Starting chemo January 2009?
Comments
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Thanks Kt57, As you can see my hair is coming is nice and thick but rather gray. It was brown before and I colored it to make it more auburne. My mom is after me to color it the color of my good wig. She says that it brought out the blue in my eyes and that gray make me look to old, but she will wait till I am ready. Its funny because I was thinking today that I don't really miss my old hair that much. It is like a distant memory and what I have not is my reality. I don't like or dislike what I have, I just don't really understand it. It is strange after 44 years with one kind of hair to suddenly have a totally different kind. I realized that if I color it they way my mom wants I may have as much of a problem with maintanance as if I went blond. I only get to my beautitian 4- 6 time a year due to laziness so I always color close to my own color. But I am not sure I want to go black. I don't want to end up looking Goth and I don't know how you can highlight black without getting exactly what I have now, gray.
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My hair came back even finer and softer than it was before-- no thick and curly for me -- oh well.. it is hair. It is black (used to be brown) with some wisps of grey. I had some wispy grey hair through chemo -- I had my hairdresser cut out a few of the remaining ones -- she was surprized to see they were half grey and wirey and half black and fine all in the same strand. Weird! My med onc says my hair will return to normal in about a year. thinking about highlights, but I kind of like the black. And maybe I'll have bangs some day! LOL!!!!
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If I pull down hard on the hair on my forehead and blow dry on high, I can get a few strands to hang straight down and I'm calling them bangs. Why does the hair around my ears grow the fastest? Makes for an odd shape all of the time
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My hair is curly and it looks like a poodle head with flat sides. That style with my ears which swear are growing makes me look, well, you can imagine!
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I've got to get in and get mine trimmed around the ears, right now I'm a cross between bozo the clown and a poodle (a grey poodle)
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Oh yeah, I did go ahead and dye the old gray away. Did just get a haircut today, though!! whoo hooo and it's grown long enough I might have to dye it again!
I swear the chemo brain doesn't seem to be going away. I edit more than I type lately! irgh.
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Happy Chanukah to all who celebrate! I'll be thinking of you as I go to 2 latke parties tonight. So different from last year when I pretty much didn't want to socialize. Going to kick start the solstice celebration by going to Revels--this year is a Bavarian theme.
Yikes, and I've already gained 4 pounds since Thanksgiving...which makes me so mad because I worked SO hard to lose the lbs. I gained after the steroid munchies.
kmmd-I've been describing my hair as bozo-like too! Does that date us? Is bozo still around? I need to cut the wispies off but I'm not quite ready yet to see my hair go shorter again.
Have been reading but not posting much. Just finished my 2 credential classes, and busy with teaching, and trying to get over a kinder cold,which started pre-Thanksgiving and I haven't been able to shake. I didn't think I would be able to finish my credential after last year. I've been exhausted but so proud to plug ahead and get on with my life and accomplish a goal. But I think I'd be raving crazy if I couldn't focus on something else beside cancer as I'm so worried.
Saw my breast surgeon Thursday and kinda upset because it seems that my reconstruction options are pretty limited to tram flap (correct spelling?). Don't know if I want to go through that & might just take the other one off to match. I'm pretty used to my prosthesis, so I don't know. My mammo was good, and I'll have an MRI ordered after my next visit in 6 months. See my onc. this Thurs. I'm nervous.
Well, love to all!
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Kim, good for you, that is wonderful that you can accomplish so much after the last year. Yes, unfortunately, I think knowing who bozo is dates us. How about Mr. Green Jeans, does that date us too. Oh yeah, and romper room
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kmmd, now that you mention it my hair is more like Captain Kangaroo's! And I do wish I had a magic mirror...
I've had a couple glasses of wheat grass today as "penance" for a bit of overeating of latkes and other goodies the last 2 nights. Only had an inch of Marguerita, though. I haven't been drinking much since my diag., but the latest news on the evils of alcohol for high-risk er+ women almost makes me not enjoy the little I do drink (almost...!). Really enjoyed my work and latke parties, though!
