DIEP 2011
Comments
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I had stage II on MOnday, just came home today from New Orleans.. I spent two nights in the hospital, had 5 drains... Now I am down to three drains and pain has subsided quite a bit... YAY!!! I think things look good.. I will wear nipple pretectors for three weeks and compression garments for 6 weeks (for optimal outcome).
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Betsy -- Hurray for being done with stage II! Did you have a lot of lipo done? Where does it hurt most?
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yes, lots of lipo... abs hurt, love handles hurt, legs hurt, butt hurts... should I continue?
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Betsy, I'm a few weeks behind you for stage 2, with lots of lipo in the plan. I hope things improve fast! Please keep us posted on your feel-better progress. I'll have a 3-hour drive after discharge, so I'm very interested in your opinion about feeling up to travel.
Carol
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Yahoo, 10 days post surg and I'm drain free! Looking forward to sleeping on my side again, and having more clothing options.
And most of the hard area I felt in the boob was actually the drain - silly me. the rest PS said was from the sutures, and it would soften. I have some numbness around my abdomen- he said that would resolve over the next few months as well.
Happylibby- soft and jiggly- doesn't get better than that!
snobird, hope you're healing nicely. what a warrior- only ibuprophen and tylenol!
xo
mgm
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mgm1953
I can stand pretty straight - I definitely feel pulling but not too bad. My noob looks like the hamburger bun that I've read others on this site say they had. I have some skin bruising issue that my ps is going to fix today. She's going to remove that piece of skin, she doesn't think it's going to make it. She is doing this in her office later this morning, I'm a little worried about pain but she doesn't think I'll feel it - Yikes! She's going to drain some fluid too. My drain came out last week because it was only putting out 7cc's a day but after it came out I've gotten quite full and firm.
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Definitely not as much pain from stage 2 for me anyway. The chest is tight from the bandaging but no real pain. My lower abs and hips have the most but nowhere near what stage 1 was. Ibuprophen and Tylenol are working just fine. Narcotics make me nauseous so I would rather not take them if I can get away with it. The anesthesia really dried me out this time so I was a drinking fool yesterday. Drink and pee all day while driving home. Good thing we stopped at every service stop along the highway. Tomorrow is the unveiling so I'll see how everything turned out. Right now I am swollen and bruised from what I can see.
Happy Thanksgiving everyone. -
db, I had some skin die, and removal was painless--no nerves there.
It took quite a few weeks for the area to heal, and some experimentation. At first PS had me putting silvadene on it, which is a messy affair (multi layers of gauze to keep the silvadene from oozing through to my clothing). But after a few weeks of silvadene, PS concluded that wound healing wasn't making much progress. He said that sometimes, silvadene (which is an anti-bac, anti-fungal used mostly for burn victims) hinders healing, and the do not know why. So, he switched me to covering this very raw area with A&D ointment and wow....healing went into turbo mode, and every day I could literally see the wound getting smaller.
Now I have scar tissue, which is thicker and a different color from my skin. I have been covering it with silicone strips made for flattening and fading scarring, which apparently takes 6 to 8 weeks of faithful application. I am about 3 weeks into using the strips (do not do this without your PS green light/ you want to be sure the area is completely healed first!).
I can say that the scar is already much flatter, although I still see a pretty big color difference between this area and the surrounding skin.
By the way, did anyone explain why the skin didn't make it? My BS told me that scraping skin in a skin-sparing mastectomy is a manual process, and that it's very difficult to be aggressive enough to remove the breast cells, without inadvertently scraping too thin in spots. My PS told me that I had been particularly at risk because my breast skin was quite thin, being stretched through weight gain over the years when I became quite large (D cups). I am still very, very happy with the outcome of my surgery, and at my age (57) some scarring is the least of my worries!
You might ask your PS to give you a thorough description of what to expect to see as your wound heals, and how to help nudge it along. Maybe your skin bruising is less severe than mine was and you'll hear faster and with less scarring. Hope so!!
