July 2010 Rads

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  • Julie50
    Julie50 Member Posts: 227
    edited October 2010

    p.s. I have two doggies, Teddy going on 11 and Snoopy going on 12, they are my kids since I have no children....

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  • pagowens
    pagowens Member Posts: 194
    edited October 2010

    Hi All,

    Re lymphodema and sleeves:  Before I had my surgery, the B Surgeon sent me over to see my oncologist and radiologist - to say hello and listen to their plans.  The radiologist told me that because I was planning a lumpectomy (this was before we knew nodes were involved) I must have radiation and that if I had a MX, probably not radiation.  Then the surgery showed my SN's were involved so they had to remove several of my lumph nodes.  That upped the chance of Lymphodema.  After I started radiation, my radiologist also told me that radiation itself increases the chance of lymphodema and he sent me to Physical therapist for an evaluation (even tho I wasn't showing any signs of it).  The therapist showed me how to be fitted for a sleeve and suggested that whenever I fly, I should wear the sleeve and gauntlet as a preventative measure. She gave me a bunch of information on lymphodema.

    I went to a medical supply place and got fitted.  Copied the fittings down and then shopped around for a best price - which was on the internet.  Wore the sleeve for my Sept trip - put it on in the airport waiting room right before boarding, took it off right after boarding.  No problems. 

    I think we're all different with different "cases" and there is no one answer to any of this.  Just our best judgements about things.  I tend to be conservative and err on the side of prevention.  But I still life heavy things (including my grandson) which you're not supposed to do either.  Just trying to live a balanced life!

    Hope this helps with the discussion - I found the Lynphodema discussion thread VERY helpful.

    Ciao!

    Pat

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  • changes
    changes Member Posts: 622
    edited October 2010

    Has anybody heard about "radiation recall" from mammograms? This was mentioned on another thread. I'm soooo not going to be happy if the mammogram makes my breast get all red and itchy again!

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  • bennybear
    bennybear Member Posts: 326
    edited October 2010

    Hi all,

    Tracye and Donna, my doggy is a wonderful old lab who just turned 15!!!  which is the longest I have ever had a dog.  So I know each day is a blessing.  He is such a sweetie.

    Julie,  I got put on crestor, not for cholesterol, but for high C reactive protein which is a marker of inflammation,   which is another factor for heart issues,  Last year I had all the tests for that,  because I shovelled a lot of snow on a very cold (-30 C) day and then felt very weird.  Still don't know what the true issue really was,  but had a Cardiac MRI and I am fine,  but the cardiologist wanted me to stay on it due to a huge study called Jupiter.  Sorry if too much information,  but now I wonder if the inflammation was from the Cancer,  I must ask my surgeon next time if there is a connection.

    Yikes Julie that is so sad,  is your husband police as well?    I hope you are starting to feel better physically,  it is tough with a new job too.

    My 90 year old mom just called and needs cataract surgery and she lives alone so I am trying to figure that out,  as I am also working at a new job and have no siblings,   Yikes,  will it never end.   I know this is minor and a good thing, but I find I get overwhelmed very easily which is not like me. 

    I couldn't sleep at all last night worrying about renewing a mortgage,  I know it isn't rational but I seem to go there at night.  I am scheduled for a mindful meditation course that starts tomorrow if I am well enough to go,  I sure hope so as it is supposed to help with rumination,  which seems to be an issue. 

    Sorry so many are still having issues,  I have had twinges but nothing major, though I don't like those dark spots I now have.   

    Sonia,  I love the NO MORE BAD....   we all deserve a great new year,   let's just hope we really get it.  I would even be happy with a nice weekend.   LOL> 

    Hugs and good wishes, Brenda

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  • MagPag
    MagPag Member Posts: 98
    edited October 2010

    Hi,  sounds like you all have wonderful pups!  We have 2 Portuguese Water Dogs (like Bo) Magic 6 and Polly 4.  Those are their nick names because my son named them after Pokemon. We always blend and rhyme their names together because they're inseparable and you can never call one without the other, hence my sign in magpag.   