Have a good week all! My son got us our tree but its sitting out in the rain waiting to come in.
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Bozo, Mr. Green Jeans, Capt Kangaroo.. I know them all... yikes... I am going to make an appointment today for my first haircut. I don't have any bangs but I need to work towards something in the way of a short haircut.. instead of this mess.. I look like Mike Brady from the Brady Bunch.
My mom did GREAT handling her mastectomy.. there were no surprises and while we don't have the full path back yet.... things look good for her. They did find a lymph node (questionable as she had a ton taken out 20 years ago)... and it was Negative. She has to meet with the oncologist and I guess they plan to do the onco score test... which she is nervous about coz she knows that onco score was the only reason I had chemo... so she has one more hurdle to feel real relief. But, she is handling this with great strength.. and at 72, I'm proud of her....
BerkKim.... I am headed to NOLA (Center for Restorative Breast Surgery) in February for 2 flaps that don't use muscle like the Tram.... they specialize in it down there.... if you are interested in researching other options.... here is their site... www.breastcenter.com. There are threads on this site that rave about the surgeons there... I had limited options too because of previous rads...
Anyway.... enjoy the holidays Jewels... much different than last year, eh?
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I find out when I have my final exchange . Nervous.......
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Holtbolt: Good news that your mom is doing well. Praying for a low onco score for her. Yes it is a very different holiday this year ....but I do keep thinking about "this time last year".....we have all come a long way.
And yah, I know that whole cast -- even Mike Brady LOL!
Take Care Jewels
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Hotbolt, happy to here DM did well.
Depressing day. Should have known better doing mmg on anniversary of my surgery last year. Didn't really get the all clear. You would think with one breast left odds are the mmg would be ok. After changing my mind back and forth literally 5 times an hour all day I've decided on short term f/u and not a biopsy at this point.
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kmmd, I thought I would get the all clear on the healthy side too but I had gotten called back for another ultrasound and another mammogram after had those 2 things 2 weeks prior. They decided mine is just a 5mm very dense area of tissue, so hopefully they are right. Are you going to get another mammo in 6 months?
Holtbolt, I am so glad to hear your mom is recovering from her surgery. My mother got a bad mammogram the other day....it was her first ever mammogram (she's 58) and they found a 3cm "something" and are going to biopsy it, so of course she is panicking like you wouldn't believe. I can't really calm her down, but I do understand what that feeling is like, until you know for sure it's nothing, you are just freaked out. The doc said if he was a betting man, he would say it's not cancer based on shape (round and smooth) and that it appears more as tissue than tumour, so she is just waiting for appt. Prob won't be until after Xmas.
For me, I am doing great and have my reconstruction surgery......well, mastectomy of healthy side and expanders put into both sides......June 23rd. Then fills every 2 weeks and then he lets them sit for 4 months after all full and replaces with permanent implants......I figure by NEXT Xmas I will be a complete person, physically.....emtionally, not so sure lol.
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Kmmd-- I am sorry you have to go through more worry. HOpe is the follow up us will be just fine!
Looks like I will have my exchange January 25 and then bust my chops getting ready for my black belt test # 4. I hope I will be able to pull that one off.
Holt gentle hugs for your mom.
Hugs to all JJs.... let's not forget about our toast!!!
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Thanks everyone....
Jilly... sorry to hear about your mom's mammo... Kmmd.. sorry you did not get the all clear.... but you know how many times the scare is all for naught..... it's frustrating I know...
Jess... Jan 25th will be zooming up on you once the new year hits...
Jilly... I hope to be all done with reconstruction too by NEXT Christmas.... this journey is a long one isn't it?? I have learned alot about patience this year....
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Hi all!
Sorry to be so out of touch. I was on a cancer vacation LOL!
I just lost it when those new mammo guidelines came out and couldn't even think about BC or mammos without losing it! I've calmed down a little!
Jilly - so sorry for your scare!
