Did anyone had her hair back after taxotere???

melania
melania Member Posts: 117
edited October 2017 in Stage I Breast Cancer

Ok girls i know we are not about our hairs or breasts anymore , and as we all know there are worse things than no hair  and also it's better to be alive and be bald !! Anyways

I heard that taxotere causes permanent hair loss and i was wondering if anyone had that and had her hair back.

thanks everyone

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Comments

  • Char2010
    Char2010 Member Posts: 532
    edited November 2010

    Melania - I had four treatments of TC and finished the last one mid-June.  My hair is growing back - not as fast as I would like but probably at a pretty normal pace.  I am on Arimidex now and concerned with thinning hair.  Always something to worry about :-(

  • Alpal
    Alpal Member Posts: 1,785
    edited November 2010

    I had 8 Taxotere and Cytoxan treatments in 2008. My hair is back! In fact, it started coming back between the 6th and 7th treatments. I think the great majority of patients do get all their hair back.

  • lago
    lago Member Posts: 17,186
    edited November 2010

    I have read that some women don't get their hair back. The statistics I see are anywhere from 3-6% but I think they are just starting to collect information so I don't think that is accurate. It  might be less.

    Chances are you will get your hair back.

  • Jayne_in_UK
    Jayne_in_UK Member Posts: 517
    edited November 2010

    Melania I had FEC-T chemo from July to October 2009, with the final 3 treatments being Taxotere. My hair started growing back while I was having the Taxotere and now it is thick and growing as fast as it did before chemo. The hospital I went to say they have never had anyone whose hair didn't grow back, although sometimes this does happen. I have been taking Arimidex for almost a year and I was concerned that my hair would thin, but although it took a while to thicken up again it has stayed that way. Just a shame that our hair doesn't grow back as quickly as it comes out :-)

    I wish you well with your chemo and hope you have minimal side effects.

  • Karen09
    Karen09 Member Posts: 320
    edited November 2010

    I had FEC-T - four treatments of FEC and then four of Taxotere.  After I finished the FEC, my hair started to grow back and it never fell out again with the taxotere.  Good luck!

  • melania
    melania Member Posts: 117
    edited November 2010

    Oh wow thanks for all of your replies , that sounds great .

    I am doing my last and 4th FEC today and then i will start Taxotere with Herceptin. I was reading very bad things about taxotere and permanent hair loss in one of the threads in this board and almost everybody was complaining why the oncologist and drug companies did not tell about it .Anyway I will do whatever I can even if i lose my hair (which i already did with FEC ).This is so wonderful to start the hair growing back even on taxotere . Good luck to everyone .

  • ktym
    ktym Member Posts: 2,637
    edited November 2010

    melania, it is a small but real percentage with permanent hair loss after taxotere.  There is a great thread "anyone with permanent hair loss after taxotere"  you may want to check out. 

    Side note: I've often wondered how many times drug companies and their lawyers check out that thread (easy to forget how public a forum this is).  

  • LRM216
    LRM216 Member Posts: 2,115
    edited November 2010

    Mine came back - it seemed slow to me, but not to others around me.  I am 11 months out of chemo and it's back to where it was when I started.  Just be patient, I know it's hard, but it does come back.

  • ktym
    ktym Member Posts: 2,637
    edited November 2010

    LRM216, its true isn't it?  Everyone tells you how fast it is, yet, to us it seems so slow.  However, for those it isn't growing back, I recommend finding the thread.  It is a small percentage, but, permanent hair loss with taxotere is now recognized as a side effect of the drug. 

  • Husband11
    Husband11 Member Posts: 2,264
    edited November 2010

    My wife had FEC-D (docetaxol, same a taxotere but generic) here in Canada.  Her hair is growing back thick and beautiful as ever.

  • nikola
    nikola Member Posts: 466
    edited November 2010

    I had 4 T/C Tx, last one being almost 9 weeks ago. I never lost all my hair but lost 90% at least. Now, 8-9 weeks after it is still fuzzy but all over my head.

    Unfortunately, 10% of women woud have permanent hair loss.

  • Fighter_34
    Fighter_34 Member Posts: 834
    edited December 2010

    I am seeing hair growth btwn treatments. Hope the 10% is very low. I would hate to see a fellow sister go through that on top of deal w/ BC.

