Chemo Starting Sep 09

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  • amyooo
    amyooo Member Posts: 77
    edited September 2009

    Ok, Ladies, I have a weird question....... So far I have taken 2 weekly doses of Herceptin and 1 dose of Taxol (I had an allergic response the first week so they did more premedication the second week and I was able to tolerate it)  My chemo days right now are Fridays so I am due tomorrow. Well, last Friday I noticed that my left breast was red, warm and swollen. This is where my surgeon had done the biopsy and left a metal tumor marker in. He started me on Bactrim for the infection. I was having no symptoms at all from the breast other than what I just described. I didn't feel bad at all. After I came down off of my steriod high, Sunday AM, I began some serious aches and pains and fever. It was always a low grade fever. It never has been over 100.5 but of course I always medicated it with Tylenol or Darvocet-N-100. Well on Monday I phoned the Cancer Center to report. By then my breast looked almost completely normal. No swelling and just slight reddness but I was still having fever and muscle and bone aches. They asked me to come in for a chest x-ray, labs, and blood and urine cultures. Everything was perfect! They told me the pains were related to the Taxol but not the fever. They told me to call back if it got to 101. They talked of putting me on a second antibiotic to kill other types of bacteria but decided against it. Ok, fast forward to yesterday. I was still having a low grade temp with aches so I called to ask if I could just go ahead and have that second antibiotic because I didn't want to take the chance on running fever Friday AM and missing my chemo. They said no. They didn't want to risk damaging my kidneys but they still didn't budge on holding my chemo if I have fever. So......I have been trying to find info on the net that might explain my fever. I think it is related to my chemo like an inflammatory response. I know that would be unusual but I truely think that is what it is. Do any of you ladies know anything about this? I have found a little bit but not a whole lot. I am thinking about loading myself down with Tylenol tomorrow so I won't have fever when they take it.

    Advise? Comments? Criticism?

    Thank you Ladies so much,

    Amy/Ame

  • Anonymous
    Anonymous Member Posts: 1,376
    edited September 2009

    Of course no criticism for you Amy(e).  We love you.  I think our bodies just get overwhelmed with all that they are going through, and with all of the different drugs.  Who knows what is doing what.  I hope it isn't an infection, and that you can have your treatment.  I do think that the chemo itself causes inflammation.  I don't know enough about this issue, so I hope someone with more information comes along to help out.  I just wanted to let you know that I am thinking of you.

    RonnieKaye, I loved your long post.  Thank you for sharing.  I'm sorry you didn't get much sleep, but you definitely used your time well.  I hope you have the best day possible.

    Love you all, you are in my thoughts and prayers today!  I am making a deposit for my Race fund raising so I can turn the money in.  We've raised $108.00 so far, and have one more week, so maybe we can double that.  Every little bit helps.

    Susan

  • BarbAnne41
    BarbAnne41 Member Posts: 380
    edited September 2009

    Ame/Amy- I wish I knew something to tell you, I know my boob was really hot and red during radiation, obviously, it was like a heating pad under my shirt, but i think I agree with you maybe it is an inflammatory response. Maybe taking Tylenol, or Advil if you are allowed, before will help prevent the inflammation? I really hope you are well.

    Neece- Thank you for the well wishes and i am glad you are hanging on.

    Ronnie Kay- you sound as if you are enjoying the high. Thank you so much for the well wishes-I will let everyone know as soon as I can.

    So I am at work right now and trying to balance working and this, but I really thought you guys might want this link. I haven't listened to it so I can't endorse it, but a coworker sent it to me and I thought I would pass it on. It was a radio show with an author about chemo brain.

    www.hereandnow.org/2009/09/rundown-914/

    Take care sisters you are in my thoughts even at work

    Barbara

  • unklezwifeonty
    unklezwifeonty Member Posts: 1,710
    edited September 2009

    Dear Vicky,

    So should we close one thread and just keep one thread going? 

    Regards, 

  • positiveme
    positiveme Member Posts: 157
    edited September 2009

    Hello Ladies

    Today is day 13 and I am doing pretty good. My head is really sore so I think the hair coming out will be soon.

