Steve Jobs & his liver transplant

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Guess I'm on a roll today.  Sorry!

I started to post this on the thread the mods started but it didn't seem appropriate so you guys got stuck with it.

I posted this on my facebook status this morning:

It's sad that Steve Jobs lost his fight with cancer. To me, it's even more sad that his money "bought" him a liver transplant & circumvented the system - cancer patients are not normally approved for organ transplants. Two years ago someone died that could have truly benefited from that vital organ.

A person very dear to me responded:

FYI ... significant number of liver transplants are for cancer

My response:

Do you have a source that a number of liver transplants are performed on cancer patients? According to The American Cancer Society "A liver transplant is an option for some people with small liver cancers. For now, transplant is usually saved for those with a few small tumors that cannot be totally removed, either because of where they are or because not enough normal liver would be left.

Not many livers are available for transplant for patients with cancer because they are most often used for more curable diseases."

Oh, and additional info on liver transplants for cancer patients - from what I've read, it is very rare that a transplant is approved when the disease did not originate in the liver.

In response to this the person sited an article stating that Steve Jobs was on top of the transplant list because he ranked high due to how sick he was.

I responded:

I do not debate that Steve Jobs could be on top of the list based on the ranking of how sick he was. I question WHY he was added to the recipient list when my research has indicated that most cancer patients with mets are not even considered. Again, I understand why they are not.

In addition, even if the average person with cancer that has spread to his/her liver COULD get a doctor and hospital to approve of the transplant, which I doubt they could, the financial ability to be listed in multiple states, possible insurance restrictions, and being able to travel across the country at the drop of a hat would be limiting. While I know that finances play a role in nearly everything in our country, I just find it disturbing that it does in this instance.

So, what do you guys think? Is it true that most hospitals/doctors would not agree to go forward with a liver transplant for liver mets?

Please don't misunderstand me - I wish that everyone that faced losing their life due to cancer that has metastasised to their liver had the option to pursue a transplant if that would give them a chance, but it's probably just not realistic and I don't think it's an option for those less financially secure.

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Comments

  • Kay_G
    Kay_G Member Posts: 3,345
    edited October 2011

    It would be nice if his death could have an impact on making more transplants available for those who need them.  I have always been checked to donate my organs on my driver's license, but no one wants them any more :(

  • PlantLover
    PlantLover Member Posts: 622
    edited October 2011

    As far as being an organ donor Kay, I feel exactly the same way.  I've always been one and it really upsets me that there's not much of me that they would take anymore.  I'm considering just donating what's left to science but that still freaks me out a little and it might be too much to put my family through.

  • Kasi
    Kasi Member Posts: 216
    edited October 2011

    PlantLover - If you did have the money and you were in a situation where a liver transplant could help, would you get one? Or refuse it?

    I'm totally just curious, I am not trying to be inflammatory with my question. I would get one if I had the means and it somewhat made sense in my case. I would do anything I could. 

  • nowords
    nowords Member Posts: 423
    edited October 2011

    Life is not fair.

    Not knowing all the details of Jobs illness..I can't really comment to his case...but

    If I had the resources and was told that this would prolong my life with some quality...I would do it. 

    I would share the wealth if I had it, to give others the chance as well.

    Money talks in our society; on all levels of the "class" structure.

  • xtine
    xtine Member Posts: 131
    edited October 2011

    http://www.nytimes.com/2009/06/23/business/23liver.html?pagewanted=1&ref=technology

    "When neuroendocrine tumors do metastasize, Dr. Goldberg said, they often spread only to the liver, rather than all over the body, and a transplant may be recommended."

    I prefer to not jump to the worst conclusions, especially considering the respect he deserves right now. None of us know the details of his health situation.

  • annafrederik
    annafrederik Member Posts: 66
    edited October 2011

    Frankly, he deserved a shot with the liver transplant. Losers like David Crosby, however, who purposefully destroyed their liver, do not.

  • PlantLover
    PlantLover Member Posts: 622
    edited October 2011

    Kasi - Honestly, if I had the means to pay for it and knew that it would do no more than give me a 50/50 chance of prolonging my life for a few more years I would use the money to help a child who needed the transplant. I love my life and want to live but at whose expense?

    nowords - Yep, life is not fair!

    xtine - I already read that article.  That's one doctor's opinion.  I do respect that his family is suffering because they will miss him.  I don't know enough about Steve Jobs to know how much respect he deserved as a person.  He may have been a very loving & caring person.  Then again, maybe he wasn't - I just don't know and that's not my point.  I'm just questioning if he received special treatment in receiving the transplant. two years ago. 

