under 40 with young children

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  • shiny
    shiny Member Posts: 892
    edited May 2008

    DRCRISC,

    Happy Birthday early!

    Beware re the "fashion hair" advice! My daughter asked me if they had "rainbow dash"  hair!..she was 4 1/2 though! My super sweet "wig man" actually tried to get me a pink and blue one, but they'd been discontinued. ahh shame.

    Still since I didn't end up wearing wigs, just little cotton hats,it was fine. She did enjoy choosing the best ones for me in the morning for the school run. It was nice to make her involved.

    Have a super birthday,soak all that adoration from your kids!

    All my best, shiny

  • nash
    nash Member Posts: 2,600
    edited May 2008

    Yes, Happy Birthday!

    On the hair front, just to give y'all a glimmer of what is to come, I finished chemo in December, started growing hair in earnest in February, and I'm happy to announce that I had to go in for a trim this past weekend. So, there is light at the end of the tunnel.

    Congrats on finishing chemo, Lorena! 

  • drcrisc
    drcrisc Member Posts: 836
    edited May 2008

    Thank you all for the sweet birthday wishes.  My mom had my little one sing to me on my voicemail at work today - sooo cute!  "Happy Birthday to your mama..."  I guess I should say it was a pretty good day, too!

    And a BIG "YAY" for you, Lorena!!

    I looked a little at wigs online last night and am leaning toward the "half" one for summer.  Still haven't bought any yet...

  • jillschmill
    jillschmill Member Posts: 1
    edited May 2008

    Hi there.  This is my first time on this board, but this is the group I'm looking for.  I'm 36 and was diagnosed with Stage II breast cancer a week ago.  I'll be starting chemo in less than two weeks, I'm sure.  I have a two-year-old little girl.  This is my big question... How do you explain this to a little one this little?  Of course I know we won't tell her the whole shebang, but she'll notice my hair soon and I don't want to scare her.  I'm thinking about cutting my hair very short in the next couple of days just to let her get used to that before it probably all goes away in a couple weeks.  Do you think that would help?  Any good books to read on handling this with toddlers?  Any advice is appreciated.  Thanks!

  • drcrisc
    drcrisc Member Posts: 836
    edited May 2008

    Hi Jill,

    I have a 2 daughters - 4 and 8 (almost 9).  I have told my 4 y.o. that "mama will have to take some medicine that will make me sick for awhile".  I have already cut my hair to about half the length it was and don't plan to tell her any more about that until it happens.  Small children have a very poor sense of time and so there's no reason to tell them about something that won't happen for 2 or more weeks.  And yes, there are some books you could get, but I can't remember where I saw them just now.  Try checking the American Cancer Society website - they should have something.  You might also want to check the "Chemotherapy" board to check in with a May or June group.  There seems to be one for the group starting each month.

  • formygirls
    formygirls Member Posts: 916
    edited May 2008

    Hi ladies,

    I post on the board but have never posted here. I am 36 with two girls 4 and 7 (just turned 7 on Sat). I told my girls I will be better on my 4 year old's birthday (Jan 2009) and will have some hair on older dd's 8th birthday in May. This way they know it is far away but mom will hopefully get better. We baked a cake just for fun last month and my 4 yr wanted everyone to pretend that she was five and her mom was better--it was so sweet. My older dd has started sleeping with old pictures of me under her pillow because she is forgetting how I looked with hair. She talks that mom may die to her friends and I am trying to reassure daily that I will be ok and also trying to not cry anymore in front of her.

    They love Hawaii--well who doen't--so I am trying to plan a trip for the family after my tx is over during Christmas. Hopefully I will be able to go. I am bummed that we have cancel all our summer trips and our camping vacation in Yellowstone bbecause of me. But they are such sweet, helpful kids and do not complain much and just brush it off saying--ok next year when you are better. I am finding the issues with my kids the most difficult part--more than chemo, hair everything. At least once a day I get overwhelmed by how much I love them, how cute they are, how little they are and I might not be there for them and I start crying.

  • KP1970
    KP1970 Member Posts: 192
    edited May 2008
    I was 36 when diagnosed in 10/06. My girls were 12, 7 and 3 at the time. It was extremely difficult taking care of my family while so sick from the chemo, but as one gal here said, you do what you have to do. I was fortunate that we live in a small town where everyone rallies around when something like this happens, and I was brought dinner for six weeks straight by neighbors!! :)
  • hazelfox36
    hazelfox36 Member Posts: 45
    edited May 2008

    I am 38 years old.  I was diagnosed with IDC stage 2b grade 3 on October 12, 2007. I just had a mastectomy(after 2 failed lumpectomies) on May 13th, 2008. I also had chemotherapy first.  I am married and have 4 children also.  It is really difficult to get through breast cancer to begin with, but having children that depend on you makes it more difficult. If you ever want to talk just let me know.