Carol
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Snobird, your story and others read like a novel. I cannot wait to read the next installment after your unveiling! Thanks for all the details. I am on the edge of my chair reading, because I have stage 2 in a few more weeks. --Carol
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Carol... I had blisters and very raw skin after MX, and it was explained to me that the scraping from the MX caused the rawness/blisters... that te BS just got too thin... Ultimately, the skin scabbed and was black... I had other problems, like my incision opening etc and they had to do a wound surgery... so at that time, they removed the skin and replaced it with ab skin (redoing the right side with a DIEP flap after hip flaps originally)... at stage II, the PS removed the ab skin and now I only have one vertical scar... It is amazing what he did and the final outcome.
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Betsy,
I had the same black-skin experience; I think they call that an eschar. Then silvadene, followed by debridement, then weeks of A&D, and on and on til it finally healed. I am fascinated that in stage 2 when your PS removed the ab skin you ended up with no visible skin difference, except the one scar. That is amazing!
I did not have any replacement skin, as I fortunately did not have your experience of needing to have a second flap, so I suppose I'm just going to live with the scars, which is no big deal for me. DH was at first a bit mortified by the healing in process (it got pretty ugly there for a while, that black scabbing), but now it's just part of the landscape. What we go through! And my surgery was all prophy, so I am in awe of you and everyone else who had all bc treatments in addition. Sounds like you're on your way to being finally finished with all of the above.
Bravo for you!
Carol
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Hey all - 10 days out of surgery (this was proph UMX and double DIEP)... discharged after three nights, drains out on eighth day, almost completely upright yesterday on day nine... all in all, much easier than first UMX with TE placement. Slept on side last night and almost all pains are gone- just bloated feeling from the tight tummy... my toobs (tummy boobs) are pretty cool although will definitely need phase two... looks like the skin graphed nipple on the original cancer side will make it too... all in all I think my PS is incredible.... Think that since no lymph node work was done this time, this surgery was much easier...
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Congrats JustV!
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Hi Just_V,
Just a thought, but did your PS give green light to sleep on your side so soon? Mine insisted I wait a few weeks; cannot recall exactly how many--maybe three? Fear was pinching the newly connected blood vessels. PS's instructions seem to differ widely, so maybe yours has a different opinion on this, but if nothing was said, it might be worth a call to double check.
But sleeping on the side was indeed heavenly once I got there!
Carol
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Betsy - just curious - when he removed the ab skin, did he just pull that area together then, because what would he replace it with? As i said, just curious. And amazed at these guys! Glad you are home and done!
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Amy, yes.. it is amazing. In August when he patched me with ab skin, it was about a 2.5 width of skin, and I assumed I would always have the breast skin and ab skin, with all the scars that comes with that, but at stage II, he somehow pulled the skin (during a lift?) to have the breast skin meet breast skin, eliminating the ab skin altogether... Magical!!
Just V... I agree... I was told not to side sleep for 4 weeks, not only due to blood supply but for possible distortion of the flap... but was yours the TRAM? Maybe when the blood supply comes from the muscle and not local vessels may be different.
Carol... yes, it is amazing. I had the debridement in August... what a mess beforehand... I wasn't sure that black scab would ever heal... and so the re-do was a good thing for me... and necessary since it wasn't just nasty skin, but leaking flap. I had come to accept the two tone skin, and here I am and its all gone.
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My understanding is that when the PS takes a small portion of muscle --technically a muscle-sparing free tram flap--it's still microsurgery, as the primary blood supply comes via the transplanted blood vessels. Somehow that tiny bit of muscle (mine were dime-sized) just adds some extra insurance to the blood supply. My PS has the same recovery protocol for ms-free and for diep, including no side-sleeping for those initial weeks.
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My PS is obviously way more lenient on everything. No rules about no side sleeping, no compression, only rule was no lifting anything heavier than a half gallon of milk and no exercising (other than walking) for six weeks.