    No news for me today.  All day I kept leaving my office to walk around thinking I was jinxing the phone by being there.  Even called home a few times to see if they called here.  My DH keeps saying no news is good news, but he's not convincing me.  Tracye, know you're not waiting alone.  I'm praying for good results for you and for everyone else to stay healthy.

    Pat, thanks so much for the LE info, that's great to know.  Every doc I have always measures my arms, so I know they're always checking. 

    Kim, thanks for the honest book review.  I'm going to pull something non-BC that I can escape in on the flight.

    NMB 'no more bad'    xoDonna.

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  • bailey1958
    bailey1958 Member Posts: 199
    edited October 2010

    Hey Ladies,

    Just checking in to see if Donna and Tracye got their GOOD news today. I holding you both in my thoughts with all good things coming your way tomorrow if not today. I have a longing to have a dog  and reading all your dog posts make me jealous. I've been a cat person my whole life and have never had a dog. After cancer one of the things I initially thought I wanted to do was to get a new pet. But as time has passed there is a part of me that is starting to feel like I'm having a hard enough time taking care of myself not sure if I am up for caring for a dog. I feel like I am loosing my brain capacity. I've said it before but I really am noticing some processing challenges, can't remember words, disorganized, get kinda off balance, second guessing myself, feel a bit like I have turned into a senior citizen. I wonder if it's the tamoxifen? 

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  • Julie50
    Julie50 Member Posts: 227
    edited October 2010

    Morning Ladies:

    Saw the surgon yesterday, she is wonderful.  Told me the "Arm Pain" is something that can happen has they also fried the mussels and in time it will get better.  She said NO MAMMO for 3 months. Etc, etc.  She was very upset about always being told "NORMAL" for each concern I had and is going to address it with the Rad. Onco. GOOD...

    Brenda-Thank you for the info on the drug you are on, Dr. called me last night and my chol is high and have to start some pill but he wants to wait as I'm starting the pill from hell this week and I have so many reactions he does not want me to start two new pills at one time. My Vit. D is also low so he is giving me a Vit. D pill I take once a week for 12 weeks.

    I'm so sorry to hear about your Mom, Brenda I know the feeling oh so well. I had to put my mom into a nursing home but still I'm called 3-4 times per day as she is really sick at the moment with the flu/cold which in turn can kill my mom as she has COPD, CHF, you name it she has it, she called me last night at 9:00 telling me to take the "Turkey out of the oven"..hummmmm  I also am the only one as my other sister lives in Devnver which does me no good and my other sister that lived closed died in June.  I know how you feel tryting to care for a parent alone.  Big hug to you.

    Donna, I agree "no news is good news", but the waiting can drive you to drink, I know the feeling, hang in there hopefully today you will hear something, if not CALL sometimes they get the results and if "NORMAL" they forget to call you...Sorry for the word "Normal" but in this case it would be a wonderful word to hear...

    No my husband is not a Police Office (Thank god) he runs the 911 center for the past 19 years, that alone is a lot of stress.  

    Then he told me he is going to see his mom and dad in two weeks for a week, then from there to Springfield for a conference so he will be gone 10-15 days, :( I hate when he is gone so long, but someone has to work in this family...LOL

    My little part time job is ok, but I come home so tired as after I leave there I have to go see mom for a few hours and that is so trying at times as lately she does not even know me, yesterday she keep thinking I was my sister "SUE" who just died, breaks my heart, that said its the infection causing this, I hope so.  I wish God would hear my prayers and take my mom home, this is no life for her...She deserves to be at peace with my sister.

    Bailey-I fully agree about feeling "OLD" and I have not even started the pill from "HELL" yet, I think cancer has aged us all...:(

    So question, are we all in "remission" is that the word we are to use when we are asked???? 

    Ok, time to start my day, Onco, work, mom, then home sweet home.

    Big hugs to all and I hope today brings "GOOD NEWS" to all that are waiting.

