November 2009-Starting Chemo

1…110111113115116…148

Comments

  • doronet
    doronet Member Posts: 342
    edited December 2010

    Wow, lots of dr. visits today...

    Good luck, Alicia.  Definitely check in with us as soon as you feel up to it.

    Linda:  praying for "all clears!"

    Melinda:  keep us posted on Clyde. Any changes since you pulled out the stitch?  I hope nothing important has fallen off!!t!  :) 

    Keep resting, Sue.  So good to hear all went well!

    Happy surgery/check-up/test/recoup Wednesday!!! 

    · Share on FacebookShare on Twitter
  • micheleboots
    micheleboots Member Posts: 1,993
    edited December 2010

    Wow what a day it is going to be in the medical world..I think us alone are keeping those doctors in their shiny new cars and boats...Sending out one giant sized hug for all my lovely lady friends...

    · Share on FacebookShare on Twitter
  • Melinda41
    Melinda41 Member Posts: 672
    edited August 2013

    Nette: Nothing important has fallen off, but.....the next morning, the helicopters stayed over my house for a loooong time. I think they knew I pulled the tracking chip out! It is still in a baggie in my purse (I wanted to show it to the wound nurse at work) so as long as I stay close to my purse, I should be OK!!!

    The pisser is that I really like surgeon....but he only put 2-3 stitches in Clyde, how in the hell did he miss pulling that out?? The weren't the dissolving kind, I had to go back and have him cut them out 10 days after the biopsy. But, at least that black I saw in there was the stitch and not some big dead spot that was growing.

    · Share on FacebookShare on Twitter
  • Melinda41
    Melinda41 Member Posts: 672
    edited August 2013

    Back from Rad Onc, he is such a party pooper. I asked if my last scan looked like radiation changes to him and he does his weird face and says he'll talk to Big Onc. He seems determined to keep me worried. He also scheduled a mammo for next week of my one boob, no concerns, just getting me on a yearly schedule. You would think that the scans would be enough, but not for Dr. Poopy Head.

    His nurse did give me the copy of the last scan, changes could be radiation, could be tumor infiltration, blah blah. SUV numbers still hanging out less than 5, so that is good. I get the feeling my Docs play good cop (Big Onc), bad cop (rad onc) and comic relief (surgeon and his forgotten stitches).

    I want a nice NED scan too, damnit. Rad Onc said maybe one day I will get a clean scan, but this one still has question marks.Party Pooper meany head. So I will mammo next week, get my herp next week and that should be it for the rest of 2010.

    · Share on FacebookShare on Twitter
  • suzieq60
    suzieq60 Member Posts: 6,059
    edited December 2010

    Melinda: Can't you piss off that rad onc - what's he got to do with anything now - sounds like a total prick. I finished with mine ages ago. Your surgeon and big onc should be your carers now. Had a laugh about the choppers - are you sure it wasn't a space craft?

    When we get the pathology back, then we'll know if she got clear margins etc. I hope she did. Also hoping Bonnie's little sisters are nothing. If they're something and different from Bonnie as in nasty - then we'll see. I guess if the path on Bonnie does come back as low grade (like the biopsy) and if her sisters are also, then it's another round of rads.

    I slept ok after banishing DH to the upstairs spare room :) Pain is minimal and wearing a soft bra is helping big time. I did end up cooking pizza myself last night - too easy and really yummy better than take out and cheaper. Turns out she is charging a gap on the first surgery so it is going to cost me but not as much. Plus the 2 anaethetists - SHIT!!!

    I got the wires put in before I got admitted so I should get most of that back from the government if they don't stuff up the billing of it. Our system here sucks - one rule for in hospital another for out of hospital. I hope you guys end up with a half decent system over there.

    Alicia, Nette and Linda - good luck!!!

