January Mastectomy
Comments
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A coworker told me today that her sister doesn't get mammograms because they hurt. Wimp AND idiot.
I'm struggling with a back disk problem - keeping me down and FAT. I had to wear my biggest fat pants today. Quite depressing. I had hoped to start walking, exercising; I'm back to shuffling. Boo, hiss.
Elaine
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Elaine: Try to cheer up! Sometimes I feel like Tim Conway's little old man character how slowly I walk. When my disabled husband can beat me walking to the store it is pretty bad. I know we'll all get there. We just have to give our bodies time to heal themselves and get strong again. I can already tell being able to do physical therapy at home is making a difference. People are noticing I'm not walking all hunched over like I was before. Small steps make a difference. It just takes a little longer to get there, but you do reach your destination!
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So, I spoke too soon! Told my old work I could fill in, and they called me today to work at 3. It would be awesome if I wasn't in so much pain...oh well. I'll just sit and not run around like I used to (I'm a receptionist at a really busy hair salon.) It will be really fun to see all the girls-they miss me and I miss them. It will be strange to be there wearing a wig-I bet they'll all touch it a bunch and be critical of it. I had a really nice head of hair before, so a wig can't quite compare.
Anyway! I'm going to make the best of it, have fun, take my Tylenol and tough it out! Hope everyone has a terrific day!
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Freaking out just a little bit....
I noticed that the skin on the underside of my breast is looking dimpled and ripply....hard to describe but it's not the way it normally looks
My TE's are very full right now..is this from stretching? or added weight of the TE's...any ideas? is this temporary? has anyone experienced this? There is no pain or discomfort.....but I'm a little worried.
I've got a call in to my PS...I'm hoping he will say it's nothing to worry about and just a temporary effect =(
Any thoughts are greatly appreciated.....
Kat so glad your husband is doing well even though black and blue....hope he recovers quickly
Healing and strength to all,
Laura
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Hey Laura, don't panic!
Your TE's are ripply because they're filled with saline. Sometimes if I lay to long on one side that foob will be all ripply, then it goes back to normal. The water is probably just a little displaced in them since they are so tight...no sloshing about like before. I going to say it's probably normal. Also the reason why I'm getting Silicone implants. A gal I know got saline implants after her TE's and she says they ripple and dimple occasionally too.
Chin up!
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{{{{Hugs to all}}}}
My abdomen is definately still collecting fluid. I noticed today that I had a little trail of fluid coming out of my belly button (this happened last time also). It is kind of like the overlfow valve on the bathtub....abdomen gets to full and belly button releases the pressure......sigh
Speaking of Ripples and dimples....tuna cans....foobs.....someone was asking me questions the other day about various BC things. When I was finished, I looked at her and said "I know way more about this than I EVER wanted to know" This really is one subject I would rather have not needed to research.
It is very exciting to see all of the exchange dates and recon dates coming up.
Sally
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Thanks for the reassurance Kat
My PS is going to squeeze me in tomorrow just to make sure all is well. I think it's probably just the strain of the saline, as you say.
Thank you for the tip on scar tape....I'm going to pick some up today
Sally I hope the fluid in your abdomen stops acting up
I completely agree about knowing more about BC things than I ever wanted to. I bet we all agree on that
Got to get ready to teach....will check in later
Strength and healing to all,
Laura
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Laura: I have what looks like huge pores on the underside of my TE side. I think it IS my pores because my skin is pulled so tight. Since I'm done with fills right now, I can tell when thngs have moved in there. I don't feel like my foob is choking me anymore at least and everything seems to be moving down now.
Sally: Have you called your doctor/surgeon? What do they say? It definitely sounds like your body can't absorb the fluids right now but maybe it isn't anything to worry about either. My father-in-law "leaks" on his legs and fluid will run down them sometimes. It is because he has heart issues. Just call the doctor.
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Good morning Sisters! Don't know where to begin I was away from the board 1 day and so much has happened...
Sally- hang in there with the fluid.. Relax... This will pass.. I'm giving you a big {{{HUG}}}
Kat- glad you DH in doing well.... Let you Daughter give you a hand they love to help their dads.
Laura- if you are unsure call the PS... He will let you know if it is normal... I'm sure it is....Just check.