  • revkat
    revkat Member Posts: 763
    edited December 2010

    I just don't think 10% can be right, or even 3%. If that were true one in ten women would be permanently bald from TC and that certainly isn't happening on this board. I thought it was more like a tiny fraction of one percent. Otter? Have you seen any research?

  • lago
    lago Member Posts: 17,186
    edited December 2010

    I hear it might be around 3% but could be as high as 6%. They really don't know because they have just started counting.

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited August 2013

    I had read the same, lago -- as low as 3% but possibly as high as 6%.  I think that probably includes those who experience much, much thinner hair.  And we have women here for whom that is certainly true, as well as women here who have experienced zero regrowth. Check out the Taxotere and Permanent Hair Loss thread in the Biographies of BC Survivors Forum here.

  • maryann77
    maryann77 Member Posts: 33
    edited December 2010

    I had taxotere as part of my chemo regime in Aug. My hair didn't seem to want to start growing until a few months later. And now it's growing in really thick and super soft- to the point where it doesn't even feel like hair. But I was getting worried there because I also read about permanent baldness. But give it a chance. Because even taking hormonal therapy(e.g. tamoxifen) can slow hair growth.

  • revkat
    revkat Member Posts: 763
    edited December 2010

    Wow, I went googling and you all are right. Sorry to question you, but 3 to possibly 6 percent seems so high! That's a lot for such a significant side effect. And when I had TC it wasn't mentioned in any of the material on side effects that I received (I checked). So if 10,000 women have Taxotere then 300 to 600 become permanently bald? I wonder if they did include very thin hair in that (not that it's much better), I also wonder if there are any studies to predict who is most at risk (not that risk predictors have worked well for me on this bc experience.)

    Just wow. 

  • riley702
    riley702 Member Posts: 1,600
    edited December 2010

    I think the stats do include thinning hair. A lady at my Mom's church has thin hair on top - you can see her scalp, but she's not bald. She has just shrugged it off and is the most positive person I've ever met. I adore her although I'm usually 'allergic' to those perpetually perky people!

  • maryann77
    maryann77 Member Posts: 33
    edited December 2010

    I think that hair regrowth after chemo varies person to person. As the same with who develops lympodema after having their lymph nodes removed. Some will develop it and some won't. But I also know that taking hormonal treatments, such as tamoxifen, can slow hair regrowth.

  • hrf
    hrf Member Posts: 3,225
    edited December 2010

    I have had permanent hair loss following TC. At first my onc said hair always grows back but now she knows that's not true following Taxotere. She has other patients like me. I do have some hair but it is very very very thin and my scalp shows through all over. Additionally, the hair I do have is not like what I used to have. I used to have (very thick) curly hair with lots of body. Now it's fine and straight -- doesn't do anything. It's so thin that it can't even  hold a bobby pin. It sucks!!!

  • maryann77
    maryann77 Member Posts: 33
    edited December 2010

    hrt- sorry to hear about your hair. But just remember that you are a beautiful person inside and out regardless! What we have been through (surgeries, and treatments) in these last few months, some won't in a life time. So hands down to all of us!!!!

    But just wondering, has anyone looked into or tried hair transplants.

  • VBK1944
    VBK1944 Member Posts: 22
    edited August 2013

    I was/am a blond. My regrowth has been slow. My head hair is finally growing in very thin and baby-fine. No body hair regrowth at all.I am on Arimidex.  Some anedotal comments suggest that blonds and redheads are more likely to experience thin hair/baldness. I do not know of any studies that confirms it...I have kept my wig for special occations..anyone who is blond/redhead with very thin hair/baldness after 18 mos off chemo and on AIs ?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2010

    There is a website called 'taxoteres' where women post all of the gruesome side effects of Taxotere on them. There has been talk of a class action lawsuit over 'alopecia' or permanent hair loss from the drug. And many women remain bald for life after the use of the drug (they don't tell ya that). I was deathly allergic to it after it being administered once and after a year, my hair has only grown back about an inch. I lose my eyelashes everytime I use mascara-still! Big hugs, SV

  • enjoylife
    enjoylife Member Posts: 578
    edited December 2010

    I had Taxatore in May - August in 2008 very thin hair grew back in 2010 looks like I am still sick and it makes me sick yes hair isnt life but before anyone passes judgement walk in our shoes for a day and get the looks and scare the children every where we were not warned at all

  • lago
    lago Member Posts: 17,186
    edited December 2010

    Is it just the hair on your head or is it also the lashes, eyebrows, arm pits, legs, pubic etc.?

