The Fungal Theory

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  • impositive
    impositive Member Posts: 629
    edited September 2011

    I am so sorry Sas and Eve.  All this is so unfair.  I see cancer as a systemic pathogen which just happened to take up residence in our breast.  It gained entry and probably decided the breasts were a very welcoming environment.  Getting rid if our breasts isnt going to get rid of the problem.  That's not to say that I would not have a mx...because I WOULD if it meant it would lighten the load and make it easier for my body to fight this "infection."  What I have realized is I haven't been doing enough to fight this.  My diet and exercises have been really poor lately.  I do my juicing and take my supplements but I've also had my share of junk food and sugar.  Sometimes I feel I just want to give up and go the "easy" way of conventional medicine.  (For anyone who's gone the chemo/rads way, please dont take offense, I KNOW that's not EASY, I just mean it's not a lifetime commitment to change.  One year seems easier than a lifetime.  It's a year of hell then we can get back to life as we knew it....sort of).  What I mean by that is, that it would take a year out of my life and I would be able to go on as I have been, eating the same way and treating my body the same way.  However, I know I must CHANGE if I want to heal.  If I want this gone for good, I have to starve it and kill it at the same time and not allow the environment for the pathogen to ever be "comfortable" here again.  LIFETIME CHANGES....that is my resolve but I need so much help....change is hard!

  • Ang7
    Ang7 Member Posts: 1,261
    edited September 2011

    I don't know impositive~

    I did do surg/chemo but I also see it as a "lifetime commitment to change".  I did not just go back to eating food that was bad for me and not exercising etc.  My experience was not just "one year".  It was also a lifestyle change. 

  • digger
    digger Member Posts: 590
    edited October 2011

    Eve,

    You and I have had our differences here and I know you're not going to like what I'm going to say.  You probably have already tuned me out after seeing this posting is from my user name, but I pray that you will keep your mind open to what I'm going to say.  Think out of the "alternative" box. I say this only out of deep care and concern for you, a fellow breast cancer sister.

    Please, for the love of G-d, stop listening to people like impositive who are exhorting you to get rid of your "infection," (her words, not mine) through a liftetime of healthy eating. That's great if that's what she wants to do, and what she wants to believe. To her, this whole cancer thing is the same thing as a fungus.  As impositive says (a bit flippantly, I might add):

    I see cancer as a systemic pathogen which just happened to take up residence in our breast.  It gained entry and probably decided the breasts were a very welcoming environment.  Getting rid if our breasts isnt going to get rid of the problem.  That's not to say that I would not have a mx...because I WOULD if it meant it would lighten the load and make it easier for my body to fight this "infection."  

    Please, please, please listen to someone, a doctor you trust (and if you don't trust yours, then by all means find someone you do), who knows what she/he is talking about, not our resident "cancer=fungus" expert on some anonymous Internet discussion board.   This "infection," as impositive refers to, is serious, serious stuff, and I fear that she is going to take you down with her.  It's obviously her decision what she want to do with her own body, and if diet is the true cure to her, then so be it, and who's going to change that (who wants to, she's going to believe what she's going to believe, not matter what).  I really hope you find it in yourself to listen to your health care professionals.  Enough talk about the big, bad medical industrial complex that refuses to think outside the box.  They're there to save your life, not some "fungus"expert on the Internet.  You've dealt with this beast a number of times doing it your way, and it keeps returning.  Maybe try doing it another way now?  Not to see any of it's easy, all of the options suck, they really do, but please think about it.

    Take care.

  • Hindsfeet
    Hindsfeet Member Posts: 2,456
    edited October 2011

    Digger, I appreciate that you care and that you seem geniunely concerned. Thanks :)

     First, I think for myself. Impositive has never told me what to do in regard to my cancer treatment. She said whatever I chose she would support me. The summer before coming to the fungal theory thread, I had a strong suspecion that many of my problems was yeast related. After being away from bco for awhile, I happened on this thread, when impositive began posting. I was already intriqued. This thread inspired me to do my own research and I've come to many of the same conclusions. I'm not sure if fungal is the cause of cancer, but is indeed a major factor in many cancers. Just because someone posts here on boc doesn't mean I swallow it hook, line and sinker. I do respect impositve a lot! She is battling skin cancer and is going through a lot hersef. I admire that she studies the fungal theory likes she does. I admire anyone who searches for the truth. I admire anyone who thinks for themselves.  I just don't want to follow the pipe pipper, the doctor. I want to know why, what the side effects are, risk factors and so on. I will find a doctor who will dialogue with me. I want to partner with my doctor and in the end make the choice to my treatment plan.