Elaine-{{{HUGS}}}
Kim- good luck at work... I wish I could go back... Just starting to feel better.,.. On another dose of antibiotics for a bad cough... Enjoy it take you time..
Too all my sisters--- Whether you have TE, SE, Or other breast issue, Jobs...family.. I wish you well and HUGS...
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Sitting here at key-moe treatment #3 bored out of my mind! TE's are still so painful on day 4 of the fill-I don't know what the deal is this time. Maybe because I'm finally bigger than I was before. Who knows. Playing on my phone with an iPod in my ears, and people watching. Very interesting group of people-I'm the youngest in here by at least 10 years.
Hope everyone has a great day! -
Hi bc,
Yes...this sounds like the same thing I'm seeing under the one breast....I'll let you know what my PS says tomorrow......it didn't appear until this last fill, I only have one more fill to go next week......
Laura: I have what looks like huge pores on the underside of my TE side. I think it IS my pores because my skin is pulled so tight. Since I'm done with fills right now, I can tell when thngs have moved in there. I don't feel like my foob is choking me anymore at least and everything seems to be moving down now.
I'm sure it's fine......but I just want to make sure....
Thanks so much bc,
Laura
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You know, what is up with the big pores? I have those too and I don't like them at all. They're on the left (non-cancer side) inner/clevage portion. I hate them! My DH says they'll stretch out taut with the fills which is a little discouraging because that means I have to keep getting bigger for that to happen and I didn't really want that. (but of course he does, hence is why he's saying it...HA!) I'll be anxious to see how they look tomorrow at 420cc...maybe (just maybe) the implants themselves will have something to do with the 'pores' Maybe the corners of these TE's are just so crinkly and crappy that skin can't lay nice over them. I hope that's it...I'll ask PS and keep you posted.
Good luck Sally!
Kat -
Hi January Team
Just popping in to see how everyone is doing. As always lots going on and lots to keep up with.
Sending prayers and best wishes to our team going through TE issues, having chemo etc. as well as trying to move forward in our new normal lives.
I purchased the book "Anti Cancer" as recommended by someone on the forum and have found it to be very interesting. There still seems to be so much to keep learning because of this disease. I am trying to find out as much as I can on how to have a better lifestyle, while at the same time learn about the next major surgery I have coming up.
Take Care
Cathy
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Morning Kat and all,
Here's my theory....skin at the cellular level drapes over forms in a certain way. It the skin is pulled contrary to it's natural tendency it will crinkle. If you take a leaf...and the membrane of the leaf is bending in a natural way it is smooth...but if you take the same leaf and try to stretch it in an unnatural way it will crinkle. This may be crazy....does this sounds too nuts....maybe I study plants to much
Here's a link to an illustration I've done (click on the little drawing in the album):
http://s882.photobucket.com/albums/ac29/lauragld/?action=view¤t=breastillustration.jpg
I think that once the pressure is off the section that is stressed it will be happier.....my breast that is showing large pores and crinkles has always pulled further towards my armpit. The curved lines on my booby drawing represent how the skin lays over the breast mound....the straighter lines show where my big pores and crinkles are. I clearly am thinking about this way too much
I'll take my drawing with me and my theory of skin at the cellular level and see if I get a laugh out of my PS =D I'll update his reaction later today........
Best to all,
Laura
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So I'm back from my PS and he said that the large pores and crinkly skin is from the skin being pulled against it's natural grain. He said this can happen from the scaring....as the scar heals it sometimes pulls on the skin contrary to the skins natural direction. He said as the skin relaxes this should become better and as sometimes more inflation (akkkk!) can smooth out the tissue....so these seem like exact opposites to me.....on one hand the tissue will improve as it relaxes on the other hand it will smooth with more fills??? hmmmmm.........
