Class of 2010
Comments
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ttechred,
I agree with every word LINDAGARSIDE said about your BC treatment. I'll keep you in my thoughts.
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Linda...I was told the same thing about supplements. A multivitamin is ok but no antioxidents. Can't protect those bad guys.
ttechred...you and your family are in my thoughts. Telling the young children is so hard. My 9 year old took it better than I thought and much better than my husband. The worst part is the waiting for results and a plan. Once things are in place everyone seems to do much better. Good luck!
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ttechred - As I mentioned before (I think in this thread), my husband and I had to tell our 12 and 9 year old girls and it was, just like you said, the hardest thing we've ever done. It helped for them to know that I wasn't sick and that the treatment to get rid of the cancer would be what made me sick and tired and the treatment would likely last all of 2010. We tried to set their expectations for what would come without scaring the #%@$ out of them. They were shocked, but things have settled.
We had a month of tests and waiting around and eventually I had a mastectomy of the right breast and am one month in to 6 months of chemo. After that I have another surgery to replace my expander with an permanent implant and then tamoxifin (a hormone receptor blocker) for at least five years. We've told the girls that we can't plan much in the way of vacations or trips too far away from home this year but next year we are going to celebrate in a big way!
We've all been where you are and we're all getting through it! So will you!
For those of you that have had good news this week -- Hurrah! It's a bright light for all of us!
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Irish-Sure wasn't I born and raised in Cork girl? (Please add accent)!! Sisters or Mercy beat the gaeilge into me! Not to mention the gaeltacht on the dingle peninsula .. And me Granny! Course living over here for 16 years I have forgotten most of it and my kid doesn't have any... Interesting what you said about the other people getting radiation.. wow to not know the type of cancer etc.. ?? Different strokes is right! Pickles- I am so happy that day 8 post (or 9 now?) Tx1 you are out enjoying the Spring and leaping around the garden after your cats! Love that image! I feel a million times better now too.. Put in a couple of good days at work to end the week and feel pretty normal now Saturday am in the bed with the mac and a cup of tea!My White blood cell count was way down as of yeterday.. so I need to keep getting the daily Leukine (Nupogene?) shots and they put me on an antibiotic (a $50 one FFS) for the next week and they will check cells again on Friday... My two big events this week were (1) finally accepting that I will not be able to work through this experience (gave the paperwork to my boss yesterday), and (2) getting a wig!! I will attempt to add the picture of me wearing it.. I went to the cancer centre affiliated with the hospital where they have an image centre.. It's an endowment and donation funded organization which runs many great free services for cancer patients of all kinds.. and wow! The lady that runs it is wonderful and I really just got over all my anxieties about the whole image thing (conceit I suppose) and with their support and my good friend along we had a great time talking and trying on hats and wigs.. Found one I liked but not the right color and then the lady had us follow her to Pasadena to the wig store.. found the right color and she bought it and gave it to me! I am amazed at all this! The image centre also works with "lookgoodfeelbetter" organization so there will be an opportunity to avail of their services also. They offer free yoga... dance.. creative writing... jewelry making... knitting... all kinds of things... And such a positive vibe...My DH and son like the wig too! Pickles I will be right behind you with the head buzz.. They ofer private shavings also at this place.. Its one stop shopping!Enough about me-Linda so happy to hear about your all clear scan and sigh of relief... Fingers crossed you are very near the point of the "run along now and have fun" stage!Katie thank you I do feel better!Arubajan.. I hope it went well yesterday.. the sleeplessness may be due to the dexamethasone for nausea.. that one got me too.. I finally got some Ambien.. sleep is crucial.. At least the first few nights I am planning to take something for each treatment.. Fingers crossed for you for minimal SE's and let us know how you go!Annette and ttechred.. My thoughts are with you as you start down this road. Best advice out there was don't worry until you know what you are worrying about.. easier said than done but so true.. The telling the kids part is very hard.. but they are much more resilient and positive than we give them credit for... And in my experience they and the hubbies really just need to feel that they are doing something for you.. so find jobs for them which help you out.. may seem obvious but I'm just learning
.. and I'm sure most of you like me are used to being independent and taking care of ourselves.. And to all the pink peeps I love your strength and support and thank you! I credit you all with getting me through Tx#1. And I'm in awe of those of you with Mx's and other complications on top of all of this. You rock! More tea for me and I will then contemplate the weeding.. ..