     I won't know absolutely for sure if I have cancer until sometime next week after the biopsy on MOnday. My rad doc strongly believes it is cancer. With my history, and what the doc said, I wouldn't be surprised, but hope it is nothing to worry about. If it is cancer, I will probably get a blmx. I hope this will take care of the problem once and for all.

    If ever I was to be dx with early or invasive cancer, I would do as I've done at each of my three cancer dx. I would go back to square one and again look at my options. The amusing thing each time after re-thinking my options, I've come back to the same conclusions, lumpectomy only...except now, I'm tired of it all. I don't trust my breast anymore. It's been said that a timebomb is in my breast. The doctors, surgeons said my breast wants to produce cancer cells.

    I have found doctors, whom I've had very rational discussions with. My second bc surgeon listened to all my questions, and found my reasoning sound. She said she liked to partner with her patients (sadly she moved)> Most surgeon pretty much treats all cancer patients the same. My last cancer was mucinious cancer. It is not an aggressive cancer. I couldn't get my surgeon to read the latest report on mucinous cancer, the Perkins Report, which says that this type of cancer rarely goes into the nodes. Since it was protocol to take out the nodes for invasive cancer, she took them out. I don't want to do something because it's protocol. I want to do something because it's right. I want all the knowledge, facts, and studies in front of me before pursuing anything.

    Can diet get rid of cancer? I don't think anyone here on the fungal theory thread would say that. But, a good diet, and leaving off sugar will hopefully help  me live a better quality of life...and a longer life. Systemic fungal overgrowth is so inbedded in our tissues, which is why it's hard to kill. Cancer is hard to kill. Can the two be one in the same? That's the question here on this thread...and we're discussing it, and our yeast problems (to at least solve that problem we're too plagued with).

    I respect all my bc sisters who have made different choices than I have made so far. I am here to support them as well.

    So...right now, I'm going to enjoy my weekend, and catchup on some projects. There is no need for me to think about the next move until after I get the biopsy results.

  • Hindsfeet
    Hindsfeet Member Posts: 2,456
    edited October 2011

    I've been thinking more about what digger said in regard to impositive.   Impositive has posted a lot of good reasearch information on this thread. She's taken the time to post what she is learning, and to encourage many of us who have struggled with yeast related problem. I've gotten to know her and she is really a very special person. Although I've never met her, I consider her a friend. So..yes, I do take an offense in criticizing her when her intent is to help us, not hurt.

    So...thank you impositive for all the time you put in this thread, and for caring. Don't stop because there are a lot lurking and gleaning from what you are posting.

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited October 2011

    I, too, have had nothing but encouraging feedback from Impositive, even when I clearly stated that I didn't believe cancer was a fungus, but I supported her right to examine every angle of fungus illnesses in relation to BC.  

    In medical history and science, many breakthroughs have happened courtesy of serendipity and it seems more than likely that one or more alternative remedies could prove to be invaluable if it could be properly studied and tweaked to find the optimum use.  Recently the scientific and medical communities were excited by the complete remission of two out of three end stage leukemia patients following a small medical trial into an altered virus.  Yet when several people come forward to say their alternative regime has had similar results, they are disbelieved and shunned even when offering their full medical records.  No one considers they could be staring at a potential cure and letting it pass by with millions losing the opportunity to benefit each year.  Fortunately some of the work of Otto Warburg is now being taken seriously after nearly 80 years, notably in the calorie restriction diets (CRD) or Metformin which mimics a CRD, teamed with high antioxidant supplements which inhibit glycolysis which he discovered is the main energy path for solid cancers which are denied blood sugar due to the CRD.  I therefore have hope that all "sides" can come together and act respectfully towards each other for the common good. 

    I have seen Impositive encourage others to follow whatever treatment plan they are comfortable with.  I feel she has been treated harshly by many on this thread with little if any justification and not enough acknowledgement of all her hard work while having to deal with many other issues and responsibilities in her life.  I wish there were more like Impositive on these boards.

