What term to use instead of 'survivor'?
Friends and family sometimes refer to me as a breast cancer survivor. I hate that term because it feels unrealistic and fake. I'm in remission. I won't be a survivor until the day I die from something else.
While I don't want to belittle people for using a very common catch phrase, I'd like to refer to myself and others using a more accurate term. I'm not a warrior or goddess. I'm not a hero for having survived treatment. I'm simply someone who hopes to God that the worst is behind me, and now I'm trying to live my 'new normal' life.
Has anyone come up with something better?
Comments
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I don't call myself anything in general. I don't tell people about my cancer diagnosis now. I told some people (family, some people at work who needed to know) when I was undergoing treatment. I think of myself as someone who was diagnosed with cancer and who now feels pretty much back to normal, even though I worry. If my family wants to call me a survivor, though they usually do not talk about bc with me, that is up to them. In general, when I identify myself as something, I focus on career related things or personal things (like being a mother) and stuff like that. Sometimes it frustrates me that having a cancer diagnosis requires so much of a person. Why not just call yourself "in remission"? That is as good as any way to describe your situation. Technically, I thought survivor didn't mean cured? I thought it just meant "alive." ???
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Something odd happened that post, sorry. Will try again.
I would say maybe an optimist? It's a bit odd that by your definition you can't be a survivor until you stopped surviving.
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In my mind, 'survivorship' means 'overcoming' -- and that is tenuous. To others, survivorship means having a history of cancer. So it's true that a lot depends on your definition of the term.
I have been very out in the open about my experience, and it has changed my life, but at the same time I try hard not to let it define me.
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sur-vi-vor; noun; 1. A person who survivies; a person who remains alive after an event in which others have died. 2. To remain alive or in existence 3. To carry on despite hardships or trauma; 4. To perservere.
I understand what you're saying but by definition you and all of us are survivors, we all continue to perservere (that's my favorite). I was told at my hospital that you're considered a survivor already because it didn't take us, we found it and got treatment. I guess it's all in what definition you put on it but right now I'm dancing with NED so, I did survive bc & take it as a compliment. Good luck in your search, I'm interested to see what others come up with.
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If you had an episode of mental illness in the past or something like an abortion it would be very impolite of people to comment, and if your history included time in prison it's probably illegal to bring it up. Why does personal stuff in the past become public proerty, dinner-table talk, do they want to see my scars? Sure, I have "done" cancer, (hopefully for good but we never know) but do they want to know what I'm doing now, or shall we just rake over all the previous boyfriends, missed promotions, disturbed teenagers, bad trips and everything else I want to leave behind? "Cancer?, oh, you are behind the times, that's so 2010; This year i'm taking up...[insert reckless activity of your choice]......wanna sponsor me?."
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Ditto what Poptart said.
I do feel somewhat like a survivor for coming through four surgeries, three months of chemo, and six weeks of radiation in a 12-month period relatively unscathed. However, cancer doesn't define me; I've also had an ingrown toenail and a broken ankle, but I would never identify myself as an "ingrown toenail survivor." I had cancer and was treated for it; I had a broken ankle and it's healed. Hopefully, I won't have a repeat of either one. 'Nuf said.
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To clarify, I rarely bring it up in conversation but others do. The other day, my sister told a sales clerk that I'm a breast cancer survivor (I was inquiring about all-natural skin care products). Also, I attend an exercise class for women who have gone through BC surgeries, and I've found myself stumbling over its description when talking with others about where I spend some of my evenings.
Maybe 'survivor' really is the best term. But it seems to go hand-in-hand with people's assumption that survivor = cured.
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Hi, I dislike the term "survivor" as to me it connotates that BC might have won. I never put my head there at all. I just put it down and determined to myself to get thru it, however I made it.
I respect every woman's right to call it whatever she feels most comfortable with.
For me, I refer to myself as a "veteran"...I fought in a war and I have some scars, but I'm here to talk (or not talk! Yikes, the stuff people ask) about it.
For that little issue, I have found that a blank stare, a semi long silence followed by a calm "why on earth would you ask that?" has served me well or even "My, that's a personal question" with a little laugh and turning the subject to something else.
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I agree with you Texas357. Even tho' my diagnosis is/was different from yours, I feel that I am "surviving" on a daily basis....but not a survivor. Just my opinion
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Celtic Spirit, you probably seen much worse troubles and needed much more perseverance with your ingrown toenail than BC done to me!
