please help
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I told Kim that you were praying for her, and she was so very touched and greatful. Cathi...I told her about you, and she right then and there prayed for you!
Glad to hear your friend is doing better.
back to work...
love and hugs to all!
xoxo
Lisa
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Hi everyone. Just a quick pop-in to let you all know I'm still around and I think of you all daily.
Lisa, I'm so sorry to hear about your friend. How scary it must be that her tumor is inoperable at this point. I remember, when I was first diagnosed, I just wanted the damn thing out of me. I will keep her in my prayers!
Cathi, what a scare you had! Sometimes I get a horrible, sharp pain under my breast on the side where I had my lumpectomy. I wonder if it's the same thing you had.
Well, the house is almost done! I'm not going to jinx it by guessing at a move-in date, but it should be very soon!!
Love and hugs to all,
Karen
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Whine warning...
Wednesday fever to 103. Felt sicker than I have ever felt. Taxi to doc, looks like diverticulitis again. Antibiotics.Fever down. Weak but getting a lot better.Yesterday bright red foobs. Cellulitis from migration of germs through bloodstream settling in the weakest area...recent surgery. (diagnosis over the phone by PS. Already on appropriate antibiotics, so no need to be seen) Soonest I could get an appointment with GI doc is July 2. Hope I live so long. Plastic surgeon, GI doc, primary care doc, diabetes doc...never know which one I should call. It feels chaotic. I am missing precious time with Connor.
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Judie, I'm so sorry you have been so sick and extremely glad you are feeling better. How horrible to get this while Connor is with you. Please take it easy though. Praying for a quick return of health and strength. oxoxox
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{{{{{{{{{{{{{{{{{{{{ Judie }}}}}}}}}}}}}}}}}}}
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Judi, It's awful to be sick on your birthday. Wishing you a happy birthday a day early and hope the antibiotics kick in quickly to fight the infections.
Sheila
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Oh, Judie...We went through this several times with my father. Just STAY OUT OF THE HOSPITAL AT ALL COSTS. He went in with diverticulitis and caught C-diff a little over a year ago. He never recovered; it just wore him down. Sending you healing thoughts.
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sueps..just wanted 2 jump in here...take a deep breath, girl..we all got the crap scared out of us when we first heard breast cancer, and we r all HERE talking 2 u.. i want to dissuaid u in thinking because mom and gran had it, its' hereditary... i got the biggest surprise of my life when my BRaca tests came back..they're the tests for cancer gene..it is everywhere in my family, moms side, and dads. mom had it, sister had it, gram had it {and all died of something else,sister still living.and i DO NOT have the gene...coulda knocked me down with a feather.. remember, every person is different, every cancer is different..hold on, find out what ur journey will be, don't assume ANYTHING. i waited for 3-4 wks 4 more testing. itwas very aggresive, very nasty, and surgeon took 17 nodes on one, 10 on other, and found only one bad node. a miracle; and i am glad he took so many till he fiound it. i am 13 mos out of double mx, 7 mos out of chemo. cancer free...and went 2 the pool with the love of my lifw 2 day {my 21/2 yr. grandson} there IS hope, and there is life after breast cancer.. and it is wonderful...light and love 3jaysmom
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3jays, you are too funny! Sueps wrote that in September 2007. 487 pages ago! hehehehehe
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3jaymom, I see you are newly diagnosed yourself and this post was started under newly diagnosed. The boards can be so confusing when one first tries to figure them out. I think your post was kind and thoughtful. I hope you are doing well.
Gentle hugs.
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So a couple of hours ago I wrote a warm, wise, witty post and hit preview instead of submit then logged off. Thus it exists only in the ether and no way can I do it again. I am crushed. Just accept that it was perfection and move on.
Welcome 3jaysmom!
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Dawn- Sorry you had to be part of this group, hope you got the answers you were looking for, I dont have MBC but wanted to welcome you and let you know we are here for you if you need anything, how are you doing after your lumpectomy, I see you havnt logged back on after your question, sorry I couldnt help you but you are in my thoughts
warmly,
debbie
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Oh, don't I sound like the perfect little bitch....sigh. 3jays, I've "talked" with you on many sites so assumed you knew to look at dates of posts....sorry!
