Starting Chemo in July 2009

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  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited September 2010

    Wow Michelle, beautiful.  My curls & waves are just about gone, but I've not let mine get as long as yours is!  Looks fab! 

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  • sheila888
    sheila888 Member Posts: 25,634
    edited September 2010

    Michelle...absolutely beautiful.

    Reminds me of your first avatar when i met you here.

    ♥

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  • o2bhealthy
    o2bhealthy Member Posts: 2,101
    edited September 2010

    Thank you all!  I was telling DH I don't really like the avatar photo...looks to poofy to me.  He just laughed and ask if I have looked in the mirror lately - I look like Horshak (?sp) from 'Welcome Back Carter' or Buckwheat from 'Little Rascals' -  my hair is so out of control Surprised

    (((((Lisa, Joni2 and Shelia))))

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  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited September 2010

    but it's hair!!

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  • gillyone
    gillyone Member Posts: 1,727
    edited September 2010

    yes -hair is good!

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  • o2bhealthy
    o2bhealthy Member Posts: 2,101
    edited September 2010

    so true!!  Hair is nice!

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  • PauldingMom
    PauldingMom Member Posts: 927
    edited September 2010

    Lost all my curls too. Boo Hoo! But my DD is actually going to give me a perm this week. Not a 1982 frizz out, just a body wave. I have baby fine hair that is super straight. But you are so right, IT"S HAIR.

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  • stef58
    stef58 Member Posts: 288
    edited November 2010

    Hello Everyone, It has been awhile since any posting. Thought we needed an update.Had my i year out of chemo check. All was well, had a colonoscopy. Gag. But we must keep our selves healthy and am finsihed with the reconstruction, exchange, tattoos, so upward and onward. Hope everyone is feeling just as great as I am . Looking forward to a celebration this weekend with my husband. The only problem is the weight gain and hot flashes and I am working on that. All have a great time and A great big hug for most of for being done a year Dianne

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  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited November 2010

    stef58: sounds good-have a wonderful weekend!  Weight gain & hot flashes--Femara??

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  • jacee
    jacee Member Posts: 1,384
    edited November 2010

    Hi all...doing well. Going for Stage 2 Diep surgery on Dec 3. Still plugging along. Remembering how difficult the holidays were last year !!! Oh my....this year the whole extended family decided "no gifts", just eat a great meal and play some games...WHAT A RELIEF!!  There's no greater gift than being alive!!  Wishing you all the best.

    Joni1

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  • stef58
    stef58 Member Posts: 288
    edited November 2010

    Tamoxifin

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  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited November 2010

    Lovely pills !  If I was a scientist I would definitely work on finding an alternative med for cancer follow-up that works on weight loss & no hot flashes as well as killing remaining cells that are no longer wanted or needed! 

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  • stef58
    stef58 Member Posts: 288
    edited November 2010

    Jacee, Good luck with the surgrey. Hope all goes well. The holiday this year shoud be very stree free. I am looking forward to them. I have a new grandson. We are going to keep the holidays simple also this year. Hugs Dianne

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  • o2bhealthy
    o2bhealthy Member Posts: 2,101
    edited November 2010

    Joni1 - good luck with surgery - You are almost done!!! Laughing

    Joni2 -I wish you were a sceintist - I would really like an alternative that helps me lose weight and no SE's

    Dianne - how awesome to have a new grandson that you can share a whole lots of firsts with...first Thanksgiving, Christmas, New Years...

    My update - I had a thermography scan in Sept that showed some thyroid dysfunction - has US in Oct and found two nodules, one with calcification's.  Biopsy last week that confirmed Thyroid cancer (papillary).  I am meeting with my surgeon on Monday to discuss options.  So far, based my DH & my research, it looks like surgery and replacement hormones is all I will have to do.  Thank God we found it this year, my deductible next year is a killer!!!

    ((((((Jedi's)))))))

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  • gillyone
    gillyone Member Posts: 1,727
    edited November 2010

    Michelle - I saw your previous post about your thyroid diagnosis and meant to respond - but don't know which thread!! So I am glad you have let the Jedis know what is going on. Although there is not much activity on this thread, I know some of keep it in our favorites. We are all pulling for you and will be thinking of you especially on Monday when you meet with the surgeon.

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  • jacee
    jacee Member Posts: 1,384
    edited November 2010

    Oh my Michelle...I had no idea!! I knew you were seeking help with the pain you were having, but didn't know about the thyroid ! I also have an enlarged thyroid with 4 nodules. One is larger than the rest. I had this all before BC. I have a biopsy on the large nodule every year and so far all is good. I've been very fortunate that it hasn't affected my thyroid levels at all. I am sooo glad to hear that it appears to be a simple fix. Gosh, so very sorry you are having to deal with this. You are just amazing to me !!! My prayers are with you...I promise!!  With much love, Joni

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  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited November 2010

    Jedis, Sad news. Some of you know from other threads that Paulding (Lisa) had to have some scans this week due to a lump she found last weekend.  It's not good-here it is in her words to me yesterday in a PM- "I have "it" in my brain, several lymph nodes and possibly my bones and liver. Right now I'm getting a blood transfusion. Tomorrow brain radiation and a bone marrow biopsy and a brand new shiny port. Next week I start chemo."  I waited to post because I wanted to be sure that I had her permission.  She's worried about being a "Debbie Downer".  I told her we have her back!

