing, from now on. 

  • Leia
    Leia Member Posts: 265
    edited December 2011

    Bras causing breast cancer?

    I don't think so. But one result of my breast thermogram, in September, the thermo images showed my breasts as mostly blue/green; a non-cancerous state. But the rings underneath my breasts, were yellow. Not red, which is bad, but yellow. And the thermo report said that could be caused by underwire bras, which I had been wearing, constricting the drainage of my lymph system.

    Our lymph system is the sewer system of our bodies. The drainage, for all of the bad stuff. And if our bodies can't drain out the bad stuff, through our lymph system, not good.  

    So,I don't wear underwire bras, anymore.  I went out and bought some GENIE bras. 

  • Luna5
    Luna5 Member Posts: 738
    edited December 2011

    Thank you Impositive and SherryC.  I am still very torn as to what to do about water purification.  I also know that the 3rd idea is reverse osmosis and I don't know for the money which is the best for our health.

    Any more info from those of you who have done research on this????

    I'm hoping to get moving on this in January.  I don't know why I haven't gotten to it sooner as it is so important.

  • FireKracker
    FireKracker Member Posts: 8,046
    edited December 2011

    Leia-Do you like the Genie Bras??????

    I bought them a while back and i loved them....then when my breast hurt i couldnt wear them.now im back to them....they do fit kinda funny BUT its cut so low under the arm that its actually the only bras that work when it hurts from the SN biopsy....go figure....i must have 25 bras BUT no underwire and the Genie is the nicest lookin ones i have....hope you like them too.

  • MariannaLaFrance
    MariannaLaFrance Member Posts: 777
    edited December 2011

    I need to try to find another type of bra. Mine are so uncomfortable on my radiated side that I only wear it when necessary (exercise or when I am out and about).

    Kaara- agree on the bullying issue, and it seems that it follows the "Mean Girls" behavior (which is a hilarious movie, BTW)..... even in the grown up world. There's always a leader and a bunch of henchwomen that gang up to support, seemingly with a "cause" in mind.

    I find it interesting to watch, since I get a kick out of watching group behavior (having 3 kids of my own allows me to watch a whole lot of bullying scenes play out on the playground), and how it always evolves the same way-- leader makes a stance, feels morally obligated to make the stance. Followers flock to protect her/him and to pelt others who don't feel the same way with attacks, always with the same, supercilious smugness and sense of righteousness. 

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited December 2011

    It also appears that sometimes people are projecting and misinterpreting the bullying.  Different people have different ways of getting their ideas out.  I know we all have choices, but I'm sorry to see sisters on this site giving other sisters who are in a very bad cancer position, very bad advice.  Actually encouraging her to forego life saving treatments.  Of course, I will now be considered a bully, Right?

  • MariannaLaFrance
    MariannaLaFrance Member Posts: 777
    edited December 2011

    I think it's more about the argument. If you gave a sh&t about the outcome, you'd just leave people alone to make their own, educated decisions. Or uneducated decisions. It's not up to a small group of women to decide what protocol is right for all. Nor is it right to impinge on others' ability to have a discussion about an alternative point of view. And yes, the Mean Girls spirit is involved in all of it, from start to finish. I've watched people get dogpiled on the back of the bus, and it's not right.

    I mean, how presumptuous is it to think that by people reading about alternative treatments that their lives will be radically altered.... but oh, wait that is what you and your brigade are about? Saving those poor lost souls? That is misguided at best.. 

    I've had it with all the hostility. I used to come here and learned a lot about BC and treatments, but it's sickened me to watch all of the pontificating, the "scientific" links and the great facade of knowledge that crew has pretended to own. None of us knows WTF causes cancer, and none of us really cares to be treated like children who cannot make their own decisions.  All of us are here because we're scared sh&tless about the future and what it might hold healthwise, not for some petty, pandering arguments about treatment protocols. 

  • Luna5
    Luna5 Member Posts: 738
    edited December 2011

    I haven't been on these threads enough lately to know what was going on and why the person left.

    But ... the proverbial but... I do know that any person who comes on Early Stage Natural Girls or Natural Girls or any of the other alternative or "Natural" threads is looking for that point of view.  They want information from that point of view to help them choose.  It is pretty obvious that we are all picking and choosing and deciding what we think best suits us.  It is a shame if people who have done a lot of research and are providing great links that save others' time are being run off. It takes FOREVER to research and sift through all the studies when you are first diagnosed and overwhelmed.  Back in 2009, I googled and googled but the ladies and a guy named Timothy were also doing the same and everyone was sharing.  This place is why I was able to choose and be happy about my choices.  There are people on these threads including Whippetmom over on Exchange City to whom I owe so very much.

