Class of 2010

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  • codavis
    codavis Member Posts: 122
    edited October 2010

    Exscriiibe - I will keep you in my thoughts and hope your treatment goes well.

  • Ezscriiibe
    Ezscriiibe Member Posts: 598
    edited October 2010

    Codavis:

    I guess you are right. And I'm not all that thrilled with the thread "2010 Sisters". It seems they are a bit "clatchy" and "cliquish."

    I've asked several times if there are 2 threads -- completely ignored.

    Why are there 2 threads and why do they completey IGNORE this one? I realize I've been gone a bit, but it is odd.

    Oh well, to all my cohorts, I miss you and hope you are all doing well. If you post in the other thread too, let me know, so I can keep track of you. 

    I'm starting back on chemo again this week. I hope to get my liver tumor shrunk into remission so that I can qualify for a trial in PA. 

    And thanks, codavis. I appreciate all the thoughts and well wishes.

  • LauraM
    LauraM Member Posts: 251
    edited October 2010

    Michele -  My thoughts and prayers go out to you as you keep up the fight.   I hope you new treatment goes well.  I will keep checking in on you!

  • Teka
    Teka Member Posts: 10,052
    edited August 2013

    Hi! Ezscriiibe,

    I am on the September 2010 Rads board until done with radiation.    I've joined the Calling all TNS board so I can keep in touch with retrievermom who has always answered my posts.   I'll only post on Class of 2010 if a problem or change in my BC treatment.   I want to continue to post on this board for BC patients to know about my BC treatment from start to whatever in the future.   There is no point being on a board that ignores your posts.   Good luck finding a board.

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited October 2010

    Ezscriiibe, I'm sorry you feel the 2010 sisters thread is "clatchy" and "cliquish". I didn't answer you because I never saw this thread until today.  So now that I found it, let me go back to the beginning and start reading!

  • Ezscriiibe
    Ezscriiibe Member Posts: 598
    edited October 2010

    No, you misunderstand Barbara. I asked the questions on the 2010 Sisters thread. I was confused about there being two 2010 threads.

    I tried to go back a few pages, but there's a lot there. I didn't know that there were 2 threads and most of the women I'm used to talking to weren't there.

    So, I'm still a little confused.

  • Ezscriiibe
    Ezscriiibe Member Posts: 598
    edited October 2010

    Thanks Laura, Teka:

    I'm not in a good place right now mentally, that's for sure. I knew there was a chance of Stage IV way back when, but we all thought that the lesions noticed then were cysts, and that turned out to be true -- they were. 

    So to be going along and thinking that all we need to do now is recover from all the treatment (chemo and rads) and then be hit with this new lesion. . . and it being 3cm . . . was a pretty harsh blow.

    I will be checking in from time to time.

    i will say this, though, not sure which chemo thread I should post in! LOL! Obviously not the one from way back when!

    Oh well. The least of my problems, eh?

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited October 2010

    EZ, apparently there are two threads. Anyway, you are most welcome on the other one, too.

    So here's my deal: like a dummy, let 4 years go by w/no mammo. I know, I know but had the call back, with an immediate US, followed by biopsy a week later. Diagnosis 4/30/10. Lumpectomy 5/10 followed by a re-excision 5/20. Margins were clear. One node had a micromet. Started rads 6/17. Done on 7/9. Did the Canadian protocol of 16 tx. Oncotype score 17 so no chemo.

    That's me. I need to go back and read the entire thread. Only got to page 6.

  • hereandnow
    hereandnow Member Posts: 322
    edited August 2013

    Hi Michele,

    I'm sorry you're having to deal with this again. I might be wrong but were you the woman who coloured her hair/scalp green for ST Patricks day?  I rarely come to this thread, mostly post on the March chemo thread, but just wanted to send you a (((hug))). As I'm sure you know there's lots of wonderful advice and people over on the stage IV forums that you might find helpful.

    editted to add - of course you've already been over there. We are all sisters who have been diagnosed with this bloody thing in 2010. more hugs (((michele)))

  • Teka
    Teka Member Posts: 10,052
    edited August 2013

    Ezscriiibe,

    You're a member of Class of 2010.   BarbaraA is a member of 2010 Sisters.