  • shirleyl
    shirleyl Member Posts: 167
    edited December 2010

    After i have done 5 years of constant research i think i can speak with alot of expertise on this subject.

    To those of you doubting the 3 or 6%, i am afraid you are wrong.

    Around 1 in 16 women will be permantly disfigured this way. That is not a small amount in my eyes!

    There is an ongoing study in north west France, were in a small population they have currently 116 women sufferering this and there are hundreds of women that have not had their stats passed on by their Oncs.

    There are women from all over the world suffering with this adverse side effect.

    The company SA have done everything they can to keep this quiet, probly untill their patent runs out to get the most money they can from it.

    Just to add, i have been over 5 years now with severe male pattern baldness caused the experts say by Taxotere. So please dont dismiss this as a very rare side effect its not as rare as everyone would like you to believe, that includes the Oncs.

  • kojackie5315
    kojackie5315 Member Posts: 2
    edited December 2010

    I finished my chemotherapy almost two years ago and I don't have a single hair on my body. Like all breast cancer patients about to undergo chemo, I was repeatedly told that I WOULD lose my hair, but repeatedly reassured that it WOULD return. This is patently not true. It is a myth that needs to be dispelled along with "Cancer is a gift." My case may be extreme, but despite what they say, hair does not always return to normal after chemotherapy. Although many healthcare professionals deem hair loss a "superficial" side effect, I assure you, it is not. It is a serious and unaddressed quality of life issue for women expected to survive their breast cancer. How can you call yourself a "Cancer Survivor" when you look like a Crypt Keeper for life?

  • torijune
    torijune Member Posts: 3
    edited December 2010

    Melanie - I was diagnosed with breast cancer 3 years ago and given Taxotere at that time. I now have hair that can only be described as a 'nursing home-monk look'. My hair before Taxotere was very thick.  Believe me, there is a whole contingency of women around the world who have suffered permanent hair loss from taxotere. We even call ourselves 'taxotears' and the only thing we have in common is that we were administered Taxotere.  Permanent alopecia is a very real risk of taxotere. Other alternatives are definitely worth checking out. I wish I had been told because I certainly would have checked out other options.  Society accepts bald men, but bald women are looked at as freaks. 

  • torijune
    torijune Member Posts: 3
    edited December 2010

    I lost all my hair -- as I said in an earlier post, after 3 yrs my hair is kind of like nursing home hair. CANNOT go out without a hat, wig or other head covering. I have no lashes, no brows, no nasal hair or underarm arm. I got my brows tattooed because otherwise i look like I am in the middle of chemo. Very little hair elsewhere on my body. 

  • lynn1380
    lynn1380 Member Posts: 3
    edited December 2010

    I was diagnosed with breast cancer in July 2008. I had a double mastectomy and chemo. My last chemo with Taxotere, Carboplatin, and Herceptin was March 31, 2009 AND I STILL DO NOT HAVE HAIR!  I have been to many, many doctors and they agree that the Taxotere has caused my permanent alopecia. There are published studies that indicate that up to six percent of Taxotere patients can experience permanent hair loss. Some people think I'm being trivial for 'worrying' about my hair and poor physical appearance. (I look like an old man.) But, this is a quality of life issue. My lack of hair is not simply a cosmetic issue. It is a psychological and emotional issue. Research indicates that the manufactures of Taxotere (Sanofi Aventis) knew about this side effect of permanent hair loss but they did not reveal it. I just honestly feel that I should have been warned about this side effect. Taxol has proven to be just as effective as Taxotere, yet Taxol does not carry the potential permanent alopecia side effect. I am young but am crushed, simply crushed that I have 'beaten' cancer yet I look so awful, like an old man on chemo. All my life, right up till chemo, I always had very long, very thick blond hair. Now I have nothing.

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