    Susan- 108.00 that is great and alot of cupcakes. My next tx is Oct.1st. You are going on the 2nd.

    BarbaraAnne- your posts are great. I am starting to have trouble remember everyone(chemo brain) or just me. I am praying for you good results.

    Neece- What dayis it for you. I agree about the hair thing. I say I will be fine but until it happens I won't know. On a positive note hopefully next quarter you won't have to pay a water bill.

    Vickilynn- I am going for hats and scarfs too. After reading your post maybe that will change. I voted for Kemo. I think we all adopted her.

    RonnieKay- I am dreading decadron day. I love the story about your grandson. Kids are terrific. You have such a fantastic family. You are blessed.

    Toni- Hope you are doing well.

    Amyoo- I am sorry that you are having a rough time. Chemo is bad enough who needs all these other se's. I hope you trust your dr. If you do than go with what they tell you. Keeping youin my prayers

    To all of you strong, wonderful & brave women. One day at a time and....THINK POSITIVE

    chat with you soon.

  • vickilynn
    vickilynn Member Posts: 422
    edited September 2009

    Amy - ditto to all the others... I don't get the Taxol until November (I'm on A/C) so I haven't any experience.  But I really do think you need to get a REAL answer from your dr's office.  Sometimes when I call I feel kind of "put off" by the nurse, but last time I pushed a bit and got in to see the Nurse Practictioner about my mouth sores.  She was great and listened and then DID SOMETHING.  I don't know if they get callous to our complaints - but I'm not a complainer in general.  And I know when something isn't right or doesn't match their list.  It doesn't sound like they had any good answers for you yet.

    So what I'm saying is - please, if you know something isn't right, pursue the answers.  It's your body - and you know it - they don't!

    OK - I'm stepping down off the soap box.

    Unclezwife:  At this point, I don't think we should drop one thread or the other.  Some of us have been together for the last month and feel like we know each other really well.   Please feel free to just hang around and see which group best fits you or be part of both.  I think that each has their own "personality", and it's close enough to October that a new group for that month will be starting up soon. there's plenty of room for all our "threads".  Thanks for your  input.

    To all you Kemo lovers - thanks : )  She brings a smile to my face, too.  Kemo gets to come visit during chemo which is great.  The other people enjoyed seeing her last time.  She actually doesn't get to live with me until next week (when she'll be 8 weeks old).  We're so excited ---- even bought her toys yesterday : )

    In other news:  I went for a fitting for my "real" (synthetic) prosthesis today... cannot tell you what that did for my self-esteem.  I got a black sexy bra (cuz it was the only one in my size that fit well and cuz hubbie said, "I like that one!") and a silicone breast (I only had a foam pad for the last 6 weeks).  What a difference.  Clothes fit again.  Both are the same size and feel good.  And in celebration I got to buy a new blouse.  This was a good day.

    3rd tx is Tuesday.  I did get some meds for my mouth sores and it worked in just one day.  The NP suggested sucking on ice chips while the chemo is going in.  Someone else suggested that here too.  I couldn't figure out how that could work since the mouth sores don't show up until 3 days after the chemo... but I'm willing to try. 

    Did any of you notice that your chemo brain gets better the further away from treatment?  I'm thinking so much clearer than just a few days ago.  Maybe it's just the new breast : )

  • amyooo
    amyooo Member Posts: 77
    edited September 2009

    Thank you all so much for the comments and advice. I am planning on taking Tylenol tomorrow AM, beginning my chemo then having a long discussion with my onc about the fever (I have an appt anyway)

    I'll keep you all posted.

    Thanks again,

    Amy

  • BarbAnne41
    BarbAnne41 Member Posts: 380
    edited September 2009

    Vickilynn- I am so happy you had good fitting today-congratulations. Self esteem is very important. I am so glad your mouth is settling down. Hope your hubby is ok. I know my hubby used to get stones and they said the more beer the better it flushed them out. But it hurt like crazy coming out-so if that's what it is make sure the doc gives him some meds. On the other hand my MIL and brother both had to have their gallbladders out and both say it was the best thing to ever happen to them that now they can eat all sorts of foods with out being a problem. I don't know if that's good or bad, but my thoughts are with you both.

