Chemo Starting Sep 09
Comments
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Hello SOS Sisters !
Thanks for your thoughts and prayers for my mom. They did decide she was anemic and we admitted her for a partial stay last night and she received a transfusion. Again, shes 85 so I am glad they kept her for observation ! Thank you.
Barbara- I blame myself sometimes for getting ill and I know its not my fault. I am an only child and I worry cuz Im not there for her always now. Hey, I loved the banana contrast ! Im glad the CT looked good but sorry you have more to go. Good doc it sounds like. My port was also sore for a week and I hear the claritin works wonders ! I have pn pills so I did good w/ mine. woohoo ! Take care.
Jane-How was your TX yesterday ? I went very short w/ my hair too. Less shock, easier to take care of too. Actually, I just wish it would fall out and get over with !! How was your shot? Dont worry bout drugs right now, I say. Just feel better. Take care.
Melinda-Hows day 6 treating you? Good I hope ! Are you sleeping ? Well wishes to you.
RonnieKay-I agree about the hair. Just one step closer to being done w/ this whole dang thing. Heck girl, my leg pains cost me $5103,00 ! OUCH. LOL
Vickilynn- How ya feeling post tuesday ? I am also on Compazine. Ya know Ive always had a foggy brain, my husband says
He is right, though. Oops, I guess you called it cobweb head. I like that much better. Well wishes to you, girl. amyooo-TX yesterday? How are you feeling ? Your pants on backwards ? I think we can officially give you "cobweb head" of the month !! Thats so cute !
Susan-Colorado is beautiful ! Please tease me always, I love it. Humor is the best medicine and Ive always been the joker. I like to get it back too. Us rocky mountain girls ! I need to copy your list from here if you dont mind. BTW, you are such a sweet soul
Take care.dogsaver - you go girl. I dont work. I commend you and your strength. Everyone here for that matter that works outside the home. Well, inside the home is just as rough. Comments to us all that keep up everything we do !!Take Care
Anyone I missed - well wishes to you all !!
Always,
Toni
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Toni,
Treatment went beautifully and I feel fine today.I have developed what is probably an infection in my breast, I guess from the biopsy. They have put me on Bactrim which is causing my face to flush but it's no big deal.
Glad your Mom is doing better!
Amy
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hi SOS girls,
Have not posted or been on line for a few days and I am glad to say, that's because I have been feeling so much better and have been busy - with things NOT involving cancer and treatment! Don't those times feel great now when they happen? Yesterday and today I even pottered a bit in the garden and it looks so much better, having planted a few flower seedlings in pots and weeded a bit (it's spring here in Australia!) I have one and a half weeks before my next treatment and I am planning to enjoy the good times while they are here.
Susan and Jane, I am another ILC lady - am getting the feeling this is less common than ductal cancer?
Amyoo I loved your pants story too! It is so reassuring to read other comments about 'chemo brain' - I can barely remember my own name half the time and it is a bit worrying sometimes. I have a thought, or remember a task I was going to do,and by the time I am in the next room it has completely gone!
I still have my hair, had it cut pretty short a day ago because the scalp is very itchy. My hair is normally very fine and soft, but maybe two days after chemo, it felt coarser to me. So very short is easier right now. Next step is hubby with his clippers!
BarbAnne - good luck with your treatment start date, I hope you stay with this thread too.
And welcome flacracker!
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Greetings from Spain my international Sisters!
Sorry for jumping in late ladies however this rollercoaster ride we're all on has had me off the map for some time. Quick intro:
I am a Canadian living in Spain with my 3 yr old daughter, My husband works on yachts and is frequently away...I was diagnosed in June after 3 yrs of doctors telling me my Growing Lump was nothing more than cysts or a fibroid....I made the mistake of trusting in the white coats and plaques on the wall because I did not want to believe it could be cancer...jump forward to the day I tested my ducts to see if my daughter was even getting milk (BF for 3 yrs) The horror of finding bloody discharge sent me immediately to a new doctor who then had me fast tracked for every test under the sun...you know the routine!