She is so young and so cute and hip. My daughter reminds me of her. I think that is what she is going to be like at 30. -
All I know is DIEP is only microsurgery and TRAM takes some muscle.. There may be differences in side sleeping due to the muscle and blood supply.. But even so, I think side sleeping could compromise the shape until the flap has 100% taken.
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Congrats to those of you that are post-surgery and hope your recoveries continue to go well. I'm 9 days away from my DIEP and getting a bit nervous. I was invited by my Aunt and Cousin to go on an all expense paid cruise at the end of Dec (they forgot that I was having surgery this month) so I'm a little bummed about missing that but my new body will be well worth it. I actually entertained the idea for a few minutes but then came back to reality
My PS said I will be wearing a binder for a couple weeks but I'm wondering what the benefits of wearing a compression garment longer are. Did you have any restrictions on showering? Any problems bending to get on/off the toilet?
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kay1963- I think my PS and yours are on the same page. No compression garment, no warnings about side sleeping (altho last night I couldn't lay completely on my side, cause it pulled on my belly- I think it's about what your body can handle).- just the warning about lifting over 10 pounds.
i took my first shower today. my belly button looks a bit crooked, but the whole area seems tight and swollen, so maybe things will straighten out later on. And i walked around the block, taking very tiny steps. Seashelly: the nurse told me only sponge baths, but the PS seemed to feel that I could have showered earlier. And a PS resident told me that compression garments could restrict blood flow. So there's obviously differences in opinion. The PS I originally was going to use wanted to do the mastoplexy later, but mine did them both at the same time.
speedy healing to all,
m.
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SeaShelly.. I would go... I had my DIEP on August 23 and showered the next day.. no submersions until all drains are out and healed, which means you may not be able to swim, but still... One month after surgery I travelled by myself to my 30th high school reunion 3.5 hours away, for the weekend... Glad I went and felt fine.. I never had issues getting on and off the toilet.. as for wearing compression beyond the 2 weeks, that depends on your comfort level... Some women prefer the "being held in" feeling... and if you still have drains, you should definitely wear it longer.
After DIEP, I wore a girdle that went to mid-stomach (for compression for butt due to hip flap surgery in July).. had I not had the girdle for the hip flaps,I would have worn a binder for a couple of weeks... blood flow is up by breasts, not in the belly.. with the abdominal compression, I healed quickly and symmetrically, and it helped reduce swelling... I don't recall ever swelling in my abs. It also helps prevent fluid pocketing and forming a seroma.
mgm...Its true, all doctors have a difference of opinion and we follow what we are individually told, but its good to know what others hear, so they can ask their own doctors questions if they have concerns.
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About the confusion between the TRAM & DIEP.
The Tram takes the abdominal muscles & tunnels up through the tummy to make the flap. (not a micro-surgery)
The DIEP just takes just the fat & blood vessels to make the flap. (micro-surgery)
The free Tram still just takes fat but takes a small portion of the muscle to make the flap, they don't tunnel up through the tummy in making the flap. (micro-surgery)
Hope this clears up the confusion.
When I was getting ready for my surgery I was concerned because they mention that it might be necessary to take a small piece of muscle. So I was really getting nervous that she would do the TRAM instead of DEIP. I asked the doctor & this is how she explained to me. I still didn't like the idea that it would be necessary to do it but felt better that she wouldn't just convert to the TRAM.
I don't believe she took any muscle with the things that I lift that I probably shouldn't be lifting. NJ
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All 3 PSs I spoke with told me ANY muscle makes it a TRAM and can compromise abdominal strength.. My local PS, who I did not use, said he would not perform the free TRAM as it would make my abdominal muscle strength less than 100%, and he doesn't do DIEP, so I continued on with my search... So I think the difference between DIEP and TRAM comes down to MUSCLE use.. the dfference between pediculed TRAM and free TRAM is one shimmies it up under the skin and the other comes out and needs to be reconnected, with microsurgery, but with the muscle as the blood source.