  • JanetinVirginia
    JanetinVirginia Member Posts: 1,516
    edited October 2010

    Michele  Sorry you're going through this.  Cancer is a S.O.B. that's for sure.

     I didn't realize there were two 'diagnosed in 2010' threads until you pointed it out.  I had been posted to both!  Then I saw one began in Jan and another one in July.  Maybe in July people didn't realize one already existed.  It's hard to keep track there are so many categories, so many women & different places to read/post.   I tend to look at what is "active" and click on it or put it on my favorites list.   I go back & forth on several threads to try to get insight, get some comfort & give some comfort. It doesn't much matter.  They are all wonderful.  The bottom line is we're all in this together regardless of  discussion category, diagnosis, date or anything else.  Big hug and let's all hope there is a BIG breakthrough or CURE for this monster soon.   

  • babysis
    babysis Member Posts: 1
    edited October 2010

    Hello All,

    I just learned today that my baby sister has IDC, my entire world was crushed in a matter of seconds..  Please someone, help me understand what she might be going thru and how I can help her.I have been crying my eyes out for all day long.Thank you.

  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    Hi! babysis,

    Your baby sister is probably emotionally numb, and will need time to understand choices for BC treatment.   She'll need you as a good listener.   She should have someone go with her to all doctor appointments as a witness, and in time get copy of pathology report and all test results.    One day at a time.

  • retrievermom
    retrievermom Member Posts: 522
    edited February 2011

    A good friend at work approached me a couple of weeks ago to tell me she was joining the "club."   I wish she had told me sooner, but she ended up with the same surgeon I used, who is very good, and had a lumpectomy last week.  A gal at work had been bugging her to get a first mammo, and after my dx, she went ahead and did it.  Please keep Kathy in your thoughts/prayers.  She is doing well post-surgery, and it sounds as tho the cells were pre-cancerous.

    Michele:  I am thinking of you.  I can go to the races vicariously thru you :)

    babysis:  It's a very, very scary time.  It took me a bit to understand my path report, so your questions will be good back-up for her.  Listen, hug, repeat, with "I'll be with you every step of the way, sis."

    I'm heading to DC tomorrow.  Will go up to see my DS at college, then out to Va to see my mom.  I'm really glad to be up for the trip.  My DS turned 21 today.

  • JanetinVirginia
    JanetinVirginia Member Posts: 1,516
    edited October 2010

    Babysis - You sound like a great sister.  It's all such an unbelievable shock at the beginning.  I have found the old saying "when the going gets tough, the tough get going" is the best way to approach it. The best thing for you & your sister to to get organized & get educated on all aspects.  The more knowledge you have, the more you'll feel somewhat in 'control' of what's happening because there are lots of decisions to be made throughout the process.  Otherwise emotions just run away with you.  And, she has TIME to make good decisions.  There is no rush - many times these cancers have been slowly growing for years.  Be sure she is with a breast surgeon or a breast cancer center (not just a general surgeon).  Here are some links below.  Finally - both of you should consider BC gene test and you should take time to get yourself screened more thoroughly too since a close relative has been diagnosed.  Use everything available - mammograms, ultrasounds, MRIs because each method can miss detection.  Mammo completely missed mine. 

    http://www.castleconnolly.com/doctors/index.cfm?CFID=8484455&CFTOKEN=52787215

    http://cancercenters.cancer.gov/cancer_centers/map-cancer-centers.html

  • jakhope
    jakhope Member Posts: 133
    edited October 2010

    Michele- I am so sorry you are having to deal with this ugly beast again. You are in my thoughts and prayers. You know you have the support and understanding right here. Please let us know how you are doing. We care.

    I finally got my appointment for my yearly recheck, mammo in December. It's so scary to go through this again. The waiting is the hardest as we all know.

    Babysis- Another ear when the Dr tells your sister reports is so important Take notes. Get copies of all test results and make a folder and bring with you to all Dr's with your questions. It will help you both feel a little bit more in control. The waiting for results and treatments are worse than the treatment itself. Then you turn around and its done and you just wait for the next test or DR. She is so lucky to have you there by her side.