Diagnosed in June with both IDC and DCIS (which turned out to be a whopping 9cm) Mx of my right breast only with no reconstruction. Had my first Chemo on Sept 10th and am pretty sure I am on 6 cycles of TAC (have to get back to you on that because everything is in spanish so I tend to just nod my head a bit at this stage and follow my Onc, who is reportedly the best on the island)
Had a lovely 2 days following of waiting for the wheels to fall off and hoping I'd be one of the lucky breeze right through types!!!...no such luck...got slammed by the WBC booster and couldn't get out of bed for 2 days, felt much better around day 5 and then have just been experiencing momentary twinges in my back and legs...and the most horrendous migraines early evening for the past 2 days...hoping tonight they'll give me a break!
Still have my hair, though have a mohawk and clipper party planned for the 24th/25th....eeeeek! Bit freaked by this more than anything as my husband will be returning to me Bald. He's managed to fly home for all of the surgeries (3 in total) since the diagnosis but has had to be away for the last 6 wks and won't be returning until the 10th of Oct. Good thing he has a sense of humour!
So that's me more or less....I've been following along with you and finally decided to jump in and hope you've got room!
Huge hugs to you all...
Mari
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Welcome Mari!
I, too started Sept. 11th but am on a different regimen. Stay on these boards you you will learn so much from thee wonderful ladies!
Your husband sounds wonderful. I do hope you have some more help other there when you aren't feeling the best to help with your daughter.
Please keep us posted.
Amy
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Hi Ladies,
It is day six after my first A/C treatment. It seems for me at leas, the nausea is worst on days 1,2,& 3. After that, the SE's were/are much less. I am wondering if this is a predictor of the weeks to come? I guess what I am asking is that the worst of it or because A/C accumulates my days 1-3 will be worse in the weeks to come?
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Hi China..I am on day six A/C as well. Didn't have much nausea more exhaustion on days 3/4 and terrible sinus and headache pain...What are your nausea meds? I am on Emend and Decadron day 1-3 then one more decadron day 4...So far this has worked for me...I am curious as well about next round. Any input fromother A/C's every two weeks with Emend & Decadron? Does the next round pretty much seem the same as the first? This other weird SE is that the bottoms of my feet feel numb in the evenings...and my big toe has a pain in it on & off. Still eating tons of food & still losing weight..4#'s....Crazy! Feeling pretty good the last few days....glad to be finding the old me again for a while....It's crazy we have this to deal with....but thank you all for sharing ....SOS... Big hugs to each of you....
Try ginger tea, ginger snaps, unsweetened applesauce, baked or mashed potatoes, ramen noodles just a few of my helpful foods on days 3/4. Hang in there!
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Hello SOS sisters-
Welcome Mari- this is terrific group of women, very positive and helpful.
Amyoo-I loved your pants story too. I am sure that's what I need chemo for now to make those mistakes I make, and have an excuse for them-just kidding. Thank you for sharing you port advice.
Neece-thank you, and yea I am pretty sure you all would have to ban me-I am comfortable following along and this thread is so positive and supportive I wouldn't want to go anywhere else. I am so glad you are feeling better. I must say in a few months my Michigan winter will be pea green envious of your summer.
Toni- I know a little how you feel, I may have two brothers but when my mom was ill I felt like an only child, the majority of everything fell to me and I felt guilt ridden toward my family, my mother, I just couldn't seem to be in enough places at once. I can't even imagine all that and battling cancer-you, I am sure have a lot on your plate, and if there is one thing this disease, along with my ulcer thing last spring, taught me not to be hard on ourselves.
On that same note, I also feel like blaming myself, even though I know that's irrational. According to some of the threads, being overweight can cause breast cancer. Not eating organic, drinking milk, eating soy products etc... There are plenty of ways to look for a reason why, but I again can't beat myself up and you shouldn't either. None of us should in fact. I have been a power walking, vegetarian for 12 years, no alcohol, coffee, cola, or cigarettes. I have bc but I guess according to some of the threads it is because I ate meatless products, which contain soy. Who knows, but I am thinking of you and if you don't blame yourself I won't blame myself-deal?
Melinda- I hope I can eat tons and loose weight-that would be awesome! I keep reading all these horror stories of women gaining 40 pounds and stuff-maybe I should stop reading. Anyway I am glad you are doing well! Thank you for the port advice.