I like "Veteran" too Annie, although for me it has connotations someone about 70 and i'm only just adjusting to being 50. heck, i'm 23 inside
just a shame my body can't keep up!
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I agree with you Texas - I don't like the term survivor. I don't really use any term - if it comes up i just say that I have spent the last year going through treatment for BC. but it rarely comes up (i need to stop bringing it up when people compliment me on my new short haircut, and just say to them that I felt like a change!). if others use the term survivor, then there's nothing i can do to stop them, although if it was a sibling like in your case, i would probably tell them that it bothers me.
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Many years ago I was in my first adult job. I was working in the office and one of the vice presidents came in and struck up a conversation with me about work. I had had a few lucky breaks and my mom had taken to calling me "Jelly Side Up" to reflect my sometimes uncanny and not necessarily deserved survival skills. Somehow in the conversation I managed to tell this fellow (proudly, like the naive moron that I must have been) that I was a Survivor.
He looked at me and said, "But wouldn't you rather be an Achiever?" Well, I guess I would.
It stuck with me, all my life: it's been (gasp) 36 years. Whenever I hear the word Survivor, I think, no, Achiever. So I am a Breast Cancer Achiever. For me it just means I get ahead of the luck and set a goal.
Yes, I may be a control freak.
Warmly,
Cathy
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well, if you were in a bad car accident....and lived..would you be a car accident survivor? or a messy divorce...a divorce survivor? there are a lot of "survivors" out there'; child abuse...domestic violence...the list goes on and on.
i think all of this has potential to change as we continue to put time past of initial diagnosis. when i was in treatment; i really did consider myself a warrior....then i kinda got into the suvivor thing.,...now...i just see myself as "resilent"
and now, i am just glad to be alive and grateful for each day., maybe my new description will be "grateful"
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Namaste!
I do not consider myself a BC survivor. I don't like the term. I have survived a near drowning in white water canoeing. I survived childhood. For me, surviving means the event is over and done with and I came out of it alive. I could consider myself a survivor if someone could tell me I was cured and will not have to worry about it any longer. No one can assure me of that absolutely. For me, I consider that after treatment for BC I am currently in remission and it is possible that I will remain in remission the rest of my life.
I would rather not be referred to as a BC survivor by others and I communicate this to those who are important to me. For the rest of the world, how they refer to me is not important and does not define me.
Karla
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We had a leaflet sent round from work about personal resilience in the winter: did we have backup plans for if our schools closed or childcare fell through: For if the buses ran out of petrol or got stuck in snow; Did we have a week or two of spare food, could we be able to help an elderly neighbour as well as get ourselves in to work business as usual; they wanted us to have clear plans for if the roof fell in, or so it seemed. Getting that leaflet on my fourth day of trudging 6km in through snow, it was one of those last straws when I thought, yes if one of those inconveniences does happen to me now that I came back to work after treatment, I am going to treat myself and stay in bed.
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I like veteran. It's much more appropriate to how I view things. And Karla, I agree with you 100% -- which is the reason I asked the question.
Maybe it's because I was so open about every portion of my diagnosis/treatment that people feel just as open about referring to my experience with breast cancer. It's not that I refer to myself in terms of this disease at all -- but friends and family do. So I'd like it to be a term I'm confortable with them using.
Thanks to all of you who voiced an opinion. It's interesting and helpful.
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I feel exactly as HantaYo does. In fact, I couldn't have expressed my own feelings any better. I think the term "survivor" often conveys that the cancer experience is over (despite the dictionary definition) while "in remission" accurately conveys that there is no definitive cure. For me, the cancer experience is part of my life on a daily basis now...and I think I do a pretty good job of staying both balanced and realistic. It is helpful for me on many levels to remember that I am in remission; it spurs me on to do all I can to remain in remission.
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Warrior...because you are in battle
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hymil: I really enjoyed your first post.
I also enjoyed the perspective of others regarding the term "survivor". I do not like the term and over the 4 1/2 years I have dealt with BC, I've come to dislike it and be offended by it. I wish I could suggest another term. I do like the sound of "remission" but it really doesn't fit me or many other women. The term is being used by thousands upon thousands of women and their families and I believe it has trivialized BC and the years of struggle and anxiety that can go with it - I have a friend still battling BC after 17 years and 3 re-occurrences. I wish there was a better term.
