Chemo May 2011

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  • upsparent
    upsparent Member Posts: 5
    edited June 2011

    I finished in 1/11, and I have noticed I have chemo treatment amnesia- kind of like childbirth amnesia. Since I have 3 children I must have somehow "forgotten" how much it hurt and how lousy I felt.

    Stats, I shaved my head when my hair started to fall out, my head is not as mis-shapened as I feared. I used wigs, hats,scarves, and nothing. I loved not having to shave my legs! My house got very clean on pretreatment steroid days, I took pain meds when needed and never apologized for staying in bed when I needed to. I worked except for the 4 days after treatment- regimen was TCH plus neulasta x 6 rounds, I finish herception 10/11. I used a port, I've finished 4 baby quilts during chemo

  • neecee
    neecee Member Posts: 663
    edited June 2011

    {{{{blondelawyer}}}

  • neecee
    neecee Member Posts: 663
    edited June 2011

    Cyborg - good to see you back on the boards!

  • neecee
    neecee Member Posts: 663
    edited June 2011

    upsparent - I wish I had your energy even before chemo!  lol.  I am also working through treatment.  Have not missed a day yet, including the days right after treatment.  I was green one day, but kept working.  I know, I am an idiot.

  • MamaV
    MamaV Member Posts: 907
    edited June 2011

    neecee - ha ha.  Then I'm an idiot too.  Had Taxol yesterday and would rather be home than at work today, but gotta plug through it!  Have a good day!

  • ---
    --- Member Posts: 197
    edited June 2011

    neecee, mamaV, DebRox, cyborg -

    Yeah, so wrong indeed.  i'm hanging in here.  thank you all for the warm thoughts, need more of that especially now.  will keep you updated when i find a new place.

    Laureen

  • ---
    --- Member Posts: 197
    edited June 2011

    linda614,

    my scalp was hypersensitive before and during the shedding of hair.  it felt like being ripped apart actually.  when 90% of my hair was gone, the sensitivity went away as well.

    Laureen

  • bak94
    bak94 Member Posts: 1,846
    edited June 2011

    Yeah, I still have just a bit of stubble, enough to drive me crazy! Cant go any shorter without a raor and we are not suppose to do that. It shoulkd be gone after this treatment. 3rd treatment still going on until 6 tonite, so that makes 28 days since first treatment.

    Laureen, like the others already said, that really sucks. I couldn't even imagine going through that.

    Just realized my hospital tray has a "vanity shelf" complete with mirror and holder for makeup. Made the mistake of looking in the mirror halfway laying down. Not a pretty site! Where did that double chin come from!!! So that is how the nurses and visitors see me! I need to make sure I sit up straight to take a bit of the double chin away:)

  • Sue53
    Sue53 Member Posts: 63
    edited June 2011

    Lauren, thinking of you today.

    To all of you working thru this, I am amazed at your strength! Take care of yourselves.

  • Katarina
    Katarina Member Posts: 386
    edited June 2011

    Marybe - I don't have a face mask but after my last hospital stay I'm considering one. I was in Japan last year and my hosts shared an interesting data point. When I asked if all the people wearing masks (and there were many) were ill and trying to not spread their germs, the answer was no, actually these people in great numbers were protecting themselves.

    Whatever the circumstance, I have no problem with wearing a face mask. Planes are notorious for germs. Good for you. 

    I'm washing my hands everytime I come out of someplace now. I wonder if wearing gloves would help. 

  • bak94
    bak94 Member Posts: 1,846
    edited June 2011

    Count down to my hospital relaese, probably about 4-5 hours left. I am soooooo bored. Sorry about posting so much, and pretty much posting nothing to interesting! I feel good, I think that makes being stuck in bed worse. Had one visitor, my niece, it was a nice visit. Told my hubby to stay away until time to pick me up. No need for him to be here being bored, and he is cleaning the house! Yay! Maybe I will go for my excursions out to do circles in the hospital again.....

  • ---
    --- Member Posts: 197
    edited June 2011

    sue53,

    thanks for your thoughfulness.  i am in dire need for good positive energy these days.  will keep everybody updated once i get a new place.

    Laureen

  • ---
    --- Member Posts: 197
    edited June 2011

    bkj66,

    hang in there.  i know how long and boring it could get.  few more hours and you're done!  make sure you treat yourself well after!  i go back for my #3 on monday.

    Laureen

  • bak94
    bak94 Member Posts: 1,846
    edited June 2011

    1.5 hours to release, and it is a beautiful sunny day in seattle! My nurse (nice looking guy, and nice) told me I can't do any gardening if my counts are to low! Boo hoo! First, no collecting my chickens eggs, and now this! Oh well, need to be safe.

  • DebRox
    DebRox Member Posts: 437
    edited June 2011

    Bjk66: I can totally relate, my counts are low and I am scared to do anything. I don't know when they will pull up. I had my blood drawn on Wed, given results on Thurs. Will be going next week for another lab for peace of mind results.



    My mo told me that the counts bounce back on their own. Well what she didn't say was how long etc. So I'm staying home again all weekend. I was at least hoping to go to a movie.

