Crying and Crying

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Pure
Pure Member Posts: 1,796
Crying and Crying
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  • Pure
    Pure Member Posts: 1,796
    edited November 2009

    This morning I cried from a place I didn't know existed. I cried so long and hard. This happen last Monday as well-the 6th day after treatment. I spent yesterday reading stage 4 survivors stories trying to gain hope  in case and temptng my self-something I never did before. I spent the morning  going through how I would tell my kids I am dying, etc. I spent yesterday just feeling doomed.

    I have spent a lot of time over the past 2 days perparing myself for stage 4. I hate it-it's like I don't ever want to deal with the shock of the bc diagnosis ever again that I figure if I prepare myself that if it does oneday happen then the pain and shock will be less. Then I go through the thoughts of how do you live knowing your stage 4.  I hate hate hate it!!

    Tell me this is the flippin chemo. There lows are so so hard.

    On the flip side I did learn yesterday that many stage 4 people live a  long time and they aren't even sure anymore that the survival rates are correct and that it is indeed "terminal"

    At the end of the day I am 36 and I would need miracle to grow old with this disease -even being stage 3.  I am wondering if I need to start accepting that rather then holding our so much hope.

  • Bono
    Bono Member Posts: 40
    edited November 2009

    PureE, I think that most of us can relate to where you are at right now. I have had some of the same emotions, and yes I am sure some of it was related to chemo. The disease robs us of our sense of stability and we can't help but wonder if we are the next one that will lose the battle. I am almost 3 years from dx, and I still at times panic about leaving my kids. I can handle whatever happens, it just is the fear that I would be leaving them! I just try to remember at these times to live like I am alive and I try not to live like I am dying. My prayers go out to you as you continue treatment, and look ahead to a great future as a mom and a SURVIVOR! Keep us posted on how treatment is going. Have a great day. 

  • KerryMac
    KerryMac Member Posts: 3,529
    edited November 2009

    Jen - you are not Stage 4. You are not. Don't "prepare" yourself, don't put yourself through that mental agony. Really, you have such a great chance of beating this. And if in the future do do become Stage 4, you can deal with it then. Don't waste time now grieving for something that may never happen. It is just a waste of energy. Cross that bridge if you come to it.

    You are in the middle of the Chemo crazies. Pure (no pun intended) and simple. Ride it out, hang in there.  This will pass.

  • ElaineD
    ElaineD Member Posts: 2,265
    edited November 2009

    The more you read, the more upset you wil become-so now might be the time to step back a little, and focus on the present. No amount of research will tell you what side of the statistics you will fall-will you get a recurrence, or have few problems in the future. Even with my 1V diagnosis, I try not to brood on the future-my condition is terminal, I've accepted that, and am trying to learn to live with it. On the other hand, you very well may get a miracle in your life, so try to remain hopeful that you can soon put this time behind you. Allowing cancer to dominate your life is harming you emotionally-and possibly even physically. I was quite upset to read that you "spent yesterday reading stage 1V survivor stories".....this level of introspection is only serving to upset you even more. If you really are convinced that you'll end up stgae1V, then no amount of reassurance from us-or your medical team-is going to make you think differently. Could you consider asking for some counselling-learning some techniques to cope with these overwhelming feelings of despair can only be a good thing for you. I've said it before, and I'll say it again.....don't let cancer defeat you emotionally by allowing it to dominate you thoughts. Your fears may be completely unfounded:they may be perfectly rational. But you need help in learning to deal with them-compartementalising your fears so they don't dominate your waking moments, would be a useful starting point. Good luck.

  • Merilee
    Merilee Member Posts: 3,047
    edited November 2009

    Rather than thinking of yourself as a cancer survivor think of yourself as a cancer warrior. As the slogan goes " get up and fight like a girl!" Get mad and use that energy for determination.

  • kim40
    kim40 Member Posts: 904
    edited November 2009

    Jen - As Kerry said - you are NOT Stage 4.  Don't even think like that.   I know that it is easier said then done as I was feeling the same thing only yesterday!  We all have had the same feelings as you at sometime or another, but you will have to deal with it only if you get there.  Don't waste your energy on those thoughts, continue to think positive as you have been in the past.   Going through chemo is very depressing and those feelings can sneak up on you at any time.  You will get through this.

  • LavenderNLace
    LavenderNLace Member Posts: 90
    edited November 2009

    I really think you need to talk to your doctor about this.  It sounds like a physical/biological problem and I'm sure they can find a med to help you that won't harm your baby.  Maybe they need to find a replacement for the decadron but you HAVE to let your doctor know about this.

