Moody/Karens daughter Olivia

Home at last!!  Praying for continued improvement. 

Jumping with joy.

Well they say they are confident it was severe gastritis that lead to inflamation of her stomach lining..........I am going to continue to research and make some phone calls.  I still think it she has a form of gastric dysrythmia.  Time will tell I suppose.  She has had 3 "Boost" drinks today so that is awesome, her doc wanted her to get that many in her.  Yeah!

I probably forgot to tell you........LOL

Thank you for starting this thread.  Even in her sickest moments, she would smile when I would read posts to her or show her the great pictures everyone has posted here.  I would tell her how many views and how many posts were on here and she would just have the sweetest look on her weak little face.

I am not sure that everyone here can ever truly understand the role you all have played in her healing and continued recovery.  And I know I could never ever express my sincerest and deepest gratitude.  All I can do is promise to continue to "pay it forward"!  I pray God's biggest blessings on everyone!

Oh Karen, you must check with the hospital.  I sent Olivia a package and it was priority mail.  I believe I mailed it Monday.  I would have for it to be returned to me because I want your daughter to have it.  That and it took me forever to find the perfect thing for her so please check with them.

I am so glad Olivia is home and seeming to do well.  I know you all are so excited as I world be!  This is just excellent news and you would be surprised at how many people I had praying for her!

Karen, I am so happy to hear that Olivia is safe at home. I sent my DD this whole thread to read, AFTER we had good news. I wanted her to see what your struggles were and to be forewarned. You were so brave and determined~~~in an environment that should have been more helpful right from the start.

Karen of the retrievers: How cute are they??? The Golden winner at Westminster has nothing on your guys!!

Hugs, everybody!!

Karen,  I will continue to pray for your family's healing.  I feel that all of us here were truly a part of a miracle.  Thank you so much for letting us be a part of it and sharing all the details with us.  Something like this, as bad as it is for your family, does help others reaffirm their faith.  God was working through you & your darling daughter to reach out to others.  If there is anything we can do to help, you know we are here for you & can hop a plane & be there in a few hours.  Thanks for everything!  Joyce

Prayers for continue progress in the right direction.

Yeah, Angels-of-Mercy!!

Whooooooooooooooohooooooooooooooooooooo!!!!!!!!!!!!!!!!!!!!

xx00xx00xx00xx00xx00xx00xx

Karen,

Hood said it, we were all part of a miracle.  And it did reaffirm our faith.  I told my bible study group that I feel so blessed to have experienced a miracle by God..... I just can't imagine how you feel.......

God's mercy was shown to all of us.  I thank Him for that.

Thank you for being here (not having the cancer) but God put you here for a reason.  I truly believe we all go through rough times to make us stronger in our faith and then God uses us to help others.....You have helped many many people.....

Bless you and your family

Karen/Olivia - You are home!!!! Thank goodness. Continue to get stronger my dear!!!!!!!!!!!! We all love you both!!! - Jean

LuAnnH  Thanks for sending her the package.  When I read your post I stopped immediately and called the hospital.  They told me that they forward all mail/packages/etc to patients homes once they have been released.  I will let you know when she receives it.  It may take a while as something has been going on with the postoffice lately. 

Karen, We LOVE the goldies!  They are sooo precious thanks for sharing them!

Sharon, you and springtime said it all!  We are jumping for joy as there is no place like home!!

Hood1980, I KNOW I witnessed a miracle last saturday morning at 3:45am.  I am so glad I was able to share it with so many people.  I do beleive that everyone seeing how bad she was, truly understood just how miraculuos it was. When her pediatrician came in to see her monday (he was off over the weekend) he was astounded by the feeding tube story.  He said he had never in all his time had a child pull a tube all the way out unless they were awake and doing it on purpose, even then they always threw-up from the tube coming up through the esophagus.

So here is a synopsis to our trip home.  I am posting it because I need to hear what you guys think about this.  I am trying to stay "open minded" but I am mom, and that it a bit difficult--LOL

As I had mentioned many times over the week, motions were contributing to her nausea.  Car rides were the WORST, then in the hospital, the wheel chair or rolling on a stretcher was really bad too.  In fact for one of her tests, my hubby and I alternated carrying her as the motion from the wheel chair was excrutiating for her.

This too got better on Sunday and by Monday, she was wheeling herself all over the place and doing good.

So she said to me on Monday night that she was feeling a bit anxious about the car ride home and was afraid she would get nauseaous due to anxiety. The good news is she is able to recognize the difference between reasons for feeling sick (which they wouldn't beleive me about this either...) Anyway, I told her doc her fears and he ordered her a small dose of Ativan to counter the anxiety.

We left the hospital and she was very anxious and saying she couldn't make it. Well I talked her through it and had her doing deep breathing etc. We did make it (obviously) and for the middle 20 minutes of the trip she did GREAT at keeping her self calm and distracted. However the last 10 minutes she was really, really anxious and nauseated.

We got home and her dad was suppose to go pick up her best friend to come stay with her yesterday. She wanted to go soooo bad with him, but said "I cant, the motion still makes me sick". So her dad went by himself and brought her friend back to the house.

So if it had just been anxiety about the trip home, I can understand that, but the fact that she wanted to go sooo bad to get her friend, and couldnt makes me wonder if there is still an underlying cause of this. I see it as being 50/50 either way and am at a loss as to what I should do. The head neuro in Gainesville has requested to see her MRI and report and I am dropping these off on Friday. But I am sure you all can understand my uncertainty.

She did real good with her dietary intake yesterday, not a lot at one time, but spread out over the day. Last night she had some nausea again. Nothing compared to last two weeks and the meds worked great. But she is still getting it about 1 - 2 hours after eating. Again 50% of me says this too shall pass, the other 50% says the problem is still there. They never gave me an "official" dx, only an "educated" guess. I know it isn't a fear of food or eating causing it as she loves her food.

I know that since you all don't know her personally it may be hard to give me your opinion. But all are welcome! I am pretty sure I am going to contact the physician at Wake Forrest who has been studying "Neuromuscular disorders of the stomach".

Love and hugs to everyone here, posters, readers, and lurkers alike!!

Stupid question on my part?  Was she checked for any problems with her ears?  Is it possible that she is really having more than one problem and they are combining to create her situation?  What if she had a bad ear infection which cause dizziness which caused nausea which then caused the horrible gastritis?  At that point, she had more serious issues than an ear infection, but could that have been the start of it all?  I know I haven't posted here before, but I have been reading along and am so happy she's home, but it does sound like there's still something going on.  My interest was also piqued because I have Crohn's disease and some of the symptoms seemed similar to that.

I really hope you get answers soon. 

Karen and Olivia - so happy you are home!  I am sure this was a very scary time for both of you and the rest of your family.  You had so many  prayers from all the wonderful folks on this site and I am so happy they were comforting to you. 

Praise God from whom all blessings flow!!!!!

What wonderful news - Olivia is home! 

I can only imagine the terror which went through your hearts during the crisis, but our God brought you through the fire - victorious!

Hallelujah!!!

Thinking of you all tonight, sweet dreams