November 2009-Starting Chemo

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited March 2010

    Kayh, keep chugging along...just think you are 2/3 done.....stay in bed if you have to...who says you have to get out of bed?  We are here to cheer you on...Go Kayh, Go kayh....rah rah rah...I know you can't see it but I have my pompoms out and am doing cartwheels for you....Laughing..must remember to put on panties next time.Embarassed

    Melinda, I think you should get and eye patch, get on your bandanna, and gold hoops and rock that pirate look...you sound hot.  And I don't mean hot flashes.

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  • suzieq60
    suzieq60 Member Posts: 6,059
    edited March 2010

    KayH - glad you're still out there and are surviving - just!!!!

     Sue

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  • Melinda41
    Melinda41 Member Posts: 672
    edited March 2010

    Michele: The pirate on the potty, that's me!

    KayH: getting out of bed can be overrated. I vote for just staying put until Spring time. I am sorry you are having a bad time, but it is coming to an end. I like that your doctor is concerned about your quality of life and is willing to back off if needed. My doc said that if the SE's get too bad, tehy can always reduce the dosage without reducing the benefit. ??? Makes you wonder how they come up with the doages in the first place.

    Suepen: shopping on steroids, that takes balls! enjoy your new furniture!

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  • feistybluegecko
    feistybluegecko Member Posts: 133
    edited March 2010

    Hi everyone from the other side of the wall.

    I am back in internet land which also means chemo-land - tomorrow should be chemo 7 out of 8 (3rd Taxotere of 4).  I feel as if it will never end. I have also been trying to battle agains the progressive anaemia which is now putting tomorrow's chemo at risk unless I get a transfusion which I am really nervous about.

    If I am lucky I should get over the wall and finally leave the all exclusive chemo club early in April - aaaahhhhhh!!

    Hugs to you all

    Philippa

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  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited March 2010

    Michele ~ you make a great cheerleader !

    Kayh ~ hang in there ~ and I agree rest when you can.  Hoping you can take the rest of your chemo.

    Melinda ~ Did you say SPRING?!  We had a few days of teasing weather, now we are being drenched in rain for the next few days.  YUCK !!  Hope you are feeling good.

    Philippa ~ I hope your anemia gets better and you get that 2nd to LAST chemo done !  Your almost over the wall.

    Suepen ~ if hubby does not cooperate with your furniture shopping I am sure SharaD can put him in his place.

    Hugs ~

    Alicia

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  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited March 2010

    Oh, so much to say, not enough time to say it!  SuePen...congrats for being over. Melinda, be careful with the stomach bug. I spent four days in the hospital last month with one. Drink plenty of OJ and eat bananas...keep the potassium coming! Kayh...almost there!

    OK...here's the deal! The onc is afraid the neuropathy will be permanent and get worse. It's only in my hands, and not in my feet. I've had 7 Taxols and 9 Herceptins. She said if she was a betting woman, last week would have been my last Taxol treatment. My 11 cm breast tumor is less than 2 cm (Yeah!), and yesterday, I had an abdominal MRI. It looks like I may be heading to surgery sooner than expected. (Yikes!!) If the single liver met is gone, then it's just the BMX. If it's still there, they'll do something call ablation where they burn it out...Ewwwww!

    I am so scared to go off chemo! I feel like I'm losing my safety net. She did say I got 75% of the benefit from Taxol and that they will take good care of me! I love my onc team!!!!

    Keep your fingers crossed and say your prayers. I have to go 4 days before I get the results. Erg...this is rough.

    (((Hugs))) and love to all my sisters!!

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited March 2010

    Linda, big huge hugs for you while you wait.

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  • Melinda41
    Melinda41 Member Posts: 672
    edited March 2010
    Linda: keeping fingers crossed for good test results, hopefully the chemo is zapping that liver met as well as it is kicking the breast tumor.
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  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited March 2010

    Linda ~ Praying the liver is all CLEAR !  Waiting is the hardest part..... ((((HUGS))))

    Wishing everyone a good weekend.