    Amy/Ame- I am so glad you are talking to your onc-with the marvels of modern medicine (my tongue is slightly in my check, after drinking contrast) all those problems should be solvable. My thoughts are with you for tomorrow.

    Catherine- I am sorry your head is sore, but it is bound to get better. Try the Benedryl spray someone was using, Oh I want to give credit properly was it Susan or Toni? Anyway Thanks for liking my posts, I felt like I had chemo brain today, every teacher seemed to be calling in sick-ugh! Take Car and stay positive.

    Toni- Hope you are well!

    Ronnie Kay- I just had time to re-read your post, wow it was so fun. Touching and funny, you wrote that just like we were all together having coffee. Thank you for the story.

    Susan- you are a fundraiser! Maybe when this is all over you could go into grant writing I hear it is a good gig! Of course it is more paper and less cupcakes! Hope you are well and getting some rest.

    Neece- I am the bill payer too, I can't wait.

    Unclezwife: I think both threads kind of have a nature of their own and I am sure once the October threads get going it really won't matter if there are 2 or 22, its ok there is plenty of room for all of us and our threads-The more information the better right, I always say. Thanks for letting us know though

    Two more tests tomorrow and next Friday, (wow what will I do with my worried brain for a week), I am going to get a big fat green light from the onc.

    Hope all of you are well.

    Many warm positive hugs

    Barbara

  • GmaToni
    GmaToni Member Posts: 175
    edited September 2009

    Hello my September Sisters ,

    Oh I wish I could get together w/ all of you today and sip some tea. Wouldnt that be nice? To meet one another and share our stories about anything ? W/O having to type ? I have butter finger typing !!

    Barbara- Praying for negative tests - All is well, Im sure. Thinking of you, my dear.

    Amy - I laugh just when I see youve posted, dont mean to, it just comes out (Ame) :)

    Ronnie- Bless your heart you Decadron girl ! Sorry about your sleep pattern though , thats a toughy. What a story of your hair, I cried. Literally. Good luck tomorrow - know you'll do great!!

    I cried so very very much because I am loosing my hair today. Did I think I was going to be different ? Maybe in some wierd way I did. I was kidding myself. Yet, I was so emabarrassed, ashamed and so very scared of being bald. How silly, I thought. Toady is a sad day.

    vickilynn - I use that saying now. "A sad day" It works well w/ me. I dont have to go into every detail w/ my family if Im not feeling well. I just tell them its a sad day. They know I'll be ok and yet am just having a "hard" day. I rolled w/ the sign !! Not Wearing Wig or Fake Breast - Enter at Your Own Risk ! Hope all is well w/ your hubby, too.

    Denise - Heck maybe by the time your done you could have a nice credit on each and every bill and you could take a vacation ! you and your hubby :)

    China- You will do great w/ your shaving and wig styling tomorrow !

    Oops- vickilynn - you too ! Wigs tomorrow !

    Susan - So very nice to hear from you honey. You are such a hard worker. Might wear ya down a bit but.... it matters to do what makes you feel good ! MT is chilly these last few mornings. I put fuzzy socks on this morning!!

    Jane, Mari, Delaine, Catherine, Melinda and anyone else I forgot to mention - Love and Prayers to you all !!

    Oh Hey - Hi Kemo !

  • GmaToni
    GmaToni Member Posts: 175
    edited September 2009

    Girls -

    My post just came through showing I just posted a few seconds ago . I actually poted about 10 hours ago. That is very strange. And I feel left out !

    Amy - my dear, call your doc really. They need to listen to you and you need better answers. I think vickilynn mentioned that.

    Vickilynn - you already had your fitting I bet _ you look awesome too, betcha :) I really am going to have to go get mine fitted. I just keep gluing the hair back on my scalp that keeps falling out.... think that will work ?