    Does anyone know what the stats are on someone being allowed to be listed on the organ recipient list if one has liver mets?

  • Celtic_Spirit
    Celtic_Spirit Member Posts: 748
    edited October 2011

    My initial CT scan showed some tiny dots on my liver that the doctors weren't sure about. I asked my onc if they turned out to be cancer, could I have a transplant. She said I could not and that most cancer patients couldn't. Fortunately, my dots weren't cancer.

    I don't know a lot about pancreatic cancer, so I can't say how much a liver transplant would help. I do know that some of the anti-rejection drugs they give organ recipients can make you more susceptible to cancer, because the drugs try to keep the immune system from attacking foreign objects; that's good for the donated organ, but it lets cancer cells grow more freely. That may come into play when decisions are made about who receives an organ.

    Yes, it's unfair that he jumped to the front of the line. Unfortunately, a whole lotta life is unfair. Money does seem to skew the fairness in one's favor at times; however, all the money in the world doesn't make you immortal. There are a lot of poor and middle-class 56-year-olds who woke up this morning with something Steve Jobs doesn't have...life.

  • pickle
    pickle Member Posts: 1,409
    edited October 2011

    Sad to see the assumptions being made about Mr. Jobs health and the circumstances surrounding his transplant. None of us know with certainty that he jumped the line and we really don't know the exact reason for his transplant. RIP Mr. jobs



    Annafrederik, Calling David Crosby a loser makes me wonder if you believe that people whom have made poor choices in the past should not be given a second chance. He is a reformed drug and alcohol abuser that has reunited with his adult children and lives a decent life. Not to mention his significant contributions to the music industry.

    My Brother in law was an IV drug user in his younger days and contracted HepC. He was the recipient of a liver transplant when he was 49 and is a wonderful husband, grandfather and contributing member of society. Should he not have been given a second chance because of his youthful, risky behaviour?



    Sorry ladies but this is a bit of a sore spot with me.

  • annafrederik
    annafrederik Member Posts: 66
    edited October 2011

    pickle, I've rethought my post. Yes, everyone deserves a second chance. I am sorry I hit a sore spot with you. I'm grumpy today and shouldn't have called anyone a loser. I still don't deny Steve Jobs the opportunity to have had one though.

    Just wanted to add that Celtic Spirit, I loved your post.

  • apple
    apple Member Posts: 7,799
    edited October 2011

    please respect the one's who have passed.. or the age old adage.. don't speak ill of the dead'

    this thread makes me sad.

  • cooka
    cooka Member Posts: 278
    edited October 2011

    Plantlover, great topic because it highlights the role of medical care as a commodity in our country. Your quality of care is directly influenced by how much you can pay for it (or if you can pay for it at all). All of this BC awareness is BS awareness if I know I should get something checked out but I don't have the money to do it, or I don't have a PCM to go to in between screenings to authorize additional tests. If you cannot afford insurance, what in the world would you do if you got BC? I am insured (and retired Air Force) and I have maxed out my catastrophic cap.  I shudder every time I look at the cash prices on my insurance statements. There are huge issues with health disparities based on class, race and gender...you may have heard the story of the man here in AZ who was on the list for a kidney and it came through...right at the same time the state cut funding for his healthcare. His family watched him die and it was all about his inability to pay. How can that happen in a country like ours? It was all over the news, his family by his bedside. How come someone enormously wealthy didn't come through and pay for it? Our country doesn't lack money and resources to ensure at least adequate medical care for everyone...we just lack the capacity/spirit to find it in our hearts to distribute the resources where people won't needlessly die in the middle of a large American city surrounded by modern medicine that could easily save them.

    K, that was my steroid rant for the day:) Thanks for the topic...

  • pickle
    pickle Member Posts: 1,409
    edited October 2011

    Anna, thank you. We all have grumpy days. Hope your day gets better



    Ditto what Apple said





  • Sandy105
    Sandy105 Member Posts: 216
    edited October 2011

    Waiting, Waiting, Waiting,  Pager Always In Hand... Have You Been There?

    I read with great interest your post regarding Steve Jobs and his liver transplant. The National Organ Procurement Association really cares not at all if your name is Steve Jobs, George Bush, or Jim Smith when a transplantable organ becomes available. Actually, they do not know your name at all - they only know your vital stats and your predicted length of life without the new organ.