    I also think it's disrespectful to assume that Eve will blindly follow any advice as she is a very smart woman going through multiple recurrences and I can't imagine having to face all those decisions again.  Here's hoping Eve, that all your news is good this week.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2011

    Ya know ---------all is different---------Impositive is doing research on things that is so new it is in the infancy stages, perhaps toddler. Joy refers to OTTO WARBURG who spent 80 years of his life( He must have started young and died old). Please not meant to joke. The point being there are researchers throughout hx, that connect with something they believe is of significance. They spend their life researching a singular topic. To our benefit. They keep track of what everyone else is doing ,and see how it applies to their theories or modifies their theories. Without these thinkers on a singular topic, we may have not have made advances. My particular favorite is Udo Irasmus. His life's work has been on Omega 3's. There are other's like Einstein, Lister, Galileo.

    Digger-------you saw my post to Eve or perhaps I PM"d Eve. The beauty in your post is the intensity of your caring. I feel your words to my being. You want her so much to make a decision different than what she has been doing. You are afraid she will make a wrong decision and as a result die. You think she will do this b/c of someone elses influence. EVE is a well educated person. Her choices are hers. If in the end , she says I should have made a different choice. That is what she shall do.  Digger ------I have learned after 38 years of nursing that the best we can do is give the best information available -------PRO and CON --------then let it go, if the person is educated. I will relate one remembered story of an uneduacated person perscribed a drug that was already under scrutiny for being taken off the market. I advised her not to take it, and seek other advice--------I told her it meant my license, by telling her this. To me that was different. An Educated person can read and search, an uneducated person doesn't know how and only believes what the doc tells them. It's a 180 degree spectrum. Digger you have followed your belief system. You have made Eve aware of dangers. Impositive's life work is a connection to fungus and cancer-----------only time will show. I know she works hard at her searchs.

    By history, I have been much in the same place as Impositive and proved the existing paradigm was wrong and went on to change the world. The problem with changing a world thing, in the last 40 years is, it all happens so fast. You can't have your name remembered like Gates.

     I think all of you should respect each others positons------------you all  have intensisity of belief , and are seeking to help. Offer what you can , offer why you disagree, but respect that you all are seeking

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited October 2011

    SAS, From wikipedia..

    Otto Heinrich Warburg

    "In 1924, Warburg hypothesized that cancer, malignant growth, and tumor growth are caused by the fact that tumor cells mainly generate energy (as e.g. adenosine triphosphate / ATP) by non-oxidative breakdown of glucose (a process called glycolysis). This is in contrast to "healthy" cells which mainly generate energy from oxidative breakdown of pyruvate. Pyruvate is an end-product of glycolysis, and is oxidized within the mitochondria. Hence, and according to Warburg, cancer should be interpreted as a mitochondrial dysfunction. 

    The concept that cancer cells switch to glycolysis has become widely accepted, even if it is not seen as the cause of cancer. Some suggest that the Warburg phenomenon could be used to develop anticancer drugs.[10] Meanwhile, cancer cell glycolysis is the basis of positron emission tomography (18-FDG PET), a medical imaging technology that relies on this phenomenon."

    So it is nearly 80 years since his discovery, known as the Warburg effect, which won him a nobel prize.  He won many awards and a medal is still given in his name for pioneering research in Germany.

    Later he "wrote about oxygen's relationship to the pH of cancer cells internal environment. Since fermentation was a major metabolic pathway of cancer cells, Warburg reported that cancer cells maintain a lower pH, as low as 6.0, due to lactic acid production and elevated CO2. He firmly believed that there was a direct relationship between pH and oxygen. Higher pH means higher concentration of oxygen molecules while lower pH means lower concentrations of oxygen.wrote about oxygen's relationship to the pH of cancer cells internal environment. Since fermentation was a major metabolic pathway of cancer cells, Warburg reported that cancer cells maintain a lower pH, as low as 6.0, due to lactic acid production and elevated CO2. He firmly believed that there was a direct relationship between pH and oxygen. Higher pH means higher concentration of oxygen molecules while lower pH means lower concentrations of oxygen. "

    This is the more controversial part of his work, yet an alkaline diet may in fact be important in cancer treatment for other reasons.  We must be careful not to dismiss any research if it doesn't satisfy our requirements as there may be other factors causing the effect that deserve further research. 

    I applaud all research and enquiring minds that keep pushing the envelope.  Even critics force researchers to make their work easier to grasp and that can lead to more breakthroughs.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2011

    Joys----------I hope what I wrote didn't seem that I was dismissing his research---------reread please what I wrote. Those that dedicate there life's work to a singular topic can solve a problem b/c their concentrated effort not only on their own research, but others research can change history

    WOW-------of course  it seems his work is still not mainstream even with a Nobel

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited October 2011

    SAS, I've never known you to be dismissive, you come across as very knowledgeable and professional and I look forward to all your posts. I especially love that you appreciate both sides, medical and alternative   I just wanted to elaborate on the work of a man who was brilliant for his time.  I think a lot of what he did is yet to reach it's fruition.