    Julie

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  • MagPag
    MagPag Member Posts: 98
    edited August 2013

    Hi, wanted to pop in for a minute because the doc called first thing and let me know that all was B9!  Very relieved.  He called it radiation dermatitis, so just a delayed skin reaction to the radiation.  They said I could follow with the rad/onc (not) or my dermatologist, which I will.

    Thank you all for your support and positive energy. I would be in a corner curled in a ball if you weren't all here to encourage and share.  xo Donna.

    p.s. Tracye,  hope you get word soon.  Sending hugs and good thoughts to you.  Donna.

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  • Houndmommy
    Houndmommy Member Posts: 377
    edited October 2010

    Great news Donna!

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  • Chicago1018
    Chicago1018 Member Posts: 147
    edited October 2010

    Donna. . .so glad to hear everything was ok.  I know Tracye's good news will be right behind yours!

    Julie - your stories remind me of taking care of my grandma.  She had multiple strokes and would call me "Betty" all the time.  (Betty was my mom who passed when I was 15 and my grandma was in her 70's).  I look just like her and I never corrected her when she said it.  It seemed comforting to have her daughter with her.

    Sonia - definitely feeling flakey lately.  Keep starting things and getting distracted and walking away.  Twice in the last week I've put my contacts in their case and forgot to add solution so I woke up to dried out lenses that i have to throw away. 

    I know we were all tossing around the term survivor a few weeks ago. . .I read this article on slate today that I thought was a pretty good summation of what we were saying: http://www.slate.com/id/2268104

    The BC awareness is getting to me. . there are so many articles, commercials, etc and I find myself reading all of it.  I need a break from the pink! 

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  • Julie50
    Julie50 Member Posts: 227
    edited October 2010

    Donna-WTG, rest easy...:)  So glad it all turned out AOK.

    So I go and see the Med Onc today (I like him) saw my arm and sent me right to the hospital as he was thinking a BLOOD CLOT, I told him NO I don't have a blood clot (as you can see I have MD under my name)...LOL  So off I go...NO blood clot.

    So my surgen said its from the radiatoin, he said No its not.  He said the mild swelling is not from that, she said YES IT IS...hummmmmmmmmmmmm....No next week he will address this and send me to some other Dr. I'm so sick of all this you have no idea.

    But it did give me another week without the PILL FROM HELL as I call it, he said I will start that next Wed.

    Anyone else have this problem, surgen said its not Lymphedema as they only took 2 nodes...I'm lost with this.

    And yes I'M SICK OF THE PINK myself..Can't turn on the t.v. look out the window without all the pink...

    Ok, that is my complaint for today...:)

    Julie

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  • changes
    changes Member Posts: 622
    edited October 2010

    Hi all,

    Julie - your surgeon sounds fabulous! Glad you've got her. I'm sorry to hear your mom is not doing well. As to your question about whether we are "in remission", there was a really good thread on that just recently (some people got a bit hot over it, though). My friends and family are avoiding the entire topic so thoroughly that I've never had to explain it to anyone. They are prefer to pretend I just stubbed my toe or something. I think you can get lymphedema even if they only took two nodes. I had two episodes in which my arm swelled - one the day right after surgery, and one about four weeks into radiation. Both times, though, the swelling went away on its own (I only had one node removed).

    Brenda - sorry to hear about your mom needing surgery :( I have found that I get overwhelmed easily by some things and don't give a crap about others, and it's not always predictable which way it's going to go.

    Donna - Congrats on your good news!

    Sonia - I do think the Tamoxifen is to blame for at least some of the cognitive issues. I sometimes forget entire conversations with people - yeesh!

    (((((TRACYE)))))))) Thinking of you and hoping all is well.

    Karen

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  • spendygirl
    spendygirl Member Posts: 231
    edited October 2010

    Good Lord...I couldn't take the waiting any more and finally called today.  Left a message, got a call about a half hour later - TOTALLY benign.  If I ever won the lottery, I would build a diagnostic center that would do every kind of test and you would get the results before you left!  Well, that, and I would adopt every stray dog there is :)  So, ultrasound mid November to have another look at the mass on the ovary that I hope is a cyst.  Anyone have any lymph nodes that have swollen since treatment ended?  I don't know if I'm paranoid and worrying about every little thing or I actually have one that is swollen.  It's so hard to not think every pain is cancer.

