Starting Chemo April 2009

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  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited June 2010

    Hope everyone has a good weekend!

    Hugs to you all, Judy xxx

  • inthemoment
    inthemoment Member Posts: 538
    edited June 2010
  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2010

    Hi, everyone.  Happy Birthday, Lena.  I know you don't really celebrate it, but we are, because it's another year you are here, and we DO appreciate and love you!!

    I changed my avatar, so you'll see it 2 days post relaxer, actually, I got a mini-keratin treatment, it was around $65 and they put a pre-treat softener on it, and then the keratin, used the flat iron to make it ridiculously straight that i had to keep for 2 days (and it's like 95 degrees and I am sweating like a proverbial pig, but couldn't do anything about it - you can't touch it, move it or anything), but then put a nice color on it to tone down the brightening (it lightens up your color, as most chemical treatments will) and styled it myself and I really am happy.  It took all of the bulk and frizz out and left me with beautifully silky, easier to style hair.  You can see it here and it was worth the money.  Will stay like this for roughly 30 days or longer, as I don't shampoo every day, try for every other day or preferably if I can stand it, every third day.

    Lena, I forgot about the clot issue.  Sorry.  What did the estrogen depletion do to your dopamine levels?  What is dopamine, anyway?  I'm at the lowest estrogen (read: none) levels, and don't really know what a domamine deficiency does.

    Went on a second interview with a job I would really like, but they are looking for someone who really is into excel, and while I can handle most typical tasks, I cried Uncle when it came to what percent this, and line graph that, etc.  So . . . have a couple of leads for next week and we'll see what that amounts to.

    I hope everyone has a great weekend.  Just enjoyed a nice glass of very cold chardonnay with some aged parmesean cheese slices, cherry tomatoes and kalamata olives - a snack we had every night in Italy.  Yum!

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited June 2010

    Michele

    your hair is GORGEOUS in that pic.  I am going to cut/paste what you did and send it to my hairdresser and see if I am a candidate.  You look so beautiful. 

    Good luck with the job hunt. Something good is going to come your way. I just know it (especially with that great hair!).

    Amy

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2010

    Thanks, Amy!  Tell her it was a mini brazillian (spelling?) keratin treatment.  I have some wave in the back, but it is definitely without the thick frizz.  My hairstylist and her boss were both remarking that my hair came back as thick, but with two different textures - very course and kinky in the back and just thick and wavy on top.  Good luck and thanks for the encouragement on the job.  I'm trying really hard not to stress over it and just let what will be happen.  If you get it done, let me see a photo!!

    Michele

  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited June 2010

    Hi all, hope you are all  having a good weekend. It is extremely hot and humid here in MD!

    Chelev - your hair is great! You look so good! I am so impressed with your upbeat approach to your job search, keep us posted on any developments. And that Italian snack sounds delicious!

    Amy - how are you doing? Let me know what your hairdresser says about the brazilian treatment. At the moment, I am using a Paul Mitchell styling lotion and succumbing to the curls, especially with the humidity here. Although, I would love to have straight hair again.

    Hope everyone is doing well today. Helen - you must be really counting down to the big day now! As you may have noticed, I just love weddings!

    Hugs to you all for a good evening, Judy xxx

  • Titan
    Titan Member Posts: 2,956
    edited June 2010

    Lena...Happy Belated Birthday!   Hope it was a good one...and your PR did you right..somehow..I'm sure he took care of you...I'm wondering..does he know about US? He just sounds so cool to me! 

    I went to a casino this weekend with some girlfriends...we were in the hotel room and this older guy came and knocked on the door and said he was the stripper someone had hired!  We were jut losing it....I said to my friends..could you have hired someone at least 40 yrs old and they said 80 was all they could afford!  Anyway..I hit $800.00!  I was thrilled! I called my Dh and told him and I think he was freaking that I would lose it all...don't think soo...he is such a worry monger!  I am 50!