    I suppose someone could "pay someone off" to buy a liver but in the US this is rare if in fact it exists at all. To receive an organ, you require far more than money and a name many people recognize. The organ must be a perfect fit for you and this is much more difficult than you can imagine. If it is estimated you will live longer then 72 hours without the organ, you are not in contention for the organ for someone needs it more than you and they will be the one who receives it as they should.

    IF you meet the requirements, (MONEY is not one of them) you are considered for the organ. If you are really fortunate, your pager alerts you to call the hospital and you start the long process of evaluation once more. Perhaps you will be the one chosen. For most of those waiting on the list, the pager never beeps and they die waiting. 

    I am grateful Steve Jobs was one of the lucky ones! I do not think he "purchased" an organ any more than my Father purchased his. I bet he waited for that pager to tell him "this day is your lucky day" just the same as my Father did. 

    Please be careful before you imply someone has received an organ without justification! If you have never been on the other end of this waiting with pager in hand, you really have no idea what it is like.

    Mr. Jobs worked for $1 a year for he did not need money! He donated $150 million to the University of California Cancer Center. This center has no connection to the National Organ Procurement Association.The list of his other charitable contributions is immense.

    How much is a liver? A heart? I don't know for they were  and are not for sale. I seriously doubt Steve Jobs knew the price of a liver either and I would bet my bottom dollar he waited his turn. That is the kind of man he was.

  • cooka
    cooka Member Posts: 278
    edited October 2011

    Sandy, I hear what you are saying but this CBS story might interest you...people do die because they don't have money, AZ kicks them off the list altgether if they can't pay...

     http://www.cbsnews.com/stories/2011/01/06/eveningnews/main7220629.shtml

    I think it is important to honor their (people who have died) memory by acknowledging that this is a big problem (one that many people don't know about). There were no huge headlines saying,  "Mark Price dead at 45 in Phoenix". I think Steve Jobs would approve of our discussing this, because I think he was a generous person, and I mean him no disrespect. 

  • karen1956
    karen1956 Member Posts: 6,503
    edited October 2011

    I agree with Apple that this thread makes me sad....I didn't know Steve Jobs and other than my ipod, did not own apple products....but the man was a person who died of cancer....that is sad.....money does not buy us health or guarantee a long life Steve Jobs is proof of that dying at the young age of 56.....I hate cancer....I hate that I had BC and I hate that people continue to die from this dreaded disease......Lets honor this man's memory....like we should all people, rich, poor, good or bad.....it is not our place to judge....

  • Halah
    Halah Member Posts: 352
    edited October 2011

    I respected and admired Steve Jobs. He was really driven. He expected no less than excellence. It is no wonder he wanted to extend his life. And rightly so. Anyone who wants to live will fight it, and he was no different from anybody else.

    RIP Steve. 

  • gutsy
    gutsy Member Posts: 391
    edited October 2011

    What happened to respect?This man who has made a significant contribution to the world with his invention should be honoured not slammed for having had a liver transplant. Sorry, I don't get your point at all

  • imbell
    imbell Member Posts: 659
    edited October 2011

    DH says Jobs  died from pancreatic cancer so perhaps the liver transplant wokred and he was unlucky. My beef is with extreme alcoholics who get transplants althpugh there are some celebreties twho have reformed.

  • Lynn1
    Lynn1 Member Posts: 2,141
    edited October 2011

    What a very sad thread this is indeed.  IMHO, this type of conversation is very inappropriate given he only passed yesterday.  RIP Steve Jobs.  You contributed so much and you will be missed.

  • apple
    apple Member Posts: 7,799
    edited October 2011

    My brother in law quickly died of pancreatic cancer.. took about 3 months from diagnosis.. He was ineligible for a liver transplant because his cancer was also in other organs...i miss him a lot.

    I;m thinking the transplant gave him 5 years.. that's good.

  • profbee
    profbee Member Posts: 858
    edited October 2011

    Just to turn this a bit.  I did not realize until I read this that now they probably wouldn't take my organs since I've had BC.  I've signed the donor section of my license since I've had one.  I think it is such a no-brainer.  So, you all prompted me to ask on Facebook if any of my friends would consider signing theirs for me since I can't any longer.  Maybe another donor will sign because of this post and save some lives.  :) 

    So, there's a positive turn. 

  • dreaming
    dreaming Member Posts: 473
    edited October 2011

    I have worked over 20 years in a cancer center and I have never met a cancer patient that was given a transplant.