    Sue

    · Share on FacebookShare on Twitter
  • micheleboots
    micheleboots Member Posts: 1,993
    edited December 2010

    Melinda, you make me laugh so much.  I wish we lived closer so we all could visit.  I get such a kick out of all of you..At least cancer has done something good..It has brought us all together.  Melinda what did your onc say about the alian chip thingy?  You should frame it up and give it to your surgeon.  A little xmas gift.

    · Share on FacebookShare on Twitter
  • suzieq60
    suzieq60 Member Posts: 6,059
    edited August 2013

    Pathology is in!!! Bonnie was grade 2 5.8mm IDC with some DCIS totalling 6.8mm. Bonnie's little sisters were ADH (atypical ductal hyperplasia)!!! - not cancer. She's happy with the margins -WOOHOO!!!!!!!!!!!!!!!!!!!!!! Is it normal to be happy I had a cancer cut out? Better 1 than 3.

    Thankyou for the hugs

     Sue

    · Share on FacebookShare on Twitter
  • Melinda41
    Melinda41 Member Posts: 672
    edited December 2010

    Sue: It seems strange to say woo hoo, but WOOO HOOO! So does that mean no chemo, just rads? Will you get a report on Bonnie with the er/pr/her2 yada yadas on it? I guess that part doesn't make much difference since your first was triple positive, you are already doing everything that can be done, right?

    Alicia: Hope you are comfortable and can check in when possible.

    Linda: When will you get your scan results.

    · Share on FacebookShare on Twitter
  • BrendaSharon
    BrendaSharon Member Posts: 506
    edited December 2010

    Checking in....

    I'm glad to see your happy with the results Sue. Whoo00Hoo for sure!!!!!

    Linda, did you hear anything yet? (((HUGS)))

    Alicia, You will be even more gorgeous than before...if that is even possible!

    Me I'm angry at my own self as I've started smoking again...My DH is mad at me and said you want more cancer..of course I don't. I must say cigarettes has got to be the worst addiction ever. I started at 15 when given permission back in the day when it was OK for us to smoke and no one thought no worse of it or you. Anyways, no I must struggle again to quit. I made it a year. I was soooo proud of myself. I knew I had to then because it would have interfered with treatment, especially the rads part.....Then I started again from all the stress I feel.

    To everyone a great week, big hugs and warm thoughts!!!!!

    · Share on FacebookShare on Twitter
  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited December 2010

    HI girls.  Had a tough day yesterday, surgery took 3 hours recovery took me 5.  I was so woozy and sick to my stomach.  First time that really happened to me.  Then the pain meds they were giving me through my iv made my blood pressure drop too low.  So it took a bit to get out of there.  I really wish I could of stayed I should of demanded.  AS it took nearly 3 hours to get home.  But I am feeling much better today.  NO DRAINS woo HOO so I just took a shower and got a look at the new foobies. They look so much better ~ she cut skin off my underarm area as I had dog ears there.  *Puffy flaps of skin.  So now I am all smooth under there no more rolls.  But incisions go to nearly my back. 

    Sue any news yet?  Brenda good luck with your check up.

    Hugs girls,

    Alicia

    · Share on FacebookShare on Twitter
  • BrendaSharon
    BrendaSharon Member Posts: 506
    edited December 2010

    Hi Alicia,

    Glad your dog ears are gone....

    Also take some time to rest, you need it and deserve it...

    · Share on FacebookShare on Twitter
  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited December 2010

    Sue! Yippee! I'm glad it's all working out :) Are you feeling better from the surgery?

     I'm still waiting! I would have thought the nurse would call by now, but hopefully they're backed up from Thanksgiving! HOPEFULLY!

    · Share on FacebookShare on Twitter
  • suzieq60
    suzieq60 Member Posts: 6,059
    edited December 2010

    Alicia - good to hear you made it through. I hate surgery!!!! Sounds like you should have stayed in for a night. Make sure you really rest and do nothing.

    Brenda - I still haven't stopped you know what - stress is the big factor. Don't feel guilty.