    Chelev..your hair is awesome!   

    I need to get a new pic up...this last one is from December...I don't even look like that any more....isn't it amazing....how we have changed our looks from last year to this one...

    Geri..I still haven't had that martini!  But we did have dessert shots at 1:00 pm on Saturday!  Abd that sucks about your friend with lung cancer....is it an early stage?   That crap is just nasty..don't know if she smoked or not but it doesn't matter...

  • hrf
    hrf Member Posts: 3,225
    edited June 2010

    Hi everyone. I hope you had a good weekend. It was warm and muggy here in Toronto. Tonight we had the meeting to talk about tables (ie. who gets which table and who sits with whom) It went fine. The Auf Rief is on Saturday morning. Then the rehearsal on the 22nd and the big day on the 24th. Sara (future DIL) is quite stressed....has lost her sense of humour..... But I'm sure everything will be fine. It's all well organized. I'm getting emails now from guests who are concerned about the G20 security but hotel says everything is ok. I pick up my dress on Wednesay. I tried a new hairdresser who rubbed eyeshadow on my scalp to try to cover the bald/thin spots and he did a decent job on the hair I do have. It's not what I normally would do but he made it look fuller than it is so I think I have a solution that I can live with. And today I also got a second pair of shoes ... flats that I can wear following the ceremony. I still have neuropathy in my feet from the chemo so I have trouble with heels....and these flats were on sale for 50% off so it was a deal.

  • Titan
    Titan Member Posts: 2,956
    edited June 2010

    Hi Helen...with all that security around I guess none of your wedding guests will get into trouble now will they?   MY DD has decided on her wedding date now..it is August 6th of next year...so we need to get busy....I'm excited for her and I love her fiance and I think she is ready to move out of our home but it is not going to be easy to let her go...

  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited June 2010

    Helen - it sounds like it is all coming together now and I am pleased that you have found a solution for your hair for the wedding. Is there any chance that we can see a photo after the wedding? Only if you are comfortable posting one of course : )

    Titan - you always make me laugh - sounds like you had a great time with your girlfriends - good for you! Aug 6th next year! YAY! How exciting.

    Geri - how many more to go? How is your friend doing and how are you doing with her news?

    Hope everyone has a good day and sending you all hugs as always, Judy xxx

  • hrf
    hrf Member Posts: 3,225
    edited June 2010

    Hey Titan - I hadn't thought of that but you are right. Everyone will behave ... LOL

    I don't know how to upload photos but if someone gives me some instructions I'll try.

  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited June 2010

    Helen - I am not very good at the technical stuff, but I am sure someone here can help you out with that photo.

    I am so tired today ladies, not sure why. School is winding down this week, but it is just manic, so many field trips, graduations etc, I feel like I am on a hamster wheel sometimes : )

    Hope you are all doing ok. Sorry for such a short post.

    Take care and hugs to you all, Judy xxx

  • inthemoment
    inthemoment Member Posts: 538
    edited June 2010

    I will only post a bit, since I am just feeling a bit down.

    Helen - you were the bright spot in my weekend...you sound more upbeat than I have heard in months, and I am s hopeful that ou will have the time of your life at the wedding.

    Had treatment #48 today - 4 more to go.  I should be happy (and I am), but the joint pain is getting to me, and I'm just tired - I know you can all relate, and it will not seem so bad in a day or two.

    Thanks for asking after my friend.  She is local advanced lung cancer - has an appointment at Sloan next week to get a treatment plan.  Just a horrible disease - my cousin who is 61 and has stage 4 stomach cancer is going on hospice - so...it just sucks.

    Echocardiogram tomorrow, pulmonary function tests next week along with follow-up plastic surgery, breast surgeon, gynecologist and rheumatologist...yikes, no wonder I'm tired!

    Thanks for all your encouragement - it means a lot to know I can come here, and you're all waiting with ((((hugs)))).