He said not to worry that these skin ripples will be fine and improved with the exchange
I'm going to trust him on this....I do trust him.... He did get a kick out of my drawing....he said I am the first patient that has ever presented him with a schematic drawing...he thought it was very funny
So my last fill is a week from Tuesday and then I'll get my exchange date! woohoooo
So I've gone on way too much...I hope the information from my PS is helpful
Kat I look forward to hearing what your PS has to say
Best to all....strength and healing,
Laura
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My "boobs" are killing me! What the hell? I've tried going braless, changing to a regular bra vs. a sports bra, sleeping on my back, switching sides over and over...I don't know what's going on. I changed my fill appointment to 2 weeks instead of 3, but I may have to change it back! The one good thing-I do look pretty cute in my tight t-shirt. Sigh.
AWESOME NEWS! I just got a part-time job working as an assistant for a Realtor who works out of her home. She hired me within 2 minutes of talking to her on the phone-experience helps, even if it was 9 years ago. I told her about the chemo and needing Thursdays and Fridays off every 3 weeks (plus my PS appointments), and she was totally fine with it. Amazing! Prayers answered!
I hope everyone is having good weather, and enjoys the rest of their day!
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Hello Jan Buddies, Sorry I havn'rt post, But been checking in. I think & Pray for you all . Hoping all are doing Great & recovery well & every one is getting stronger evdery day!
I Saw Surgeon Yesterday I am still having swelling around incision & rt arm pit, he did not want to drain fluid, he wants to see if My body will asborb it! still having pain,but it better & Emtionally i feeling better. I been off the tomoxifen for 2 weeks, onocogist took me off for a month break while the infection clears up. My leg pain & engery is better , so it could have been the side effect of tamoxfin ( so Now I am scared to go back on) Iam Praying about it & I may not take it anymore, I see Her in 2 weeks & I Will discuss it with her & have labs done again! I finish My last antibotic today, ( yea) So I hope my stomach will start feeling better & get back to normal now! Welll I got the Surgeon to release me to go back to work next week, With some restrictions, no lifting over 10lbs. I am really excited , but scared cause it 's been 3 months since I worked!, so I need to get back ( no more PTO left) Pray that all goes well. I am planning on Monday march 29th! 5 Surgery behind me & Iam ready to get on with my life! Well My sweet Sarah has been so patient & finally going to have her 16th B-day party for family Sat ( hope no one goes to hospital this time ) her Birthday was actually march 5th,the day I went into Hospital with infection& had Surgery to Remove TE. The Cake been Order ,so it a go, Pray we all stay healthy ,I hate to cancel it again-! I just want you all to know how much I appreciate all the sweet post & Hugs. Thanks For make this Challenging time much easier, because of your support! {{hugs}} Gina PS Have a Blessed weekend!
Regina Robinson -
Good morning Team January.
Hope everyone is well on this sunny Sat morning. I had a fill yesterday and I'm now at 420cc. I don't want to go any further. I've got another appointment in 2 weeks and it's not for a fill but rather to discuss my exchange date and the type of implants. I'm not sure why he is so 'forgetful' He says "so, we're going with saline implants right?" No, I'm going with silicone and back and forth about the MRI's etc. I don't give a crap I'm getting silicone.
I'm not happy with this fill. I went more lateral and lower and now I'm wider rather than up higher. It seems the more they fill the heavier and saggier they get. I just want to stop now. I almost wish he could aspirate out the 60cc he put in. The plane of large pores on the left inner cleavage are actually hair follicles and he doesn't think there is anything that can be done with them. I say we can remove some extra skin but he is so ULTRA conservative I'm not sure what I'll end up with. And speaking of cleavages, it's all up to your sternum and it doesn't look like I'll be getting any cleavage at all despite having big 'breasts'. Kind of a sad day at the PS office truthfully.
Laura, your leaf theory is good and I hope you are correct. I just really want the round implants in there and see if it all smoothes itself out. I guess I'm looking at 400cc implants (since I'm overfilled now) It's exasperating. My husband keeps saying to increase the fill and they will get rounder and I keep saying are you out of your mind? Nothing is going to change except they will be at my knees. I'm truly done trying to please a man now with the size and just be happy for me. I feel like I compromised already with this last fill so enough is enough.
We went to a cocktail party last night and it was interesting. There were about 30 people (men and women) in the room and it was like one of those commercials where it shaded 5 random women who have all had breast cancer. Now that's way more 1 in 8...and what about the women who have breast cancer and don't even know it yet? It truly is an epidemic.