    Thank you so very much everyone for the good wishes, it means SO much to me. 

    Donna, great news for both of us today!  Feels good, doesn't it?  And I totally agree with being in a corner without all the support and positive energy from all the WONDERFUL ladies here.  I'm so thankful for all of you.  Ok, getting teary.  Have a wonderful evening everyone.

    Much love and hugs and heartfelt thanks, Tracye

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  • Houndmommy
    Houndmommy Member Posts: 377
    edited October 2010

    Hi Everyone!

    The weather here continues to be cold and dreary.  It is really starting to get to me.  I'm trying hard to fall into depression.

    Brenda - sorry to hear your mom needs surgery.  It is so hard dealing with all we have to manage and nighttime can be the worst!  Were you able to go to your mindful meditation class?  Was it any good?

    Sonia - I think our cognitive issues are the result of both Tamoxifen AND stress.  I certainly feel out of it and apparently I really am......my youngest plays soccer and on game days families are to bring a snack for the team.  Well, guess who forgot the snack on Saturday?!  Yup, it was our turn and I had no idea because I had never transferred the info to our calendar.  Then yesterday I get a postcard in the mail from my son's orthodontist saying "we missed you at your appt."  His appt. was Monday but it wasn't on the calendar.  Now I am worried about what I have forgotten to put on the calendar!  Before BC I NEVER forgot to put things on the calendar.  It is so frustrating and I truly am worried about what I am forgetting to do.  I used to be so organized and now I just can't seem to get it together.  I too just feel overwhelmed much of the time. I can't "get it all done anymore".

    Julie - sorry your mom is not doing well.  It sounds like you have a great surgeon who is taking good care of you.  Glad someone will be looking at your arm.  I think the lymphedema thing can be difficult to dx and not all docs really know enough about it.  I was told that, while rare, it IS possible to get lymphedema even if you only had a couple of nodes taken.   I still have swelling on my chest and underarm that I wonder about.

    Chicago - thanks for sharing the article.  Someone on this forum once said they felt like a survivor in that they survived their cancer treatments.  I do feel that way but I do not feel like I have survived cancer because I don't know if I have or not.  As for all the BC awareness - I am sick of it too.  There is no getting away from it.  I live with it everyday, everytime I see my flat chest or take my pill.

    Trayce - thinking about you and wondering how you are doing.

    Hugs, Kim

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  • Houndmommy
    Houndmommy Member Posts: 377
    edited October 2010

    Trayce - We posted at the same time.  Glad you got good news!  Sorry you had to wait so long to get it.

    Kim

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  • changes
    changes Member Posts: 622
    edited October 2010

    Tracye - Congratulations!

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  • Julie50
    Julie50 Member Posts: 227
    edited October 2010

    Tracye-A big Contrats...Have a hugh glass of wine and celerbrate.  I had a mass on mine also it was a hugh cyst, they went in Lap removed it.  But I get a lot of cysts, I hate when they call them masses....Finally had a total Hyst as I was sick of Laps....I'm just so glad all went well for you, one less thing to worry about.

    I also have swelling under my underarm, I was told that can be "Normal" ok hate that word but that is the word to be used I guess...LOL  Mine upper arm is a little swollen not HUGH, same with my hand, my surgeron still thinks its from radiation.  It all started around the last 3 weeks of rads.  She said it can FRY your arm inside and it can takes months to heal...hummmmmmmmmm....

    My Medical Onco said to see him next week regarding this and to start the pill, I have no idea what to think and I know I'm over thinking it, but the pain can be awful at times.  I went on the lymphedma, but all that did was scare the crap out of me so I stopped reading it....

    I'm with the rest of you, each pain I feel I get so scared and I just can't live my life like this, I will go nuts and drive everyone around me nuts...I was never like this before. Cancer took that from me and I'm pissed...