    OXOXO to all of us.

  • thats-life-
    thats-life- Member Posts: 1,075
    edited October 2011

    Thinking of you eve as monday approaches...Hi sas, yes, you are one of the caring researchers here too. Can i just add..When has lumpectomy been considered alternative?? How is it a reflection on you eve if you chose standard procedure and yet have possibly recurred? you poor thing, having to explain yourself, even to have to explain your health issues to justify potential recurrence. so sad....good luck with results!, keep fighting the good fight...whatever the word we choose to use to describe cancer, its hard to eradicate...from both sides of the treatment fence!

  • impositive
    impositive Member Posts: 629
    edited October 2011

    Thank you ladies for the kind words.  Even Digger... showing concern for Eve and others here is commendable even at the expense of myself.  I wont engage in a tit for tat. I'll just move on....

  • impositive
    impositive Member Posts: 629
    edited October 2011

    Ang7, I'm apologize, I hope you dont think I was saying that those who go the chemo and rads route dont make changes as well.  I was just trying to relate how I was feeling at that moment.  I know that if I hadn't learned that diet and exercise really do make a difference, I would've taken the chemo, not made any changes and done nothing on my end to help myself.  My doctor didn't tell me diet could make a difference, he has chocolates in his office for his chemo patients! I had just recently taken a look at myself and wasn't very happy in the way I had been letting myself slip back into my old lifestyle and I was posting to that effect.  I applaud and respect you for making a commitment to change for a lifetime.  It is so difficult to change.  I admire anyone who can do it. 

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2011

    Impositive---------please don't leave you are the glue for this thread. Your concentrated research on fungal alternative, is central. Please read my posts again, I don't believe I disrespected you. It is the reverse. If we didn't have your posts , we wouldn't know that the research was going on.

    I think everyone is just doing the best they think they should. Words sometimes mess up communication so bad sometimes, when the intent of there use is better understanding.  Then on the turn of a phrase -----kafluey.

     I think Joys reference to Warburg is similar to what I'm saying. He spent his whole life following his Theories. A Nobel to boot. Yet in the short reading of him. I know his work has not received the recognition it should have. But science is alot like that. In an unknown time, someone will rediscover his work b/c it fit into whatever the researcher was working on.

    What I enjoy here is the free support of ideas. Yours too. Diggers , Eve's, Joys. I haven't contributed much b/c I'm not searching like I used to. Brain doesn't work like it used too. Bummer. Since "Little Bean" now has me back on the dx/find right docs/ and treatment, this will be limited even more--Double bummer. Hells bells if you leave now, it'll put me in a mess. Cuz I know my immune system isn't right and it's related to fungus somehow or it's manifesting it self that way by symptoms-------thrush and vag yeast that are to ready to rear their ugly heads, if I simply overheat to much or use too much vinegar(great salad the other night, overdid the dressing, thrush in the morning). I may be looking forward too something that will wipe me out b/c of the fungal thing. Then who do I talk to about that, not my docs for sure.

    L&H's and deep respect for what you are trying to accomplish. sas

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2011

    Eve ---it's Monday night---------thinking of you as all here are. L&H's sas

  • Ang7
    Ang7 Member Posts: 1,261
    edited October 2011

    Oh impositive~

    You don't have to apologize to me.  I probably took it wrong...Undecided

    I do enjoy reading this thread.

  • Hindsfeet
    Hindsfeet Member Posts: 2,456
    edited October 2011

    sas...my thrust got so bad a year ago that I finally had to ask for anti-fungal medicine. It helps. But when you are on anti-fungal meds, you've got to be on the yeast free diet. I've read that if you really want to get rid of the fungus, you've got to be on the diet for 3 weeks during the fungal meds or the meds won't work. After the med's continue the diet, slowly adding a few foods like yogurt, and yellow veggies. Pro biotics is a must orally, and like you said on the tongue. What is interesting, when the yeast was so bad in my mouth it caused lesions, cuts, infections, or wound. I wonder if it does that in the mouth and throat if then the yeast could cause lesions in other parts of the body like the brain, lungs or liver?

    Thrust makes you miserable...for me not eating when it was really bad was preferable because it hurt too much to eat. I haven't had a mouth lesion for a month. It feels so good to eat normally.