  • drcrisc
    drcrisc Member Posts: 836
    edited May 2008

    Jill - I just wanted to tell you that I went to my local office of the American Cancer Society and they ordered some children's books for me...free!  So go in and meet the ladies (or men, I guess) who volunteer.  They are super-nice (at least mine are) and I'm sure they will help you with whatever you need.  They also have free wigs, hats, etc.

    Kim - what great neighbors you have!  I got that for a week after my surgery and it was heaven!

  • drcrisc
    drcrisc Member Posts: 836
    edited May 2008

    O.K., this is the third thread I've posted this on, but I'm still mad about it and so I'm sorry if some of you are reading it AGAIN.  This really threw me tonight.  And it has nothing (directly) to do with bc.

    I just had a really bad neighbor experience. 

    The background:  My garage is detached and at the back of our property.  We sit on 1/3 of an acre and have a pretty long driveway down to the garage.  We have 3 structures on the property: the house, the garage and a 1000 sq. foot area we call "the shop".  The only grass is in the front and the girls ride bikes or play basketball in the back near the garage. There are 3 single family homes that have their backyards (which are quite small, really more like patios) up against the fence along our driveway.  The complainers live in the third house, closest to the garage.  Now we are not friends with these neighbors and she has complained about us/the girls being too loud (in our own backyard) before.

    The incident:  My girls and I were coming home at about 7:30 tonight.  They are young - 8 and 4. And the 4 y.o. is a screamer.  Screams when she's happy, sad, mad, whatever.  But she's four.  Anyway, I'm trying to get them to help me carry some stuff inside and she's fussing and runs to the front yard.  About 30 seconds later she comes screaming around to the back door (which is thirty feet from the garage) because she thinks there are mosquitos out.  At which point, she runs into the house.  I went back outside to get one last thing from the car and my neighbor comes out and asks me "Do they have to be so loud?"  So I apologized (she is loud, I'm not disputing that) and I said "They're girls - they play and sometimes they scream."  And he says "Well it goes through the whole house and our backyard is right here."  And this is my problem because...?

    Mind you, the girls are both in the house now and the whole time it took for us to get out of the car and into the house was not more than 5 minutes - at the most.  At 7:30 PM.  Not 10:00 PM or 6:00 AM.  But this was the kicker.  His wife then buts in and says "Well, if they scream like that again, I'm going to assume something's wrong and call the police."  OH NO YOU DIDN'T.  I could not believe she said that!   But that was just TOO much.  I started to say something, and she interrupted me and said it AGAIN!  WTH?!  So I said, "You do what you need to do but then you can explain to the police why you made a false call."  When one of them started to say something else I said, "You know what?  I don't need to deal with you - I have BREAST CANCER and I'm done."  And I walked into my house.  I am still mad!!  Yell

    The Rant:  Part of me wishes I had not said the part about bc 'cause I would have been just as mad before bc (don't mess with my kids!).  But that is the truth.  I'm done with people like that.  And I really wanted them to have some perspective about their idiotic complaint.  I don't care if it worked or not, it made me feel a little bit better.  "Go in your house and be thankful that's all you have to complain about!!"  And if they can't yell and be loud and be kids in their own yards ('cause I don't let 'em do it inside), where CAN they?!  Sheesh!!  No, SHUT UP!!!!

    I called my dh and he was upset also.  We agreed they have probably never had kids and have no clue what it's like.  Although I think he was a bit horrified at my bc comment.  Even the 8 y.o. said "I can't believe you said that."  She actually heard the whole conversation, so I'm glad that's all I said.  (a small lol)  It's a good thing I still have some Xanax.  This is just what I need 2 days before I start chemo...

    Thanks for listening, girls...especially if you listened more than once.  Tongue out

  • nash
    nash Member Posts: 2,600
    edited May 2008

    Oh jeez, Chistine--I hate neighbor problems, so I feel for you! How totally unreasonable of your neighbors. I resent people like that so much. I have put up with neighbor children running amok in my front yard and screaming bloody murder at midnight, I have listened to people's dogs yap for 8 hours straight, I have put up with my neighbors' stereo that sometimes is so loud that it drowns out my TV with the windows closed at 11:30 pm. So for someone to get upset that your 4 year old screamed for 2 seconds at 7:30 pm is really obnoxious.