One of the gals who had breast cancer about 10 years ago had a Lat dors construction and it looked amazing. She had a unilateral mastectomy but it matched almost perfectly to her other breast. I think the trick with that procedure is to start out being small breasted to begin with. She had an implant placed under the muscle of her unaffected breast and then the implant plus the back muscle to the mastectomy. It was perfect and felt very lifelike. She had a slight nipple protrusion and her tattoo areola was very faded..but still looked awesome. The scar on her back was nothing....she had a 3 inch long very healed area...looked great and blended right in. I'm a little jealous I didn't go that route truthfully.....I guess the moral of this story is for those of you thinking reconstronstruction in the future, consider that procedure. I think the results make it look more like you had an augmentation vs. a reconstruct and looks extremely natural. It was good to see this gals results 10 years post op. It does give us hope!
Well, off to do laundry. I'm glad I'm not sore from my fill...I even forgot my ibuprofen before it and then we went out to that party so I didn't want to take any meds if I was going to have a cocktail or two and I don't feel any different than before the fill.
Congrats on the job Kim and good luck on your first day back Gina! Take it easy and don't overdue. There will be no more trips to the hospital for you young lady!
Have a great weekend ladies,
Kat -
Hello my January sisters,
I can't find anywhere on this website where you can add a topic.....so I'm just going to throw it out here. Just received a letter from my insurance company that they will not cover the genetic testing for the BRCA1 and BRCA2 genes. Their reason is that it violates THEIR Corporate Medical policy, which states that this testing is only considered medically necessary when a patient is diagnosed at age 50 or less.
Can anyone help me determine why that would be logical. You know I will fight this....I am just trying to remain calm and come up with a sound argument.
I can't understand why anyone's age would have anything to do with medical necessity. Is it because they think we won't have babies past 50? What about those babies that we already had? Wouldn't it behoove them to (and save them some money in the long run) if we could pass on genetic information.
Thoughts anyone?
Marianne
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Marianne, I have never heard of the age issue with BRCA either. I'm not sure what that would have to do with having it done.
Kim - Congrats on the job !!
Regina - enjoy that party, and tell your Sarah happy birthday from Team January !
Kat - how is DH doing (other than pestering you about bigger fills) ? I think you are absolutely right to stop when you are ready. Don't let anyone talk you into bigger or saline if that is not what you want. You deserve to have exactly what YOU want !!!
Debbie - How are you?
I am going to PS on Tuesday to discuss my phase 2, so we will address the fluid build up at that time. It does not seem to be building as fast as it did last time, so maybe I'll get lucky and it will absord before I see him .
{{{{Hugs}}}}
Sally
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Hey Marianne,
My BS says that cancers that are ER+/PR+ are most probably not genetically acquired. The insurance companies believe this too. Maybe your daughter could ask her MD to test her based on the fact that her 1st degree relative/mother is a breast cancer survivor...and then let that generation pass on the genetic information.
According to my personal history alone...time of menses onset, number of pregnancies, lactation history etc., I had a 0.9% risk of developing breast cancer. The risk factors of my gender, my age and my environmental influences had more to do with it than my grandmother dying from it at 54 in 1969. (I bet her tumor was estrogen friendly too)
Anyway, I hope you will find your answers! (Suns out...go golfing!:)
Kat -
Kim congratulations on your new job! That's great news.
Regina good to hear you are start to feel better. Fingers crossed that everyone stays healthy so you can enjoy the Sweet "16" birthday party. Happy Birthday Sarah!!!!! Even if it is a little late. Did your doctor do the CYPD26 test to see if you metabolize the tamoxifen? I have learn't on this forum that some, but not all doctors do the test, but that not everyone should take tamoxifen because your body doesn't metabolize the drug properly. I have asked to have the test done. I just figure if taking it is in my best interest and the side affects are worth it, but if my body won't metabolize it properly than I don't want to take it. Good luck with your first day back to work next week. Just remember to take it easy. You have been through alot.
Sally I am going to be following in your footsteps with the DIEP. What exactly will they do for stage 2? I am sooooooooo looking forward to doing stage 1. Although I know I have to start preparing myself physically and mentally to go through another surgery. I have to admit, this surgery mentally is so different then the bilateral. I feel sick to my stomach when I think of that time in my life. I read other people talking about PTSD, and can totally relate. But now having this surgery to look forward to is on a much more positive note.
