My Husband, My Life, My Love, My Family, My Cancer

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  • Tanya_Djamila
    Tanya_Djamila Member Posts: 1,378
    edited September 2019

    Muddling hoping and praying you’re getting good care in the hospital.

    Mara glad you have support in court.

    Micmel enjoy your hair appt. how normal.

    Tanya

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  • Simone80
    Simone80 Member Posts: 988
    edited September 2019

    Muddling,

    Praying you are able to get out of the hospital soon.

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  • Micmel
    Micmel Member Posts: 9,450
    edited September 2019

    Hi Tanya~How is the Florida beauty today? I just woke up. Somedays naps feel good! Others I wake up crabbie and headaches.

    Thinking of muddling!

    Waving hello 👋 to Simone. Haven’t seen Grannax, or Divine. Either.

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  • illimae
    illimae Member Posts: 5,710
    edited September 2019

    Just FYI, my quarterly Brain MRI is tomorrow, so if anyone has extra good vibes or positive mojo laying around, feel free to send some my way 🙂

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  • Micmel
    Micmel Member Posts: 9,450
    edited September 2019

    Mae~You can wear your big ass pocket sweater and we will all pile in. Any requests for treats and drinks ? Definitely good mojo coming your way. We love you !

    Anyone heard from Marianelizabeth?? Hope she’s ok

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  • Tanya_Djamila
    Tanya_Djamila Member Posts: 1,378
    edited September 2019

    Mae I’m in. Got plenty of good vibes and cheddar ranch flavored cheezits. Quarterly MRI’s a way of life and you show up like a champion.

    Tanya

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  • Xxxxxxxxxxxxxxx
    Xxxxxxxxxxxxxxx Member Posts: 609
    edited September 2019

    Good vibes to you Mae!💓💓💓

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  • LoveFromPhilly
    LoveFromPhilly Member Posts: 1,308
    edited September 2019

    Mae jumping in!!! Good luck tomorrow. Hopefully it goes without any hitched or discomfort.

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  • Simone80
    Simone80 Member Posts: 988
    edited September 2019

    Mae, I'm in too. Sending good vibes your way.

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  • Rosie24
    Rosie24 Member Posts: 1,046
    edited September 2019

    I’m in Mae! In your pocket with my best vibes.

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  • illimae
    illimae Member Posts: 5,710
    edited September 2019

    You guys are the greatest! Results Wednesday morning, so not too long to dwell on what if’s 😬

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  • Moomala
    Moomala Member Posts: 436
    edited September 2019

    Me too! Me too! Hoping for smooth sailing Mae! :)

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  • Micmel
    Micmel Member Posts: 9,450
    edited September 2019
    Got my hair done and had a shorter nap. I am doing laundry for my friend. She works so hard two jobs! I actually enjoy doing laundry. It makes me feel useful and brings a touch of love with the softness and home. Now I’m watching Orange is the new black. Last season. Shame it’s over. Great show !
    Reporting for pocket duty early as needed!!
    Much love
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  • mara51506
    mara51506 Member Posts: 5,088
    edited September 2019

    Mae, I am also on pocket duty. Good luck.

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  • Laine615
    Laine615 Member Posts: 104
    edited September 2019

    Mae,

    All the best vibes and super good mojo heading your way!!

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  • movingsoccermom
    movingsoccermom Member Posts: 225
    edited September 2019

    Sending you positive thoughts Mae!!

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  • movingsoccermom
    movingsoccermom Member Posts: 225
    edited September 2019

    Also, both Divine and Marianelizabeth have posted recently on the "I'm so angry" thread.