    I may throw a goodbye tissue expanders party ~ LOL  Tuesday squishy boobies !

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  • Melinda41
    Melinda41 Member Posts: 672
    edited March 2010

    Alicia: yeah for squishy boobies, are you excited or scared. I haven't even started on recon, it must be great to putting another brick in the wall.

    went to the optometrist to have my eye checked again. I tried putting make-up on my good eye, but I couldn't see out of my bad eye, so there is no telling where my eyebrows ended up today. He put a yellow dye in my eye and it started coming out of my nose...sexy!!

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  • suzieq60
    suzieq60 Member Posts: 6,059
    edited March 2010

    Linda: That's amazing - I really can't quite beleive it!!! Hope the liver met is gone too or they burn the sucker off. It's always good if you can have surgery.

    Sue

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  • feistybluegecko
    feistybluegecko Member Posts: 133
    edited March 2010

    done!! Just back from number 7 (out of 8) - and no transfusion?!  Phew!  Am getting closer to that wall - and next time should be clambering over to join you ...........

    I read recently that cancer treatment is a bit like a Triathlon form Hell - Events not always in the same order, and some women are exempt from parts depending on diagnosis and options.  But many of us will have the three main events (sometimes in different order) - Surgery Event, chemo event and radiation event.  Followed up with Tamoxifen/Herceptin or other training regimes or additional events.  (It gave the idea for a blog entry -  http://feistybluegeckofightsback.wordpress.com/2010/03/10/the-triathlon-perspective/)

    So I am cheering on everyone as we follow our course - go girls!!!!

    Love and hugs

    Philippa

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  • Melinda41
    Melinda41 Member Posts: 672
    edited March 2010

    Fiesty: Thanks for the link to your blog entry, I enjoyed browsing your blog and have added it to my favorites. Our timeline is very close to each other.

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  • littlebird75
    littlebird75 Member Posts: 120
    edited March 2010

    My radiology office said to use non-deodorant soap while going through radiation. I start tomorrow and just "googled" non-deodorant soap and can't seem to find any brands. Do any of you ladies have a suggestion?

     

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  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited March 2010

    Littlebird I am not positive but I think Ivory soap ~
    :)

    Good luck with rads starting !

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited March 2010

    Little bird, here is the list my onc gave to me...unscented Dove, Ivory, baby soaps, and Neutrogena..all can be picked up at any walmart or pharmacy, grocery.  Good luck..It is a walk in the park...I like to lay there and pretend that I am on a tropical vacation digging my toes in the sand...AH...I also take old magazines from the house and leave them there for others..I like to think of it as spring cleaning, while getting a suntan...to bad it is only on one side.  I was thinking that once the weather gets warm I will go to the beach and berry myself in the sand, except for my white right breast...that way I will be even.

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  • littlebird75
    littlebird75 Member Posts: 120
    edited March 2010

    Thanks for the soap tips. I ended up with Ivory - but I hate that stuff. At least its just for a little while. I've been reading everyone's latest while I've begun to feel my energy FINALLY come back. I actually cleaned my entire fridge yesterday!

    My head has been itching like crazy the past 24 hours so I'm hoping that means my head will begin to sprout soon. Chi, chi, chi, chia.... 

     Hope everyone is well today! 

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  • suzieq60
    suzieq60 Member Posts: 6,059
    edited March 2010

    Cindy,

    I had some sorbolene unscented soap from when I had the surgery. I'm going to use that. You also need deodorant that has no aluminium etc in it. I got a crystal stick from the health food store. I don't start until 6th April but have everything ready. Aloe vera gel in the fridge is supposed to be good too.

    Good luck with it.

    Sue

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited March 2010

    I was told NO deodorant...at all...I am not a sweaty gal and I have no hair under there, so it has been no problem so far...Thank-goodness I don't workout...