Kat I hope you feel better once you get your surgery date. Perhpas once the exchange is done, they will have the shape/size that you are hoping for.
Marianne, do you have a history of breast cancer in your family. I went for the genetic counselling, and they wouldn't do the test because there wasn't enough evidence of breast cancer in my immediate family, and therefore it is felt in my case, that I don't carry the mutated BRCA1 OR BRCA2 gene. They never said anything about the age of "50" having any bearing on whether or not they would do the test. I would have loved to have the test, so that the information would be helpful for my daughter, sister etc.
Take Care
Cathy
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I meant to ask if anyone else enjoys sugar in your coffee as much as I do. And what if anything are you doing now instead of using sugar? I kept reading about how bad sugar is for breast cancer. After reading in so many different books to replace sugar with either agave nectar, oxylitol, acacia honey or coconut sugar. I went to a health food store yesterday and purchased the agave nectar and oxyitol. WOW is it ever expensive. But I figure, pay the price or eliminate it. I like sweet too much though, especially in my coffee.
Would love to hear what others are using or what other healthy lifestyle changes people have made?
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Cathy and Kat,
Here's the real twist....the reason we requested the genetic testing is that I was adopted. I have absolutely no knowledge of my biological paternal family, but actually met my biological mother and has some sketchy details of her family. I know I had a maternal aunt that had breast cancer at an early age and then died from metastatic breast cancer later in life.
I'm hoping to appeal on those grounds -- if I knew my medical history I wouldn't be as concerned about it. By doing the genetic test on me, then at least my daughter would be better equipped to handle her situation.
This should be a fun battle. I am going to let the appeal process take its course. The doctor that ordered the genetic testing will go to bat first on this one. Remember I used to work for the insurance company, so I understand the process.....I will challenge their corporate medical policy based on age.....I can't wait to hear their rationale on this one.
Kat as for the fills...I was concerned too because the TE's look more horizontal on my chest than vertical. The PS assures me that I shouldn't worry about it. The only thing he keeps looking for is that the cleavage would be in the center of my chest -- that they are evenly spaced apart. I was concerned that one TE appeared to be more "under my arm" than the other. He said it looked like one of them has turned a little, but again, not to worry. Because he is off for a week, it will be 3 weeks between my last and next fill. I have to tell you that the exercising is really a great help. It actually stretches the muscle, too, so I believe it is helping. I am at 400cc now and I told him I felt like I was large enough. I don't want to end up too big. He said if I am happy at that point, then he will fill more just to make the pocket large enough to accept the implant and ensure there is enough room for them to move naturally. It all sounds good. I agree there is a lot of trust there.
Actually, my husband is worried they are already too big.....I'm sure that's because he's not even used to having breasts there!
Best wishes to all on a great spring day!
Marianne
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Cathy,
Phase 2 is used to fix anything, reshape, lift, tuck...whatever you or your PS feel need/want to do. I am slightly larger on the left than right, so I am hoping to have some fat injected to make the size better. I will also be having a little shaved off my hips, to eliminate the 'dog ears' created by the incision line and drain placement. I am making a list of the things I really love, and the things I would like to improve. When I see him Tuesday, I am hoping he will be able to give me a good idea of what can be done. I am not really nervous about any of it, if I had to stay exactly as I am now, I would be thrilled with the results. But, I figure I might as well come out of this with the best possible breasts I can get
Marianne - I have no information on my maternal grandfather. I also have a altered history for all of the females in my family - on both sides of the family. I am, at the age of 40, the oldest female in my family to have ovaries/uterus. Each female in my family has had complete hysterectomies before the age of 40, with the exception of my sister - she was 41 when hers was done. So both grandmothers, mom, all aunts, all first cousins, and sister - all with hysterectomies. No ovaries-no estrogen-chances of BC greatly affected. My genetics counselor said it put me very near the category of 'unknown' for family history. She used that to get me pushed through with my insurance. I felt that I would come back negative (and did!), but I have 3 daughters and 8 nieces and wanted to find out just to put myself and my siblings at ease. I hope you are successfull in your appeal. Everyone deserves this information.
