My Husband, My Life, My Love, My Family, My Cancer

Rosie24

Hey All,

I’m wondering if you have any thoughts on this. (I also posted it in the liver mets thread.). I met with my MO today for my checkup and to discuss latest scans. The scans were good with shrinking liver mets (now 2mm and 5mm) and a stable lung nodule. Doc questions whether the lung nodule is actually cancer because it hasn’t changed at all since my original dx. So now I am being considered for more aggressive treatment, possible lumpectomy, one axillary node removal, and radiation to liver. There’s some kind of trial and I’ll have a consult with the breast surgeon, radiologist, and my case will be brought up to the hospital tumor board. I’m nervous about possibly changing what seems to be working, but maybe doing more is better? I asked about doing it after ibrance fails, but then I wouldn’t qualify for the trial. I also would have to enter the trial within one year of MBC diagnosis. Is a trial necessary for taking these steps? I won’t have the consults until November, so thankfully this isn’t a rush decision. Does anyone have any experience or feelings on this?

Also, the doc said I’m young and healthy—but I’m 60 and have MBC, gave me a chuckle.

Minnie31

With you Mae! Maybe it's done by now, it will be with you for results!

Catching up after a few days away. Terrible short break, I had a tummy bug which lasted for 3 days. Glad to be home.

Thinking of everyone having scans. Micmel, you can come to Spain and do my laundry!! X

Micmel

Candy~I am realizing that I have to be the organizer of my own stuff. My pcp does the best she can, but I have so many doctors and. They are supposed to share the same system., why am always repeating myself ? Over and over. It will drive you nuts!

MJH ~ Always good to see you here. I know you're so busy with your grandson and always making time to be super grand mom making cool stuff for him. I think it's amazing. How he's grown already since I've even known you! I love peaches. Yummy treats! Yay on the markers!

Gum Doctor~you're on my mind and I know you're having a hard time now, hoping those clots are under control and Dr Angel is making sure this medicine is more effective. No playing around with those locations. You're in my thoughts..

muddling~ so are you. Sweet sister, hoping you're home resting comfortably.

Lanie~congrats to you on NED!!! 🥳 to you, whats lovely lovely word to hear and see. Always good to hear good news like that. Hope you're celebrating!🍾🍾😁 again welcome back.

Lynnwood~I can't believe xeloda kicked ass that quickly. And I am so thrilled to congratulate another sister on NEAD. That's the way we like it. I'm so happy for you. I know the ibrance move was a kick in the gut. But what wonderful news xeloda is working. 🤗🤗

Micmel

Mara~ 7000 steps is pretty darn good. ! I used to have a fit bit and would keep track I don’t know why I stopped honestly. It was helpful. I wish I could have an. Elyptical! Keep going girl ! 😁 my house next please ? Lol

Philly~ look at you being all busy and in nature. Don’t know how you can take the heat. Wow. It’s been humid this past few two weeks. I hope you saw some beautiful birds. I’m looking forward to October !!

Rosie~My Docs went more aggressive when they saw that there would be more of a benefit to the patient and results Mine decided to go aggressive and I’m glad they did. Never been in a clinical trial....

Minnie~ I would do your laundry. I find it therapeutic for me. Folding. The fresh smells. Yes indeed. I would do a business out of it. But I wouldn’t make too much money! Weather fall yet !? Or still warm ?

Xxxxxxxxxxxxxxx

Mae, I'm in your pockets with 🍫 today...

illimae

Results are in... drumroll please.... Previously treated mets are stable and there’s nothing new! 🎉🍹

Grannax2

Answering roll call. I'm here. I've just been super busy with my chemo an an 8 day visit from my sister. We had a really busy, very productive week together She helped me complete so many projects. I'll send pics. My house looks great.

My TX went OK too. I finished cycle 3 yesterday. Cycle 4 starts October 11, then scan in November. I'm so wanting to know if it's working.

I started trying to catch up on all the posts. I'm nowhere close but ill keep reading. Prayers for all of us, especially for those going through confusion, scans progression. Gumdoctor. I'm so glad you have Dr Angel. Four blood clots, oh for Pete's sake.

Mel, is that your kitten? So CUTE. 💞

Moderators

Yay illimae! Great news

LoveFromPhilly

MAE!!!!!!!!!!!! WOOOOOOOHOOOOOOOOOOOOOO!!!!!!!! Go girl!!!!!!!!!!!!!!!!!! Sooo thrilled for you!! All those concerts and yummy adult bevies are doing you good my friend!!!

Bliss58

Awesome news, Mae!

Micmel

Mae~ I am so glad for you!!! That’s what we want to hear.. way to be that ⭐️!! We know you are ! Awesome!!!!!

Rosie24

Awesome news Mae!

Moomala

Mae wonderful news! Oh my I hope I get to hear that word 'stable' one day!

Gumdoctor please keep us posted. I don't want to speak for everyone else but you are important here and we care about the frightening issue you are going through. I'm thinking of you and your husband today. DH and I go to counseling together. It's the place we cry together and talk about our fears/grief together with someone there to assist us. We've been going to her for a long long time (nearly ten years) becuase of another family issue but thank goodness we did becuase she is THERE for us now that we are going through all this. Yesterday was a rough day at the counselor. Lots of crying and words of love and fear tumbling out. I hope you have a good outlet for that too but you know there's nearly always someone close here on the board who cares about you.

