Any Northern Virginia ladies on this discussion board?

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  • lastminuteD
    lastminuteD Member Posts: 333
    edited January 2009

    MMMMMMMMMMMMMMMMm, Olive Garden!! 

    What Bonnie?  No "pizza"  at the food court this time!!??  hahahahaha

    Totally agree, Olive Garden sounds yummy!

    Nancy - right across the street!!  We can make a caravan!!  Good idea with the pink table cloth again - I am guessing everyone will be sporting a new "do" of one length or another so it will definitely help!

    Saw my oncologist today - don't have to see her for six months!! woo hoo!!  This will be the longest stretch since this crap started 37 months ago!!

    Having tendon release surgery on my right wrist on the 12th - can't wait till it's over and healed so I can use my hand without it hurting!  Maybe I can finally get my Tigger bowling ball finger holes drilled!! Undecided 

    After I get through with that I will be heading back to my ps - time to get my implant replaced!  Capsular Contracture is not very comfortable!! Yell  Guess that means no bowling till AFTER!!!

    Be careful in the snow everyone!

    Dawn

    REMINDER:  Saturday, Feb 7, noon at Tyson's Corner Center, Website:  ShopTysons.com

    Upper Food Court, near the movie theaters.  

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  • GramE
    GramE Member Posts: 5,056
    edited January 2009

    Bumping:

    Saturday, Feb 7, noon.   Upper Food Court at Tysons Corner Center.   ShopTysons.com

    Look for the pink tablecloth. 

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  • sandysherby
    sandysherby Member Posts: 31
    edited January 2009

    Hi

    I'm in Richmond and I just found this thread. I'm having a left skin sparing mx with DIEP reconstruction at Georgetown on Monday, Feb. 2nd. This is delayed recon, original partial mx with chemo and rads in 2001.

    My breast surgeon is Dr. Cocilovo and Dr. Nahabedian is my ps. I read where someone used Cocilovo and really liked her. Both doctors have been very nice. Anyone have recon with Nahabedian?

    I've never been to this hospital. Any tips you'd like to pass along. I'm going to request a private room in ICU, but don't know if I'll get it. How about the nurses?

    I'm nervous but ready to go!

    Andrea

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  • GramE
    GramE Member Posts: 5,056
    edited January 2009

    Hi Andrea, welcome.  I had a lump and SNB, no overnight stay at Georgetown.  Cosilovo is a very no nonsense doctor.  She would not allow me to tape record our appointments, although I live alone and had no one to accompany me to appointments.   But she will take all the time you need for questions and she runs a very tight "ship" when it comes time for surgery.   Good luck with your surgery and keep us posted.  Ask questions and check other threads for your specific questions.

    Nancy 

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  • GramE
    GramE Member Posts: 5,056
    edited January 2009

    Bump.   Please join us Saturday, Feb 7 at Tyson's corner center, Noon.  Upper Food Court,near the movie theaters - look for the pink table cloth.   

    Let's organize some fun events, like flea markets, street fairs, and form new friendships.  Bring your ideas.  

     Nancy  

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  • GramE
    GramE Member Posts: 5,056
    edited January 2009

    bump

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  • GramE
    GramE Member Posts: 5,056
    edited February 2009

    Bumping this to the top.

    Saturday, Feb 7, Tysons corner mall. Noon,   Upper food court near the movie theaters.  

    Can we get a count of who may be coming?     

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  • GramE
    GramE Member Posts: 5,056
    edited February 2009

    bump

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  • BrandonMom
    BrandonMom Member Posts: 412
    edited February 2009

    Is Olive Garden confirmed?  If so, why don't we just meet there? 

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  • GramE
    GramE Member Posts: 5,056
    edited February 2009

    Changing the subject:  August is a PINKSTOCK gathering in up state New York.  Maybe we can car poor, get a caravan going, or whatever.  Looks and sounds like a blast.

    http://community.breastcancer.org/forum/34/topic/726628?page=2#idx_44 

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  • GramE
    GramE Member Posts: 5,056
    edited February 2009

    oops, should be "car pool"...

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  • GramE
    GramE Member Posts: 5,056
    edited February 2009

    Bumping:

    Let's vote on location:   How many want the Mall?

    How many want Olive Garden, just across the highway?

     The weather looks good for Saturday -  partly sunny and 50 degrees. 

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  • BrandonMom
    BrandonMom Member Posts: 412
    edited February 2009

    I vote for just meeting at the Olive Garden.  Haven't heard about Pinkstock. Maybe we can talk about it more there.

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  • GramE
    GramE Member Posts: 5,056
    edited February 2009

    bumping:

     We need a vote:   Olive Garden or the mall?   same time ( noon ) ??? 

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  • bethr
    bethr Member Posts: 259
    edited February 2009

    Hi all you No. Va ladies.  I'm not in Northern Virginia, I'm in Upper Marlboro, MD.  But, I'm currently working in Reston (approx. 1 hour commute).  My job puts me on projects throughout the Metro DC area and right now that's where I'll be for what should be a pretty long time.

    I just had my surgery yesterday (partial masectomy on left, the removal of a couple of atypias on the right, on a sentinal node biopsy on the left).  My tumor was approx 3cm and will definitely be going through chemo and radiation. 

    Considering my commute, I'm concerned about the chemo and radiation.  I know I'll have to wait and see how it affects me since it can different for everyone, but was hoping some you might have some insight.

     I'd also like to say it's comforting to see so many of you banning together.  I've tried to find out about more people in the Southern Maryland area, but only got one response.  I'm hoping for more.

    Anyway, any helpful information is much appreciated.

    Thanks the my best wishes and prayers go out to all of you!