  • drcrisc
    drcrisc Member Posts: 836
    edited May 2008

    Thanks, nash.  I've had all kinds of great suggestions (especially from the "bitch and moan" thread!) of what I/we could do to them.  We won't do any of them, but it helps to get it out! 

  • kelty
    kelty Member Posts: 80
    edited January 2009

    Just found this thread and wanted to join the group.  I just turned 35 and was diagnosed with IDC on 01/06/2009. I have a toddler daughter almost 3 ( my chemo will start around her birthday< i hope I have enough energy for her party, she's been so looking forward to this) and a baby boy who's almost 4 months now.  It's been really difficult but my family has been given me a lot of supports. This forum is also helpful because most people I met locally with BC are in their 50's or 60's.

  • samiam40
    samiam40 Member Posts: 416
    edited January 2009

    Hi everyone and kelty.  I'd like to join too although I'm 40 (not under 40).  I have 4 young children: 3, 5, 9 and 11.  I will be getting a bilat mx on 2/3/09.   I havn't even told my 3 or 5 year olds yet.  As a prior poster said, they have no sense of time, so I probably won't tell them until the day before I go for surgery.  Hope to get this thread going again!

  • mason204
    mason204 Member Posts: 570
    edited January 2009

    Wow, so many of us with young children.  Years ago, I found very little support for mom's with young children so I'm glad to see everyone bonding and helping each other out.  The medical advice and coping skills presented here by everyone are excellent.  I thought I'd take a different approach.

    5 years ago I was diagnosed with cancer and my girls were 4 and 7 years old.  I remember a very tough chemo experience and wondering if I'd make it home in time to pick up my youngest from kindergarten.  It was only half-day.  My youngest loved to jump on the bed and hug mommy hard especially after treatment and surgeries (ouch).  I remember very loud cartoons on TV and wanting to just bury my head and make the noise and pain go away.  Eventually it did pass.

    Well, 5 years later I'm still here, and my youngest is in Grade 4 and won a prestigious award at school.  She's a leader and a very bright, lovable child.  My oldest is now in Grade 7 and I deal with issues like boys coming over to the house, loud music and an interest in shopping at the mall.  My girls are the joy in my life.  I've been through a lot of treatment but it's been worth it just to see my children growing up.

    What I found helpful was: a) keeping routines as regular as possible when you're not feeling well - e.g. getting ready for school, participation in clubs, dinner, bedtime, etc.  My girls thrived on this.  b) have your children speak with a therapist or join a support group for children such as Gilda's Club and be honest about your situation c) keep visitors to a minimum when you're ill - I had so many suppport people coming over every day that it "freaked" my kids when they were young

    Things may seem tough but you'll get through it.  Try not to stress too much about the small stuff.  I worried day and night about the impact losing my hair would have on my children and, years later, my youngest didn't even remember that I had lost hair.

  • traci1970
    traci1970 Member Posts: 109
    edited January 2009

    I just found this and it would be nice to talk to others with the same concerns I have.  I have held on to my faith and tried to remain positive but I still have those days that I cry all the way home from radiation because I am afraid. (it's only two miles haha).  I have 3 girls. 21,15 and 18 months.  I want to dance at their weddings and hold my grandchildren.  All of them.  I want my 18 month old to know how much her mommy loves her and know who I am.  I don't think why me, I think Why NOT me but damn it WHY ME?  I hope that makes sense.  Well, I am off to dance with my youngest.  She is dancing to the mucic of the weather channel.  :) 

    kelty, sammi and mason...You are all in my prayers!  Traci 

  • lovinmomma
    lovinmomma Member Posts: 1,879
    edited January 2009

    Hi there!  I am just a bit off the 40 (I was diagnoses at age 41) and I have 7 kids. They range in age from 18 to 5. It is hard to think that they will grow up with out me.  I am planning on watching all my kids graduate, get married and see grandkids.  God may have other plans.

    My kids (esp my 9,8, 6 and 5 yo) love my lack of  hair. They actually helped shave my head when my hair was falling out. They love to paint my head with lotion and a paint brush (this can keep them busy for hours!!!!) and it feels good to me also!!

  • 9999Carmen
    9999Carmen Member Posts: 5
    edited January 2009

    I´m recently diagnosed at the age of 27. I have e children, 9, 6 and 4.

