March 2009 Rads Group?

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TorchSong
TorchSong Member Posts: 348
edited June 2014 in Radiation Therapy - Before, During, and After

I haven't seen a group posted yet, so I figured I'd go ahead and start it.

I have my last chemo in a couple of days, then start rads probably th second week of March (don't have the date yet). I've done the simulation and have the tattoos--all set there. They're planning 45 doses (f5X/week X 7 weeks) of which five will be boosts.

Who else is on this train? 

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  • Brenny
    Brenny Member Posts: 116
    edited February 2009

    Here's my ticket....

    Just been waiting for a group -- I finished chemo on 2/4 and am scheduled for rad simulation on 2/27.  Not sure, but I think 33 doses (don't trust my memory from pre-chemo visit) and starting probably second week of March also (depending on the simulation,etc). Got a couple camisoles, some big baggy expendable t-shirts, some Jean Cream and oil (E?).  Plan to work from home during treatments.

                       All Aboard!!

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  • BooBee
    BooBee Member Posts: 860
    edited February 2009

    Just checking in.  Will be starting end of March. 

    Renee

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2009

    I'm scheduled for my set up on March 11...hopefully starting shortly after that. 

    I'm Robin, BTW....I'm coming from the Chemo Sept 08 group.

    Nice to "meet" you! 

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  • nelia48
    nelia48 Member Posts: 539
    edited February 2009

    I'm on board!!!!  Finished my chemo in December, had my mastectomy in January, and have my appointment with the radiologist today, so I'll be starting probably next week.  Don't know yet how many or how long.  I'll find out today, I guess.  Had a PET scan yesterday.  Anxious to find out the results of that.  My mastectomy revealed 5 out of 15 nodes cancerous, also a mass that was wrapped around one of the shoulder nerves.  Surgeon had to cut the nerve, so having trouble with my arm.  Dreading the radiation more than any of the past stuff!!!!  Just tired of it all, I guess!

    Cora

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  • bluedasher
    bluedasher Member Posts: 1,203
    edited February 2009

    Thanks for starting the group. I'm on board too. I'm scheduled for simulation on March 5. At that point I expect to find out whether I'm in for 6 weeks or whether a 3 week course might be suitable for my situation. I expect to start radiation around March 16.



    I had my last chemo last week and am still recovering from that. I'll continue Herceptin through and past radiation.

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  • dianef
    dianef Member Posts: 54
    edited February 2009

    Hi Ladies,

    I had my simulation today and all went well.  I will start treatment in a couple of weeks.  33 treatments.

    ReneeS --I see you have site on Caringbridge...I will  go visit.  My friend set up one for me.  It has been awesome for keeping family and friend up to date.

    Diane

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  • sgrimes
    sgrimes Member Posts: 28
    edited February 2009

    I am in too - finished chemo on 1/30, and have my simulation tomorrow.  Should start the first week of March.  I have a question for you all - my onc wants me to start tamoxifen now, but the rad onc wants me to wait til after rads.  what are other folks doing?  Samantha

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  • nelia48
    nelia48 Member Posts: 539
    edited February 2009

    I went for my first consult with the radiologist today and have my simulation tomorrow.  I'm taking Arimidex now, Samantha, and he didn't say anything pro or con about taking that.   

     This guy wants to do hyperthermia along with the radiation.  It means that they heat the skin up before radiating.  Since my tumor had spread and broken through the skin, he feels that the skin needs a lot of the treatment to prevent cancer returning there.  Has anyone heard of this treatment and the effects of this?  Cora

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  • LadyB
    LadyB Member Posts: 9
    edited February 2009

    I'd like to join your group.  I had my consult yesterday and I'm waiting to get my next appt.  I'll be having 28 sessions.

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  • LadyB
    LadyB Member Posts: 9
    edited February 2009

    My oncologist plans to start me on Arimidex after radiation. 

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  • TorchSong
    TorchSong Member Posts: 348
    edited February 2009

    Hello LadyB! Welcome aboard!

    I'm not sure exactly when I will start, either--hopefully the 9th or so. Supposed to hear next week.