  • jenn3
    jenn3 Member Posts: 3,316
    edited November 2009

    Please stay away from sad stories, they only make your steroid lows worse.  Stay in the now, you have a wonderful husband, children and are carrying a beautiful baby that needs you.  Before BC there were no guarantees in life..............  You can't predict where you will be in a day, week, month or year from now live for today.................... And - call your doctor and make sure he/she knows how bad the lows from the steroids are for you.   

  • Let-It-Be
    Let-It-Be Member Posts: 325
    edited November 2009

    Hi Jen:
    I did what you did a few times, that is, scouring stage 4 stories.  I was seeing a counsellor at the time and she actually said "it's good you have been looking at your fears".  Apparently it's not that good to not look at the fear.  Once you do face it with courage and rationalize it, like you are doing...you move through the fear and something else takes over.  You know it's there, but it doesn't have to rule your life.  Live in Love and trust.  It's way better than living in fear. 

    Keep going Jen, we're all behind you, and we've ALL been there!

  • ElaineD
    ElaineD Member Posts: 2,265
    edited November 2009

    Let it be-yes, of course you have to face your fears-and well done to you for doing so. But when it dominates your life to the exclusion of all else-then it is a much deeper rooted problem, and one which needs, at the very least, help from the professionals. It's great to have the use of a forum, where information, fears (and fun!) can be shared. But sometimes, more help is needed than what we can give-no matter how good our intentions, we simply can't help constructively when someone is determined to focus on the worst possible case scenario. I sincerely hope that Pure starts to find the confidence to live in the present-it's interesting that all the replies have advised this.

  • Annie62
    Annie62 Member Posts: 1,081
    edited November 2009

    Jen,

    Please take a break from reading about cancer on the internet at this time. I would limit your use right now to support for what you are currently going through right now in this forum or the chemo forums. Worry about the future in the future. Tell yourself you are going to put it off for 6 months - does it really matter if you worry about stage iv now or in 6 months? It will make no difference to your treatment plan and I think it will help you get to a better place emotionally.

    I don't have my head in the sand but if I spent the last five years obsessing about a recurrence I would have spoiled the time I have had with my family. Of course I think (worry) about it but I work hard to control it. I exposed myself to information over a period of time. During treatment I focused on everything I was doing to beat the cancer. And when I would start sliding down that slippery slope, I would remind myself of all the new treatments out there - arrows in my quiver in the fight against bc.

     Take care of yourself today. And as the other posters said - talk to your doctor.

    Annie 

  • mmm5
    mmm5 Member Posts: 1,470
    edited November 2009

    Jen

    I have never posted on your threads before, but I read them and I have deep empathy for your pain.

    I know I am not stage III but with the aggressiveness of the type of BC I HAD, I was right there with you in the fear, doubt, and extreme, raw emotion. Everything you have written I have felt, and dealt with I was also young when diagnosed and with three small boys (one being diabetic).

    I was a very vibrant and alive person before all of this and then fear took over. Every ache and pain sent me to scans and tests and I was just sure it was over. I didn't care what I looked like, could not rejoin normal status with friends, plans, etc.

    I finished Herceptin in May and quit my job of 17 years (really cool job) in September because I just could not bring myself to get on an airplane or deal with normal situations. I didn't think I had a future etc.

    I have now come to realize that I felt crappy physically and mentally due to all the drugs, and constant Dr. Appts, who can feel good during all of that? Slowly our bodies heal and you start having negative scans, and build up confidence again. I don't think anyone that go's through all of this ever feels good and it plays with our chemistry. Once I had about 5 negative tests, I really started to believe that I could actually be NED and beat this. It takes time....I know this sounds stupid and redundant but it is the truth. I don't agree that you have to change your thinking all of the time, you can feel anything that comes up and that is part of the process. If you allow yourself the emotions you can feel them then let go of them, let it be your process and you will heal. Keep up exercise, eating well, sleeping, reading inspirational books, praying, and the practice of "letting go and letting God"...I literally have to practice that 20 times a day it is letting go of control that has helped heal me.

    I pray that you will feel peace today!

    BTW - My Aunt and StepMom both had stage III 22 and 14 years ago still fine.

    My Aunt had 9 positive lymph nodes and had chemo and that was it, no tamox nothing.

    My 2 friends here were stage III (very aggressive) 5 years ago ...both fine today...don't even think of cancer now and don't even know about BCO (can you imagine LOL)

    PS I went to a very good counselor that specializes in meditation, hypnotherapy, and polarity!