Sally
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Morning all,
Kat, I completely agree with you about the fills and the large pores, and pleasing others. It seems to me that these pores didn't appear until the skin got more stressed and stretched....so I don't see how stretching more will help? >=( I have 480cc now....I had no idea because it wasn't until after the last fill that I was told that I had 120cc at the time of surgery. I have made it clear all along that I don't want to be any larger than a B. He says right now I am a "full" B. He wants to do one more fill just to give the implant room to settle naturally. When I see my PS on Tuesday I'm going to ask him if he forgoes this last fill what size would I would I be...a "medium" B? I am not giving DH have any say in where I stop....I figure my body, my boobs, end of story
I know that chest wall size makes a big difference in the size of the TE's. I am 5'8", 180lbs, large boned and my chest measures 40". I am having a hard time picturing the shape of my TE's transforming into a natural looking breast.... The scar across my breast has no give to it and causes my fills to pillow out above and below the scare....especially below the scar....getting lower that I like
Any thoughts on this are more than welcome!
I think the closer I get to the final date the more worried I become about making the right choices. I hear over and over again on the exchange boards that the implants feel smaller and look smaller than the TE's (thank gawd!) but it's just hard to make a choice when I wont really know how I'll look until I come out of anesthesia =o\
Cathy, I love agave and have used it for years. I don't take sugar in my coffee or tea but I use agave on my steel cut oatmeal
I try to eat lots of berries, nuts, dark leafy veggies and curciferous veggies. I do have a soft spot for dark chocolate....and try to keep the portion small
I haven't eaten any red meat in years....sticking mostly to lean chicken, turkey and fish. My cancer was not estrogen/progesterone sensitive.
Gina I hope your daughter had a wonderful 16th Birthday....I'm sure it was worth waiting for
I hope the fluid buildup goes away naturally and you don't have to worry about it anymore.
Kim I hope your boobs have stopped hurting, it's no fun when fills are so tight.......
For everyone going through pain, healing and frustration I hope each day brings you closer to feeling better and stronger..
Laura
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Laura, you have to get over to Breast Implant Sizing 101 (it's in the reconstruction section) and talk to Whippetmom (Deborah) She is currently changing my entire outlook. I took photos and sent them to her and her advice is amazing. I'm so pumped now...I'm going to make an appt with PS to make sure he has the same vision for me...i.e. NO MORE EXTRA SKIN! It's no wonder that my fills don't hurt. I've got way to much skin and once that (mastopexy) gets taken care of, they can be sitting up higher and looking fabulous. I also will not have the 'large pores/hair follicles' or wrinkles of skin once it's trimmed away.
I hope PS and I can be on the same page.
Kat -
Sally how long of a surgery will the stage 2 usually take and what is the healing time like for stage 2. Will they do the nipples at this stage as well? Good luck with your appointment on Tuesday.
Laura that is interesting that you use agave. I am wondering how long this little bottle will last, because it seems very expensive and although I have tried to cut down significantly on how sweet I make things, I do still have a sweet tooth. Can I ask why you have been using it for years? I am just now starting this healthy eating and trying to weed out what is truly beneficial and what is just a money grab. There is just so much information out there, who knows what to do. Eat this, don't eat this, I find I am scrutinizing and looking at most things in a different way. Is this what caused me to get breast cancer? The other item that seems to be huge on this one doctors list is leeks, so I have been adding it to almost everything. My oncologist has said that one of the single most beneficial things one can do is exercise, at least 3 or 4 times per week.
Sending good thoughts to all of our January ladies moving forward with chemo, TE's and exchange surgeries and moving forward.
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Cathy,
I will let you know all the specifics regarding time/recovery after my appt. My PA did say a normal person would be able to return to work 3 days after phase 2. I do childcare, so it will be a little longer for me due to lifting.
Nipples will be done later. We will need to wait for any swelling to be gone, and make sure I am completely happy with stage 2 results before he puts nipples on.
Sally
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Morning Kat, WHERE'S MY CAMERA!
I think I'll do my photo session after DH has gone to work tomorrow morning
So glad to hear your feeling so much better!
xox
Laura
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