    Whatever you guys are referring to .... please, please keep in mind that a person would not surf the natural sites if they didn't want to hear from the adamant proponents.  Sometimes, they are looking for the excuse to do what they believe they should do even if it means going against other advice they are getting from docs or concerned family or friends.  I did that with Tamox.  I wanted to hear all the reasons not to do it to justify my plan to not do it.

    I don't know how it is now, but way back anytime someone mentioned Suzanne Somers people would come over from other threads and berate them for reading her stuff.  So, then people start new threads in an attempt to stay on the topic they want without interference from people who already have threads pertaining to the topics they believe in.

  • Leia
    Leia Member Posts: 265
    edited December 2011

    grannydukes, I love my GENIE bras. They support me, yet they are comfortable. And I like it even more that they are not constricting my lymph system. As the underwire bras, used to do. 

    Win/win! 

  • Fighter_34
    Fighter_34 Member Posts: 834
    edited December 2011

    I keep hearing great things about the Genie Bra. I am going to give it a try.....

  • thats-life-
    thats-life- Member Posts: 1,075
    edited December 2011

    Hi all. Just wanted to add that I have found this thread very helpful too. Princess presented information in an easy to understand way and backed her posts with links that could be assessed and discussed in an atmosphere of friendship. I am sad she is gone too. One of the main topics to be discussed at the San Antonio BC Conference this year is study results that confirm that diet choices can not only increase risk of recurrence, but can cause recurrence. Therefore Bluedahlia, what constitutes a life saving 'treatment' ? Our discussions on the Alt thread may save lives too. A website solely for the purpose of encouraging toxic therapy and 'supporting' each other through it, may become obsolete in the future, as toxic therapies are replaced with less toxic treatments. It is sad to consistently lose the valuable input of women like princess. And have the boards dominated by those who are years beyond treatment and use this site as a recreational dumping ground. Especially as most of those who 'dominate' this site, refused toxic therapy, or didnt complete the course.

    I hope this thread can continue to educate and inspire change.

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited December 2011

    I rarely wear a bra.

  • Fighter_34
    Fighter_34 Member Posts: 834
    edited December 2011

    ^^True. I must say it feels so much better. Prior to my BMX I was a triple D this is the first time in my life where I don't have to wear a bra unless I want to.

  • FireKracker
    FireKracker Member Posts: 8,046
    edited December 2011

    just a few wrds on the genie bra.....the good,the bad, and the ugly.

    a while back there was a thread about the genie bra....i was in sooo much trouble with any bra that i ordered them...there was a lot of bad press about them too.and the return policy was supposed to be impossible...i ordered them anyway...out of desperation to keep trying to find comfort...at first i loved them....then i hated them....at first they were comfortable and was tellin everyone to get them.then they started to bother me so i stopped wearing them.i was sooo angry that i gave my GD 2 of them.NOW i tried them once again and im in love once again.....

    bc the gift that keeps on giving!!!!!find a damn cure.enuf!!!!!!!!!!!

  • Kaara
    Kaara Member Posts: 3,647
    edited December 2011

    I have to look into those genie bras...never heard of them before.  I'm wearing a bra now that the hospital gave me..a sports type bra.  All I have is underwires.  The surgery went fine and I am now home awaiting the pathology report to see if SN is negative and the margins are clear.  No surprises the BS said...all went as planned.  

    The night in the hospital was a three ring circus.  Nurses coming in and out all night and leaving the lights on (hey, what about the patients!) and I didn't get much sleep.  I asked for pain meds praying that they would put me out so I wouldn't hear all the commotion!  Glad to get out of there today.  Oh...and they lost my clothes...really!  My boyfriend had to bring me more.

    A sad story...the woman in the bed next to me was dying of lung cancer...the poor thing was coughing so bad and could hardly breathe.  She couldn't even sit up by herself, could barely talk, and her doctor brought a portable treadmill into the room and wanted her to get on it and exercise before they took her for her chemo infusion!  A little late for that I think!  I wanted to scream "YOU'RE KILLING HER..WHAT IS THE POINT".  Her daughter was there and we talked.  She asked me if I thought hospice would be a better option at this time.  I told her, of course, because her mother would be made comfortable, with no pain, and have some quality of life before she passed. 