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Hope you are feeling better Judie!!! Happy b'lated b'day!!!!
It was Tom's mom's b'day yesterday too, and my niece!!
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It was a great birthday. I don't have the energy to give a full accounting, but it was time with my kids and a couple of the grandkids. I received a professionally bathed dog, fresh linens on my bed, stunning roses, and dinner out at a very, very nice restaurant. Because of the diverticulitis, my meal had to be low residue, so I had to suffer with only an exquisite smoky chicken toretellini and a creme brulee with a candle stuck in it...
Great eats. It was supposed to be a day at Nordies with my girls to have my adopted "girls" fitted for bras. But they (the adopted ones) developed cellulitis...bugs from the diverticulitis migrated to the most vulnerable area of my body...recent surgical site. Luckily, I was already on appropriate antibiotics and they are nearly back to normal, whatever that is.
As expected, it is time for surgery to remove the diseased portion of the colon. (Not colostomy...just the sigmoid) This is all terrifying. I saw the gi doc this morning but haven't made an appointment yet with a surgeon. I am fervently praying that this can be put off until fall. I have an 3-day outing to a wonderful place near Mt. Ranier planned in July. All of my kids/grandkids will be there. A week later is my annual nurse's reunion. Eight of us have spent a weekend together every year for 31 years. And I don't want major surgery in the heat of the summer. And I want time to lose a few pounds and get blood sugars under tighter control to give me a better shot at a successful surgery. It's a risky one.
Nancy, I am absolutely dreading a hospital stay. I have been on major antibiotics three times in the past four months...a veritable welcome mat for C diff.
Bitch away, Barbe. We've developed thick skin so that we can enjoy the biting wit and brutal honesty you use to camoflauge that tender heart. Love you...I have too often dipped my toes in the same hot water and totally understand.
Thanks for the birthday wishes and hugs Sheila, Jane, Lisa, and Barbe.
Nettie, I'm very excited for your arrival in the Emerald City! It's been a hugely difficult journey for you...exceptionally so. Are you following Devin's blog? He's had quite the difficult journey of his own in Spain. Things are looking up now, but I'm still a nervous mom. I can't wait to see him in July...he'll be back in time for the family gathering at Mt. Ranier. He tells me there is something in his backpack for me from my friend Nettie! I can't wait!
OK back to bed. I'm so tired. I walked several miles today to doctor appointments. It felt good, but tiring.
Thinking of Lisa's Kim and Cathi's Blaire... -
Hi my lovlies
Just a brief post, god there is so much to catch up on!
I am just off to see my consultant to discuss the result of the barium enema, and seeing my onc consultant tomorrow for a general update. I'm nervous guys. I have been falling a lot lately (not telling anyone) It's probably down to the muscular myopathy, god my legs are weak! - and the numbness in my feet. I am feeling a a bit defeated as everyone else I know is making a good recovery. Will let you all know the results.
So many new girls too! Sorry you had to join this wee club, but you'll get heaps of support and encouragment here, from some of the wisest and wittiest lassies around. Good luck and godbless!!!
Cathi and Lisa, please give my best regards to Kim and Blaire. They are now on the list of people being prayed for by The White Friars! That's the monastry in Rutherglen my family frequents. It is so hard to watch people we love having this madness thrust on them - the overwhelming sense of helplessness you feel. Be strong guys, like you know you are.