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited March 2010

    Alicia, two days till Shamrocks...yahoo

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  • suzieq60
    suzieq60 Member Posts: 6,059
    edited March 2010

    Michelle,

    I think this crystal stick is not a real deodorant. A friend here used it without problems.

    Sue

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  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited March 2010

    LOL Michele ~ woo HOO. 

    I bought Tom's of Maine deodorant ~ it is aluminum free.  They have a few scents.  Lavender was my choice.

    :)

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  • cat60
    cat60 Member Posts: 61
    edited March 2010

    Thanks for the tip on Toms of Maine Deordorant.I will have to look for the Lavender scent ! Very Calming scent. I just finished my 6th T/H Friday...Im halfway through. ..It was a tough weekend for My family as my husband sister (53 yrs old)  is in pallative care for Kidney cancer  She had a 15cm tumor on her kidney 1 /12 yrs ago,  had kidney/tumor removed, no follow up treatment, dr said it was contained.  Well in the fall it spread to her spine, did radiation and some chemo, no surgery for tumors on spine could be done...NOthing worked and she has suffered in pain since I found out about my BC..We went to Strong Hospital in Rochester on Sat to say our Good byes..My sons 26, 20 and 18 had a hard time seeing their Aunt like this and with me dealing with BC.  My 18 yr old broke down in my husbands arms...it was such a sad day,  she is expected to live a few more days ....Please keep my family in your prayers.....Thanks for listening.....I swear I have been finding it hard to be positive the last few days, but trying ....our house was so quiet yesterday as I think all of us just cant believe all that we are dealing with ...but I fixed a great dinner , dessert (from my living with cancer cookbook-Fruit Ambrosia)...and we talked about our family vacation we are going on out west in a few weeks..that brought some smiles to the table...

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited March 2010

    Cathy , you are for sure in my prayers...

    My husband and I are going out for supper in a few days with friends who lost their son about 4 years ago to cancer of the brain...he was only 10...I think seeing her will be hard for both of us.

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  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited March 2010

    Cathy so sorry......  Michele good luck with that dinner with your friends.  :(

    I am off to the hospital now !  Surgery scheduled for 10:30, my arrival time is to be 9 am !!!

    Send up good thoughts girls ~~

    :)

    Hugs and I am so grateful for all of you.......

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  • suzieq60
    suzieq60 Member Posts: 6,059
    edited March 2010

    Alicia - good luck from Oz

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  • Melinda41
    Melinda41 Member Posts: 672
    edited March 2010

    Alicia: Go get you some squishy boobs girl!

    ((((Cat))))

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  • Sherri_V
    Sherri_V Member Posts: 159
    edited March 2010

    SuePen,

    Regarding the crystal stick "deodorant"...I recently read an article that said it DOES actually contain aluminum.  I'd encourage you to investigate it.  It surprised me.  If I can find the article, I'll copy/paste it here :)

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  • doronet
    doronet Member Posts: 342
    edited March 2010

    Thought I'd weigh in on the deodorant issue...my rad onc said no deodorant.  Like micheleboots, I  have no hair there anyway, so a non-issue for me.

    My hair is long enough to grab with my fingers.  Progress!

    something-birney(?):  Thanks for the info on the truncal lymphoma. (I can't go back and get your correct name because I'll lose my post.)   Was not TMI at all.  I only had one lymph node removed, the sentinel one, and I'm still paranoid about getting lymphoma.

    During rad, my techs always cover my entire chest with a cloth, and if they forget and leave the cloth only covering my right, normal side, I ask them to please cover me up before they leave the room.  I'm am much more comfortable that way.  Now, if they can only get a gown that fastens!

    Cathy:  I'm sorry to read about your sis-n-law.  She and the entire family are in my prayers.

    Good Luck, Alicia!!!!!!!! 

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited March 2010

    Morning lovely ladies.  Alicia, good luck today.....sending you (((BIG HUGS))).

    Not to much going on here today.  I might try and get out for a walk...Ah who am I kidding. Have a great day.

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