Posting for Fuzzy Lemon re: Booster Rads

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pupfoster1
pupfoster1 Member Posts: 1,484
edited June 2014 in Stage III Breast Cancer

Hi ladies,

Chris (aka fuzzylemon) is having computer trouble and can't access BCO right now and has a question for all you wise ladies out there.  Here's what she told me on FB:

"Dilemma, go through booster radiations and risk severe side effects (10% chance but very life altering)...or not.  My belly says do it.  Anyone know anyone who has done this"?

Apparently her onc says because of her type of BC he would recommend them ( 5 more but perhaps 9) but they could cause serious capillary damage and unbearable pain for the rest of her life.

I had boosters throughout rads, but never heard about the capillary or unbearable pain thing.  If anyone out there has info on this let me know and I'll relay it back to her.

Thanks ladies!
Sharon

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  • kathleen1966
    kathleen1966 Member Posts: 793
    edited September 2011

    I had the booster radiation and had no problems.  I am very fair, and actually had no burning other than a very small spot near my superclavicular nodes.  I had never heard of these side effects!  I think it is a good idea for fuzzylemon!

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  • Cyborg
    Cyborg Member Posts: 848
    edited September 2011

    I did not hear about that and I am receiving boosts right now.

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  • jennyboog
    jennyboog Member Posts: 1,322
    edited September 2011

    I did boosters also and was never told about those SE, not having any issues as of now.

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  • YATCOMW
    YATCOMW Member Posts: 664
    edited September 2011

    Same...

    Several boosters and no issues...

    Jacqueline 

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  • geewhiz
    geewhiz Member Posts: 1,439
    edited September 2011

    I got a second opinion at Sloan Kettering. According to them, For mx patients, the risks outweigh the benefits. Boosts that are to the scar line are for local recurrence only and the risk of a local recurrence in that area is quite minimal.

    Some people have no issues. I had major ones. Rads was the worst part of everything for me.

    My 2 cents : )

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  • Joanne58
    Joanne58 Member Posts: 1,117
    edited September 2011

    I've been thinking of fuzzy for a while, wondering how she's doing.  Please give her my best!

    Regarding boosts--I had a combination: boosts during my 28 rads rather than at the end.  I elected to have rads due to a 1mm margin at the chest wall.  That was just too close for my comfort!  No pain, no LE (knock HARD on wood!) and no burning.  Just a dumb little black dot (tatoo) at my collar bone to remind me of the ordeal.   

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