  • Let-It-Be
    Let-It-Be Member Posts: 325
    edited November 2009

    Elaine, I agree, with regards to professional help.  My counsellor helped me so much to see things in the present.  As did reading Eckhart Tolle.

  • Let-It-Be
    Let-It-Be Member Posts: 325
    edited November 2009

    Elaine, I agree, with regards to professional help.  My counsellor helped me so much to see things in the present.  As did reading Eckhart Tolle.

  • clariceak
    clariceak Member Posts: 752
    edited November 2009

    Jen - I know it's hard when you're feeling low from chemo not to be pulled to the dark side.  I have my success stories bookmarked, but I realized that when the steroids/chemo are playing with my emotions it's easy to start looking in other directions on the boards.

    I need to use all my restraint to not follow those paths.  Is there something else you can do to distract yourself during the times in your chemo cycle when you know you'll feel low? 

    Like you told me, the odds are in our favor and they will continue to get better as treatment progresses.  You can do this.

  • Let-It-Be
    Let-It-Be Member Posts: 325
    edited November 2009

    Elaine, I agree, with regards to professional help.  My counsellor helped me so much to see things in the present.  As did reading Eckhart Tolle.

  • KerryMac
    KerryMac Member Posts: 3,529
    edited November 2009

    I just want to add that I am just over 6 months out from my last chemo, and I am only just starting to find the old me. We have had a lovely weekend, got out and about, and I felt very in the present, and connected and happy - I have not felt like this in over a year. 

    It is not a place you are going to get to while you are in treatment, or even in the months afterwards. but you will get to a happy place again. Yes, I have fear,  but as Elaine has said, I can compartmentalise it, place it in the back of my mind, and concentrate on today, and be happy.

    My old life has gone, it is not coming back. But that dioesn't mean i cannot be happy and fulfilled in the life I now have. It is the only life I am going to get, and I'll be damned if i let cancer ruin it. 

  • carol1949
    carol1949 Member Posts: 562
    edited November 2009

    Hugs to you, Pure!  As others have said, some of this is actually from the steroid "plunge".

    I work as a hairstylist and have met so many women who are long term survivors of b/c.  One is 21 years out!  

    Also remember, it is OK to cry!  Crying is cleansing!  Think of it as cleansing your body and soul, and getting rid of all those "cells" that may be trying to disrupt your life!

    I have a dear friend whom I have known since kindergarten who is an 11 year survivor and she did it holistically!  She was stage II.  She was inspirational to me in my journey.  If you would like some of the information she shared with me, I would be delighted to send it to you.  If you would like, I can send it as  personal Message, though, I will tell you, it is not quacky!  Simply lots of good positive listening to healing tapes, reading uplifting, healing books, and supplements she took over the years.  We are all different, but I would encourage you to find whatever speaks to your heart and believe with all your heart that you can beat this!

    My onc happens to be a personal friend of mine, however she is in a large group who is affiliated w/ Sloan Kettering.  She supports all of the holistic things I am doing and also her group uses the word "cure".  Many onc's won't even use the word.   

    Gentle hugs sent to you along with a prayer and a burst of energy and healing that will allow you to be lifted up by your surrounding angels!

  • Bugs
    Bugs Member Posts: 1,719
    edited November 2009

    Jen,  your meds and your pregnancy hormones are not helping you stay on an even keel.  Nothing we tell you will take your fears away.  You will learn to compartmentalize your fears..push them back and only take them out once in awhile.  IT WILL HAPPEN!!  But...while you are going through treatment and pregnancy we are giving you Sister's orders (instead of dr's orders) to stay here on the stage III thread or your chemo thread.  We all know it COULD happen to us, but you must try to push those thoughts back when they start taking over.

    What you are feeling is completely normal!!  Does your onc's office have a therapist on staff?  Seeing somebody to help give you the tools on how to deal with these fears is a very good idea.  I personally think it should be part of the treatment plan for everybody.

  • apple
    apple Member Posts: 7,799
    edited November 2009

    i always kind of appreciated the tears during the steroid crash.. it helps those yucky chemicals to flow out from you eyes.

    i don't know if it is cooler where you are now, but do drink of tons of water .. i don't know why that helped me.. a big glass of water.. it just seemed so healing... besides you'll have to replenish after all that crying.

  • carol1949
    carol1949 Member Posts: 562
    edited November 2009

    Good... NO GREAT point, apple!  The water is extremely important!!!  Try to drink one glass  of purified water every hour.