    Karen-I agree everyone thinks I'm done with Rad. and my life should just go on, well it can't and that really upsets me with my sister (Beth) she said to me "Its time to put this beind you" I then said "Sure once the pain in my arm stops, once my breast is back to normal, once I can feel under my underarm, and in 5 years when I'm done with the pill from hell" Oh and lets not forget each Mammo, each pain, each Dr's appointment I have to go on...Sure Beth my life will go on...Shame on her.... She has a COLD and thinks she is dying....I hope and pray she never has to walk in my shoes....

    Well ladies at least we have each-other, I thank God each day for that.

    Sleep well everyone.....Going to have a cup of tea and hit the hay, been a long day.

    Hugs to all

    Julie

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  • spendygirl
    spendygirl Member Posts: 231
    edited October 2010

    Julie, I really identify with what you're saying.  I'm afraid we will never be able to totally "put this behind us".  As we get farther from treatment and tests, I believe it will get better.  But like any loss, it's never totally gone.  Ok here's the rant - COME ON, for me it's only been 4 months!  For most of us it's only been six months or less.  I think it's asking just a little too much to put it behind us already.  We all still hurt!  We all are having testing, it's not done, it's not over yet!

    Ok, please forgive the rant :).  I too thank God each day for everyone here.  Good night all.

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  • bailey1958
    bailey1958 Member Posts: 199
    edited October 2010

    I am SOOOOOOOOO relieved for the two of you - Tracye and Donna. SEE no more bad - let the good news cycle keep on rolling. I know I am constantly stopping negative thoughts about every pain and symptom I have- I was thinking I should get a little shock collar to put around my ankle and every time I think a negative thought I could give myself a little jolt.

    Today was a weird day - people asking me if I have my health back??? WTF is that. Here is what I find so annoying - I was perfectly healthy and wasn't sick when I found the lump two years ago and when they finally decided to biopsy it I wasn't sick then either. I REFUSE to think of myself that way and when people say that to me I just want to lecture them - DO I LOOK SICK? My health is fine thank-you very much - I feel bitchy about this - it's weird I want sympathy but when they give it I don't like how they give it. I feel like I must seem so grumpy.

    I have my follow-up tomorrow with my radiation oncologist - if I could remember what I wanted to ask my doctor I would feel better about the possibility that it would be a worthwhile endeavor and not a waste of time. I guess the good news is that I still have time to remember. Maybe I will remember before my appointment.  Right - my memory - I need to ask why I suddenly can't remember anything, speak fluently without stuttering and constantly forget to put stuff in my calendar. Don't worry KIm it could be worse - at least you still know you're forgetful.

    NIghty night,

    Sonia 

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  • Chicago1018
    Chicago1018 Member Posts: 147
    edited October 2010

    Sonia - I think you finally helped me nail how I feel.  I WANT sympathy but then I don't know how to accept it. I feel frustrated that everyone has moved on mentally from my diagnosis and I am JUST starting to have the brain capacity/time to just process some of the feelings I am having.   But when they do say things it never seems like the right thing.

    Julie - so glad to hear you don't have a blod clot and I am happy that you have a doctor who is taking your arm seriously.

    Tracye - congratulations on the good results!

    I also forgot to mention we also havve 2 little furry pugs who are my babies.  I can always count on them to provide sympathy when I need it and they never say the wrong thing.  Laughing

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  • bennybear
    bennybear Member Posts: 326
    edited October 2010

    Tracye, Donna and Julie I am SO Happy for you all,   what a relief.

    Chicago, Re the survivor, thanks for the article that was good,   i kind of like the surviving treatment but as for the rest I just hope so,  not there yet.   Just spoke to my friend who is 2 years out and she was turned down for mortgage insurance,  not very reassuring.  

    I found it interesting that a counsellor at the Cancer centre said a lot of people take a year or even 2 off.  I can see why,  between the side effects and the emotional roller coaster.