Darlin Judie, what can I say? The only 'problem' (apart from accidents and skelatol pain) I had before all this was in the old bowels, an boy it reared it's head during treatment! So I know how nasty and painful (and embaressing?) it can be. In fact, that's what I am off to discuss this pm. I didn't know anyone who had BC, but quite a few with bowel cancer. So many antibiotics!!!! I hate antibiotics, I'm sorry I missed your birthday! I havent seen Devin's blog, I check into fb every couple of days or so. Havent fallen in love with it yet. What problems has the lad been having? He might be a bit weary of travelling by now and soon he'll be soooo ready to go home. Then he'll get restless again, I'll wager. You will be missing him dearly though. Hope you feel well enough to enjoy the plans you have made - they sound fabbie - and that you sail through surgery and the nasty bit of bowel that has been giving you such discomfort is removed without any muss of fuss!! Also hope your new 'girls' settle in and settle down!.
Werll off to face the music. Hopefully without having to bare my bum this time!!
Love and lollipops
Nets xxx
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Ah Nettie and Judi, well we've reached that age where all the excitement happens at our "back bottom" and not our "front bottom"! We're more concerned with what goes into and out of, our bums now. Sad, but true....sigh.
Judi that is amazing that you only need to get a section removed and not have to go the whole 26 feet! I will pray that you make it through the summer, BUT, to what distress? You may have incidents of diverticulitis that I know from experience is the most painful occurrence! How quickly would you be expected to recover from the bowel surgery?
(And thanks for realizing I have a good heart deep down under all this crap 
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oh here I am again going to moan and groan and complain - I am having a most awful emotional AM already - I think that I am mentally going nuts , I am so mad and angry and just want my freakin life back. I hate looking at these scars, I hate having no passion in my marriage any more - because I am always feling like shit in one form or another - I am sick of going through the motions of " oh I'm ok - I AM POSITIVE POLLY" and everything is going to be just fine - it isn't going to be just fine - I just want to scream - I can't pretend anymore , I am soooooooooooooo sick trying to make other people feel better, I just want to kick something. -
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Good rant Cathi!!!! You done good!
Okay, how did your party go?
Did you tell your daughters about your mets like you said you were going to?
Hmmmmm????? Just little ole me keeping you accountable.....
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The party was good Barbe - but a big fake off on my part - I really don't think I can do this anymore - I am tired of doing it - I hate this
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To all you ladies with diverticulitis and other bowel "problems"...be very careful, and heed any signs that trouble is brewing. As I mentioned to Judie, my father's diverticulitis really did cost him his life (but at 90, anything could have been the agent).
But a couple of my brother's suffer through bouts of it, too. The last one, a few years ago, was really horrific. My brother's large intestine ruptured and he came very close to dying. Fortunately, he had access to wonderful surgeons who specialize in bowel reconstruction. After wearing a colostomy bag for several months to let things heal, they managed to rebuild and reconnect his colon. Everything's working fine now.
Judie, I realize you want to be able to enjoy the summer and your reunions, but please be cautious.
I'm on summer hours now. Work a little longer but get every other Friday off. And buisness casual dress, which for me means jeans or washed linen slacks. I believe in comfort.
The problem right now is I am "between sizes". I am losing weight slowly, something I knew would happen after my father died because I don't have to cook for his likes and dislikes. I can have chicken and a salad everyday, if I want. But the slow going means I linger in-between longer. I really need some new clothes, but nothing at the store fits (wah!). I just have to give it a push the next few weeks and make it down into the lower size completely.
I might buy a place of my own, finally. I started looking at condos in my area. I'm not really content with them...either too small or too large. I just want a two-bedroom place, on one level (not a townhouse style and the second bedroom can't be a glorified closet), two baths. There's not too much in the way of new construction in this area...it's pretty much built up. Some renovs, but actually, I would rather buy something cheap and redo it to my own liking.
I am getting a kick, though, at seeing the quirky things people have done to their places. One woman took the toilet out of the master bath in order to install a clothes washer. The dryer was in a closet in the kitchen.
There's a little, old, 2-bedroom house (1890s) that my daughter wants us to look at. She thinks the pictures online look "romantic". I think it looks scary, lol. And a tad overpriced for this market (it's at $300,000). The only thing going for it is it's in the best school district. It was a summer cottage that became a year-round home. No basement, no attic, one-floor, but odd angles like they added rooms here and there. The front porch roof is an arbor with an overgrown vine. Nothing's been updated inside so there would be more expense than just buying the place and painting. Definitely needs a new kitchen, and maybe new windows. I'd be OK with that if the price came down $40,000.