    My daugher in law father a pilot in Vietnam that because of Agente Orange he damaged his liver, not cancer, he died because his insurance took for ever to ok and the list was long.

    How many celebrities that drink and take drugs not only get one liver transplant but 2.

    Who you are counts, that is the reality.

    Cancer patients we can not give blood or donate organs.

  • Letlet
    Letlet Member Posts: 1,053
    edited October 2011

    I read somewhere that his pancreatic cancer was the most treatable one, so maybe this factored in the decision process?

    Still I think it's in poor taste to say the man bought his transplant, not even 24 hours after his death, doesn't matter who he is. He was 56 and cancer killed him....

  • radiant
    radiant Member Posts: 464
    edited October 2011

    I 100% agree with Letlet. This topic does not seem appropriate to me.

    Kim

  • lrr4993
    lrr4993 Member Posts: 937
    edited October 2011

    I only have a minute and have read only the original post, so sorry in advance if I am missing something that may change what I am about to say:

    *  The man just died.  I really don't think this is the time to be criticizing what, if any, benefit he received due to his financial status.  Particularly if you do not even know that he got any sort of benefit.  Is this just a guess on your part?

    *  I do not know the details of his medical condition.  Was the liver transplant even related to his cancer?  Maybe it was damaged due to treatment, not tumors? 

    *  I know nothing of pancreatic cancer or transplants as a treatment for liver mets, but in my limited experience, treatment standards seem to vary between the different cancers.  Maybe this is an accepted treatment plan for what he had.

    *  Assuming for the sake of argument that he got special treatment because he is rich . . . well, if I were in his shoes and thought it would save my life, I would do the same.  All that money means nothing if you are dead.  It sucks that rich people have advantages that poor people do not have, but that is life.  It has always been that way and always will be.  I cannot fault him for taking advantage of all resources available to him, including his substantial bank account.  That is, assuming he even did that.

    My two cents worth. 

  • MaryNY
    MaryNY Member Posts: 1,584
    edited October 2011

    PlantLover: This may be a valid discussion for another time and another place. But I think it's highly inappropriate here now ... even if you did have some proof of the assertion you are making.

  • sam52
    sam52 Member Posts: 950
    edited October 2011

    I agree it is really inappropriate at this time.....or any time, since all we know of his disease progression is pure conjecture.

    I did ,however, hear a tape this morning,of Steve Jobs talking about his initial diagnosis - and he was originally told he had 3 - 6 months to live. Apparently after a biopsy, the surgeons 'cried ' (his words)because his was a very unusual TREATABLE kind of pancreatic cancer.We really do not know why he had a liver transplant and whether it was directly connected to his original dx.

    So the discussion I find in very poor taste.

  • cocoapuff
    cocoapuff Member Posts: 37
    edited October 2011

    Perhaps I shouldn't say anything because I simply don't know enough about his liver transplant but I just want to mention that sometimes there are living donors that simply want to help the person suffering.  When my mother-in-law was ill I wanted to help her, I was able to give her a kidney to help her get well.  I did not receive anything for this other than seeing her healthy again.  Is it possible someone did that for him? Just something to consider.

  • Celtic_Spirit
    Celtic_Spirit Member Posts: 748
    edited October 2011

    Frankly, I think it's a good discussion, and one that might not have come up except for Steve Jobs's death. I don't think the gist of it is about Steve Jobs's character; it's about whether as cancer patients we can have liver transplants or transplants of any kind. I know I was surprised and rather dismayed to hear that I was ineligible for a liver transplant if I had bc mets to my liver.

    I also recently asked my onc if I could donate blood and was told "not until five years after treatment." I have a rare blood type...one that I share with a very good friend. We had a pact that we'd always "be there" for each other. Now I can't. I'm not sure if I can be an organ donor now or ever. And because the anti-rejection drugs might act like fertilizer on a tulip to any cancer cells I have, I might not be able to receive an organ, even a kidney. I think these are important things to think about and discuss.

    I'm very fortunate to have excellent medical coverage through my job, and believe me, I thought about that a lot during treatment. I tried to imagine what it would be like to deal with a cancer diagnosis and have to worry whether or not I could afford surgery or even Tamoxifen. Imagine how bad you felt during chemo and, on top of it, you have to fight with your insurance to approve each treatment. That's a reality for many people in this world, and there are a number of Americans who decline necessary treatment because they don't want to bankrupt their families. This is not a slam on Steve Jobs and his money. This is just saying that money...or the good fortunate to have a job with insurance...can influence your treatment. That's not poor taste, that's reality.

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