    Bonnie was 90% ER+ve 20% PR +ve HER2 -ve

    So now rads again so I'll get matching boobs now - 2 hard lumps. I'm already taking Arimidex so that takes care of that.

    Pain is minimal - wearing the soft bra is helping a lot. There doesn't seem to be much bruising. DH said I was black and blue last year - just shows you the difference a female surgeon makes. The lymph node scar looks a third of the size of last year's one.

    I see her next Tuesday and will arrange to get my port out. Last naked H tx is Wednesday but Big Onc will be over there at the BC conference. I'll have to put up with the registrar again - sigh.

    Linda - hope the news is good!!!

    Nette - how did it go?

    Sue

    · Share on FacebookShare on Twitter
  • doronet
    doronet Member Posts: 342
    edited December 2010

     Wow, I don't really know where to start...

    Sue:  Glad it hasn't been too painful.   Hopefully, it will stay that way.  I had the same question as Melinda on the "what now."  Figured it would be rads.  As you said, not much else to do that you haven't done or are doing.  At least you know what rads are all about this time.  Soooooo glad the scars are not as bad this time.  And can you believe the port will actually be coming out???!!!  That's great news in itself!!!  And I don't have my mammo until Dec. 13, so I have some time until then. I will be the most worried about those calcifications that popped up on the last mammo from the rads.

    Alicia:  you made me hurt just reading your posting. That's exactly why I could never be a nurse or anyone in the medical field, as I tend to feel others' pain as mine.  (I once visited a friend who was in the hospital to have a baby.  She was hooked up to a monitor because the baby was having trouble.  When I went in and saw my friend all hooked up, I had to leave the room because I was so upset at seeing her like that, I almost passed out. )  I'm sorry it took so long for you to recover.  It's too bad they wouldn't let you stick around for the night, though sometimes I think it is better not to stay in the hospital with all the stuff you can catch when you're there.  Some people come out in worse shape than when they went in!  Scary.

    Linda:  any word yet? Am hoping it is all good news.

    I would looooooove to get together with all of you brave ladies.  

    Happy Thursday evening!  Nette  :) 

    · Share on FacebookShare on Twitter
  • suzieq60
    suzieq60 Member Posts: 6,059
    edited December 2010

    Nette: I've started sending subliminal messages to you for Dec 13th - hope there's nothing there!!!!

    I can't see the wounds they're covered up but can only see a tiny bit of bruising near the edge of the dressing. Hey, I can thank the chemo for my forgetting what it looked like last time!!!

    Sue

    · Share on FacebookShare on Twitter
  • micheleboots
    micheleboots Member Posts: 1,993
    edited December 2010

    Thinking of all you lovelies and sending out big group hugs to you all.

    · Share on FacebookShare on Twitter
  • Melinda41
    Melinda41 Member Posts: 672
    edited December 2010

    Wow, I will  have to retract my Dr. Poopy Pants remark. He (Rad Onc) just called me, not a nurse, but him. He said he looked at the scan and he agrees with Big Onc that it is just changes from radiation that showed up on my PET. That is great, but I am more shocked that a doctor actually called me out of the blue!

    Big Hugs for everyone but Alicia who gets a gentle sideways hug.

    · Share on FacebookShare on Twitter
  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited December 2010

    FREE & CLEAR!!!!!!! Still dancing with NED!

    Even though I have this great news, why am I bawling like a baby!!!??? Cry

    · Share on FacebookShare on Twitter
  • Melinda41
    Melinda41 Member Posts: 672
    edited December 2010

    Oh Linda, that is absolutely fabulous!!!

    You are crying because you can finally breathe again, I am so happy for you.

    · Share on FacebookShare on Twitter
  • BrendaSharon
    BrendaSharon Member Posts: 506
    edited December 2010

    Yeah Linda.......and yes a good cry was in order....

    Sometimes tears SPELL RELIEF!!!!

    Alicia, Hope your feeling better today!!!!!