    Love to you all

  • Pamelajo
    Pamelajo Member Posts: 346
    edited September 2009

    Gma Toni..... don't cry.  Don't be embarrassed, don't feel ashamed.  Losing those precious hairs is hard, but once you get rid of it, you will feel better.  Believe me when I say that the looking forward AT it, is worse than actually being done with it.  You are going to be fine.  Wish I could just give you a big hug.  Wanna borrow my clippers and tequila?  Humor and hard liquor...that's how I did it :)

  • GmaToni
    GmaToni Member Posts: 175
    edited September 2009

    Pamelajo- and to think....my chemo brain had to forget to mention your name in my thoughts today !!!! Shame on me.... Its the best laugh Ive had. Humor and Hard Liquor. Too bad I cant drink. Havent for years. Dang.... You are the best I needed that. I was just getting back on line to say HELP...Its coming out by the handfuls.

    Do I shave it all off to the skin? Leave stubble? Go to my hair dresser ? I am a mess. Ya know what Im gonna do ? GO TAKE A VALIUM !!

    God love you all -

    Toni 

  • puffins
    puffins Member Posts: 32
    edited September 2009

    Warm wishes to all of you!

    I'm on the other Starting September 09 thread also, and this eve. I've been reading your posts here. I'll begin chemo on 9/29 after a mx and later axilary node dissection and I am admiring you "senior september sisters" for the honesty and helpfulness of your hard-earned wisdom!

    I have been laughing heartily at Vickilynn's "signage" of Not Wearing Wig or Fake Breast - Enter at Your Own Risk!  Even though we have a prominant sign on our front door of "No Solicitors", we have quite a few ringing the doorbell...I'm seriously considering adopting Vickilynn's idea to see if that backs them off my proch...! 

    Hugs of support to all,

    Shoshanna 

  • GmaToni
    GmaToni Member Posts: 175
    edited September 2009

    Puffins - So nice of you to pop in. Welcome !

    Actually - We are the September Outstanding Sisters - vickilynn was kind enough to help name us and we do love it !! Oh, Her "pretend sign" (that she just may put up) the "Enter at your own risk" part of it was my doing (hope she liked the add-on) ! You liked it though ? Maybe when Im done w/ all this chemo nonsense, at 44, I could start my own business. " Silly Signs for Breast Cancer Patients " Of course, vickilynn would certainly get a "huge" cut on our most popular one !

    BTW, vickilynn,  thank you for getting me through the night. I certainly didnt sleep well (as you can see) but my mind is calmer.

    *geesh* you guys are going to get sick of hearing from me. Maybe I better start my own thread called "Whiners" or "Silly Signs". :)

    (((Hugs)))

  • chinablue
    chinablue Member Posts: 545
    edited September 2009

    Hi Everyone,

    If I have learned  anything with BC it is to get out there and enjoy life. Carpe diem.  I have been walking and spending time with friends/family.  I hope that I can someday wake up and not feel the aches of surgery or the SE's of chemo, but until then I have decided to ignore/medicate it so that I can get on with my life.  

    I love that Vickilynn has a puppy.  

    GmaToni - I am not sure what is easiest for you with regard to your hair.  Yesterday, I went to the place where I purchased my wig and they shaved my head and did a second fitting of the wig. I look like I have a short buzz cut.  I have heard of other gals, calling their hair stylists for appointments in the off hours (it takes about 4 min) and I have heard of husbands doing it for their wives.  

    Today, will be my first day without hair in my small town.  I plan to be brave even though I am naturally a shy person.  I look so different with my wig. My daughter doesn't really like the wig and says it looks like Mrs. Brady from the Brady Bunch. Ouch.  My husband likes it, but says he doesn't recognize me.  I am not sure how my neighbors will react.  When I go for my exercise, I guess I should just where a baseball hat.  Oh the decisions!

    I dream of the day when this is behind all of us.  I send my sincere love to each of you. 