    Geri

  • hrf
    hrf Member Posts: 3,225
    edited June 2010

    Geri, Judy ... sorry you are feeling down and tired. This does seem to be the place where we can share our real feelings. Too many people with cancer. A colleague of mine - a lovely woman - had uterine cancer last year. She had surgery but nothing else. Now she has thyroid cancer. Surgery isn't for another 6 weeks and she is worried about a lymph node that feels strange.

    I'm also in the school system but not school based but I do remember it is such a busy and tiring time. I'm taking off next week in order to get "wedding ready". I am really happy for my kids.

    I saw the shrink today - I do go regularly - spent the hour crying but let it all out with her.

  • BetsyBuzz
    BetsyBuzz Member Posts: 592
    edited June 2010

    Geri, sorry to hear you are feeling low BUT...soon you will be done. We are all standing beside you as you are nearing the finish line! Do they have a bell to ring at your onc office to mark the end of your treatments? You know we will be clinking our glasses with you. Wishing you strength through this final stretch.

    Judy...Take care of your self girl! Maybe you need to slow down a bit? My PT told me to quit pushing and as soon as I let up a bit my body seemed to respond.  

    Helen - It does sound like you are getting excited about the wedding. We'll be watching for you on TV. Hey...you never know.. right. It is refreshing to read you might not be super happy with your hair but satisfied. I hope you can cast your concerns to the wind that day and ENJOY it to the fullest. You deserve it.

    Lena - I forgot about your issues with Tamox.,sometime's life really sucks.

    We had a very nice weekend trip to eastern Oregon. The weather was nice, still a little cold. But between events my dh & I took a four mile hike on the Deschutes River. It was wonderful. The next day we drove to the Lava beds and hiked for about another 1.5 miles. Then went to Benham Falls and hiked into it another 1.5 miles. After all that walking we went back to the hotel and took a two hour nap. I was so happy that I could keep up with my dh. Two months ago, I know I couldn't have done it. So I feel happy to be making baby steps forward.

    My heart goes out to those of you still struggling with aches and pains. HUGS

    Betsy

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited June 2010

    I ordered 3 workout DVDs starring Jillian from Biggest Loser.  Did the first one last night.  I knew it would be too hard, but figured I'd do what I could. Well, I knew it was trouble when I was having trouble keeping up during the five minute WARM UP.  Then it started. Geez.  I spent A LOT OF TIME just lying on the mat watching the tv. Then she'd say 'ok now turn over' and I'd be TOO TIRED to even turn over.  I kept a good sense of humor about it. Figure I'll get my money's worth - I will be able to work with this DVD forever before I'm able to do the whole thing (if I ever will!).

    I just kept laughing as she would say "Keep it up, you're doing great, Don't quit now" and I was just lying there on my back not moving.

    Oh well. I'll keep trying!

    3 days till my daughter's wedding.  Forecast is sunny.  I am excited.

    Last summer is starting to feel like a long time ago and that feels GOOD!

  • Titan
    Titan Member Posts: 2,956
    edited June 2010

    Amy...you crack me up with your exercise stories!  I think that would be me too!  I can't even do ONE push up...oh well...who said that you have to be able to do push ups anyway!   Oh and..Amy..laughing at yourself is healthy too!

    Have fun at the weddings Amy and Helen!  I always enjoy a good wedding!  They are so much fun...all the dancing and eating and drinking and all the fun stuff!

    Betsy..sounds like you are having fun!  The weather is AWFUL here...hot, humid, rainy....no fun at all...

    Geri..you will feel better once you are DONE!  Then you can go on and forget this stuff....(except for us that is.)

    It is amazing...just the last couple of weeks I have started to feel like a normal person again...I don't think of cancer much at all...sometimes I freak out about that too...I catch myself forgetting about it...am I allowed to do that?   Could it be part of the healing?

  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited June 2010

    Amy - you made me laugh out loud! What a great story! I too do DVDs at home for excercise and I am finding it hard to keep up. You just do what you can and it is so good that you can laugh at yourself too! Enjoy the wedding - we look forward to hearing all about it.