      

  • 1marmalade1
    1marmalade1 Member Posts: 308
    edited October 2010

    From my very first onc appointment, I took a dictaphone (recorder) with me - we asked the onc if we could tape the entire session, and he said "Of course!  I wish all my patients would do that!"   Every session I had with him and the surgeon was recorded, and I would go home and transcribe the conversation.  If you can get hold of some kind of recorder, ask your onc or other medical professional if they will allow it.  Apparently, most of them do.

  • Teka
    Teka Member Posts: 10,052
    edited August 2013

    Hi!

    Finally October 22, done with 23 full and 7 boost radiation treatments.  I'll continue in clinical trial E5103 with Bevacizumab given by way of chemo port once every 3 weeks until end of March 2011.  Nap time.

  • LauraM
    LauraM Member Posts: 251
    edited October 2010

    Congratulations Teka!  I am right behind you and will be don on Thursday 10/28!

  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    Hi! LauraM,

    You'll be done for the holidays.   GOOD.

  • jakhope
    jakhope Member Posts: 133
    edited November 2010

    Hi all, It is coming up to my diagnosis one year anniversary in December. I am scheduled for my first mammo on Dec, 2nd. I have to admit I am quite anxious about it. I have read so many have had one sooner. This is what my surgeon has said was best for me. How is everyone doing?

    GP Jeannie here

  • Teka
    Teka Member Posts: 10,052
    edited August 2013

    Hi! jakhope,

    I am suffering through a bad radiation burn under breast.   Everyone seems to have a different time frame for follow-up testing.   I think all BC patients worry about any possible follow-up BC treatments.

  • LauraM
    LauraM Member Posts: 251
    edited November 2010

    Hi Jeannie and Teka -

    I am also suffering through a bad radiation burn, my burn is on my clavicle, under my arm and on the side and under my breast.  I didn't get the bad burn till 3 days after radiation stopped.  It is much better this week but was pretty bad last week.   I don't think I will have mammograms anymore since I had a double mx in February.  November 13th will be my 1 year anniversary of my diagnosis.  It has been such an unbelievable year. 

    Hope you both continue to do well!.

    Laura

  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    Hi! LauraM,

    I had 4 days of bliss after last radiation treatment, and now going on 12 days of suffering from radiation burn under breast.   I hope your suffering is coming to and end.

  • retrievermom
    retrievermom Member Posts: 522
    edited February 2011

    Laura & Teka:  So sorry to hear about the burning from rads and hope you can get some relief

    jakhope:  I'm coming up on my one yr, too.  I've been thinking "this time last year..."  Last year I was getting my annual mammo, unconcerned.  I have had a mammo since finishing tx and am scheduled to have another in Jan.

  • Teka
    Teka Member Posts: 10,052
    edited August 2013

    retrievermom,

    Good luck.   I get sad when reading bad news about other BC patients, and find it easy to see myself in their place.   There is more BC patients off-line then on-line.  If only there was one board for all BC patients, with their doctors explaining why they did or didn't choose specific treatments and tests.   I would feel more informed and at peace.   Never happen.   I am now suffering through day 14 of bad radiation burn under breast.  Still looking forward to Thanksgiving.

  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    Hi! LauraM,

    Looking good.

  • Teka
    Teka Member Posts: 10,052
    edited August 2013

    Hi!

    Today, GYN took stitches out from the sore along panty line with biopsy report OK.   I've 6 doses more of Bevacizumab by way of chemo port once every 3 weeks until the end of March 2011.

  • Teka
    Teka Member Posts: 10,052
    edited August 2013

    Hi!

    Day 21, I now only feel the need for 1 prescription vicodin at bedtime, and radiation burn under breast should be healed by time of December 8th follow-up radiation oncologist visit.   I found that taking 1 vicodin every 4 hours was killing my appetite.   Maybe able to wear bra after X-mas.

  • Teka
    Teka Member Posts: 10,052
    edited August 2013

    Hi!

    Husband and I went on a day trip to X-mas shop at "The Vermont Country Store" before Black Friday.   I enjoyed the 1st day in over 7 months that my hair is long enough to go with head uncovered, but cold enough to buy a Vermont made soft warm beanie for winter.   I now have 7 days to clean and cook for Thanksgiving.

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