So, my summer is laid out for me...open houses and traipsing around with a realtor to see things in my price range.
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Nancy, you MAKE that price come down $40,000 by making an offer. The sellers always hope someone doesn't see through all the stuff needed to be done; or think that's a cheap price.
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Oh Cathi, I SO hear you!!! I have another mass on my cancer side of my chest and called the onc I saw last year and they said to get a referral from my doctor. WTF. I give up!!!! It would take weeks to see my doc, then book a mammo, which I would refuse due to LE and anyway the lump seems to be under my arm more and couldn't possibly be picked up by mammo, so then I'd have to wait for an ultrasound and then for the report to get back to my doc and by that time the friggin' thing would be growing out of my chest!!! As well, I'm getting an MRI finally on June 3rd for the hole in my hip plate, but don't go back to the ortho surgeon until June 18th!!! So either way, I'm dead in the water....sigh. But I can't just lie down and give up as I have to pay the friggin' mortgage!! I need a house to live in to park my car in the driveway so I can go to work to pay for my house and car. What's wrong with this picture??????????????
I need a break pretty friggin' FAST!
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Barbe who says we can't just lie down and give up - I am so tireddddddddddddddd of all the crap - I am tired of being strong and an inspiration and a hero - Cause I really am not- Dam and now you with a new lump - it is never ending - "NEW NORMAL" $hit - theres nothing normal about any of this stuff -
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Barbe, I've been watching that one for a while. It's been on the market since the winter, but the price hasn't budged. What does that tell you? I think they want what they want and they're not selling because they have to. They just might get someone in the next couple of months who sees it in its summer charm and goes for it.
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It COULD also mean that they don't know what they're doing! Any offer at this point would be a good offer for them. Just do it!!
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Great rant, Cathi. I'm sorry you are feeling so low, though. Like my mom always said, "Life aint fair honey!" And I say, "But why ME????" and there is no answer to that one except that is is me and I have to buck up and deal whether I want to or not. But I don't have to be a martyr or Pollyanna or take care of everyone else or protect them from the reality I deal with.
So buck up and deal, my friend Cathi! That means being honest and giving your friends and family the honor of taking over some of the Pollyanna duties. You have taught them well. They can handle it. Keep on having fun parties and BBQs, surround yourself with family and friends, but pretend a little less and rant a little more. Being tough can only carry you so far, then it's time to take a step back and attend to the really important stuff like grandkids.
(wiping foam from mouth and stepping off the soap box...sorry)
I'll write more later, but for Nettie, here's Devin's blog. He's in Barcelona now, heading for Nice tomorrow then Rome.
http://devinwanders.blogspot.com/ -
Barbe,
I'm having the same problems as you are getting a rendez-vous with my PC, i sympathise. Could you not go to a private doctor (don't know if you have them in Ontario) they can see you pretty fast and get a script for an ultrasound witouth a mamogram.
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Thanks Welga, I have a private doctor. Everyone's on holidays!!! Last time I needed an ultrasound without mammo the imaging centre said THEY'D decide if I get an ultrasound! They insisted on pulling a 1/2 " of skin from my non LE side onto the mammo plate, and not finding anything, finally did the ultrasound after all after a long wait! Duh!!! Then they had the BALLS to send me a form letter saying that my mammo was clear and to make an appointment for 2 years! WTF!!!!!!!!!!!!!!!!!!!!!
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Hi all,
I'm all for a good rant now and again!
My role is stay-at-home mom of a 3 1/2 year old girl, and everyone knows this means chocolates and magazines on the couch all day! I, too, don't get a lot of help, prefer to do things myself anyway, and bitch like the devil when the load gets too hard. Why should you feel "crazy" if it just gets to the point where you really can't take any more? Where's the help everyone promised? I am cranky almost to the point where I can't stand myself. But how to deal with the fact that this is IT?
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