VickiLynn-I am glad you are doing well, thank you for the advice.
Susan- I am not skipping out-I promise. Congrats on raising $-good job. Sorry about the stress at work. BTW you and Toni live in lovely states; we only have oodles of water in Michigan, mountains not so much.
Catherine, Jane, Ronnikay, Dogsaver, Chinablue, flacracker-I am glad you are here and your are all in my thoughts.
Positive hugs for you all.
Here's hoping I get some new flavors of contrast to drink this week since I have to drink it twice.
Take Care
Barbara
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Chinablue I've had 2 A/C treatments and this second one is less stressful - but seems to be the same length of time as the first. I have 5 bad days and today is the 6th and I'm feeling a bit better. They had me on Zofran (for nausea) the first time which gave me horrific headaches. This time I did Ativan and Compazine and put up with more nausea/vomitting, but less headaches so it was worth it for me I think. I know they tell me these first 4 A/C treatments are the "big guns" and cause the most side effects. After 4 I get 3 weeks off and then start Taxol for 12 weeks. What is your diagnosis? Are you Triple Negative or positives?
Sisters My mind isn't clear enough to write you all individually... just know everyone's welcome to join. I love your stories and I love the backwards pants scenario. Isn't it amazing that something like cancer could bring such diverse people all together for a season? Cancer knows no geographical boundaries.
This is not an easy journey we're on... and there are times I say, "remind me again, why I'm doing this chemo!" but I make it through those days and there is a smile, a laugh again, a kiss from a husband or grandchild. And I know I can make it through another day - another treatment.
I add you new women to my prayer card so I can remember to hold you up in prayer.
Keep looking forward and keep looking up.
Vickilynn
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Hello SOSisters...today I was going to try to mention everyone by name but it isn't going to happen. I got my neulesta shot yesterday morning, that combined with Herceptin on Thursday and taxotere and carboplatin on Friday and me on the couch all day yesterday. I took Advil when my bones started aching it worked fine, it wasn't really like aching, Vickylynne I think your description of pulsating was right on the money. However I had Claritin in the cupboard in case. It took until late last night for the cobwebs to go away! Went and had my haircut, my hairdresser bless her heart gave me a pixie cut, said we could buzz cut a little ladder. It wasn't as tramatic as I feared, in fact, I sort of like this "new" do!
Ronnie Kay -the taxotere/carboplatin work better with each other. I can't remember anymore than that but will ask my onc when I go on Thursday for Herceptin.
Did you Herceptin sisters see the article in Parade magazine today? Taking Herceptin decreases your chance of recurrence by 56%!
There was so much I wanted to say to all of you but I have run out of steam! My thoughts and prayers are with you.
Keep posting! And keep positive thoughts!
Jane
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Hi SOS Sisters :
Today is my off day. My mom is still trying to get back to herself. We did admit her into the hospital for blood transfusion - cant remember if I mentioned that. Wow - i usually can remember everyone and what they said and I cant remember what I said. Frankly, Im to tired to even look back.
Just want to tell you all a quick funny story like amy...... picked up a couple wigs...just to have one for a just in case scenario, right ? well, Im trying it on, trying to style it a little w/ my family helping... all of a sudden the emotions went wild, I started to cry...grabbed it off my head and thru it into the air !!! ..........................RIGHT INTO THE TOILET ! We were all yelling, grab it, get it, oh my gosh ! Sure wish I could have got that on tape. It truly made my evening and I hope it gave you all a little chuckle.
You are all in my thoughts every minute of the day.
Love,
Toni
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New to the group. Diagnosed on 9/4. Chemo starts 9/24. Taxotere and Cytoxan for right now. Won't know about the HER receptors until Tuesday so that may change everything. Also having a PET scan on Tuesday. He has given me Zofran and Ativan for nausea, but I read about headaches with the Zofran. Any suggestions to change? Or just see how I do. Not doing a port right now and I worry about my veins too. Supposedly get 2 -3 chemo tx's (1 x q 3 weeks) then surgery. Keep putting up all the wonderful posts. They are extremely helpful.