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Thanks for the info. ladies, I really appreciate it. I don't think I could go more than a few days without showering. Bdavis, you've inspired me to call my PS Monday and see what he thinks about me taking the trip. I kind of worried because if there were any complications, etc. I'd be in Mexico... but if all is going well, I'd much rather be recuping on a lounge chair in the sun. You give me hope again. Does anyone else have an opinion on this/would you have been able to do it one month out?
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I should add that i did have a complication after my MX and hip flap surgery in July... My BS scraped my skin too thin and I had raw skin and blistering and ultimately needed to get a wound surgery and DIEP to fix it... but we knew right away that I had an issue... the DIEP surgery took place one month after my hip flap surgery.... SO.. my suggestion is to make a committment to your Mexican trip AFTER you have surgery to make sure you are ok.. or get trip insurance.. but if you don't have any problems, I don't see why you couldn't go.. and MOST women do not have complications.
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Surgery in 11 days and starting to get nervous. Still want to look at pictures and read more and somehow the time is just flying by!
Great to hear all those who are healing well.
Betsy - my understanding is more like Norma Junes. I don't think the free flap TRAM uses muscle for the blood supply, just for the flap. My Dr explained it like if two blood vessels were close together instead of taking them out separate, the free flap would take them out together with a small piece of muscle. Like Carol said, very small, dime sized
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Meegan... I was told that even a small amount of muscle can compromise the entire abdominal muscle, and any muscle, large or small is a TRAM flap... And I was also told that the muscle is taken BECAUSE it has a blood supply.. why else take it? And it would be blood supply for the flap... When they perform a DIEP, they remove the fat and then have to find a vessel up in the chest to connect to, to give the flap blood... when muscle is taken, it brings the blood supply with it. For a DIEP they take a small amount of the rib out to create a pathway to re-route the blood vessel from within the chest up to the flap (called a rib resection). I would assume that a TRAM flap with muscle does not need the resection, but that I do not know.
Maybe someone can do a google search on it.
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Found one explanation:
The TRAM free flap is similar to the DIEP flap in that this type of flap is also based on the deep inferior epigastric vessels. In the TRAM free flap, the lower abdominal skin and fat is removed along with a small portion of the rectus muscle. The portion of muscle removed carries these blood vessels with the flap.
Using a microscope, the TRAM free flap can then be transplanted to a recipient set of blood vessels on the chest wall. As with the DIEP or SIEA flaps, the tissue is used to create a breast shape without having to be tunneled under the skin (as in the pedicled TRAM flap).
The advantages of this surgery as compared to a pedicled TRAM flap are two-fold. First, only a small amount of the rectus muscle is used, with less post-operative pain and less risk of abdominal bulge or hernia. Second, the blood flow to the skin and fat is much greater than that of the pedicled TRAM flap. This allows more abdominal tissue to be safely transferred, and patients who are not optimal candidates for the pedicled TRAM flap (diabetics, smokers) can usually be accommodated.
The disadvantage of the TRAM free flap is that the small amount of muscle used is still more than in the DIEP and SIEA flap approaches where no muscle is utilized. As such, compared to DIEP and SIEA flaps, the risk of abdominal wall weakness is slightly higher when the TRAM free flap is utilized.
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DIEP flap does NOT use any part of the muscle. A definition can be found at Wikipedia or just google DIEP flap. Do not let any PS tell you otherwise. Any use of any size of the abdominal muscle may compromise the future use of that muscle. This is not to say that some women may not be a candidate for a DIEP flap but would be for a Free Tram Flap which could be used instead. The fat and skin are the same it is the connector that is different. If your ab muscles are important to you and your lifestyle then you do not want a PS who says they may need to switch to a Free Tram or use a tiny bit of muscle to make the surgery work while they are doing the surgery and you wake up with compromised muscles. Know before you go under the knife what you are having done and that your surgeon understands and respects your expectations.
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