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Hey all,
So round 1 of TC down! And I have to say not too bad (yet)! It was a long day... reported at doc's office at 1:45. Walking in the door at home at 7:30pm. I am proud to say I made it through the treatments well, no flushing with the Taxotere and I enjoyed my ipod "Happy Hour" playlist and read a mindless magazine. I hit the bed like a lead balloon, had a little bit of nausea and sleeplessness until I took the ativan. (thank the Lord for that stuff!) Today was okay. Better in the afternoon... i would liken it to a hangover. I did take a brief ride in the convertible with my hubby. Of course with BIG hat and shades, but the fresh air did me good! Will see what tomorrow brings!
At the doc yesterday I asked about supplements, my doc is in totally concurrence with no supplements except VitD.
Pickles, I am sorry for your rash... drat that!
Ttrechred, My heart aches for your hubby too. Mine has had a pretty positive outlook, but trust me we have shed a few tears. Just an idea, a dear friend of mine gave my hubby a book called "breast cancer husband". He's not much of a reader but we put it in the bathroom (LOL) and I think it is really helping him a lot!!! I can get you the author if you like.
Oh, and good news from my doctor yesterday... though my oncotype test conflicted with my hospital labs, she feels fairly confident after retesting that my tumor is at least somewhat receptive to Estrgen so I should be able to take tamoxifen, hopefully with some positive effects in the future! YAY!
And Irish, I am with you... I can't imagine not being informed on my own body like the other women in the waiting room....wow.... also, sorry you are whacked! But you are amazing!
Hugs to all!
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Morning all. Linda, I don't know about immune system supplements, but my oncologist insists on no anti-oxidant supplements during chemo treatment and also indicated no or low Vitamin C supplements, too, (though I can't remember why).
Anyway, grats on your bone scans! That's great to hear.
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Hi all,
Cathyqk, the Dominican nuns were responsible for my Irish and boy were they strict! In the paper today, the third Nolan sister (Remember ''I'm in the mood for dancing'?') of five diagnosed with BC. Sounds like HER2+ and in her lymph nodes.
Jan, thanks for that, having a very quiet weekend.
Michele, great to hear from you, hope the treatment is going OK and not too rough.
Cora
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well i am going for #4 chemo on friday and then i hope i am done. sores in my mouth causing problems...friend gave me something she used in holland and it really helped. still the drs. not sure what to do with me. seems a little nodule they found is a sarcoma and in a different area of my breast right against the muscle wall... i think i am going to go to dana farber in boston to see what they have to say. very very pricey for a canadian to do that but it is my life and maybe they have some suggestions....the docs here say that it is very rare, no one has seen it and what they are suggesting is the answer (more surgery) i think not.....we will see.....not in a good frame of mind now considering the chemo and herceptin was supposed to be preventative and now this sarcoma too.....
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Hi Michele...great to hear from you. Hope you are tolerating your treatments well. Thanks for the comment about the anti-oxidents...that is indeed the word I was searching for when noting the type of supplements we DON'T want to take...at least not while we are trying to fight the beast.
Shopper...so very sorry to hear about the stray nodule. Darn this crazy disease anyway. Let's hope there is a treatment that can zap it to smitheriens.
Had a few issues with my radiated boob over the weekend. The nipple area cracked, flaked and then oozed a bit. I don't think this is a good thing. I will be seeing the specialist tomorrow so perhaps they will give me some dressings or something. I've still got a week of rads to go. It's getting pretty tender, that is for sure.
Ok, pink peeps...I'm out to do some yard work with my husband. Will do some edging around the lawn while he does the mowing.