    Joni2

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  • jacee
    jacee Member Posts: 1,384
    edited November 2010

    LISA.....Well, that's not the news we wanted to hear. I know the Jedi's would never abandon our leader.! Please know that we are with you in spirit as you walk this path. It is with sadness that I will cry out to our Lord on your behalf. You are one strong lady and have been such an encourager to us all. Please come here as you feel like it and let us love on you !!

    "You caused me to experience many troubles and misfortunes, but YOU will revive me again!" Psalm 71:20

    Praying for you,

    Joni1

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  • sheila888
    sheila888 Member Posts: 25,634
    edited November 2010

    We love you Lisa.

    (((HUGS)))

    ♥        ♥           ♥

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  • Jayne_in_UK
    Jayne_in_UK Member Posts: 517
    edited November 2010

    I am one of those who keeps this thread in my favourites, although I don't log on or post much on here any more.

    Michelle I am sorry to hear about your thyroid cancer diagnosis, but glad that you have a treatment plan in place. Hope all goes well for you.

    Lisa I am so sad to hear your news. Don't worry about being  a "Debbie Downer" with us Jedis though, we have shared our ups and downs and want to be there for you.

     You are both in my thoughts and prayers. Please keep us posted.

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  • gillyone
    gillyone Member Posts: 1,727
    edited November 2010

    Lisa - I am so sorry to hear your news. Please come and post - we will stick together throughout whatever is thrown at us. We will support you, send our best wishes and will listen to whatever you have to say.

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  • stef58
    stef58 Member Posts: 288
    edited November 2010

    Michelle and Lisa, I am sending prayers and lots of them your way. i had no idea all of this was happenig. We have all grow together during this stuff and I feel that you are a great circle of friends. the jedis will keep you in our thoghts and most of all our prayers.  Keep us posted to what is going on. Hugs your way Dianne

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  • PauldingMom
    PauldingMom Member Posts: 927
    edited November 2010

    So sorry to hear Michelle. Beat it good! I'm sending up a prayer right now.

    One thing I have learned ladies, I have always considered myself a strong woman, but I really think I let to many doctors push me around. If you don't feel good, scream, yell, bitch and moan till someone listens.

    My breast cancer has metastasised to my brain, bones, lymph nodes and probably my liver. BUT there are some great drugs out there and they will be putting my name in a lottery to start a new trial drug. More info. when I learn about it. Keep your prayer and well wishes that I win the lottery! I had my first brain radiation today. It wasn't so bad but I have a bad head ache tonight. Chemo. starts on Wed. Tonight I am tired. Had port put in, biopsy of bone and radiation all done today. So I'm off to bed. Thank you all and as always.......Pink hugs, Lisa

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  • sheila888
    sheila888 Member Posts: 25,634
    edited November 2010

    Have a good night Lisa.

    And I love your pink hugs and I love you my sister.

    HUGS

    ♥

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  • o2bhealthy
    o2bhealthy Member Posts: 2,101
    edited August 2013

    Oh Lisa - this just sucks!!!! I am so sorry you are back in the battle.  Praying right now and every day and night that you WILL win the lottery and it is the perfect combination to kick this cancer to the curb. 

    Oh yes you have to fight to be heard.  I keep asking for a scan or something to help me trust in 'their' NED dx.  They kept saying not unless you are symptomatic...WTH!!!  I finally asked my mom for some financial help so I could have the full body thermography done (I don't ask my mom for anything).  That was how we found my thyroid cancer.  My PCP said that without the scan we would not have found the cancer for 6 month to a year at which point it would grown large enough to be palpable or it would have caused difficulty swallowing.  The funny thing is I have not heard one word from my onc since the thermography scan and I know she is getting copies of everything because I have faxed them.  I don't know what to think of that...

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  • shelclaire
    shelclaire Member Posts: 55
    edited November 2010

    Lisa,

     This just really makes me mad!! I didn't post much but went through with all of you. How in the freaking world did they miss this and allow it to spread like this. What is the trial concotion you are trying to get into. I am going to put you on every prayer list I know. Did the doctors not listen, did you have pain, I saw you had liver scans or tests months ago and they found nothing then. What is your onc saying NOW! I am praying every second and woke thinking of you so prayer is all around you.

    Michelle, I had a few scans when I was diagnosed and all clear but taht was 16 months ago and I want more. I am on the neratinib trail and all is going well but I am not sure if it is placebo or not. Feels real:) I had a scare with thryoid cancer this June, had a biopsy a etc but thankfully it was enlarged nodules. I did do loads of research and it seems easily removeable and treatable.  Well I am praying for you both and all the rest that this crappy cancer never hits any of us again. Blessings and Hugs

    kara

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  • eliz46
    eliz46 Member Posts: 71
    edited November 2010

    Ahhhhhhh Denise so sorry to hear.  i haven't been on the chat in a while, i will be praying for you,  big hugs from pennsylvania !    its very nice to see everyone. 

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  • eliz46
    eliz46 Member Posts: 71
    edited November 2010

    Oh where have i been,  i can't believe all of this is happening.  i wish i would of stayed in better contact with the jedi's.....Cancer sucks !    

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  • tougherthanithought
    tougherthanithought Member Posts: 454
    edited November 2010

    Hi all!  I don't really post too much, but I do keep this topic in my favorites.  Lisa and Michelle, I remember you both from when we started chemo together, and I'm so sorry to hear that you have to deal with this crap again.  This really sucks.  All I can say is that the Jedi's are hear for you.

    Hugs,

    Sherrill

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  • sheila888
    sheila888 Member Posts: 25,634
    edited August 2013

    Lisa...What color would you like next?

    Hi All Triple J's

    Sheila♥

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