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  • booboo1
    booboo1 Member Posts: 1,159
    edited September 2019

    Mae,

    Hope I’m not too late! Prayers for good results. Oh, and I’ll bring the choc. cake

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  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,284
    edited September 2019
    In your pocket too Mae, hope you have big ones!!! Micmel I just binge watched orange is the new black. I’ve watched from the beginning and am sad to see it end. My friend told me to check out Wentworth, says it’s the British version of orange is the new black. Thinking about Muddling and hoping things are improving.
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  • Gumdoctor
    Gumdoctor Member Posts: 675
    edited September 2019

    Hey Mae -

    I'm with you too. No time to bake anything as I had full day of chemo treatment and abdominal ultrasound yesterday. Bringing some chocolate bark I made previously.

    Best Wishes for you --

    Gumdoctor

    image

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  • Micmel
    Micmel Member Posts: 9,450
    edited September 2019

    lmao at the phrase from Lynnwood, “Mae, I hope you have big ones!. “ lmao sorry but the child in me couldn’t let it go. I am also reporting for pocket duty. I’m watching it now, interesting how it seems to be wrapping up. Great acting. Love the show ! I know they get a little raw, but once you get passed that. It’s wonderful. Just like handmaids tale !

    Also hoping Muddling-is okay. Hopefully she’s home 🥺

    Gumdoctor~Thats a lot to go through...Geeze I hope you’re ok. That looks magnificent.. hope you’re doing at least a little better today.

    Much love~M~

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  • Micmel
    Micmel Member Posts: 9,450
    edited September 2019

    Lanie~Hello there sweetheart. I hope you’re doing well. It’s always good to see you here. Welcome back!

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  • candy-678
    candy-678 Member Posts: 3,950
    edited September 2019

    Mae- In your pocket today. Good vibes.

    I have quarterly visit with PCP today. Praying for good communication with him. I have list of things I need to discuss. Big one is who is taking responsibility of blood clotting issue - APS. Posted about it on the Autoimmune Thread. Long story from the last 3 months. Maybe I am mistakenly thinking that a PCP should be the organizer of things-- oversee my whole health. I can go to specialists- rheumy, onc, neuro, etc - but PCP should be aware of all issues and know they are getting treated. Maybe I am wrong in my thinking. Anyway, hoping for a good, productive appt.


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  • MJHJAN1014
    MJHJAN1014 Member Posts: 708
    edited September 2019

    Muddling-hated to read that you are in hospital and "very sick". Hope things are improving and that it all becomes a bad memory ASAP.

    Gumdoctor-holding you in the light. What a lot of uncertainty to face. Hope the sonogram brings clarity. Peace and comfort, dear sister.

    To those feeling down and exhausted....isn't it just so hard to face all of this some days? We're all just a set up for tanking regularly and it sure stinks when it happens. I hate it. So far, things have always brightened for me after a period of gloom and exhaustion, But, the down times can be soooo yuck...

    Mae -best results on the scan.

    My heart sings when I read of the good scan results, stability and markers trending down. Yay, yay, and yay!

    Tanya-5 boys? You must have been sooo tired.

    Grateful that Lita is still with us and I hope she's comfortable and peaceful.

    Busy with grandson's fall schedule and activities of daily living. Tumor markers down for first time in months, so Taxol must be working. Few more SE's, but coping. Fifteen jars of peach jam from our own peaches yesterday, so all are invited for scones and tea.

    My absolute best to each, love, Mary Jane

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  • Moomala
    Moomala Member Posts: 436
    edited September 2019

    It's hard to know sometimes candy-678. I struggle with that too. I have a PCP plus oncology and an orthopedic oncologist and a spinal orthopedic all looking after me. Boy does everyone seem to stay in their lane! I had a vaccine question the other day and oncology said check with your PCP. The PCP referred me to the specialty pharmacy to check on interactions. Back to PCP - "okay get flu, pneumonia, Tdap and Shingrix". Get them at Wegmans. (Honestly I get a lot of advice from the pharmacists at Wegmans) No wonder I'm so tired after all that checking in with everyone though. I'm with you completely - PCP should be on top of everything. For the most part, mine are - I just get a tickle at some of the roads I have to go down to get the right care.