    Sonia, I think I just want people to treat me normally  (sorry Julie)  and ask me or acknowledge.   I guess I am having a hard time accepting that I am not there yet either.   I also don't think of myself as sick as I never felt that way,  this is such a weird thing, 

    Tracye,  you are right it hasn't been very long,   They need to give us a break....

    Karen, I agree that sometimes I don't care and sometimes I am overwhelmed.  Just found out our roof needs replacing and other than the money and the hassle of getting it done,  I don't really care. 

    Kim,  You will laugh I felt too stressed and still a little sick to go to a class to reduce my stress,  so I hope next week.  I think the stuff with my mom has got me worried as I have always been the go to person for our family on top of all the usual details of life,  why do so many things have to happen at the same time.

     I hope for NMB for all of us and some good times soon. 

    Happy Canadian thanksgiving,

    Brenda

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  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited October 2010

    Hi Ladies,

    As two months ahead of you in radiation, I am going to butt in again.  I am learning that your self confidence comes back in stages.  So it's about conquering things one at a time.  Part of this is rebulding physically, and of course moving past "things that go boo"!!!

    Right now, I am procrastinating filling out a skills assessment form for a headhunter I was contacted by.  But I have to screw up the courage to do this.  Otherwise, shame on me.

    I got the one year "all clear" from both my internist and oncologist.  In fact, both were stunned at how well I look.

    I still am healing, but nothing that gets in my way of doing what I want.

    As for the "big A", for me this was a non-event.  I started the same week as radiation started (and got my port removed).  A slight metallic taste, a little bit of cramping (but also get from cycling), and I am not sure about joint pain as could have been from Taxol.  Three months ago, I was taking a lot more ibuprofen than I am now.

    I do think I am more cognizant of feeding myself well, and notice I am not willing to drink low end wine.  My excuse is that "I am still healing"!!!

    But otherwise, life is good with my big need being to get my career back on track.  But that was where I was headed just as I was diagnosed.

    Benny....can you do a walk???  I use exercise to manage stress.  Works for me, and also allows me to eat.  If I just eat, you can guess where that one goes. - Claire

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  • LoveCranes
    LoveCranes Member Posts: 39
    edited October 2010

    Hi ladies,

     It's been a while for me.  Just wanted to take a break for a little while, and now all over the place is BC awareness.  Oh well.  I didn't realize how much I missed and hope everyone is doing well.  Glad to hear about the 'good' results, what a relief. 

    I'm just trying to still adjust to this how journey.  It's been crazy...and now dealing with the medical bills.  My hubby owns his own business and now we may need to change insurance plans.  Not sure how that's going to go since I was able to select my own docs, and now may need to go to one in the plan....don't want to do that, but also don't want to pay too much.  At least all of my follow ups are in Oct before the other plan changes. 

    I have my follow up with my BS next week and I thinkhe's going to start me on the 'pill from hell'.  I'm not looking forward to it, but if it helps then I'm all for it.  My mother-in-law gave me one section of the paper totally on BC.   One thing that caught my eye was it talks about the drugs for prevention that some ladies don't take it...The thing that just stood out was that they called Tamoxifen is a chemotherapy drug.  I thought it was a 'hormone therapy'...now i'm so confused.  It was in the Los Angeles Times special Health section.  I guess I still need to read up...but when I see my BS who is going to prescribe the pill, I'm going to ask....  The only good thing I found out was that the pill is not going to cost me an arm and leg, like I originally thought.  Less than $20 bucks depending on the mg.  I love Costco :)

    It's really nice to see that you guys are all here and still posting.  I didnt' realize how hard it is to 'adjust' and everyone asking, how am I doing?  I really do want some sympathy, but another part of me wants to stay...do you really care?  do you really want to know how I feel or are you just making conversation.....but instead I say, 'im fine' w/ a smile.  Some days I feel like i'm forgetting so many things and even things that someone just mentioned to me and, like you Kim, if it doesn't go on the calendar, it doesn't happen.  I can't blame it on the pill...only bc, surgery & rads. 