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i've finally come to peace with the idea that "the club" (to which none of us wanted to join) will always have a different perspective, and thus use different language, than those who haven't experienced this. as i always (half) joke with people, most folks gain their oncology info from Dr. Oz and Oprah - well intentioned, but hardly the real and final deal.
i call myself a survivor to others, because it's the most common and accessible word. yeah, it sometimes feels vapid or trivial compared to the ordeal, but whatever. i try not to sweat that kind of stuff anymore.
i do like nora's idea of "warrior" - my cousin kept calling me "HC" for hardcore during this, and i liked that. i think our pinkwashed movement could use a little more kickass atmosphere.
great ideas all around - always interesting to see what everyone is thinking.
j
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I too, am not crazy about the word survivor,in my on head I feel 2 years is still too soon to say I am a survivor,(give me a few more years NED then I will feel better about saying survivor)and most people think it"s a done deal,no more worries,(which bugs the crap out of me)Then when I use the word remission,I feel I am jinxing myself,because to me that means I am waiting for it to come back.So if the subject does come up I just say I went through tx for BC.and then hope and pray it doesn't return.It sounds like I'm Debbie Downer,but I'm really not,I am in a great place right now.
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I guess there is no perfect word to describe us. The whole bc thing doesn't come up much for me so it's never been an issue. I do agree that the word survivor makes it seem like it's over. I like all the other words too warrior, achiever, veteran maybe we can call ourselves "jelly side up club."
I don't sweat the small stuff myself either, they can call me what they want...at least I'm here for them to call me! Great thread.
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So many good ideas! I refused to call myself a survivor until I hit the 5 year mark because I thought it might jinx me - now I mostly just want to be me without reference to any past disease - last year I was our Relay for Life honorary spokesperson with another woman - she has since died. This year I don't even want to participate - is that crazy?
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I like survivor. However, this is one of those semantic things where you can label yourself in many alternate ways and people will still get the gist of what you are talking about. Like "housewife." You can call it homemaker, household matriarch, domestic monarch, or domicile goddess (a term I save particularly for the bottom of my 1040 Form, as we all know how finely honed the IRS sense of humor is.)
Haha, hymil, your first post was hilarious!
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Ellie1959: that's not crazy. I'd probably do the same thing. In fact, I'm leaving my exercise class for "BC veterans" (I'm trying out that phrase) because every week is a reminder of what I'm trying to leave behind. The women in this small class are wonderful but they have accepted BC as their cause, whereas I would rather not have it in my face week after week.
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I like "veteran". I like "warrior". I guess veteran impies the war is over, which for me, it's not.
I agree that "survivor" seems to equal "cured" in most people's minds, which I am not.
Before I was Dx'd as stage 4, I participated in one of those pink fund raising races just as I thought I was putting this behind me, and I had "surviving" then the year painted on the back of my shirt. Got the stage IV dx one month later, so I guess I'm still just surviving. One friend commented : "wouldn't that be fun if you kept wearing that shirt, and someday you just had a list of the years going on and on all over it?" Working on that.
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If I "have" to tell someone I was diagnosed with bc that is all I say. I don't bring the word survivor in the conversation because as another poster rightly said, none of us know if we have or will "survive" bc until we pass on and they say it was from another cause. As long as we live, we are in a constant battle "to survive" bc but as to being a "survivor" at this point while we are still alive, I think is an incorrect term to use, imo. However, our relatives who love us, seem to prefere to think of us as "survivors" because they seem to have a hard time dealing with the truth of what bc really is. I let them call me what they want if it gives them peace of mine.
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Grammatically, "survivor" does apply to one in the act of surviving.
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The question doesn't come up often because I only told a handful of people. It does come up when I have doctor appointments under the category of previous surgeries. Since I have had more than a dozen surgeries, including MAJOR life threatening ones, I just say, " I was treated for breast cancer.". If it would ever come up in conversation, I would say the same thing or just change the subject and ask, "How are you?". I think people who are curious to ask are more interested in talking about themselves anyway!
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Personally, at stage iv I like warrior - since I will be battling this crap always now.
For the years from my initial dx and treatment and declared NED - I WAS a breast cancer survivor. I had it, I treated it, and for all the tests and stuff - I was cancer free - I survived it.
If it does not come back - you are a Survivor. Texas357 - you are in my prayers that you will never again have to confront this ugly beast - I do get what you mean about the term, though but you can call yourself a survivor - you don't have to wait until you die from something else - if it never comes back, you will grow old and gray and have survived your bout with breast cancer. I hope that you do...
Hugs and all the best to you
LowRider
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