Holtbolt - I'm so sorry about your Mom's diagnosis. I HATE cancer and I hate when people go thru it twice....especially at an older age.WE NEED A CURE!
Will touch base more later. Was really thinking of you all tonight!
Lisa
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I actually started today...Dec. 16. Am doing neo-adjuvant chemo, 8tx 3 weeks apart. I was literally in the hospital from 9 am until 11:15 a.m. Home by 11:30. Had only a 30 second bout of nausea - and nothing since. Did feel woozy a few times tho - make sure someone drives you there and back - just in case. Having trouble sleeping tonite - but it gives me a chance to check out the forums!
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Jilly G, hope doc is right about your Mom. I read your post too fast the first time through and thought you said by the next xanax you'll be a complete person. Yep, I took a few ativan during chemo.
Jess, yahoo, you have a date for your exchange. Long time in the waiting
marmalade: Hope you are feeling well today
Everyone, thank you for the good wishes. I'm doing much better with the whole thing today. I'm sure I'll be an anxious mess come April, but for now I'm putting it out of my mind.
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Thank you kmmd- I am ecstatic about my exchange. I hope it goes well and I don't have to undergo more surgeries. The radiation may have shrink wrapped me a bit too tight and so not good when I am trying to heal properly. We'll see. It will be interesting to see how my "new" foob feels. I have changed how I hug those around me cause I don't want them to feel the hardness in my chest.
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Jess, sent you a PM
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hi friends! hard to believe so much time has passed since our treatment! i wanted to tell you that i was invited to speak at the TomoTherapy, Inc. annual meeting in Madison, WI, last week, to talk about my cancer experience and radiation experience with TomoTherapy. it was an experience of a lifetime to meet the inventor of the TomoTherapy machine, get a tour of the manufacturing plant, meet the amazing employees, and speak in front of hundreds of people and thank them. they projected some of my photos of my experience on large screens behind me (it was held in a megachurch because there were so many people), and included a self-portrait of my bilateral mastectomy, which gave me the opportunity to talk about the importance of annual mammograms starting at age 40 (or earlier if we have family history). i never dreamed that cancer, chemo, and radiation would lead me to madison, wisconsin, and public speaking! this link documents my experience there:
http://deborahlattimore.smugmug.com/Other/TomoTherapy-Presentation/10675326_4u9M3#743227837_m444A
hugs to all of you - happy holidays! -
ddlat, how wonderful to be able to reach so many others with your exprience and your photos.
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Hi all it has been a long time since I have been on so much has happened. I finished everything, my hair is growing back black with some gray. I went back to work, my job I had was not avaliable but at least I still had a job. Probably the worst thing is trying to get through all this and our home burnt down, and we lost everything. No one was hurt though, we were at church. Trying to get everything settled with insurance that is a BIG headache.
Everything is looking good have a follow up on Jan 6 hope to schedule a scan and see how things are.
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Good luck tomorrow Lisa
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Lisa, not sure what I missed, but if you need the support of your group tomorrow, we all are here for you
rsben, dont' know what to say. Your home burning down is way too much for someone to have to handle after the last year. My heart goes out to you and yours
Everyone else, Happy Holidays for whatever you celebrate. We all still doing a New Years toast?
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Just a quick note to say Merry Christmas or Happy Holidays (whichever is correct for you). Here's looking to a healthy New Year!
Rsben--so sorry to hear of the fire. So thankful that everyone is okay.
To everyone going through more surgery--hugs and thoughts to you as you continue your journey.
I continue to check in periodically. I can't seem to let go. Thanks for being here.
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rsben - Yikes! That it horrible! I can't imagine dealing with losing a home right after dealing with BC. Many hugs to you. I have my follow up on the 6th as well and I have the same hair.
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I hope we do a New Year's Eve toast. What time? Chat room? Staying connected ?
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Ysben. That is horrible. Are you getting help and support?
Renrel! I was just thinking of you and there you are!
Bev56-Hope to hear from you again. Toast with us on the 31st?
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