  • Neece
    Neece Member Posts: 270
    edited September 2009

    Hey RonnieKay,

    Are you from Seattle? When I spent that year in the US (many moons go - 1979!!!) I lived in Marysville WA. Had quite a few visits to Seattle during the year. Loved the Space Needle!! I always like to think I will get back for a visit one day, as I still keep in touch with one very special host family with whom I lived for 4 months.

    Anyway I loved your 'pullin' grandma's hair out' story - just gorgeous.

    Vivkilynn I would love to see your fuzzy head too!

    Took the big step tonight and got husband to clipper cut me to a 'number one' cut all over. The last straw was finding bits of hair in my tea cup and I do love my cup of tea! So now I am VERY short all over. It was weird at first but I am already getting used to it - I think! I know what you mean about the grab for a hat or scarf though. A very dear friend called in tonight and I took a deep breath and just let her see the 'new me'. She loved it! (or at least she said she did - and that's what friends are for, heh? The thing that shocked me most was how GREY I am - I have coloured my hair (semi permanent) for a couple of years now, and so once the coloured part was cut off there wasno hiding from the grey! Oh well.

    Had a lymphatic massage today - very different from a 'normal' kind of massage. I have been really trying hard to do the arm exercises 4 x day as recommended by the physiotherapist and it seems to be paying off as the 'cording' in my arm is a bit less tight today.

    love to all

    Denise

  • Pamelajo
    Pamelajo Member Posts: 346
    edited September 2009

    GmaToni....  I shaved mine off to about 1/2 an inch.  It really doesn't hurt when I lay down but my scalp is sore in spots, just from the fall-out.  It's a huge step I know.  I had my Mom do it for me.  It's become tradition for she and I, we've been here before.  Last time I was too young to drink, this time, we got out the Jose and he was a friend of ours :)  I ain't payin someone to make me look like a victim of the concentration camps. 

    When we were done, we had another couple shots, cried and then laughed hysterically.  I haven't regretted it since.

    Cowgirl up mama, you are gonna get through this!

  • Melinda-Tma3
    Melinda-Tma3 Member Posts: 168
    edited September 2009

    Humor for the day...What do you call a person who gets lymphoma over and over again?

    A lymphomaniac 

    Going to try to play tennis today....I'm really excited...hope I can get through an entire hour and a half.  This is how I normally get my excercise 3 days a week and I haven't played for a month.... I miss it so much....but I feel really good these days.... however the #2 A/C is sneaking up on Monday and with each day....I can feel the apprehension build....praying for all to go the same or better as #1....

    How's everyone doing....sounds like we are moving along well.....

    Ameoo-talk to you onc and your surgeon....my surgeon from the breast health center is very involved in every aspec of my treatment.  I rely on her to confirm all my concerns.  I have been having severe headaches constantly, that still are not being addressed to my liking...If after Monday's #2 chemo if it persists I will push them again to help fix it...If they can't then, I'll go to my GP and ask him to help resolve it with a referral to someone who can.  

    My hair still going strong....I know it's just a matter of 4-10 days.....ugh..... I can't relate to you all yet....but I'm sure I'm going to need your support when it happens....I hate when every person I see says to me 1st...."is your hair falling out yet" ......Why don't they get it...they will know when it happens!  Venting....  Proud of all you dealing with it.....your stories are helping me....honestly the lint roller story had me in tears and still makes me smile.... it just made me laugh uncontrollably.  

    Ronnie...your post made me laugh and then I cried for a long time....It was good for me, as I hold in my emotions trying to keep my family safe from all of this and haven't shed too many tears....

    Thank you all from the bottom of my heart for your honesty, genuine concern and understanding. I look forward to hearing from each of you every time I log on.  

    Melinda 

  • GmaToni
    GmaToni Member Posts: 175
    edited September 2009

    Pamela -

    You are a hoot - girlfriend. Okay Im gonna say this and mean it.

    Buckle down (Cowgirl up) Quit my whining and get the dang clippers out - professionally or not ! Im sick of letting this disease control ME !