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Hi all-
Linda so glad to hear your back is OK.
Katiemom- So glad to hear your bone scan was clear too.
Sounds like everyone is getting through their rads.I have not been on the post too much as I am trying to take my Arimidex and all my meds and am trying to forget about the cancer for a few minutes of the day and pretend this whole five months didn't happen, or try and put it behind me.
Terry is feeling better and we are leaving for our cruise on Sunday.
Hang in there all you peeps and you too will have it behind you one of these days and it will feel so good. It really makes you look at life in a different perspective. I want to make the best of now every day. Everyday do something that makes it even a better day. Oh, I am reading a great book you have to read ".ANTI cancer A new way of life" by David Servan-Schreiber, MD PhD. an international best seller and a wonderful story of his experience, stuff we are going through, help medically to empower us and stay cancer free. Go for it!
Lots of hugs to all you brave pink ladies.
GP Jeannie here
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GP Jeannie - good to hear from you again. I hope your cruise is simply divine and you can actually not think about cancer for those days and more. I sure am looking forward to that.
Rads are halfway today! Yahoo, and it seems like there is still a lot to go. My poor boob is hard and pink and itchy and annoying. My dull headache is now a part of me, and I am exhausted. Yesterday I cried for no reason twice. I feel like a little kid again... (I used to get too tired and cry for no reason, my mom always understood, never made a big deal and put me in my room with a book). My principal and husband and child don't seem quite as understanding. They are just worried about my mental stability
Really I am making a big deal out of nothing. This too shall pass. May 20 at 7:15 am will come.
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Katie: Hang in there. I've been reading of your rads experience. I'll start soon. And I'm with you on the crying. My DH has learned over the years that I cry when I'm tired or overwhelmed. Going into a room with a book seems like a good idea even now. Your mom was smart. Tell your principal you need a time out space. You will be done with rads so soon!
I'm not sure about the putting it (bc) behind me or being able to stay cancer free. This TN stuff has done a number on my outlook. But I do love spring and every day I can get out and do things. Our mountain tops have snow, which is gorgeous against the blue sky, and everything in the valley is in bloom.
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GP Jeannie...have an awsome time on your cruise, you deserve it.
Katie..a good cry is what we all need on some days. My husband and son don't understand either. I'm still supposed to be "SuperMom" and put dinner on the table right after my 4:30 rads. At least my job, walking dogs helps. Good exercise and unconditional love!
I have 7 more rads and am very tired, sore and cranky. Have a good night all.
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Hi GP! So glad to hear from you....have lots of fun on your cruise girlfriend. Put all of this behind you and keep moving...don't look back. LOL. There's a song about that but I can't remember what it's called.
Katie...I cried in the middle of the night about a week ago...and for the life of me not sure why. Funny how this disease can grab your emotions when you least expect it. Katie, I have to say though that I'm concerned about your headache that won't go away. I know they told you the scan showed "something" behind your eyebrow...couldn't this be causing your pain? Shouldn't you get it check out? Sorry if I'm causing you worry or concern. I'd say the same thing to anyone I cared about.
Ellen...what the heck? You are getting cancer treatments and your family expects you to have dinner on the table? Excuse me...but I think it's time for a family meeting and a reality check! I'm a bit of a bossy thing just jumping in here with this comment but I bet I'm not the only Pink Peep who is thinking the very same thing!!
Retrievermom...I'm sorry that I'm not totally up on your posts...what is the TN that you are concerned about??
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Ellen: You'd think with 4 dogs, I'd have one to go on walks with me. My oldest turned 15 last week, the younger ones are way faster than I am. I'm with Linda. Someone else can make your dinner. I feel fortunate to have a DH who, when he comes up for air from his computer, is satisfied to make himself a sandwich. When my son comes home this summer, he will find life has changed around here.
Linda: The whole triple negative thing. Higher rates of recurrence; onc saying if it comes back it will be incurable cause it will have morphed. That's the sort of thing I end up thinking about when hot flashes wake me up in the night.