Grannax what a nice sounding visit with your sister. Mine came this last spring to help me with some things I could not do becuase my back has been so bad all year. We ended up sitting on our keisters watching Netflix the entire time she was here instead of the project we had. I was able to finish it over this summer but I always get such a tickle out of her coming up here from Philly to help me and we just sat here drinking wine, eating chocolate, crying and watching tv. It's really a great memory.

I am really having trouble this cycle 6 of I/L with fatigue. Wow! I thought I was coming down with something last week but nope...I'm still bone tired. It's GOT to be the I/L. Starting all my vaccines this week. I've gotta have flu shot, pneumonia shot, Tdap and Shingrix. Good times. I only have one arm to use and I don't think the pharmacy will put more than one vaccine in one arm so I might have to get these vaccinations spaced apart. I guess I'll start with the Pneumonia and Flu spaced out over the next week if they'll let me. Then the Tdap and then sit on the giant waiting list for Shingrix. My husband who is needle averse is getting his first ever vaccinations too and I'm getting a kick with how nervous he is over it. I don't like blood draws at all and in fact, the more of them I get the more wobbly I feel each time, but a vaccine needle doesn't bother me at all.

Beautiful day in western NY. Sunny and 80 degrees. DH says Survivor starts tonight. You know I have come to really HATE that show but it's always been tradition for us on Wednesdays. Like a date night. We binge watched FleaBag on Amazon. Oh my that was funny. Pretty naughty but sooo funny. Otherwise I can hardly wait each week for a new episode of Succession.

Tanya_Djamila

Moomala thanks for sharing. My husband and I need to go to counseling. Maybe I’ll start looking next month. I also have to get the vaccines. DH got flu shot yesterday.

Great news Mae!

Has anyone heard from Muddling?

Tanya

runor

Hooray Mae! Waving hi to all. Read often, try to keep up, fail. But I ride along in each pocket.

Lynnwood1960

Mae, AWESOME news for you!!! Very happy for you!!!!

Micmel

Lita is gone ladies. This time it's real.💔💔

Simone80

Great news Mae!

Simone80

I'm sorry to hear about Lita. 💔

Micmel

I have to say this. Lita kicked ass, she didn’t take any shit and didn’t give a damn about what people thought and I loved that about her. She and I came along around the same time, with her arriving a little before me. I took my time to make an account. I wasn’t sure i wanted. She would write about her suffering but always made me feel like she was the epitome of strength and fight. Now she’s gone too. This one hits hard. We didn’t bond like most I do with, but I had Mad respect for her. Just like I have mad respect for her in her passing. This world seriously just lost an amazing woman. If you haven’t read her daughters project, grab your box of tissues. Because we all will totally feel our hearts being ripped from our chests. So fucking wrong and sad. Another daughter losing their mother. I fucking hate you cancer

Simone80

Has anyone heard from muddling or Mrs. Devine?

Micmel

Muddling No I haven’t heard from her Worried there. Divine has been posting on the anger thread. From what I gather Glad she’s ok though!

illimae

Thank you everyone, you sure know how to fill some pockets!

Momala, I have no doubt you’ll see stable. It took a while but sometimes these things take time. I remain grateful, relieved and optimistic.

Lita’s daughters post hit hard, she was one of a kind and will be missed. Also, feeling sad for Sophia, when my BIL passed years ago, our English bulldog (Sarge) waited by his bedroom door for several days in grief, they’re so attached to their people.

Micmel

Mae~I agree her daughters post did hit hard. What a beautiful piece she did of her sadness. Life is so hard when you step into the cancer door.

Minnie31

Great news Mae!!

Sorry to hear about Lita, she posted here way back. Condolences to her family.

I feel you are lucky if you can have Counselling, especially for husband and wife. I don't think my husband really accepts my illness. My hip stops me walking, but I have my little scooter and I can get around, but I feel he is embarrassed having a wife with a disability, if you understand? I feel we are losing each other, just 2 people existing together. We get on perfectly well, but I feel we are like friends. I know he loves me, but he wants me to be the old me, which is impossible (the cure could be just around the corner, his phrase!). Not sure I'm making sense, hope you all understand.

Love to every

Xxxxxxxxxxxxxxx

I'm sad to hear about Lita... and I'm happy to hear about Mae. We have to embrace these contradictions sometimes, right? 🌹

Simone80

Minnie,

I guess I am lucky when it comes to my husband understanding. He has been dealing with heart disease since his early 40s. He hasn't been healthy for some time. We take care of each other now.

What has changed is having sex. We rarely have sex anymore. The nurse told him he needed to wear a condom because of the toxic drugs in taking. That is a big turnoff to him.

Micmel

I think we all understand Minnie.... my reasons are pain in every area of my body from surgeries. And heat flashes to melt an iceberg. It's another grieving thing we have to go through and lose. I can't even imagine how sad it is for Them. That things can never be the same. Sometimes I feel like I should not be so lucky to have him beside me fighting this. That I should let him go . And find another love. And move on with someone healthy!

mara51506

Mae, I am so happy for you.

Lita you will be missed by so many. As I said about my Mom, Fly away free from pain and suffering and worry. My condolences to all family, friends and of course her BCO family.

jensgotthis

I’m so happy to hear your results, Mae.

I finally got my pet scan results and all is stable over here too. Thank goodness.

Lita’s daughter really did share a beautiful message. A lot of love in that family for sure.