    My biopsy was ok. I saw it in the little dish. It was yellowish...about 2 C. Interesting to see it. I felt as if I had a minor lumpectomy. There is a one inch cut and it's painful. Don't think I can take aspirns as it could cause bleeding. I'm not to do housework or carry anything for 48 hours. Same instructions for a lumpecomy. Hmm... The doc said she took out quite a few califications. I said, just suck it all out.  I'll know the results on Wednesday afternoon or Thursday.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2011
    EvE        continuing prayers and thoughts for positive outcome. ----------Went right back to probx's on the tongue. Have to remember not to breathe in just as I'm doing it-duh powder in the trachea. cough cough cough. I agree, if yeast does the things it does that we can see. What is it doing to the things we can't see.
  • impositive
    impositive Member Posts: 629
    edited October 2011

    Oh SAS, I'm not leaving!  By "moving on", I meant moving on to a different post, lol.  I wasn't interested in going back and forth with digger.... it's just not worth it.  She could have sent Eve a PM but instead she chose her words and displayed them here, insulting Eve's intelligence and myself, in general.  Because of the rudeness her posts convey, I doubt her sincerity but I just figured I would rise above and not address it.  I was more interested in addressing Ang7's post because I was concerned she took me the wrong way.  I appreciate everything you said.  Thanks to you, eve, joy and thatslife...you are the reason I come back here. 

  • impositive
    impositive Member Posts: 629
    edited October 2011

    By the way, I hope eve doesn't mind but I would like to point out that she is a smart, successful business owner and published author.  Not only that, she is one of the most caring people I have had the pleasure of being aquainted with.   

  • Hindsfeet
    Hindsfeet Member Posts: 2,456
    edited October 2011

    Thank you impositive. You are sweet.

    You know this year I've been battling yeast overgrowth. I have had mysterious lesions on the roof of my mouth, my cheeks and etc. A year ago last summer I knew my body was acidic, which made me more vulnerable to yeast overgrowth. I know that an acidic body creates the perfect enviroment for cancer growth (or fungus). I figured if the yeast created lesions on my cheeks, on the roof of my mouth and all that it could also make lesions elsewhere in other parts of the body. This is what I think happened to me. The stress, acidicity, and the yeast all contributed to another cancer dx.

    Sadly, this this time sadly its idc, solid type, high grade 3, como-neutrosis.

    I need wisdom, and help to do the right thing. I am not sure what to do right now especially in regard to alternative. For sure, I would not consider chemo. Until surgery, I am going to bathe my breast in iodine, and coconut oil.

    Impositive, you had stage 1. What are the main things you've done that has help prevent another cancer? I don't know my stage, but hopefully the biopsy didn't cause seeding...that is what I fear now.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited October 2011

    Impositive---------I also hope you come up with your usual good research Also, very happy you are not leaving ((((((((((H)))))))))))))

    I did not read about seeding until after my steriotactic bx. by then it was a done situation. Since i was dead set on a BMX bilat b/c of a horrrible family history, my concern was whether we were moving fast enough. I had to manipulate the system b/c my brain tumor was dx'd the same time as breastbx. They refused to do bmx until neurosurgery cleared me for the brain tumor. BS said see you in 3 months. I said we can't wait that long the clean mammo with a f/u MRI not quite four months later said it was likely very aggressive. The path of the bx supported that. I pushed buttons and was on the table less than a month latter. Final path it went from grade 2 to grade 3 in 3 weeks. Relook at bx path confirmed no sampling error. If I hadn't known how to push the system, I likely wouldn't be writing this.

    But I may have made an error on not pushing for a dx on the brain tumor. All that was offered was a full craniotomy. My search now pulled up eyebrow surgery. It's called "skull base surgery" It is for tumors on the bottom side of the brain and skull. No one brought it up last go around and yet, I now find out it's about a decade old. Even at the biggest cancer center in the state for a second opinion------no mention. I feel cheated----------why go to specialists, unless they are going to tell you about the latest breakthroughs in treatment. DUH When I brought up to my ONC last week, he had never heard of it. But since the doc was one they referred to he was happy b/c there was a trust in skills already there. They may still want to watch it and check growth , but at least then I would be with a doc that would have the skills to do the least invasive surgery and know if I was a candidate for the surgery b/c he is skilled in all approaches.

