please help

HERES OUR CHUBBY CHUB ELLA-

Ella is such a gorgeous baby - I can almost hear her gurgling with delight!

Hi thesuiteshoppe, great to see you here but sorry you had to join us. I see your on the verge of reconstruction. I hope it goes really well for you. It's been rather quiet around here lately. "Suepps" is now 3 years past her diagnosis and is doing really well. She worked all through her treatments and was an inspiration to us all. She doesn't visit this site as much as she used to but I think she probably stops by for a quick read sometimes.

Cathi, Love the picture of Ella in her personal swimming pool . I went to my doc yesterday, I had a small smooth (soft) raised bump (almost like a raised mole only white) on my cheek for several years, about 3 weeks ago I scratched it open and it hasn't healed properly. It has turned rough, flaky, slightly reddish and swelled more. I am bumping it everytime I rub my eye and almost hits my glasses frame. It is high on my cheekbone and when I look through my bifocals to read I can see it in my line of sight. He is sending me to a dermatologist, the thing about his office I don't like, when they are sending you to a specalist, they don't schedule the appointment while you are at the office. They will call you back within a week to ask who you want to see and when is a good time for them to make the appointment, call the specalist then call you back with the appointment day and time. I am not waiting for them to call me, I am calling their office tomorrow to get them to make the appointment.

Sheila

Well, I didn't have to wait to call, they called me to tell me that the appointment was made but not until AUGUST 26TH!!!! I called the dermatologist office to see if there was any way to get it moved closer due to losing my job and insurance the end of July. They casually told me that it was the earliest appointment with dr B and they would put me on the cancellation list, if anyone cancels I will be called. I am in the hold pattern now. ARGGGH! If I knew my ps could handle it, I would call his office and get in right away.

Sheila

Thanks Judie - thats what we call her too BuddhaBaby -  I LOVE THE ROLLS , of all the g'babies she is the first real chubby we have had. I want you to know I am sending GOOD PIXIE DUST for surgery on 6/25,  might not make it on FB or here much next week Ed's sis and BIL from PA arrive on Saturday for the week,  looking for to the visit  - wonderful guests and family - they just enjoy basking in the sun and we have nightly Pinochle matches  - North against the South lots of fun and laughs.

So we got some surprising news from Ed Brother  - he and Trailer Park have split up,  haven't seen them sense our party a few weeks ago -  and they split shortly after that - looks like maybe the real deal this time -  Jim just told Ed he is over it, can't take it any longer - she is nuts  -  he'll be down this weekend more details to follow I am sure -  she apparently is in the house they bought together a few years ago  - brand spankin new  - says it's going up for sale - he'll loose his A$$ but doesn't care-   Noone was really sorry to hear the news -  and forgive me Lord hoping it stays permenant.

HAPPY THURSDAY.

I did it, I called my ps office (HPS) before lunch and described what happened when I tried to get a dermatoligst appt through my family dr. The girl at the front desk (who knows me) said that 2 months sounds about right for a dermatologist consult. She said that my ps was booked up until the middle of July (his vacation is part of that time) but I could get in to see the newest partner in the practice next week. Of course I jumped on that appointment. I will let you know what happens next week. My mom had a basal cell area removed from her nose several years ago by the other ps in HPS office.

Please pray for me, I saw a posting online for an Information Services Coordinator in the next county and I am preparing a resume and cover letter for that position, I meet all the requirements for the job except for the experience in healthcare (preferred not required).

Sheila

Thanks Jane, My stress levels are already high enough with losing my job in 5 or 6 weeks. Although if I am offered any job between now and then i am going to ask to be able to work out this job til the actual closing date (to get the severance pay) .  The thing that is bothering me the most about this bump on my face it is in my peripheral vision and when I am reading I can barely see it and I keep rubbing it trying to wipe it away. In my resume I didn't put that I have health care experience from the patient perspective. I thought that was too much info at the wrong time

Sheila

Oooh Sheila! Good luck all around! You go girlfriend!