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  • Gumdoctor
    Gumdoctor Member Posts: 675
    edited September 2019

    Candy -

    My ONC Dr Angel has total control of my blood clot problems. My PCP is clueless. Dr Angel said she could send me to a blood specialist if I wanted but I declined. Have been studying...reading that Lovenox is the gold standard for cancer patients. That's what she has me on now as the Eliquis was not enough.

    We are dealing with 3 different ones now - inferior vena cava, right and left portal veins. The ultrasound yesterday should show more details and if anything else is going on to cause the liver infarcts. This is a very scary time for me and DH...

    While I absolutely hate the Lovenox injections 2x a day...they are helping me get through this very unsteady terrifying time...

    Gumdoctor

    PS -Thank you all for your concern and support.

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  • Laine615
    Laine615 Member Posts: 104
    edited September 2019

    Thanks for the welcome back, Mel!

    I love reading all of the comments here.

    I bow down to every single person that posts here. I'm in awe of the courage, compassion, and genuine love that is displayed here on a daily basis.

    I am doing well, thanks for asking. Had my ct scans and breast MRI last week. After 6 months of Kisqali/Letrozole, I am apparently NED for now.

    Hello to everyone else. I hope all appts and scans go well for all of you.

    Hugs to all,

    Laine

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  • Lynnwood1960
    Lynnwood1960 Member Posts: 1,284
    edited September 2019
    Haven’t had posted an update for quite a while.. have not posted hardly at all due to dealing with my mom getting a diagnosis on her memory loss and dealing with all the issues it brings. The good news is that my son got engaged and is planning a wedding next September. Praying that I will be able to attend. They have graciously included me in all of their plans and activities, I am enjoying what I can while I can! I had a pet scan in July which shows NEAD! Xeloda knocked my progression back to NEAD in only 3 months. The side effects are manageable with fatigue an issue. My new issue is that the Xgeva has given me osteonecrosis of the jaw and I have a piece of bone sticking out of my gum. Saw a specialist today and for now we are leaving things alone and monitoring. He said that sometimes intervention can open up a whole new can of worms that can be extensive and require very high doses of antibiotics. He is hoping the bone will slough off on itself in time. It doesn’t cause me any pain so I’m ok with monitoring. Cancer sure is a gift that keeps on giving for sure. More $$$ every time I turn around. Bought a new heating pad for my aches and pains and a cushion to sit on to take the pressure off of my back. Finally broke down and spent $90 on s bottle of CBD oil. I had used the cream and found it effective but I have aches in so many places that I decided to try the oil. I do read every day and pray for all of you daily. I’m so glad that this thread continues with our Micmel keeping track of all of us! I don’t know how she does it but it’s much appreciated!!!
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  • mara51506
    mara51506 Member Posts: 5,088
    edited September 2019

    In anyone's pocket who needs it, for scans, feeling down or depressed etc. I'm there.

    Had a good visit with friendly visiting service. Setting up to facebook video message a person until I clear the wait list for a live volunteer (versus a dead one of course). Seems easy and right up my alley. It is all about friendly conversation so no politics, religious views etc which is fine by me. Also nice it will be a person I DON'T discuss cancer with as well. Save that for the right audience if need be.

    Also kind of amazed that in my little studio sized apartment that a thorough houseclean and back and forth from washing in my portable washer in the bathroom to the bedroom has amounted to 7000 steps. I have not even been on the treadmill or outside walking. Must remember that if I don't want dedicated walking to just do housework instead

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  • LoveFromPhilly
    LoveFromPhilly Member Posts: 1,308
    edited September 2019

    Good early beautiful evening fam!

    Mae, been thinking of you and sending positive juju your way!

    Mel - doing laundry is a cozy activity! Very homey. Nesting. Who doesn’t love the smell of freshly cleaned sheets?

    Hugs everyone! Laying low today and yesterday. Went to a wildlife refuge. Here’s me birdwatching!

    image

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