  • Celtic_Spirit
    Celtic_Spirit Member Posts: 748
    edited November 2009

    Maybe its time you took a break from the Internet. Even this board. When I was going through chemo, I spent way too much time reading depressing research and sad stories, which only served to work me up. I stopped coming to this site, as well, because there were a lot of people at the time who seemed more focused on dying than on living, and I didn't need any help to look on the dark side. Once I weened my self from the Net, I felt a lot better. I came back when I was feeling stronger and no longer taking steroids. Really, please find a local support group so you can interact in person with women who have survived this. Focus on living - that's what your kids need to see.

  • brooke
    brooke Member Posts: 16
    edited November 2009

    PureE Don't you dare give up.  I am a stage 3B survivor for 2 years. Not that long I know, But everyday I wake up happy to have another day with my husband and 3 daughters that live close by.  I'm happy to have another day with by 2 great grandchildren. I'm an day care provider so I'm lucky to see them everyday.  Every day is one more day that I get to tell them I love them and be a part of their lives.  Everyday I put on my running shoes and head out doors for pure pleasure of being outside and enjoying nature.  Everyday I thank God for giving me one more day.  Tomorrow is promised to no one. I don't dwell on having cancer,  I have learned much from having it.  Do the things you love. love the people around you. Enjoy the small things.  "LIVE THE REST OF YOUR LIFE"VAND NEVER NEVER GIVE UP 

  • kim40
    kim40 Member Posts: 904
    edited November 2009

    Jen

    Sometimes taking a break from the boards is sometimes "what the doctor ordered".  I have done it a couple of occassions, when I felt totally overwhelmed, and sometimes I read "too much information!".  Like Celtic Spirit, I came back when I felt stronger.  Taking a break really do help.

    Kerry - Love your new avatar!  You look great!

  • KerryMac
    KerryMac Member Posts: 3,529
    edited November 2009

    Thanks Kim!

    You know, I check into my Chemo Group and the Stage 3 board, thats really it. Sometimes I get side tracked, and it is usually not in my best interests!!

  • BUTTERFLYBONNIE
    BUTTERFLYBONNIE Member Posts: 37
    edited November 2009
    I indeed have stage 4 cancer, with mets to my bones, in the beginning I was thinking the same way as you are.  I have come to determine the value of "POSITIVE THINKING".  Never think of anything in the negative light, always think of the positive, your body reacts better to that.  Sealed
  • lexislove
    lexislove Member Posts: 2,645
    edited November 2009

    I havent had time to read all the posts...I just skimmed throught them. But......Pure, I really...really..think it would be wise to talk to your onc and get a referal for a social worker/councellor that works with cancer patients.I helps tremendously!

    Also, taking a break from the boards or just limiting yourself to the chemo/treatment or rads/reconstruction might help.

    The woman of the board are great at helping and encouragment, but we can only do so much. We are dealing with "stuff" ourselves....

    Be well.

  • gfrey
    gfrey Member Posts: 43
    edited November 2009

    Pure, I would like to echo the other comments about taking a break from reading about cancer, especially with regard to statistics. I'm a university professor, with a primary appointment in research. I gather data on everything in my life from information related to my actual line of inquiry to the best airfares when travelling (drives my DH nuts). So, when my mom was diagnosed in Jan. I went into research mode on everything related to bc. When I was diagnosed in May I was doing a lot of reading, but once I started chemo I just put it all down. In all honesty, it was a relief.

    In addition, please keep in mind that statistics can only truly be interpreted within the context of a research design. There are hundreds of different types of statistical methods that a researcher can use to analyze their data and many times the one that makes the data look the best (i.e. significant) will be used, regardless if it is the correct method. That's why it's called data management or manipulation. Does that mean all statistics are wrong? No, but the numbers are seldom as simple as they appear.

    Seeing a counselor would also be good. I don't know if you can take an antidepressent while pregnant, but my sister finally started taking one and it's helped her. She said she had a choice between coping or crying and she chose the former.

    Give yourself permission to be sad or have bad days. God bless.....

  • Pure
    Pure Member Posts: 1,796
    edited November 2009

    Everyone tks for all your replys. I do work with a counsler and I take xanax. Unfortuanetly-during the final trimester I am really limited at what I can take.

    I did call and talk with my doc-I feel like the day or 2 prior to the fog lifting I drop so so low and can't stop crying.

    Lesis lov-I know all of you also are dealing with your own issues and coping strategies. I am sorry to lay it all out-please don't feel you need to respond if your not in position too-I completly understand and don't want to torment anyone with my own crying fit!

  • Bugs
    Bugs Member Posts: 1,719
    edited November 2009
    Don't EVER  feel that you can't lay it all out with us.  Ever!  I learned so much from these ladies when I was going through treatment.  Just knowing I wasn't the only one that felt these things made me feel so much better.

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