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Hi Retrievermom...OK...now I get it. Wasn't making the connection. I know the triple negative thing sucks big time...but I see there is an awful lot of success cases posted on these boards due to the drug called Herceptin. Are you on that now?? Hang in there...this thing is FAR from over. Try not to dwell on the negative...(both aspects)...as it really isn't going to help you. I know that you know that already...and sometimes it helps to have friends just say it out loud or type it in a note... ((((((((((((( Retrievermom gets big hug )))))))))))))
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Linda - I am not concerned about the forehead thing because...
after my lumpectomy in Dec. I was not supposed to ride my bike, but I did. My DH told me very sternly not to crash. No big deal, I don't crash. Well, sure enough I hit a slime patch and dumped it at slow motion. I was unhurt and did fess up to the DH, however, I recently found that I had cracked my helmet in this little crash. Hey, any guesses as to where the crack is? You got it, right over my left eyebrow. Thus, I am not worried. I see the oncologist tomorrow and will see what she says. I'm surprised that that was all the bone scan found as I have broken both arms a couple of times and have sustained some pretty major crash / surgeries.
Anyway, thanks for all your thoughts and hopes, ladies. What do pink peeps do if they don't find this place? I would be a hurting unit.
Katie
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Ha! I'm the Queen of crying for no reason! Love that I'm not the only one! And heck, wattery eyes is one of the SE's for my Chemo...
I'm two weeks out from my first Chemo and feeling much better! My tongue has returned to it's normal size and it is no longer white, the rash is finally going away too!
Going for the 1in trim on Friday so I don't have to deal with hair everywhere during my Chemo Zombie phase starting May 5th. The fun never ends does it ladies!
Stay strong and dream peace!
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Linda: Thanks for the hug. No other drugs; just TC and rads. I think Herceptin is for those who are HER2+. Anyway, I tend to dwell when I can't sleep. I do wish there were a "hump" to get over and then feel it was behind me, tho. Sometimes scared, sometimes sad, sometimes just plain tired. Doing stuff with the dogs is a real mood-lifter for me. Hearing that it's going to snow again tomorrow is a major bummer. Want to be outdoors!
Michele: Are you going to get to go to the Derby? I've watched on tv since '64 and a major thrill was going to the horse farms and seeing some of the winners at stud. I hope you're feeling ok.
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Linda...DH has been figuring it out this week when he comes up from his computer and there is no food on the table. Tonight he will be told what to cook so it will be ready when I get home. I'm a little slow some times thinking I have to do it all. I finally hired a neighbor boy to cut my lawn this year..I'm getting smarter
Retrievermom. snow? Yuk...it's supposed to be colder here than usual but nothing like that! Enjoy your dogs today. I have about 7 to walk, wednesdays are always busy.
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Reading all your posts about dinner on the table and crying for no reason and constantly finding something to worry about sounds so familiar. I think we all must experience these things many times throughout the course of our diagnosis, treatment, and return to 'normalcy'. It's been 9 weeks since my mastectomy and I'm 5+ weeks into my chemo tx and I realized yesterday that everyone around me (most everyone) acts like it's over and I can go back to doing what I always did. In part, that's good because I'm back to work and very busy so it keeps the worry and that nasty thoughts at bay. At the same time, I think we need to remind our loved ones that we still need help and that we still have a lot of emotional stuff to deal with.
Today in Seattle as I drove my daughter to school it was beautiful. The sun was shining over the water and onto the snow-capped mountains. It reminded me that the world holds a lot of beauty and that we will all get through this and come out on the other side. That said, we're expecting rain and thunderstorms this afternoon!
Regarding getting dinner on the table, my co-workers bought my family a gift certificate to Dinner's Ready so that we could go and pick up ready to cook meals to put in the freezer. I was a little skeptical having never done anything like that, but it was awesome. You have to order 6 meals at a time and it's a little pricey. BUT, it was wonderful food; very easy to prepare; and we enjoyed every meal. We were able to order twice and the only problem is remembering to take a meal out of the freezer to thaw in time for dinner. Even my 9 and 12 year old children liked most of it. If there's one in your area, I highly recommend it.