    You and I seem on somewhat the same timeline--I was diagnosed and had surgery in Sept, started chemo in Nov, and here we are with rads in March... Worst winter of my life so far, I have to say...

    But we've got a gret group here and we will get through this together!

    Hugs

    martha 

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  • LadyB
    LadyB Member Posts: 9
    edited February 2009

    Martha,

    I couldn't agree with you more.  It has been a rough winter.  We will be a good team.  I'm ready - just want to get through this.  Glad to be part of the group!

    Susan

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  • dianef
    dianef Member Posts: 54
    edited February 2009

    Hi Ladies,

    I had my stimulation and looks like I will be having 33 treatments. 28 regular & 5 booster.  Was anyone told not to wear deodorant during treatment?

    Diane

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  • TorchSong
    TorchSong Member Posts: 348
    edited February 2009

    Diane--Yes, I was told that--also only certain lotions. It has something to do with the aluminum chloride (in teh deoderant) and the alcohol in the lotions (dries the skin more). There are some deoderants with a pink ribbon on the package that are supposed to be OK. I'm thinking about just going for the crystal ones.

    Anyone told specific brands? I think Tom's is one....

    Martha 

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  • thegoodfight
    thegoodfight Member Posts: 560
    edited February 2009

    LadyB,

    You gave me a chuckle about the rough winter since I see you are from St. Petersburg.  I am only laughing because I am much further south in Florida (Estero, between Naples and Ft. Myers) and I agree,we have had a rough winter....................for us.  I know our midwest and Canadian sisters are probably laughing hard enough to wet their pants.  But you and I know what we are talking about.  If it isn't in the high 70's I get chilled.Wink   And this bald noggin hasn't helped.

    Caren

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2009

    I've been using thost Thai deodorant stones for years...When I had my consult, I received one then, too... no aluminum in it at all

    http://www.pure-earth.com/deodorant.htm 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2009

    I'm on board too. Just waiting for a fluid drainage problem from January surgery to resolve. Setup is first week of March. Proposed 33 treatments. I have signed all the papers about the side effects. Also bought some super-loose camis to wear next to my skin.

    Hoping for not too much redness as my wedding is on March 28. My dress should cover most of it. 

    Bette 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2009

    A Wedding!! Congratulations!!! 

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  • TorchSong
    TorchSong Member Posts: 348
    edited February 2009

    Hi all--boy is my face red Can't do math--five times seven is 35, not 45... Can I blame it on chemo brain? lol

    So I'm having 35 rads, five of which are boosters...makes much more sense!

    Congrats on the wedding Bette--whoo hoo! Wha a wonderful thing to look forward to! 

    Hugs to all

    Martha

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  • Mary22
    Mary22 Member Posts: 779
    edited February 2009

    I og for my simulation on Feb 27, then start rad on March 3.

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  • BooBee
    BooBee Member Posts: 860
    edited February 2009

    Bette.  YEPPY!!!!!!   I trust you will share all the details with us?  I'm so exited for you.  We need lots and lots of happy around here so please share all the details.

    Welcome everyone.  I forgot to add this to my favorites so I didn't know we had company.

    I plan on using my left over vit E oil from surgery.  Any thoughts on that? 

    Big red hugs to all.

    Renee

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  • sgrimes
    sgrimes Member Posts: 28
    edited February 2009

    whew - had my simulation on friday, and am starting tues the 24th.  a little quicker that i thought!  i have 33 sessions planned.  went shopping today for aquaphor, corn starch, and aloe gel.  i am really hoping to keep my life as normal as possible - chemo wasn't too rough on me, so i kind of feel like radiation is going to kick my butt.  i also have a pretty bad cold, with total laryngitis.  will this have any effect on starting rads?  i know i always had to let the onc know if i was sick at all - not sure about rad onc. 

    also, how the heck do i get my dx info as a signature?  i am not so good at computer stuff!

    sam 

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  • BooBee
    BooBee Member Posts: 860
    edited February 2009

    Go to the tab at the top of the page that reads My Home and click on Edit My Profile.  Correct me if I'm wrong ladies but unless your blood counts are low you should be okay starting on the rads.