    I´m in the menopause now - hysterectomy with bilateral oophorectomy 10/2007

  • lexislove
    lexislove Member Posts: 2,645
    edited January 2009

    HI Carmen,

    You are very young.I see that you had a first diagnosis in 2000. Do you have a strong history of Breast Cancer in your family?

    I was 30 when diagnosed and have finished all my treatment.I'm on Tamoxifen now with Lupron shots.

  • meganandrileysmom
    meganandrileysmom Member Posts: 17
    edited August 2009

    Hi, everyone. I hope that someone can give me some insight.  I am having a bilateral skin-sparing mastectomy with immediate reconstruction (tissue expanders/implants) on September 10.  I have had two previous surgeries (a lumpectomy and a re-excision).  Although I am surgically "clear", I have made this hard decision after 3 months of deliberation.  I just found out that I don't have to have chemo based on the oncotype dx test.  I know how very lucky I am.  However, I am on several clinical trials to improve my odds, so to speak, over just tamoxifen.  The meds have made me have insance mood swings (one of the trials shuts down the ovaries and induces menopause).

    I have 2 girls -  2 1/2 and almost 5.  I have used the words "breast cancer" and have told them about the other two surgeries.  My mom has come each time, so I think they may think all this is a good thing (which I don't mind).

     I really want to know what to tell the kids about the mood swings (if anything) and what to tell them about the surgery (the fact that I won't have breasts for a while, the fact I will be in the hospital at least overnight, the fact that I can't physically care for them for a few weeks).  I also want to know whether to send my 5 year old off to school on the 10th.  It will only be her second week of kindergarten (but she is in the same building and with the same teacher and kids that she has been in daycare with for the past 4 years.) I find that the social worker and child psychologist to whom I have spoken aren't that helpful. 

     I see that some of you out there have or had kids this young when going through the surgeries.  Any thoughts, advice, etc. about how to talk to such young kids?

    Thank you so much!

  • Orlandogator
    Orlandogator Member Posts: 14
    edited September 2009

    Hi All -

     I am new to this board - I am 37 years old and was diagnosed last November.  I had a uni lateral mastectomy, chemo and radiation and currently finishing up Herceptin only until January.  I am also on Tamoxifen.  I have two little girls 4 and 6 and would love to help you gals out!

    Glad I found this board!

    Diane

  • badbabe56
    badbabe56 Member Posts: 46
    edited September 2009

    Goodmorning to all above, I felt compelled to type this morning, I use to be in chat a lot and was drawn to young mothers, because I too had had bc when I was 33 and had a 6 week old baby. I want to share my story with you all to offer hope. I am now 53 in Feb it will be 20 years since my fight with bc. Three years after my mast/chemo/recon I went on to be blessed to fall pregnant again. I have two girls that I pray for daily. I didn't do anything perfectly by the book, I just wanted to live, to be there for so many wonderful times I have had since my bc. I stand strong in telling whoever wishes to listen (I am a survivor) and feel blessed for every day since my diagnosis. It was tiring, sickening etc that first year, but believe that the treatments you're receiving is killing that ugly disease, be strong in not dwelling in having cancer, but in fighting to beat it, and having a blessed life after treatments, hugs and prayers to you all kathy (badbabe56)

  • Orlandogator
    Orlandogator Member Posts: 14
    edited September 2009

    Badbabe56 -

    Thank you so much for posting your wonderful story - it is so encouraging to hear positive stories!! Hugs to you:)

  • Khyman95
    Khyman95 Member Posts: 4
    edited September 2009

    Badbabe56 -

     I thank you also for your encouragement. I don't post often, but have recently been obsessing over details from my diagnosis and treatment which started in Feb. 2007 and ended in March of 2008.  Definitely helps me take a breath and work on moving on!Laughing

  • flowerpetal
    flowerpetal Member Posts: 35
    edited February 2010

    hello.

    here are some books which can help explain and share with young children.  Even if you only read them for yourself and pick some thoughts to share with your children.  I hope these are helpful.  My daughter was in pre-school/kindergarten. 

    When Mommy Had a Mastectomy deals with the surgery aspect of breast cancer treatment. http://www.ngreenfield.com/mommy/index.html

    a good review

    http://www.epinions.com/review/When_Mommy_Had_a_Mastectomy_no_author_listed/content_335175847556

    and this one  about chemo-  Butterfly Kisses and Wishes on Wings: When someone you love has cancer...a hopeful, helpful book for kids - very good

    http://www.amazon.com/Butterfly-Kisses-Wishes-Wings-cancer/dp/1424310563/ref=pd_sim_b_1

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