  • blondelawyer
    blondelawyer Member Posts: 327
    edited June 2011

    bjk66:  where are you getting treatment?  I hope you get to enjoy the beautiful weather even if you can't garden!   

  • blondelawyer
    blondelawyer Member Posts: 327
    edited June 2011

    Anyone have good tips for diarrhea?  I've been using immodium, eating things like rice and bananas, and no luck.  My doctor said that we can try something stronger, but I am worried about swinging the other way, you know?  Right now I am chugging the water and gatorade to stay hydrated and keeping close to the bathroom.

  • Sue53
    Sue53 Member Posts: 63
    edited June 2011

    Blondelawyer...I had that problem first round but don't seem too this time...yet.  Hopefully i don't go the other way!

  • blondelawyer
    blondelawyer Member Posts: 327
    edited June 2011

    Just got a call from my oncologist and he is ordering some prescription medication for me...so hopefully that will help!

  • Cyborg
    Cyborg Member Posts: 848
    edited June 2011

    BKJ66 hopefully u are out and feeling OK.

    Blondelawyer I hope your prescription helps. Try to stay hydrated.

  • Cyborg
    Cyborg Member Posts: 848
    edited June 2011

    I don't know what's going on but it could be this energy surge that I am feeling a lot of anxiety. I just feel freaked out. I have been babysitting a pot of black beans all afternoon. I have been sleeping in and now I am just vibrating.

  • Patriotic
    Patriotic Member Posts: 281
    edited June 2011

    Hi everyone. Hope you are all feeling ok.



    Blonde lawyer, if you can stomach it, maybe, cheese and bread to curb the diarrhea? Is it from the Naratinib?



    Neecee, good for you. I am working, too. Helps to keep my mind off this nonsense! LOL



    Did anyone have crushing headaches with Taxol? I thought I might be dehydrated today but after drinking a ton of fluids, I still couldn't budge the headache.

  • Patriotic
    Patriotic Member Posts: 281
    edited June 2011

    Laureen, the American Cancer Society has funds for temporary housing. Still, you may want to check with them about other benefits. I hope you find a new living arrangement soon. That's just awful that your landlord chose this timeframe. People are so cold sometimes.



    Yesterday, I went to the American Cancer Society "Look Good-Feel Better" event. It was nice. They gave tips/demonstrations on wigs, turbans, scarfs etc. They also gave out nice bags of lotions and make-up (some high-end brands). They host these events in most metropolitan areas.

  • bak94
    bak94 Member Posts: 1,846
    edited June 2011

    Blondelawyer, I am getting treatment at swedish, but my doc does a 24 hour ac drip so I have to do at the main swedish hospital on broadway. Where are you going?

  • neecee
    neecee Member Posts: 663
    edited June 2011

    blondelawyer - hope the new script helps!  I have had an off and on battle with diahrrea, but Immodium has worked for me so far.

    cyborg - hope you find the source of energy/anxiety.  Are you consuming any caffeine?

    patriotic - I am not on taxol, but I got a nasty headache with cytoxan that took me a week to shake.

  • bak94
    bak94 Member Posts: 1,846
    edited June 2011

    not feeling so well on day 2 of treatment 3, or is it day one? Since mine takes 24 hours I guess I count from when I finish so this is actually day 1. A little shaky and my hands are burning. It took a few days for that to happen last time....sorry to be whiny and not supportative to others.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2011

    Hi everyone, I'm sorry I haven't posted in a while.  I have been thinking of each of you and praying that you are all tolerating any SEs very well.  I have just finished cycle 2 of 4 AC on Wednesday.  So far I have been pretty fortunate, aside from some indigestion and constipation and a little fatigue.  I have been drinking 2-3 quarts of water a day and eating fiber and fruit and staying active, so they gave me Miralax in addition to the colace and that seemed to do the trick.  My digestive system has always been sluggish.  I pray that these are the only SEs I have.  My hair has begun to release over the last three days and now I am off to the salon to put it out of its misery.  Please continue to stay positive and take care of yourselves.  {{HUGS}}

  • neecee
    neecee Member Posts: 663
    edited June 2011

    bkj66 - that is what we are here for - to support each other.  Some days we need support, some days we give support.  Sorry you are not feeling well.  Hugs to you!

    Marcya - glad your SEs are mild.  I am waiting for my head hair loss to begin - figure it is going to happen any day now.  Hugs back to you!

  • 40-years-old-now
    40-years-old-now Member Posts: 309
    edited June 2011

    Questions,

    I had my first TC treatment of chemo on Thursday and my shot on Friday. I also had my first rads on Thursday. Today My bones are ache, it this because of the shot, they told me I might have achey bones from the shot but not until 2-3 days after.

    Candice

  • Beaglesgirl
    Beaglesgirl Member Posts: 287
    edited June 2011

    Candice my nuelasta pain starts about 6 hours after I get the shot and intensifies over 3or4days. I hope it doesn't bother you too bad. It hits me hard, but not everyone.

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