     Beth

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  • GramE
    GramE Member Posts: 5,056
    edited February 2009

    Since there has been little response, I am canceling Saturday.   Tomorrow (Thursday) is a busy day and Friday is looking the same.  I will try to bump this up on the Active Topics list, as I am able.  Please pass the word around -- Saturday is canceled.

     Nancy 

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  • GramE
    GramE Member Posts: 5,056
    edited February 2009

    bumping

    Feb 7 is Cancelled 

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  • GramE
    GramE Member Posts: 5,056
    edited February 2009

    BUMP

    NO Meet up on Saturday Feb 7

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  • GramE
    GramE Member Posts: 5,056
    edited February 2009

    bumping again"

    NO Sat, 2/7 meet up 

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  • GramE
    GramE Member Posts: 5,056
    edited February 2009

    bump

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  • BrandonMom
    BrandonMom Member Posts: 412
    edited February 2009

    Beth,

    What chemo will you be having?  Some makes you more tired that others.

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  • maxgirl
    maxgirl Member Posts: 407
    edited February 2009

    There you guys are.  A few of us were posting on the Get-Together board, and the link to this thread wasn't working for me, so I couldn't find you.  Oh, well.  We had 2 yes's and a maybe for today, but I guess if no one else is going to be there...

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  • bethr
    bethr Member Posts: 259
    edited February 2009

    BrandonMom,

    Honestly, I don't know yet.  I had my first visit with my oncologist a couple of months ago and that was put on hold since I went for a second opinion.  I meet with him again on the 13th.  The only think I know right now is that they will be monthly treatments with a supplement for white blood cells.  I can get more info when I meet with him.

    Thanks so much for the reply.

    Beth

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  • GramE
    GramE Member Posts: 5,056
    edited February 2009

    I am curious Beth, what kind of treatment is once a month?  I have Herceptin every 3 weeks.  Are you Her2 +?

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  • bethr
    bethr Member Posts: 259
    edited February 2009

    Well, lefty, unfortunately, at the time my oncologist was letting me know about the treatment he would give me, I was still in dumbfounded shock at the whole situation and could do nothing else but sit there and reply with an 'O.K' after most of his comments and then I just started crying.   That was a couple of months ago when all the tests were beginning and it was all still so surreal to me, I couldn't believe it.  In regards to your question on Her2?  My initial pathology report shows the Her-2 neu as Negative.  The ER and PR were positive as well as the Ki-67.

    I had my first surgery last Tuesday and on Monday they let me know they found some cancer in my lymph nodes and my breast margins weren't clear, so now they're most likely going to do a masectomy and I'm waiting to hear when the next surgery will be.

    I also have another visit with my oncologist this Friday and, thanks to the amount of time that's passed, I'll be able to ask him the questions I need to ask....

    (sigh)... 

    Have a great day all!

    Beth

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  • GramE
    GramE Member Posts: 5,056
    edited February 2009

    So sorry (((( beth ))))  = gentle hugs.   I had 1 mm clear margins, and 2 mm is the protocol, so had re excision in December.  There is way too much info to process and it is a wonder we/you/I even remember to ask questions.  My first onco visit I had 4 pages of questions written down and used a tape recorder to be able to go back and review the answers.   Very scary, very confusing, very stressful.   Good luck and check out the various threads here, but dont over obsess.  Take some time to do something for YOU, even if a bubble bath or a new lipstick.   Nancy

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  • bethr
    bethr Member Posts: 259
    edited February 2009

    Hey Lefty...  I just back from my oncologist and my treatments will be every three weeks.  He must have been using monthly as a general reference before. Anyway I guess that's good since in narrows down the actual amount time on chemo....  trying to look on the bright side here...

    Take care!

    Beth

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  • reeney77
    reeney77 Member Posts: 53
    edited February 2009

    I just found this thread - had my mastectomy about three weeks ago and am meeting with oncologist this coming week to discuss plans for chemo.

    Where do you all get your treatment? I know Georgetown is very well renowned but i'm out in haymarket so not easy to get to that. But i want the best treatment in the area so i'm guessing it would be worth it to travel in to DC.

    I was diagnosed Jan 09 with DCIS but just got info back that my lymphnodes had 1 mm of tumor and breast had two 4 mm of infiltrating ductal carcinoma.

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  • GramE
    GramE Member Posts: 5,056
    edited February 2009

    Hi reeney:   I have gone to Georgetown since my initial mammo and ultrasound April 2008.  I am very happy with everything and I live in Alexandria.   Metro Access is a van pool service available to rides anywhere in the area where metro bus runs - I am not sure where Haymarket is since I moved from Pittsburgh.   Your doctor has to fill out the form for Metro Access and it costs $ 2.50 each way or total of $5 for a round trip.  It was a life saver for me when I was doing weekly treatments.   I think the form can be downloaded off the DC transist website.   They require an "interview" and you get a photo ID card, but my appointment was set up for after my weekly tx were going to be over.  They gave me a temporary id # when I told them I needed it for my chemo tx.   

    Also, if you get a form from your doctor, you can buy all day parking stickers for $2 each. otherwise it is $6 IF you remember to get a sticker from the chemo place or your doctor.  They do not "offer" the stickers at your appointments and you have to remember to ask for them each time you go in.  

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  • Monique
    Monique Member Posts: 121
    edited February 2009

    Hye Reeney:  I live in Fairfax on the western edge near centreville.  I had my chemo treatments in Fairfax near the hospital, which would be closer for you than DC.   I think my oncologist is great and would recommend him to anyone.  His name is David Dunning, MD and he is with Fairfax Northern Virginia Hematology and Oncology.   If you want anymore specific information feel free to pm me.  In any case, good luck with your treatment and maybe the next time we have a get together you can attend.

    Monique

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