    Helen - Good that you let it all out at therapy. I haven't managed to do that yet. Now you can just focus on having a great time at the wedding! One day/week at a time.

    Betsy - sounds like you had a great trip. I know that I need to slow down. I had acupuncture this morning and then spent the day rushing around running errands. I don't know how I find so much to do!

    Titan - you just keep on feeling normal! You are definitely allowed! Sounds just about right to me!

    Geri - sorry that you are feeling down. With all the appointments coming up and being on that last stretch, it is bound to take its toll on you! We are all by your side, ready to drink a toast to you! You can always come here to let off steam. I remember last year, when I was on the last stretch, everyone was saying "nearly there!" and I was like "yeah, and?". Your body has been through some serious trauma and it will take time for everything to re settle. I don't think people realize just how long it takes to heal, both physically and mentally.

    Lena and Chelev - I hope you are both doing ok today.

    Sending you and all your friends who may need it (((((HUGS))))).

    Take care and here's to the good times ahead! Judy xxx

  • Titan
    Titan Member Posts: 2,956
    edited June 2010

    Hey Judy the guinea pig..I am your sister guinea pig..I'm sitting here typing and just got yelled at for not having enough gatorade and vitamin water in the house...dang...I just bought 16 bottles less than a week ago...since when isn't just bottled water a GOOD THING???

    Well..got to go get on that treadmill...or go to the store (again)..talk to you soon... on Saturday I bought 2 gallons of milk and we are almost out of that!  I need a freaking COW in the backyard! Plus a money tree would be sweet!

  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited June 2010

    Titan - I think the treadmill is a good analogy! Just keep on running and never actually getting anywhere!

    Let me know where you find the seeds for that money tree (ha ha).

    School is out today! Now the craziness really begins, but it is so nice to be a part of it this year. Last year was so miserable, I remember being in bed when the kids came back. The atmosphere was not a happy one in our house : ( I am determined to make this year a fun summer for all of us!

    Geri - are you feeling any brighter?

    Hope everyone is doing ok today, sending everyone hugs as always, Judy x

  • inthemoment
    inthemoment Member Posts: 538
    edited June 2010

    Hi all - I'm just staying in the background, but keeping up with your posts.  Great that you can look forward to a much better summer this year, Judy.  And we can all enjoy the preparations for the weddings for Amy and Helen's children. Thanks for the encouragement Titan and Betsy - I have 4 more Herceptin treatments left...thank goodness, because I'm not sure how much more of the fatigue and joint pain I could deal with (well, I guess as much as I had to, right?)

    Still very difficult to think of what my friend Bonnie will be facing - I can only be there for her and hope I can make things a bit easier for her.

    Wishing a good Friday for everyone!

    Geri

  • Titan
    Titan Member Posts: 2,956
    edited June 2010

    Judy..I'm still wondering how I kept up with things last summer because I'm struggling THIS summer....maybe because last year I was in a "fog"...maybe last year..Mommy had treatments so my kids and DH actually did things around the house?   I don't know...all I know is that I feel like I'm working my rear off with trying to keep up with things...IDK..maybe I see the dirt and stuff and didn't see it last summer...oh well..I will take this summer over last summer any time.

    Judy.my son has a friend that reminds me of you when you said that this summer was going to be better and you are going to have fun!  This girl makes my son and their friends HAVE FUN...dang it..they had better have fun....!  I don't know..I think that we all want to have a better summer than last year..hopefully it won't wear us out! 

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited June 2010

    My dearest April sisters - I am literally about to turn off the computer and walk out the door  - the wedding weekend is starting NOW. But I had to touch base with you all before I go. I have to tell you one more time how much you all mean to me - how I never would have gotten through all the challenges of the last year without you, how you truly are my sisters. I am crying as I write this.