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Hi Bettye !
I love my port. I know how weird and awful that sounded but I think its the best thing I did...little sore for a week but the slickest thing they've come up with.
WELCOME to the place you never want to come too. I wish I could help more w/ the Zofran. I know the ladies here will be able to help. Just hold on tight and someone will get back to you soon. Its nice to see you here and hope TX goes well as soon as you start. Hopefully HER receptors will be negative (I imagine they are wanting) and you can be on meds they are planning and shrink that tumor right on down !!
((HUGS))
Toni
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Bettye I had headaches with Zofran but haven't heard of anyone else. It was almost like an allergic reaction. I take Ativan at night and Compazine if needed during the day for nausea. not my favorite, but it works. They gave me some other samples to try, but didn't see much difference. If Zofran works for you, I know it's one of the best.
Toni So did the wig survive? I imagine it dripping wet being pulled from the toilet!
SOS Hi you all... You know I buzzed my hair, but now my shirt looks like I'm just shedding like a dog! I talked to my husband about shaving it, but he's OK... we'll just vacuum well when I'm done! I think it's easier than shaving it... I'm not quite settled with this no-hair look yet, though I had some friends drop by a couple of really cute hats. They're just so warm and it's 102 outside!!!
On another note - a fun one - my daughter-in-law gave me a puppy (I don't actually get her for 2 weeks) and she's a tiny mixed puppy... I named her Kemo (because she 's my chemo therapy dog). So my DIL entered her in a cute puppy contest. I'll let you know when she's there, but this week you can all vote online (each day for a week) that she's the cutest puppy and I can win $500!!! You'll just know she's the cutest. My DIL made her a pink ribbon for her neck and a neckerchief with pink breast cancer ribbons all over it. My son brought her in to the chemo treatment room on Tuesday and everyone was tickled with her. I've never had a tiny dog so not sure how I'll do... but I love the idea. I'll give you the web address tomorrow so you can see her : )
In fact, I'll tlry to change my picture so you can get a glimpse.
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Just seeing if this works.
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just seeing if this works
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Vickilynn- Oh my goodness is she ever adorable. My niece has a little one similar to Kemo - her name is Belle. She is a stinker ! Oops guess I dont need the bold anymore. In answer to your question - the wig - it looks worse than the day I picked it up. Ya know its a great program they have at my hospital and people donate these wigs. You take care of them you donate them back....I was so emotional about the whole toilet thing and donating back. This disease is so expensive. Then I looked at the cleaning instructions...Human hair ! I can wash it, style it, cut it, condition it, ect. Not saying Ive ever soaked my head in the toilet but now I will know it will be clean when I donate it back !!
SOS-I am just having so many emotional issues its ridiculous. My mama being ill didnt help but, all I do is cry. My friend said..use your prep H under your eyes - shrinks the puffiness ! I guess I found another good reason why the "hems" found me.
How is everyone? Kinda a silly question. I just want to send all my thoughts and prayers your way. Wish all of you a fab week coming up. Its like 3am here (little after) so Im not sleeping but...hey, I am a good whiner !!
((Gentle Hugs))
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Hi Ladies,
I am feeling pretty good today, day 7 after first chemo, almost normal, but not quite. I think vickilynn asked about my diagnosis. So here goes:
Diagnosis: 7/1/2009, IDC, DCIS, 3.5 cm, Grade 3, 4/24 nodes, ER-/PR-, HER2-
I am not sure how to add it to my profile.
My anti-nausea meds are as follows: decadron (iv), aloxi (iv), emend (pill for 3 days), compazine (as needed). The compazine works to a certain extent. I can take it every six hours and it works for about 2 hours. I will meet with my onc tomorrow.
The good news is that it seems every day after days 4 are pretty good.
I send all of my positive thoughts to each of you.
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chinablue-
So glad to hear you are feeling better and better. Just more and more steps to ..whats that word?...Oh Yeah...Done !!!!
