help with vit D levels
Comments
-
Nan: I just called three drugstores and spoke to their pharmasists. They all said that when they fill a prescription of 50,000 iu of Vit. D, they can only fill it with D2 as D3 does not come in this high a dosage. One told me that the only high dosage of D3 can be found in the prescription Fosemax with D. Other than that one can only get Vit D3 in smaller dosages OTC but these doses are not used to activily increase D level in blood quickly. Thanks Cathey
-
Cathey,
Read these articles. Your pharmacists are correct, the prescription is available for D2 only.
http://jcem.endojournals.org/cgi/content/full/89/11/5387
This is just one sentence from the abstract...
"Vitamin D2 potency is less than one third that of vitamin D3.Physicians resorting to use of vitamin D2 should be aware ofits markedly lower potency and shorter duration of action relativeto vitamin D3. "
another article...
http://www.easy-immune-health.com/Vitamin-D3.html
I am astounded that physicians are not aware of the difference, and that they do not know that a person dx with cancer...any type needs to get those levels up to at least 100 ng. Every person dx with cancer should have their vitamin D levels checked as soon as dx.
What do they consider a high dose in Fosomax? That is another drug that should be taken off the market...I know...I took it for 7 years.
Cathey, if you will send me a private message, and will trust me with your email address, I will send you an article on Vitamin D3 which is very informative. I have scanned it and it is in a pdf.
-
D3 is available in 5000 IU capsules OTC at vitaminshoppe and other stores. I take 1 a day. Easy to digest, easy to absorb, more effective and provides a more balanced intake than the 10 times prescription dose of D2 once a week that probably just passes right thru my body!
-
My level was 39 when first tested. My doc put me on 50,000 IU three times a week for four weeks. I just got my follow-up results and on that dosage my level went up to 86! They told me to take 4,000 IU/day from now on as a maintenance dose.
-
My Oncologist told me that my level was in the normal range, anywhere from 20 to 100 and my level was 28! Now I know better than to accept 28 as a good number, so with the additional supplements that I'm taking, I'm hoping a restest next visit will show a higher number. My Onc said if I'm taking a multivitamin that that should be good enough, but multivits. have only 400IU of D3, so from what I'm reading here, that may not be enough.
-
I am bumping this thread until I have the time to read more. My level is 23 and I cannot seem to get it up. My onc is concerned. My pcp says she can give me a boost, I am taking my last test results to her on the 30th for my physical, so I would like to be armed with more ideas.
-
Dear Meece,
What have you tried to get the D level up?
-
Just the over the counter 1000 mg vit Ds
-
Try OTC 5,000 IU of D3 until your next test.....
-
Okay, I will do that. I admit, I have trouble rememebr to take anything on a daily basis, mainly because I hate to see bottles out on the countertop, and without them in plain site, I forget.
-
Dear Meece,
Here is a link for an article on D3 from the December issue of Life Extension magazine. Perhaps you need to show this to your PCP? Also, our dollar store has 7 day pill dispensers that are 2-sided for am and pm, and that takes care of the bottles! Fill it once a week. In all the articles I have read, you must take Magnesium for your body to absorb the D3.
http://www.lef.org/magazine/mag2009/dec2009_Are-You-Getting-Optimal-Flu-Prevention_01.htm
-
I take calcium which has VitD added. I have one pill dispenser, but the D and Calcium pills are so large they fill it up before I can put anything else in it. I will read up on what you have indicated. Thank you for the advice.
-
Ladies.. get this... two weeks ago.. I was tested for vit D do to my bone pain. ( no mets)
I was at 4. Yes... 4.
My onco said take 1000Iu to bring it up. I told his nurse that I was already taking 2000Iu daily.. and she called back and told me he said is WILL NOT recommend more... WTH.
So.. I went out and got 5000IU... my bone pain is better.
CAN YOU BELIEVE THIS.. WHAT SHOULD I DO GIRLS????????????????????????
-
Wow - 4 is super low! I would stick with the 5000 IU and find another onc! I have been taking 5000IU for over 8 months now and my numbers have more than doubled. I was around 80 the last time I was tested, which is good.
Glad that your bone pain is better.
-
Once you are in the 70-100 range, shift down to 1000 IU per day. But until you get up there you need to take 5000 IU per day of D3.
-
Estepp: Perhaps you need to have your Vitamin D3 level monitored regularly? 4 sounds really low to me.............................
-
HEY LAURA,
WHEN MY VITAMIN D LEVEL WAS LOW MY DOCTOR PERSCRIBED A 50,000 ONCE A WEEK PILL. I TOOK THAT FOR A FEW MONTHS AND IT SHOT UP INTO THE 40S NOW I TAKE 5,000 A DAY AND I WILL BE TESTED AGAIN IN A FEW WEEKS. I WAS AT 13 WHEN THEY TESTED MY LEVEL TO START. I HOPE THIS HELPS SISTER. I THINK THE VITAMIN D THING IS HUGE!!!!!!!!!!!!!!!!
-
Sigh..... prescription 50K D2 once a week is no good. Take 5K D3 OTC daily.
-
NAN-i love lef. glad to see there are others out there reading their magazine.
I visited the block center in chicago in October. they said that my d levels should be between 80-100 for breast cancer patients. I am currently taking 20,000u/day. many regular md are not uptodate on the appropriate levels for us with bc.
-
TYI think the Vit. D Level is huge too...! ........... TY so much!