Hi classy lassies

Jings but there is a lot to catch up on1

Elaine, your husband is a swine. It's pretty unspeakable that he is putting on the hero costume about "taking care of you". How FECing patronising. I so hope you are getting good professional and personal support.

Judie, Judie, Judie - hugs and suchlike for your surgery. I saw the specialist a few days ago and surgery might be on the horizon when I am well enough. I would have liked to to have it done this year so that next year would be a brand new start but not a possibility just now.

Wee Amy is still in hospital, but out of High Dependancy Unit. She might need the traciotomy until she's 3 or 4 (she had a 'floppy' voicebox) but she is still a joyful wee bundle. But a long journey ahead for her in reconstruction etc. Lilly Rose is just fab, fab, fab. Her baptism is on July 4th - so you will all be having her party I hope. Incidentally, your football team are aquiting themselves OK in South Africa! Didn''t lose to England at any rate. All of Scotland were behind them!

And Cathi - Ella is a wee doll, and Brandt is a heartbreaker. But you know that already!!

On a sadder note. One of our wee group here is very poorly. She is only 34, had the same dx as I had. The treatment that I had but treatment has not worked for her. Her cancer has mets to her liver, abdomen and chest wall. She has been down to The Royal Marsden in London for advanced trials but the tumours have grown. She  is back on Herceptrin - though it stopped working for her when the cancer mover to her remaining breast - they have exhausted the repertoir of treatment for her. We are having a benefit for her tonight, we fellow travellers and families and friends, and it will be a blast. Please spare a prayer for Sharon though, she is a wonderful lass and one of the bravest people I have ever known.

Lots and lots of love to each and every one one you.

Nettie xxxx

Hello Ladies,

 I know I have been a very bad girl by not coming here in a looooong time but I do keep up with most of you on FB - which is why I am here. Saw a post there from our Judie about surgery tomorrow so I got scared and came here to find out what was going on and was thrilled to see allot of you still keeping this thread alive.  Although I am THRILLED Judie's surgery has nothing to do with bootface I am sending you ((((((HUGS))))))))) Judie because I know that diverticuli is not pleasant. All the best tomorrow.

Lisa - so happy you are so happy with Tom.

Sheila - so sorry about your job - I didn't know.  So many are out of work still - praying you will find one soon.

Not much new with UB & I - just doing what we can to get through each day - we are thinking about trying to go see our Sue next spring - barring anything major I think it will happen.

Love you all and see you on FB!!!

 Valerie aka livesstrong aka Auntie Em

Giving AE a bit of a scare is how to get her back here, eh? LOL I haven't spoken publicly on FB about the surgery so that's why you missed it. Thanks for caring! I'll make this short 'cause I've got to try to get a few hours sleep before the big event. I have spent this day becoming squeaky clean inside and out...Hibiclens showers and a lovely liquid roto-rooter drink called "Moviprep" I was all excited thinking I was preparing to go to a movie! No, it was a prep for a move....I'm giddy and exhausted. Have a kind thought for me around noon tomorrow PST. I'm scared. But I've done all I can. I've gotten my blood sugars under fantastic control, followed all instructions, stayed active.....Lisa, send a boquet of Tom to my room, okay? He sounds like good medicine..

Auntie Em, I e-mailed my resume last week for a job about 30 minutes away from my house as an Information Systems Coordinator (read as computer help desk )  which is what i have been doning for 12 yrs. Requirements 2 yr degree & 2 yrs experience. I gave a follow-up call to make sure that they received the resume. Pray that my resume catches their attention. right now job will last 5 more weeks.