  • vivre
    vivre Member Posts: 2,167
    edited December 2011

    I rarely wear a bra anymore. It is good for the the lymph to get a little bounce going, and since I lost weight, and got half my breast sliced off anyway, who cares if the girls don't sit up anymore. I wear small tshirts and cammies most of the time.Heck in another lifetime we burned our bras. Who needs the damn things.

    As for the controveries. I wonder if it will ever stop. I have been around here for years and the attacks on those who have gone holistic are non stop. It is such a shame. I will never understand why some people will not allow others to think outside the box. Why is it considered bad advice to tell people what I have been doing instead of drugs? Why are we accused of putting other people at risk for suggesting nutrition, supplements, or other holistic alternatives? I have learned that you can not only survive breast cancer, coming to terms with bad habits and being diligent about my choices has allowed me to thrive, with no drugs. I feel better than I have in decades, and I owe that to the choices I have made, against doctors orders. I have no fear of breast cancer returning because I know my body is healthier than it was before. So shoot me for telling others that alternatives work!

    There are people here who just want to drive off all the "natural girls" with harrassment. I will never in a million years understand their motivation. In fact, I will never in a million years understand why anyone would even bother to read this thread if they do not believe in this stuff. I do not bother to read any of the other threads, because I am just not interested in other topics.

    I first came here four years ago, looking for women's experiences with arimidex, which my doctors were pushing hard for me to take, but every bone in my body was resisting. When I read about how miserable women were with the side effects, I tossed the pills, and checked out those who were talking alternatives. The animosity was horrid, but there were woman who shared in spite of the threats. So even though I am so incredibly healthy now ( thanks to alternatives) I pop in now and then to encourage others to never stop fighting for what your own intuition is telling you is a better choice for you. Listening to that little voice got me to the doctor early, even when a mammogram did not show anything. I followed up on a lump I felt and it saved my life. I followed up on that little voice that told me there was a way besides drugs and I am so happy that I have no joint pain or premature aging brought on by the effects of arimidex. I can run up the 20 story tower in my town, walk miles without a problem and bike all afternoon with no pain and I am pushing 60.

    It is our body. We have every right to choose what direction we want to go.

  • vivre
    vivre Member Posts: 2,167
    edited December 2011

    Kaara-That story is so sad. I will never understand why they poison people who are in such bad shape, when they know it will not prolong their life. I met a guy a few months ago who had stage 4 colon cancer and was told he had weeks to live. He refused any traditional treatments and went to a local nutritionist friend of mine who follows the Kelley Gonzalez protocol of a diet that is condusive to his metabolism, coffee enemas, and pancreatic enzymes. This man  is alive and thriving after 2 years! In fact, he says he never felt better in his life, and there is no tracable cancer anywhere. Hearing him tell his story was so inspiring, yet people will call my nutritionist friend a quack for daring to say nutrition will cure you, so he has to go under the radar to protect himself from the FDA. It is really shameful.

  • Kaara
    Kaara Member Posts: 3,647
    edited December 2011

    vivre:  I learned a long time ago that it is what it is.  It is very hard for people to change their paradigms (old ways of thinking)  and think outside of the box.  I no longer try to sway them over to my belief, but in turn, I would not let them attack me or turn me away from what common sense tells me is the right thing to do.

     It is so inspiring to hear stories about people who have been on death's door and survived in spite of everything they have been through.  Thanks for sharing that.  I would rather hear about someone who is a walking, talking testimony than all the "science based" evidence you could give me.

    If the information we share on this thread helps one person, it was worth it, so we should just keep on keeping on and just ignore the attackers.  After all, they can't start a fight in an empty room! 

  • Luna5
    Luna5 Member Posts: 738
    edited December 2011

    The title of this thread is Early Stage Natural Girls!  Please don't come here and ruin it for the rest of us when you belong on another thread.

    Thank you.

  • Heidihill
    Heidihill Member Posts: 5,476
    edited December 2011

    Hope it's ok for me to post this here. I saw a device at the pharmacy the other day which is being marketed as a breast awareness tool for home use by a British company.

    http://www.youtube.com/watch?v=ota01GTrtes&feature=related

    Anybody heard about this or used it? It's not a replacement for a mammo, its proponents say.

  • Kaara
    Kaara Member Posts: 3,647
    edited December 2011

    Very interesting!  Thermography is also a good early detection tool, but here in the good ole USA insurance won't even pay for it!  I'm planning to start getting those in advance of my mammos in the future.  I don't care if I have to pay....if I can find something several years before a mammo can find it, it is worth the price.

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