    Boy that felt good ! OK, lets see if I can really mean that now :) No, I do have to take control ! Cant say the tears wont come but..... Like a fellow SOS and I talked about in a PM earlier.. now I and everyone else will know I have cancer (bald head)..... before we could cover it.

    Thanks everyone !

    (((hugs)))

    Toni 

  • jadams1264
    jadams1264 Member Posts: 417
    edited September 2009

    Hello SOSisters...sorry to be off for a few days but day 5 & 6 kicked my butt.  Came home Wedsl., slept till Thurs.  Hubby called center because I was out of it and had a Herceptin appt.  Made me come in right then, did all the test things, put me on IV's, some decadron, benydrl, some kind of indigestion drug.  Knocked me right out or so I thought.  And then I start hearing some guy playing a guitar and singing "Puff the Magic Dragon".  I'm thinking these are some pretty good drugs they have me on when he starts singing "Where Have All the Flowers Gone".  So I half open one eye and sure enough there is some guy standing in our cubicle with his guitar singing away.  As I got more of my joy juice he sounded a lot better!  SURREAL!

    I will now be out of work the week after my T/C/H.  Apparently my old bod is not up to fighting all this stuff thats going to make it all better.

    For all of you doing the hair thing, I found myself just dreading to go to work on Monday.  I don't change my hairdo, it was obviously a wig.  I just decided that if I got it over with it wouldn't be so bad and it wasn't.  I will tell you that yesterday when I had to go to the cancer center and felt so awful that I was so thankful I had a hat!  It will now be referred to the "crappy day hat".

    Ronnie Kay - I was so out of it yesterday I forgot to ask the doctor about the carboplatin, taxotere.  Next week I promise.  And I loved your post!  Oh to have some of that energy, please send some my way.

    Can't wait to hear how it went with the haircuts and wig fittings.  Your stories make me feel so much better, isn't it wonderful to know that we aren't doing this alone?  ChinaBlue don't know how old your daughter is, but took mine with me when I went.  She was picking out styles I would never wear and when I would pick one out she would tell me it looked like an old lady!  The sales associate bless her heart picked one out that was so close to my own that neither of us could say anything.

    Do have a question, is anyone having burping problems?  I have never had this problem before but have consider having a contest with the boys!  Boy is it embarrassing, cracks my husband up!

    Yes, I'm still voting for Kemo!  

     Please know that I have read every post, would love to comment to each and everyone but know that I would mess it up.  I'm thinking of all of you, hoping you are having great days and keeping positive thoughts.  Welcome to the newcomers, you have found a wonderful group of ladies to help you though this journey none of us would have picked!

    My thoughts and prayers are with you.  Be positive!

    Jane

  • GmaToni
    GmaToni Member Posts: 175
    edited September 2009

    Hi Sisters !

    I did it ! I am bald and beautiful. All of you were right, my scalp feels so much better. I didnt even cry !. Feels wierd to the touch but other than that my head is round w/ no bumps. My hairdresser said....gorgeous my love !

    ((Hugs)) and many thanks

    Toni

    Amy - How are you, darlin' - thinking of you

  • MaryNY
    MaryNY Member Posts: 1,584
    edited September 2009

    Toni: Congratulations, that was such a brave move!

  • BarbAnne41
    BarbAnne41 Member Posts: 380
    edited September 2009

    YEA TONI- you are beautiful inside and out!Wink

    Way to go girl

    Barbara

  • flacracker
    flacracker Member Posts: 78
    edited September 2009

    Hello SOSisters!Cool It has been day 8 since my frist kemo and 3 more to go!! So far I been feeling not bad I get a little tired in the eveing. A little uneasy feeling in the stomach, that goodness for pills! My family has been coming and helping out and keeping me busy, which is a blessing. We go for walks in the morn and inn the eveing and shopping for scarfs.So far I still have my hair. I was told that it will fall out in 2 weeks or less. I had it cut short so I kinda ready when the time comes. From what I was told that if you get a fever go to the dr at 100.5! Don't wait! Every keep up with the funny saying love them!!!!