    Take it easy everyone and cyber hugs to all .

    Patty

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  • changes
    changes Member Posts: 622
    edited October 2010

    Hi Patty - good to hear from you!

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  • bailey1958
    bailey1958 Member Posts: 199
    edited October 2010

    Hi Ladies,

    I had my follow-up today and when sharing some of my side effects I told my Doctor I was getting big bruises and she seem concerned and said that I needed to have my platelets tested and it sounds like it's the liver test like what you had Kim. She says if I am too low she will have to take me off of tamoxifen because it is one of the negative side effects of Tamoxifen. Then I will need to have my ovaries shut down with injections because my body is still producing too much estrogen for the post menopausal aromatase inhibitors to be effective for me. Once that is done my ovaries would no longer be producing estrogen. I'm not quite sure what to feel about this. The good news is that the side effects for the AI's are heart and bone issues rather than more cancer and blood clots you can get from tamoxifen. Oh will the fun ever end? I've feel like I've finally accepted my fate with tamoxifen so I'm not sure what to think. I guess it is what it is and whatever is decided I just need to accept. Not liking this - just saying!

    Glad to hear all is well for you Julie. Hope you are all hanging in there. 

    Sonia 

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  • bailey1958
    bailey1958 Member Posts: 199
    edited October 2010

    I was being sarcastic about the side effects being good news. Sometimes I wonder why I am taking any of these things - the side effects just feel all around bad to me. 

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  • bailey1958
    bailey1958 Member Posts: 199
    edited October 2010

    UGGGGGGGG!!

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  • Julie50
    Julie50 Member Posts: 227
    edited October 2010

    Sonia:  I'm so sorry to hear all this, I hope they get to the bottom of it soon. It just never ends for us....

    I have no idea why they want these pills in use when the SF can be so bad for us.  Not to scare anyone but a friend of mine told me last night her best friend was on the "T" pill and messed with her heart, she got a blood clot, it broke off and guess what, she is in heaven...

    So I am having a LONG talk with my Dr. b-4 I start this next week, mine starts with an "A".  He also told me you have a good chance of getting blood clots, so lets see, Cancer kills me or blood clots...hummmmmmmmmmmmmmmmm.....I think I might just take my chance, the way my year has been, well I don't have a good feeling a bout this. I know many woman with the same type of BC that don't do the pills and its been years for them and they are AOK...hummmm

    Patty that is correct they are a Chemo type of pill but not Chemo where you lose your hair etc.

    Ok, time to rock and roll, arm is still killing me I guess he wants me to see some specialist for this, another Dr. to my list....:(

    Have a great weekend everyone, big hugs to all

    J

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  • Chicago1018
    Chicago1018 Member Posts: 147
    edited October 2010

    Sonia - I replied to your post on the "T" thread but sending you good energy on this one too!

    Patty - good to hear from you!  My husband and I have owned our own business for some time so I understand the plight of insurance.  I don't evern want to see what ehy are going to do to our rates come renewal time. . .I am sure they are none too happy to after paying for $20K muga scans and $200K worth of rads. 

    Julie - I think it is important to evaluate how the pill works into your overall health so I think you are smart to have a detailed conversation with your Dr..  I've been reading that many women get the pill and don't take it for many side effect and other reasons. I think in some cases you just have to weigh the pros and the cons and it probably isn't a pro for everyone.

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  • Julie50
    Julie50 Member Posts: 227
    edited October 2010

    Chicago-You are so right in your statement.:)

    How is my problem.  I'm allergic to so much, Cirpo put me into ICU for 10 days, when I had my lyme, it took over 1.5 years to feel good again due to not being able to take any of the pills for it. They just had to stop my High BP pills due to a reaction 10 days later.

    So I'm very scared to try anything new.  I have to start Chols. pills in two weeks and I"m freaking out...

    But yes I have to weigh the pro's and con's of this drug. 

    I agree with the bills from all this, my rad alone was over 140,000...

    Ok, lunch time have a great day

    Julie

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