Anyhoo, go into your home page and at the top you will see a bunch of tabs...Favorite topics, My home, ect. Under those will be your avatar pic, diagnosis area, ect. Click on edit diagnosis (looks like maybe you answered all those questions about your diagnosis?) well, scroll all the way down and at the bottom there is a question that will ask if you want to make your diagnosis public.....check that box. It will post at the bottom of all your posts.
Hugs to you,
Toni
PS I stopped posting in alot of other threads cuz it just got to be to much for me... Hope you all decided I could stay here cuz guess what? you are stuck w/ me..... can I stay and play ?
Amy- How are you and your booby today ?
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Hi Toni,
Booby much better but had muscle and bone aches yesterday combined with fever and chills last night. I'm going to call my MD in a little bit.
Thank you for asking.
Amy
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Hi All you Wonderful SOS Gals,
I had such a busy weekend I didn't post much. My hubby and I had a chance to take a drive on Saturday, and ended up having lunch at a cute little cafe overlooking a mountain lake, and then we walked all the way around the lake. It was a great last weekend of summer activity. I must say that my Colorado mountains are spectacular. Walking is the best thing I have found to relieve SE's. I am trying to walk 1-3 miles at least 5 days a week. We shall see if I keep it up, but I feel so much better on days I walk, that may be the motivation I need.
Okay my tool bar so I can type in bold is missing, that's weird.
Toni, I am so glad you are staying with us! I read your post on the T/C thread and almost cried. I understand how hard it is to post on multiple threads, and I am thinking of doing the same thing and pulling back to just this one thread for the most part. I laughed so hard about your wig. I just kept invisioning a drowned rat. I hope all is well with it now. I understand that emotional roller coaster. It is like being pregnant with out the anticipated joy of the birth.
Neece, It is always good to read your posts. I would love to visit Australia. I am originally from Wyoming, and there are a lot of sheep and cattle ranches there, so people compare the two places. I suspect that Austrailia is way prettier. It is good to know that you are an ILC lady too. There are way fewer of us. Only 10% of all BC is ILC vs. 80% being IDC. Hope you have a great week.
Welcome Bettye and Mari. You are in the right place for positive support.
Vickilynn, that puppy is the cutest thing ever!!!! She looks just like a little stuffed animal. Oh my, you are in for some fun times with that little baby!
Amy, Chinablue, Jane, Melinda, and BarbAnne, and anyone else I missed. I hope you are all doing great. You are in my thoughts and prayers, I hope you have a peace filled week.
Big Hugs,
Susan
PS Since my toolbar is missing please forgive any spelling errors. -
Hello SOS
Today is day 10 for me. On day 8 I was feeling great. Went walking on Sat. and jogging yesterday. I guess that first week is just the crappy one for me. Hopefully next tx will be alittle better.
Susan- I'm glad things are better with your daughter. All the pt. getting TC get the shot. That is my dr. protocol. Due to the bone pain I will give myself neupogen(spelling?) shots on day 2,4,6,8 & 10. This shot is 24 hr acting. So if I have a problem we can stop and do blood work.
Ronniekay-I will be buzzing my hair on Sat. day 15 for me. My hair is really shot to begin with so I'm not worried about it. I will be wearing scarfs and hats. I'm just not into wigs.
Flacracker,Mamamari & bettyelay- Welcome! This site has been fantastic for me. Hopefully it will be for you too!
jadams- Gald to hear your first tx is behind you. Claritin I hear from everyone is a must if you are getting neulesta shots.
BarbAnne- I agrre the waiting is the hardest part. I felt so much better when the whole plan was put together dates and all.
Toni- Great story. Thanks for the laughs
Vickilynn- A puppy!! What a fabulous idea. She is adorable. I can't wait to vote.
Amyoo- I am so sorry you are not feeling well. Call the Dr. right away.
Neece- Great to hear you are feel good too.
dogsaver- Have fun with your wigs. Your attitude is terrific.
Chinablue- It seems around day 7 or 8 things turn around for the better. Glad to here your feeling normal
I hope I didn't miss anybody. If I did I am sorry.
THINK POSITIVE
chat with you soon
Catheirne
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OK... so i just wrote this really profound thing and my internet shut down and somewhere out in cyberspace is this very helpful posting I made to encourage all of you.
Too bad. You missed it!
