Moody/Karens daughter Olivia

Karen - Here's hoping that the REFLUX is the answer! I am so hopeful for you all! Take care. - Jean

Prayers that this path is the one which will make a difference & return Olivia to herself.

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Great News!!  Hopefully she will start feeling better within a few days of medications.  The power of prayer is amazing.  We will keep praying!

Sunandsandgirl 

Karen,

I am sooooo happy you finally got some sort of dx and treatment. I hope this helps our Olivia to feel better very quickly! 

Continued prayers for all of you!!

Lisa

Karen,

 I am so happy you are finally on to something, praying the med's do the trick and ths will be all behind you.

Valerie

Sure hope you can cancel the Wake Forrest appointment in May!  I pray the two new meds help lots.

Fingers crossed and still saying prayers for Olivia.

Love the pic... Still believing with you on this being the answer. God has given you two a special path to take and grow more faith. God bless you all.

Karen - The picture of Olivia is just so sweet! We are there w/ you both!!!!!!!!!!!!!!

Karen - Hope Olivia is doing better this morning. I've been following this thread and praying for both of you during this time. I love her picture!!! How is the ginger working? A suggestion just came to me this morning - and it may have already been suggested or tried. Can you get a big wedge pillow or several bed pillows for Olivia to sleep on at night? Or put wood blocks under the top of the bed to elevate the whole top of the bed? Or let her sleep in a recliner? This helps keep the acid from coming up higher in her stomach and may help the night-time nausea. I'm guessing you have her take the Regaln and/or Nexium at night, or close to bedtime to decrease the acid production during the night? We'll keep praying!

Thanks as always Ladies!  You all are such a blessing to us every day!

I won't get this in order, but here are some responses to above suggestions.

She is sleeping in an elevated position.  Pretty much has most of her life because it helps to keep her nose from stopping up at night.  (she gets that from me )

I did get her some ginger root to take.  She took one, and swore it made her more nauseated (this WAS totally mental, but what do ya do)

We are def keeping appointment at Wake Forrest.  In fact, I called them a little while ago to finish registering and asked to be put on a "cancellation" list, to hopefully get in quicker.

So here is where we are ...... 

She is been a little worse since going to the doc on Wednesday.  But here is the problem. 

1.  She has been working with her "homebound" teacher this week getting caught up in school and has a ways to go (she has been out 6 weeks)

2.  I told her teacher that she was gonna have to go back to school on Tuesday b/c her homebound expires.

3.  She started new meds

I dont know which is causing her to be worse, I am betting a combo of all three.  I beleive she is SO afraid of throwing up at school that it makes her anxious, making her feel worse.

But again, it hits her the worst at night, in the middle of the night.  So NONE of it makes sense!!!  She had us up at 4:30 am today.  Every single solitary night, she wakes me up b/c she feels so bad.

eerrrrrrr

oh crud.

here i was signing on to hopefully join in on some merriment & happy dancing.

you're certainly one step forward and one back again.

i am so sorry that the progress has been so slow, so horrendously slow.... can't spell it, but i don't want to swear. *^()*)(*@)#(%&(^_)*(&)#($&#@#!()%*)(!!

everything i can think of sounds like such an empty platitude, as i attempt to think of what on earth to say.

all i can come up with:

prayers and more prayers.

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Karen, I am so sorry for all of you!  I hope you all can get a good & restful night's sleep tonight!

Continued prayers coming from me too. 

Karen,

Hoping you start getting more rest.  This has been such a long ordeal for you and Olivia and your family.  I am with the other gals - keep the other appointment.  It can't hurt to have a second, third, fourth opinion.  I'm so sorry you are going through this and wish there were an easier fix.  You must feel like Job at times!  He just kept on trusting.  Sometimes the darkest hour is right before dawn!  Keep the faith.

Karen - I got this off the web: 

Symptoms indicative of Reflux Disease or GERD:

• refusing food or accepting only a few bites despite being hungry or the exact opposite requiring constant small meals or liquid
• food/oral aversions
• anemia
• excessive drooling
• running nose, sinus infections
• swallowing problems, gagging, choking
• chronic hoarse voice
• frequent red, sore throat without infection present
• apnea
• chronic ear infections
• respiratory problems-pneumonia, bronchitis, wheezing, asthma, night-time cough, aspiration
• gagging themselves with their fingers or fist (sign of esophagitis)
• poor weight gain, weight loss, failure to thrive
• erosion of dental enamel
• neck arching (Sandifer's Syndrome)
• bad breath