A happy day to all!
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Hi Retrievermom,
(Don't know if you are on the Onco thread... )on my original paths from surgery my tumor came back ER+ at 91% and PR-, HER-; then when we did my onco test to see about chemo my result came back with a number of 71, showing TN!!! My doc (as well as myself) was confused. Tests were redone and and they came back with a very small positive ER number. Not sure yet exactly what we are going to do after chemo and rads, but I am with you that it is scary. These things keep me up at night too. I wanted to tell you though that since these new results, I met a woman through work that had TN cancer first occurrence in 2001, it recurred in 2007. We had lunch and she looks fabulous and is more positive than ever! She is great! We can do this!!!
Big hugs to you!
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HI All : )
I had my first radiation consult today. Sounds pretty straightforward actually. 6.5 weeks of daily sessions and I have my CT setup session on Friday. All I need now is to fast forward to next Wednesday when I should get the final verdict on Chemo from the oncologist. Otherwise I start radiation on 5/11.
Thank goodness my bday is on a Saturday this year. At least I know that I'll have a day off of treatment!
Hope everyone is doing well : )
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Today I had #3 AC dose dense with B or P by way of chemo port, and now ready to take a long nap.
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Went to see the rad onc today and ended up having my sim done. I'll start rads on Mon.
Teka: Hope you wake up feeling ok.
Snow didn't stick, so it's back to spring here. Wishing everyone an SE-free day.
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Hi Pink Peeps....I thought you'd appreciate this tip for those of you who are going through rads. I purchased special cotton bras as this was recommended...and today they were both in the wash and so I put on a silky regular type that seemed ok. Within 30 minutes my breast was on fire and was very itchy. After applying cream and getting a cotton bra back on...all was fine.
Cold wash cloths gently placed on the breast and then after, gently pat dry and put on more cream. The breast nurse advised there is no such thing as putting on too much cream. I put it on about 10 or 12 times a day. I have 3 radiation treatments left...but man oh man...I am as red as an apple! Apparently it will be this way for awhile. My skin for the most part has held up well and I put this down to the cream and special bras...as well as airing myself out when I can.
Good luck everyone!
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Met with my onclologist for the first time today. I love her! It was more like talking to your cool best friend than a doctor. She is just wonderful. She also has the distinction of actually reading my medical file before meeting with me. Most don't bother and then get flustered when I try to fill them in later. She is ordering the oncotype and we will go from there. Fingers are crossed for a low score but I will perservere either way. It feels really good to like and trust your doctor.
Also... she is not ordering any scans. She doesn't think I need them or to be freaked out by them when there is no real reason to go there right now. I am great with that. At my request she is sending me to a dietician and is advising to eat well, keep weight steady, don't smoke, don't drink more than 3 a week and do 30 mins of excersize every day. All things we strive for anyway. Today was a good day.
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Well just when I thought this was almost behind me, I have had pain on my right upper abdomen for the last couple of days. I went to my GI DR today and he said my bloodwork was good and did not think there was a liver problem, although that is where the pain is, He ordered an ultrasound at the hospital today so he can have the results tomorrow to ok my trip.The tech at the hospital said I had the same polyp on my gallbladd that I had in 2006. How did that ball get dropped in following that? Now that I have had cancer,I am thinking the worst. I just hope I get on this cruise and don't have to worry about coming back and having my gallbladder out or worse...GRRR!!!!
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jakhope,
My husband and I were like you and ended up with colonic diverticulosis. Yes, hurt on right as well as left side. Also, we thought the worst.
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Aw Jeannie - my thoughts are with you and I want to be on that cruise right with you, so the news WILL be good. Please post when you know something. I am living SO vicariously through you ( on your vacation, not on your cancer)
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