Sheila

Sending you all my love and best wishes Judie!!!! I had to take Moviprep too, drank it VERY, VERY quickly and ice cold .... and HENCE had a reaction to it!!! Hosp had to give me intraveneous Buscopan for spasms and couldn't do the siggie, hence the barium enema. Hope it did the old cleanout with no ill effects for you swetheart! I am taking buscopan and peppermint oil capsules and they are deffo keeping the spasms at bay. I might need surgery (would like to get it done and dusted to be frank) but not fit for it just now. Affter my recon next year I would like to have the afffected area removed so that I can have my old life back to an extrent rather than have the attack. 

I am seeing some of you oB, but can't really love it.

Like so many of you, I have ayoung friend who is succuming to bootface, they are giving her Zenola (?) and herceptrin, but don't know if it will work. She has been a rock through this adventure, havign been dx 3 months before me wiht a very similar prognosis. She can actually feel the mets growing internally. liver, lungs, abdomen and chest wall, and has ecomevery ill, very fast. She has even been undergoing trials at the world famous Royal Marden in London to no avail. Heartbreaking. We had a benefit for her last Sat. It was a blast and she looked glorious and is soooooo incredibly positive and fun! I was ready to throw in the towel after 2 TAX because of all the s/e - the effects which will be with me for life incidentally -and it was Sharon's example that gave me the strength to finish the course. So please spare a prayer. I am meeting her on Monday - Herceptrin day for us both - and we will go for lunch and drinks with my sister and her mum. She has been featured on Breastcancercare.org.uk and in the local press, so inspitring is her story. There but for the grace o God ....

Shiela, THE BESTEST of luck in your job hunt. Your current employer will gve you the most glowing refernce I am sure and your new boss will be the luckiest boss around.

Babies are still a joy. Amy got out for 2 hours last week to see her grannie and is in a ward now, so out of danger. Poor wee mite will see a lot of hospitals in her formative years. The have concluded that she has hearing in the side where she has no external ear! So it wll be a cosmetic thing to fashion an ear for her. She has some lobe tissue. The consutant is verry optimistic and thinks her problems will be mostly behind her in time. It's just so very hard for her mum and dad. Lilly Rose is a bundle of fun. We are all going down South for her christerning on the 4th July - we also have a hen night onthe 3rd for a very dear friend, so it will be a packed weekend. I have treated myself to a new netbook with bluetooth,s o will FINALLY be able to transfer some photos from my phone, which is bluetooth enabled! I am a lousy photographer so don't take many pics, so be warned.

I will be staying down in Blackpool for about a week - it's the most popular holiday resort in Britain so I am lucky hat so many of my family and friends live there. I have my own room in my cousin's (Lilly Rose's GRANDFATHER - he is only 42! and we LOVE teasing him mercilessly about it) house.We ar thinking of then going over to Ireland for a week or so. My wee niece Carol is staying in Dunegal at the moment and loving it. Her best friend from Uni is from Dunegal, and we have family there (grandparents hailed from Dunlow and Letterkenny) I am now almost free of hospital routine, herceptrin excluded, so am plannig some breaks. I still exhaust really easily though! Wish you guys could pond hop over here to join us! We are even having gloroius weather

Well going to have a leisurly walk round Glasgow west end and the beautiful botanic gardens with my nephew, sis and Wee-Claire-the-Wonder-Bear (my sis's youngest)

Thinking of you Judie, and of all of you ...

Nettie xxxx

Cathi, you are a strong woman, you can handle this. Do what you need to for the babies. When I was married to my first husband, I took abuse and hid it from my family because of the shame. You never know what is going on in your grown children's homes. Please take care and love those babies for us.

Sheila

Ah Cathi, sometimes life is like the B-side of a 45 rpm isn't it; never as good as the A-side....

It must have seemed very surreal to you. How in shock you must be. But remember you don't know the full story. You always did have a strange feeling about SIL though....

We are here for you. Big shoulders and lots of hugs. This will be a piece of cake compared to the life-and-death situations you've been in recently. Just don't let it be the straw that breaks the camel's back or then it DOES become the worst thing.