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  • woorus
    woorus Member Posts: 21
    edited February 2009

    Hi

    I'm on board too. I had my last taxol on 11 Feb. Will get marked up this friday 27th and first session 5 March for 25 times.

    Bette: Congratulations on your wedding. Wonderful news to hear!

    Sam: go to My Preferences at the top right hand corner of the screen and fill in your dx info. I think they will then prompt u to ask if you want it to appear as your signature. (ps. I am Samantha too!)

    I have been on the Chemo Sept board, although I am one of the quieter members. They have become a comforting part of my journey, just like I know you all will be.

    Sam (singapore)

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  • mricha02
    mricha02 Member Posts: 12
    edited February 2009

    I go for my planning/consult for radiation therapy (TR) on 2/26/09.  Finished chemo on 2/9/09: 4 rounds of A/C and 4 rounds of Taxol.  Had modified radical mastectomy of right breast.  3/22 nodes and the final pathlogy report showed quite a bit of cancer action at 12 o'clock and 3 o'clock of the DCIS, IDC and lobular variety.  So that's why they want to do rads.  I'm flat as a board and can't imagine how they do it.  Of course, this seems like the worst of the treatments in the sense of being struck by lightening EVERY DAY  for however long. Worried about side effects.  went back to work in late September after a late Auguest surgery and made it nearly to Christmas.  Went on medical leave in January (through March) and imagine I will need to extend it through the radiation.  I am so busy with 3 school age children (5,8,13) and newly retired husband (62) that it has hit me like a ton of bricks that I cannot do everything anymore and I do not WANT to do everything.  I have been home here teaching and training this household how to pitch in their reasonable share of householding.  They are learning and it's making us closer as a family.  I would like to be in the March rads group. I've been a silent onlooker since my diagnosis on 8/5/08.  I am 49 years old.

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  • Juli50
    Juli50 Member Posts: 859
    edited February 2009

    Sam (Singapore) & Robin - Good to see you here. I am meeting with a radiologist on Wednesday, so this is the group for me!

    For everyone else, nice to meet you all! Turns out my last Taxol was 1/30. I only did 8 out of 12 because the neuropathy was too bad.

    Hugs! Kiss

    Juli

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2009

    Disappointing news. I have to have another surgical drain placed tomorrow, so my 3/4 simulation is off. I am on hold with rads until the drain comes out.

    Bette 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2009

    Awwww CRAP, BetteLou! I'm so sorry to hear that! I'm hoping that it won't put a hitch in your wedding plans! 

    Hiya Woorus! Good to see you again! (That sounded really weird in my head!)

    Hugs to Juli...girl...  you've been through enough! You AND Genia! I love ya! 

    Hiya mricha02! Welcome!

    Welcome to all of us!

    Robin 

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  • TorchSong
    TorchSong Member Posts: 348
    edited February 2009

    Welcome everyone!Good to have you on board!

    Bette, that just SUCKS! I am so sorry!

    I now have my start date--March 16. I wanted it to be the week before, but oh well. I should finsih the 17th of April or so, given holidays (Good Friday is a holday in Canada and the clinic will be closed...I think there's one in March as well). 

    The train's getting up steam!

    Hugs to all--

    martha

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  • sgrimes
    sgrimes Member Posts: 28
    edited February 2009

    it's good to meet you all - will see if i can get the dx part to work.

    juli, i also finished taxol on 1/30 - i did 11/12 b/c my mouth sores were too bad!

    bette - so sorry you have to have another drain - those are not fun at all, i know.

    hello to the other sam!

    my first rad day is tomorrow - don't know what my levels are, no one has looked at them since 2/5.  i know my onc had said they don't like you to start til your levels are up, but didn't check them again, and the rad onc didn't mention it at all.  should i say anything tomorrow?  or just jump in and get this thing started?

     would also like to try to post a pic - i love seeing all yours.  will work on that tonight, too!

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