  • Hindsfeet
    Hindsfeet Member Posts: 2,456
    edited October 2011

    I am for cutting the bad spot on the apple before it destroys the whole apple. I don't get why doctors wait. At my appointment next week, I'm going to ask the surgeon to take it out asap. I don't want idc cancer cells lurking in my breast or going outside the breast. Yeah, I would push buttoms or find a doc that would do it before it worsens the dx. There are those who don't think cancer cells from a biopsy can seed. Mine were vacuum out which is better, but even that opens up cancer ceells to go elsewhere. My whole side of the breast that was biopsy is hard and tender. In the past it didn't last as long. I just hope the cancer cells aren't being irritated or grow due to it.

  • Hindsfeet
    Hindsfeet Member Posts: 2,456
    edited October 2011

    I'm calling my doctor to ask for another prescription of diflucian, follow by nystatin. I'm going to try not to eat any thing white, and sweet. I'll be taking idoral, coconut oil, and other anti-fungal supplements. I am going to starve this cancer and hit the yeast culpret hard. After the anti fungal meds, detox. Next, try not to stress out over getting a mx. This is going to be hard for me, but I've got to to do it.

  • Hindsfeet
    Hindsfeet Member Posts: 2,456
    edited October 2011

    Well ladies, I saw the breast surgeon today. I'm concerned because this cancer has a high proliferative rate and HRT +...PLUS it's invasive. She strongly recommended Hepecin. I asked her if it was chemo. She said no. She also said it doesn't have the side effects of chemo. What do you natural ladies think?

    I am taking iodine now everyday. I need to get back on the anti-fungal meds as soon as possible. If I can't control this stupid fungal overgrowth, I'm in trouble.

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited October 2011

    Eve, if you mean it's Her2+ and they are offering you Herceptin, there  are many discussions here about the risks.  If I remember correctly it has to be given with chemo for the first few infusions, but if you've already had chemo once maybe you won't need it again.  The problem with Herceptin is it's fairly new and the overall survival results may not be as good as promised, but that won't be known for sure till sufficient time has passed to see if women from the original trials are surviving longer or not.  

    Heart problems are the major concern and they monitor the heart closely and wait for it to recover if there are problems, but a few women continue to have heart problems.  Heart problems have to be weighed against the risk of mets which are higher for Her 2+.   Wornout Mom and Ruth's mother (Nanay) were also Her2+ so there are a lot of posts on this subject on WOM's old "survivors using alternatives" thread.  I seem to remember WOM wanted to have Herceptin without the chemo but they wouldn't do it as the statistics show the combination is superior to just Herceptin alone.

    This is a contentious issue with the traditionalists feeling it's a wonder drug which has lessened the mets toll on the Her2 forum, and those who are more cautious.

    Impositive was Her2+ and so maybe she can be of more help.

  • Hindsfeet
    Hindsfeet Member Posts: 2,456
    edited October 2011

    Joy...yes, I am her+. I haven't researched Hepecin. The surgeon seem to think that you can take herpecin without the chemo. I imphatically said to the surgeon today that I'm not open to chemo or tamoxifen. Yes...I need to hear from impositive about all this. She had an invasive cancer, and is hopefully surviving just fine. Right now, I feel like I'm back at square one. Up to this point I've only had to deal with high grade como type dcis, and another less invasive type of cancer.

    This is different. I' know not eating anything white or sugar can be deter cancer growth. That is a very hard dicipline.

    I do want to know more about the side effects of herpecin. Does it really block the her2+?

  • Ang7
    Ang7 Member Posts: 1,261
    edited October 2011

    evebarry~

    I do remember seeing a movie "Living Proof" that tells about the Dr. who invented Herceptin.   I just cannot remember if it concentrated on the drug and not really the side effects...

  • impositive
    impositive Member Posts: 629
    edited October 2011

    Eve, my protocol was to be TCH. (taxotere, carboplatin and herceptin).  I declined the chemo (TC)but inquired if I could do the herceptin alone and my once said no.  After researching herceptin more thoroughly, the side effects just didn't seem worth it anyway.  However, I encourage you to ask your onc questions and read up on it yourself.  Just because I made the choice not to, others have made the choice to do it and are happy they did.   

  • Hindsfeet
    Hindsfeet Member Posts: 2,456
    edited October 2011

    Impositive you mentioned once that herceptin are antibodies from mice cancer antibodies. I can't remember all that you wrote about it...got to search back but recall whatever you wrote it made sense.  What side effects scare you? You are HER+ without further occurence? The pet scan didn't find cancer in your liver or lungs? You would think that such a highly aggressive cancer they would have found cancer cells elsewhere...yet they didn't. You must be doing something right.

    I'm not about to take herceptin without researching it.

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