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Hello everyone! Well back to work this am, i got so tired! Now I am home, lasted till lunch. Oh well, tomorrow is another day. Vickilynn the puppy is so cute, there is nothing like having a dog, they love you no matter how your are feeling and she will make you smile!
Even though I liked my short hair, wore my wig to work today. Everyone my new haircut was cute, what else would I expect them to say? The Cancer Center here gives you a free wig. I don't think they are human hair, got mine before I knew that. Mine is just a wash & wear!
To all the new sisters who joined, you have joined a great group of ladies who are willing to share all sorts of info, side effects, things that help and things you just have to endure. Welcome to a group of wonderful ladies.
Hope everyone is having a good day. Time for my afternoon siesta, I'm aiming for all day at work tomorrow.
Your in my prayers. Keep up all those positive thoughts!
Jane
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Had my 1 week counts done....2.9 on the WBC. Doc said it was expected and also said my lump has gotten smaller and softer! Hooray! This was what we're looking for. I hope this chemo crap continues to do it's job and kills those little evil devils! Did I tell you all I hate this chemo crap....oh , I guess we all do.... I just needed to say it.
Didn't learn anything new on the headache/sinus problem...He said I should try the Sudafed and Tylenol next time. See if it helps at all. Keeping busy here..... I make clay/fused glass jewelry and my brain is actually liking being focused again...still eating like there's no tomorrow. Scalp is sort of getting tender...guess that means my hair is looking for a new home.... also my finger tips are starting to crack from dryness. Ok.....I think I'm done feeling sorry for myself.....
Vicki Lynn you lucky girl....enjoy your puppy! Our pets are an Anole family, 5 chickens, 3 fish and an occasional mouse in our old farm house. I like the puppy idea!
Chinablue...sounds like we're on the same path of getting better after day 4... Hope it it only changes for the better!
Good luck coming up Bettyelay and Newtonville and everyone else....we're right here with ya.....
This is a new week.....thanks to each of you for helping me get here.
Hugs and positive vibes...
Melinda
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Melinda - Again, Hoorah !! Smaller softer lump. So happy for you and happy to be here for you. I hate this crappy chemo too. Next TX Oct 6th. Think Im gonna hide....... BTW, you whine all you want. Isnt that what were here for? To support each other? Hell, most of us just feel like whining. I stopped posting on another sight cuz it was just to much for my little brain, so you guys are stuck w/ me whining......
Jane-I am so proud of you. You go girl. Yeah, I know, what are people going to say to us? Hey that wig looks like crap....man, your head looks awful.... actually, I did have someone say to me..."Im sorry your life sucks so bad" - needless to say, not friends w/ her anymore. I couldnt believe it. She asked ME how the cancer and myself were doing.... I am not the type to tell people what is going on in my life.
Well, Ive blabbed alot. Wishing you all a good night.
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Hi girls,
WIndy dry weather here in Aus. today and it's playing havoc with allergies! Took an antihistimane then wondered: the 'Claritine' some women have posted about (to help relive pain after Neulasta shots) , is that an antihistimane? In Australia we have one called 'Clarityne' which is what I took today. Wonder if it's the same. Can anyone tell me how the antihistimane works with counteracting neulasta SE's? Am hoping I might be able to try it next go through as I found the aches and sharp pains really awful.
I am having problems with that tightness and pain up the arm (mastectomy and lymph node removal arm) and am off the physio tomorrow to get some help. It is really interfering with movement and general comfort. Am doing exercises every day and DH is massaging my armpit as well but it seems to be staying the same now. I believe it's acalled 'axillary web syndrome' after lymph node removal. Anyone else have this problem?
Was just thinking the other day how hard it is coping with chemo whilst still recovering, to a certain extent, from surgery and the discomfort and other issues that arose from that. Talk about a double whammy!!
Catherine my scalp hurts too and it gets itchy like you wouldn't believe! Day 13 for me so maybe my hair will be falling soon... Have the caps and scarves ready so here goes ....