-
Anyone dx with cancer should have levels in the optimal range, which is close to 100 and up. From what I have read, you need to take 1000 IU's extra to raise your levels by 10ng. If you are at 40 and want to get to 100, you would need to take 6000 IU's and more per day to get there. When my daughter Lori was tested in May for the BHRT, she was taking well over 5000 IU's and her levels were only 44. Since taking the BHRT, she is now at 82.6ng, and is taking far less D3. D is a prehormone.
-
Dear Nan,
That sounds like a good thumb rule. How long does it take for the levels to go up to 100 at these dosages? (wondering when I should go down to 1000 from the 5000 that I'm taking daily). -
Dear unklezwifeonty,
What were your levels when you were tested last time? I believe I read that in one of the articles from the vitamin D council, as to taking 1000 IU's more for each 10 ng's. Let me check. Oh...and this Alternative "forum" is sooo much better than the "thread" on the other site.
-
The level was 20 before.
-
Unklezwifeonty,
This is not the article which I read, but here is a paragraph which provides the same info, but it states 100 IU's for each 1 ng/ml, which converts to 1000 IU's for each 10 ng/ml. I will keep looking.
How much vitamin D does it take to produce the optimal level of 50-60?
Each intake of 100 IU per day of supplementation raises the blood levels of vitamin D about 1 ng/ml. Therefore, if there were no sun exposure or a source of dietary vitamin D, it would require 5,000 IU of supplemental D3 per day to achieve a level of 50. This rule of thumb, of course, varies according to the size of the person; a large person will require more vitamin D than a small person. It is also interesting to note that men who have high levels of vitamin D (due to outdoor summer activity) must take 5,000 IU during winter to maintain those levels.http://drsorenson.blogspot.com/2009/01/how-much-vitamin-d-do-you-need-to.html
OK...here is another article and it cites Cannell from the Vitamin D council. This is a paragraph from the article.
http://www.naturalnews.com/027345_Vitamin_D_sun_exposure_blood.html
Begin taking vitamin D at least eight weeks prior to being tested. This will help you customize your dose once you receive your test results. To determine a basic, starting dose, it has been suggested, as per Dr. John Cannell of the Vitamin D Council (7), that you take 1,000 IU per 25 pounds of body weight. A person who weighs 150 pounds, for instance, would take 6,000 IU per day as a starting dose (150/25 = 6. 1,000 x 6 = 6,000). Do this for at least eight weeks, and then test. Perhaps this dose will put you in the ideal range, but there`s no guarantee since we are all so different, and have unique vitamin D receptor genotypes. The idea is to hopefully get somewhere in the ballpark with this method and then tweak your daily dose once the test results come back. If your results are still suboptimal, Dr. Cannell has estimated that each 1,000 IU increase in supplemental vitamin D will generally produce a 10 ng/ml increase in the vitamin D blood level (8). For example, if you have been taking 5,000 IU per day for 8+ weeks, and your results come back at 40 ng/ml, you would want to increase your dose to at least 7,000 IU (2,000 IU = ~20 ng/ml rise in blood level) to achieve a minimum of 60 ng/ml. Again, keep in mind that this is necessarily generalized, and additional blood testing every several months is recommended to further customize the dose appropriate to you.
-
Meece,
Once you have depleted all the D3 you have now, you can purchase the D3 gel capsules at WalMart, and they are teeny tiny. There are 100 in a bottle and they are 1000 IU's each, and come in a twin pack for $6.00.
-
When I was first tested I was 32. However, I had been taking about 2000 IUs for some time. I forget how much I was taking each time I was tested. However, with my most recent test I was taking 3000 IUs and my D level was 62. I have now bumped it to 4000 IUs because of progression (notice I do not use that nasty word "mets" LOL) to the spine.
The reason the docs prescribe the high dose D2 is to get levels up quickly. I've often wondered why they just don't use a higher dose of D3. And, D3 is so cheap.
I do believe we have to be careful from where we buy our supplements. Some claim to have a certain amount in them, but don't. I haven't joined the consumer lab website where they test supplements and prescriptions. However, I do believe they are a very reputable site. The only thing is they don't always test the brand I'm using.
It's amazing that docs have not caught on the the importance of this "vitamin."
-
Nan, Thank you for the info. I wish I had read it before my lunch, because I went to Wal-mart. I will be tested in about 3 weeks possibly, so we'll see what happens then.
-
Any idea what sorts of things deplete VitD in one's system?
-
Hi, Meece
Vitamin D receptors are present in almost every part of our body. While it was long thought that only by processing via the kidney & liver could the vitamin form we take be converted to the active form, it's now been shown that even the lungs can activate Vitamin D.
Given the importance of Vitamin in priming the immune system (both for innate and infectious systems), helping lung function, increasing muscle strength, helping to alter mood, and reduce inflammation, our need for vitamin D is very individual. On top of that, vitamin D is stored in fat tissue. Fat tissue gives up it's Vitamin D supply very reluctantly. It may be that the more fat we carry, the more we store.
Some people may have trouble absorbing Vitamin D from a supplement. If so, it would be best to try to take Vitamin D offerred in an oil-filled capsule with the most fat-filled meal of the day. Vitamin D works best in high-calcium environments, so take your calcium/magnesium supplement (500 mg/250 mg) twice a day, at least 4 hours apart.
If supplements just don't work for you, you might consider bright light therapy. Special lamps are available to fight seasonal affective disorder (SAD) which comes on as day length decreases. These lamps are used to treat mood, but may actually be providing the UV-B rays that stimulate Vitamin D production. We only make Vitamin D when UV-B rays can reach us--and for anyone north of San Francisco, that's about 3-4 months of the year. Sunscreen can block UV-B rays as noted by an earlier poster.
I hope this helps.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team