    Sue, Thanks but I really need to quit. I'm so sorry you have to go thru rads again!!!!bUT, I guess it's better than the chemo for sure!!(((((warm hug)))))

    Well I have a rash that has started on my chest, right between both breasts. It started two weeks so far..it seems to be spreading slowly and it's weird, cuz it's sort of rough and then I also noticed one on my side L. hip,(2 spots of it), then this morning noticed one small area of it right behind my ears and one small area on my neck... Have no clue what's causing it either.

    Have a great weekend girls....(((((HUGS TO ALL)))))

    · Share on FacebookShare on Twitter
  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited December 2010

    Linda ~ that is great news !!!  CELEBRATE ~  so happy for you.

    Brenda... hmmmm on the rash?  Hope it gets better soon.  Something you ate maybe?

    Feeling much better today, up and about~

    Hugs,

    Alicia

    · Share on FacebookShare on Twitter
  • Melinda41
    Melinda41 Member Posts: 672
    edited August 2013

    I heard about this at the cancer meeting last night. It is a testicular cancer awareness spoof of Michael Jackson's "Man in the Mirror". It is called "Nads in the Mirror". Warped...but funny.

    http://www.youtube.com/watch?v=fypm_aeR5qA


    · Share on FacebookShare on Twitter
  • suzieq60
    suzieq60 Member Posts: 6,059
    edited December 2010

    Linda: Great news!!!!!! Now my eyes are leaking - what a relief.

    Melinda: Dr Poopy Pants ain't so bad after all.

    Brenda: I'm even starting to realise I'll have to quit!!! I have got to be totally crazy for not even trying - at least you have the guts to try. Do you have any cortisone ointment? You should try that on your rash.

    Alicia - glad you're feeling better today - how are the new boobs?

    The difference between last year and this year's recovery is totally amazing. I did the groceries yesterday and the washing!!! She (the bs) is definitely a witch. Just shows you the difference a woman can make. No pain unless I poke at it. I feel well like I haven't even had surgery.

    We were both SO happy yesterday - even DH which is good for him. I felt really light hearted.

    Yeah - Bonnie's GONE!!!!!

    Sue

    · Share on FacebookShare on Twitter
  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited December 2010

    I feel like we are having an early Christmas!

    I'm sorry for overlooking Alicia and Brenda Sharon...I've been so wrapped up in scans. I'm glad everything came out all right for you Alicia. You will have to post a cleavage pic :)

    Brenda, are you or have you seen a dermatologist (sp?)

    Love to all!

    · Share on FacebookShare on Twitter
  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited December 2010

    New boobs are so much better.  SOFT ~ loving the silicone !  I am sore and swollen but doing good.

    Have a good night girls,

    Alicia

    · Share on FacebookShare on Twitter
  • micheleboots
    micheleboots Member Posts: 1,993
    edited December 2010
    Lindas X 2 = good news.....Kiss
    · Share on FacebookShare on Twitter
  • suzieq60
    suzieq60 Member Posts: 6,059
    edited December 2010

    Have a great weekend girls!!!! I'm feeling great!!! but it's been raining non stop so I can't do any gardening.

    Sue

    · Share on FacebookShare on Twitter
  • suzieq60
    suzieq60 Member Posts: 6,059
    edited December 2010

    Girls - where are you?

    Bump - don't want us to drop off the first page :)

    More rain coming - we've had quite a deluge. I had to drain water out of the pool yesterday.

    I've been having nana naps in the afternoon but then can't sleep at night!!!!

    Sue

    · Share on FacebookShare on Twitter
  • micheleboots
    micheleboots Member Posts: 1,993
    edited December 2010

    Sue, I am here for ya sista.....been busy this weekend.  My daughter was in a play, they had 4 shows...thank goodness that is done.

    · Share on FacebookShare on Twitter
  • suzieq60
    suzieq60 Member Posts: 6,059
    edited December 2010

    I know you girls go quiet on the weekends as you are busy but just thought I'd give us a bump :)

    · Share on FacebookShare on Twitter

Categories