Susan my part of Australia is away from sheep and cattle territory. I am in the Blue Mtns just outside Sydney. It is very pretty here with some amazing sandstone cliffs and bushland area. I have been to Wyoming (MANY years ago now!!) and thought it was beautiful . I lived in Washington State for 12 months and did a trip down the west coast to Mexico, up thru Arizona, Colorado,etc to Wyoming and Montana and back to WA. Loved it!! Our mountains here are nothing compared to those elsewhere in the world including the US. Australia is very low rise in comparison. Having said that I would not live anywhere else. We have a coastline to die for, it is very beautiful all around the coast of Australia. Good on you for keeping up the walking. I have also found it very helpful. Even on my worst days after treatment my DH would drag me out for a short walk in the afternoon (after the sun went a little lower - anyone else found they are much more sensitive to sun and glare now?) On the bad days we would only walk for 5 or 10 minutes but we are now back to our usual 30 minutes and it feels good.
Had my blood sample today (for follow up with onc on thursday) and the beautiful collector found a vein first off! Yay! Getting 'good' veins has become a bit of a drama for me over the past couple of years so I was hugely relieved. Am learnign to drink BUCKETS of water for 24 hrs before each one, it seems to help.
Anyway to all my lovely SOS sisters take care and hugs to you all.
Denise
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Good Morning All!
Vickilynn: I didn't see the website to vote on your darling little munchkin. If it's not too late, please let me know...every vote counts
Just going to say that I love all the hair (less) comments! I thought I was okay with losing it..as it started thinning on Day 15. But I have very thick hair and it's taking a while for it to disappear. THIS IS HARD FOR ME! Every time I shower or comb it...it comes out with whole strands. Plus, my scalp hurts too....especially when the wind blows through it...OMG! Feels like I had tight ponytails in for too long!! My grandson's 1st birthday is Sunday and I wanted hair for the party...how silly is that. Anyway, called my daughter in tears and I think we're doing the Vickilynn 1/4" cut...soon. Second tx is Thursday. Also wanted to say that for the last week and 1/2, I've felt really good!
I had compazine for nausea and never vomitted. I had zofran in my iv the day I had treatment and had no reaction. ALSO, my white count went up like crazy with the dreaded neulasta...guess it was worth the pains, but you can bet I'll have claritin get me through this time. It is an antihistamine. DIL and grandaughter, who came to visit from Long Beach, CA, obviously got a bug on the plane....vomitting and out the other end. So, a couple of days later...I got the "other end" part with some nausea. I weathered it, but couldn't help but be glad that my wbc were better!
Wishing you all peace and healing thoughts!
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Good morning girls, Supposed to get my PET scan today before starting chemo, butttttttt, I am one of America's uninsured. So they cancelled it. Said they won't do it without insurance. My hospital does charity care, and I'm starting that application, but it takes a couple of weeks to process, so I'm starting all this without knowing if it there is mets or what. Dealing with this is what has pushed me over the edge. Are all you guys insured???? If not, how have you handled it. I am self employed (sell real estate; now that's a joke in itself), and had tried to get insurance, but it just was not affordable ($500.00+).
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Hello Ladies
Today is day 11 and still feelin good. Went to the Look Good Feel Better class yesterday and got a whole bunch of free stuff. Really nice make up and skin things. I really recommend it. I met some nice ladies and shared some ideas and places to go for things. I order some hats and scarfs fro the TLC catalog. They have reasonable prices.
Vickilynn- Hope you are doing ok. Loooking forward to hearing from you.
Neece-I hope you can find something to help with the arm pain. My upper arm is still alitte sore and pretty numb. I am lucky. When they do my blood work it is only a finger stick. They are only looking at RBC, WBC and platelets.
Ronniekay- I am sorry you are having so much anixety about your hair. Maybe just getting it over with may help. I THINK I am going to be okay when it falls out because I am getting buzzed on day 15 but I won't know until it happens.
Betty- Getting that scan canceled really sucks. There is no other way to say it. Keep fighting. I know now is not the time to have to deal with crap like filling out forms but please don't give up. I will keep you in my prayers.
To all you other wonderful sisters of mine- I am thinking of you everyday and look forward to hearing how you are doing. We are in this together and it makes it alittle easier.
THINK POSITIVE
chat with you soon
Catherine
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