  • amyooo
    amyooo Member Posts: 77
    edited September 2009

    Very good appt. today with onc. She answered a lot of questions. she told me my 4 day low-grade fever is probably R/T the taxol and to premedicate it with Tylenol. She said to premedicate the bone pain with plain Clariton (no "D") and she told me to premedicate my night sweats with Advil.

    I hate to say this because I love Nurse Practitioners but the onc understood what I was saying and gave me solutions. I don't think the NP was presenting my case to the onc correctly cuz I was getting nowhere!

    Oh, she also gave me Restoril to help with the steriod insomnia.

    Everyone seems to be in a relatively good place right now except for Jadams. I hope you feel better really really soon. Talk to your onc and surgeon about ALL your side effects. I wasn't even bringing up my night sweats even tho they are a real pain (I was changing clothes and towels on the bed twice a night. Waking up SLIMEY! But I was thinking I just had bigger fish to fry. But the onc brought it up and gave suggestions. She made this visit very easy and productive.

    Toni, I'm glad you are doing so well.

    Even tho I don't mention every one of you I do car about all of you and eagerly read your posts. I'm just too lazy to do the cards.

    Thank you all for caring and all the advice.

    Love you all,

    Amy/ Ame    (sometimes i'm even too lazy to capitalize my letters or use punctuation or spel chick

  • Pamelajo
    Pamelajo Member Posts: 346
    edited September 2009

    Toni:  Way to go Mama!  I knew you'd be wonderful.  Bald is the new sexy ;)  I actually got the dog clippers out (you cain't get fleas if you ain't got no hairs) and shaved mine the rest of the way.  Scalp was beyond sore, but TADA, no more!  My own personal comfort is waaaaaaay more important than what others may think of my bald head.  

    Anyway, I'm so proud of you! 

    Amy:  Glad things went well with your onc.  I hope mine has some answers for me on Thursday.  It's good to have a doctor who cares enough to take the time, ya know?

    About the gas.....  just be glad you are burping and not farting.  I had a case of the walking farts around day 4 after tx that would have made a sailor blush.  Sooooooo glad I was in the privacy of my own home and only had to get raised brow looks from hubby and tilted head confused looks from the dogs.  I don't know if any of you have Boxers, but their gas is lethal, and if they notice when you poof, you know it's epic. 

    Ok, that was prolly too much information....  but if it makes you feel more normal, then I'm willing to tell you all the gorey details.  Gas happens apparently.

    Hope everyone gets some sleep tonight and has a bright beautiful day tomorrow!  Hugs!

  • Neece
    Neece Member Posts: 270
    edited September 2009

    hey Toni

    Congrats on your new smooth look!!!!Wink

  • amyooo
    amyooo Member Posts: 77
    edited September 2009

    All I can say is WOW!!!!

    I just slept thru 6 hours of my first"bad" steriod night. If you knew my history you would know what a miracle that is!

    I have always resisted controlled/scheduled drugs but I started cutting myself some slack with cancer amd I'm glad I did, Restortil 15mg WORKS!

    Anybody out there stuggling......try it!

    Yipee!  Amy/Ame

  • Melinda-Tma3
    Melinda-Tma3 Member Posts: 168
    edited September 2009

    Amyoo....I'm taking restoril too...I found that 1 only seems to work for me around five hours....I would take at 10pm and wake up at 3...now I fall asleep naturally whenever at nite and just wake up at 1-1:30 and take it....then I sleep til 5-6am which gives me a great nights sleep... When I took two they zonked me out for 2-3 hours in the morning after I woke up.  

    Anyone having constant headaches or sinus issues??? find anything thats working?

    Have a great Saturday.. 42 deg here this morning.... starting the wood stove for a little  warm up.

    Melinda 

  • amyooo
    amyooo Member Posts: 77
    edited September 2009

    Melinda, My onc suggested Claritin (without the D) for bone pain. Maybe it will work for sinus pain as well cuz that is what its marketed use is for.

    Good Luck

    Amy

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