    I know it is my daughter's day and I'm so happy for her. But in my own heart, and as I know YOU will understand, it is a milestone for me as well. To be healthy, happy, strong and ready to stand and celebrate with loved ones is such an accomplishment. It is not something I will ever take for granted again.

    Thank you thank you thank you for all your kind words, support, caring, encouragement since this journey began last year. It means more to me than I can ever express.

    And when they have their toasts, I will lift a glass to my April sisters and keep you in my heart.

    Amy

  • JudyNaomi
    JudyNaomi Member Posts: 1,413
    edited June 2010

    Oh Amy! I am crying as I read your post. Thank you for your beautiful words. We have all been here for eachother and the support has been so instrumental in getting us through this past year. It is a true accomplishment that you have reached this day and now you just have to enjoy it to the fullest! I know you will and cannot wait to hear all about it. Wishing you and all your family a hearty congrats and many more happy times together! I am definitely raising a glass to you this weekend!

    Geri - sending you big hugs! I think of both you and your friend often and am standing beside you even if you cannot see me : )

    Titan - if you can find the secret to slowing down, then please could you pass it on to me : ) I am sure that last year I paid much less notice to the house etc, but I certainly do feel that the people around me could be helping me more.

    Hope everyone is doing ok today, have a good weekend all.

    Hugs, Judy x

  • inthemoment
    inthemoment Member Posts: 538
    edited June 2010

    Oh Amy - there won't be a dry eye in the room after reading your post!  I am so happy for you and your daughter and all your family, that this can be celebrated without holding anything back, and the proverbial "to good health and happiness" means so much more to all of us than it did before we went through this.

    I feel as though we are like the pioneer women of ages ago....the wagons are circled, the men are hunting, the children are huddled together, and we, the women of the circle, keep it all together, watch out for each other, support and care for each other, and, as we head off in our individual wagons, we will always be a part of that circle!  Mushy, huh, but blame it on Amy for making me teary!  Hold that glass of champagne up high for all of us, Amy (Helen and Titan will soon be doing the same!)

    Thank you Judy for thinking of my friend, and for understanding that what affects one of us, affects all of us.

    Have a great weekend all

    Geri

  • hrf
    hrf Member Posts: 3,225
    edited June 2010

    Amy, that was a beautiful post. It was wonderful of you to declare your feelings in such a profound way. Here's wishing you all the best for a wonderful wedding and wishing your daughter and her new husband a life time of joy and happiness. Remember we will want details when you get back. I'm still 6 days away. Tomorrow is the Auf Rief, Tuesday night the rehearsal and I have to make time for mani/pedi and stuff like that. I'm taking the week off work. The schools will manage without me for a few days.

  • Titan
    Titan Member Posts: 2,956
    edited June 2010

    Oh..Amy...one of my best friends..you go girl..turn off that computer and have soo much fun....be sure to come back and tell us all about it!

    You too Helen!  This is so exciting to be talking about weddings and babies and families and all that.....so much more than freaking chemo!  We are truly done with the b-4 chemo, the during chemo...now we are the AFTER CHEMO mode.

    Geri...as long as I'm in the martini wagon it's ok with me...

  • Alaina
    Alaina Member Posts: 461
    edited June 2010
    *sigh*

    Just found out yesterday that my aunt (Dad's sister) has breast cancer. Mastectomy on Thursday.

    *end sigh*

    Alaina

  • inthemoment
    inthemoment Member Posts: 538
    edited June 2010

    Alaina - so sorry - prayers being sent up for your aunt

    Geri

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited June 2010

    I'm Back and the weekend was fabulous.  I changed my profile pic to show you my hair (which I LOVED) and my dress. I felt beautiful and strong and healthy. Now that it's all over, i am very tired, but in a normal way.

    The wedding was absolutely beautiful. I will send you a link to facebook pix once they are up, if you want to see.

    More details to follow but I just had to tell you I am totally and completely happy.

    Love to all!

    Amy

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