My Husband, My Life, My Love, My Family, My Cancer

Micmel

you should order one Grannax !! My DH loves his already as well. Now if only I could wake up refreshed like before I was sick... now ibrance takes over the moment I awake! Gotta see oncologist tomorrow. That's always such fun Poke poke nerve endings hurt when he examines my underarm area. Like knock it off I have had enough of that! I am happy to be stable, don't get me wrong. But I want To be able to feel awake! Coffee helps!! Hope all is well. Thinking of you Shelia. Lynnwood!

Much love ~M~

Micmel

my bedding set came today and I love it! I can’t wait to take my new pillow and go to sleep tonight. My day room, which my DH just painted and got ready for me to use during the day. Nighttime I am starting to get back into my bed which I am thrilled about. I sleep so well in there. I realize im a good online shopper! But who isn’t?!

Daniel86

Melissa, what a great name! That cover and pillows look neat! We are at the hospital as tomorrow Leslie gets surgery on her met and I am very much missing our bed hehe. Thank God at least the hospital is American grade by Italian standards.

Grannax - did you go shopping at Towne East? I never thought I would ever say it but I miss Mesquite. Sorry about the wait. Friday is almost upon you though. Hang in there!

runor

Getting into a lovely bed is a special treat. I especially love it if the sheets have been dried on the line and mmmmm they smell so fresh and have that tight, crisp snap to them. I am a bedding junkie. I have made several quilts for our king bed and rotate them as the mood strikes. I make them in such a way that if anyone inherits one, but has a queen bed instead of a king, a pair of scissors can lop off the excess border, re-bind and voila, a queen size quilt. Plan ahead.

Sleep well in your room fit for a princess. I just hope there is no pea under your mattress!

Micmel

Daniel & Leslie, you certainly Will be in my thoughts for sure. Just get it done and get on the road to recovery. I hope that in no time, you'll be feeling like all of the surgery was worth it. You're family Is in my thoughts and I am sending good vibes and will be waiting to hear how she is doing...sending Leslie hugs across the miles. Beautiful lady... ~M~ Daniel. Such a Good husband to her. That is just what she needs. I'm so thankful for mine.

Hello ladies. Hope all is well. Oncologist appointment tomorrow so ick. Hate that cart noise. Drives me bonkers. Hugs to all. Gn much love ~M~

illimae

micmel, I’m sure your appointment with go well. I am also a talented online shopper, DH makes a face sometimes when he sees the packages but is always impressed with the deals I find. Today’s deal was this retro dress, originally $68 but on sale for $28 and today is a 50% off special (today only), so I’m paying $14!!!

I’ll be doing the makeup challenge this weekend and I think I’ll add different wigs too, for extra fun.

Got CT Chest/Abdomen on Tuesday, results on Wednesday, I expect and hope for stable still but it’s crazy how fast 4 months can go by.

Minnie31

Micmel, sleep well in your comfy bed. Still on top sheet only here. How I long for a cold night to snuggle under a quilt!! Hope all goes well for you.

Grannax, hoping for the right result 🤞 🙏

Nearly 230am here and just can't find sleep tonight, where has it gone? It usually visits by now

Love that dress illimae!! I'm also an on line bargain hunter

Micmel

Mae~Hello there. I love the dress. My DH makes those same faces. It must be a standard. I got a matching shower curtain and that will complete the deal. My dogs nails ruined one of our really nice sheets, so I replaced them with beautiful blue good thread sheet count 1000 Set , i think. Love that! I got a nice storage bench for the foyer, that's coming soon and a knife set. DH loves his knives to cook with. I look forward to seeing some pics of you in that dress. I am sure DH will love it. He is home isn't he? ? Will be thinking of you as well, good results good results!! Much love to you!

Minnie~ I have a turbo fan running and my DH says you could hang meat in our house because it's so cold. I love to snuggle up with blankets, or forget it. No sleep for me ! I sure hope by now You're fast asleep! Oncologist appt tomorrow, lots to do Tomorrow... but oh well . Off to sleep ladies. Hugs to all ~M~

MuddlingThrough

Daniel, I hope today goes perfectly, with the best results for your wife.

Micmel, have an easy appointment today! Pretty bedding!

Grannax, thinking of you at your appointment today.

illimae, that's a cute dress. Pics of the makeup and wig combos, please.

Hello to everyone! I hope the holiday weekend will be calm and safe. We have no plans, which is good. I'm going to be watching tennis all day, every day, like I do all season. 🎾 I'm sorry to miss the night matches, but at seven or eight in the evening, I deflate as if a switch is turned off.

Micmel

good morning ladies and Daniel!! Thinking of Leslie and your family today.. hope it goes fast and smooth sailing. You’re both in my heart.

Runor~I AM the same way with my bedding. I slept great and already can’t wait until tonight’s sleep! I knew we were a lot alike!! Hugs my friend.

Muddling. No plans here either. Just wedding items I’m working on.

Grannax thinking of you as well!

Shelia. You as well. Lynnwood.. Tanya. The Lynne’s. Hope everyone is well.

Love you miss Bianca!!

~M~

Micmel

Here is a protype of my centerpieces I’m starting early just so I have it down pat when the time comes. Need more floating beads. ! Hugs!

SheliaMarie

Thank you everyone for your thoughts and prayers. Lynne (50s), I thought I’d wait on second opinion and or clinical trials when I got closer to the end of my current arsenal. Is that a bad idea? I’m so lost, and honestly have been pretty useless the last year.

My last biopsy was for this dx, so last May (2017). The two stubborn tumors were there then. And I’ve had genetic testing but not foundation one. Again, I don’t know much about that. I wish I had more energy or oomph so I could research and stuff, but I just don’t.

My support system is fantastic. If nothing else, I’ve been blessed with that. There were times that I questioned the support of my husband and children, but once I opened the door to communication, all of that is sooo much better.

So Tuesday after the new chemo I came home, had a little meltdown and went to sleep. Woke up and did it again. Of course I didn’t sleep that night and it was an emotionally rough one. Wednesday I slept a lot. But when I was awake I felt pretty good. I managed to put the boo hoos behind me for a little while and physically I was better. Of course I woke up feeling like a freight train hit me yesterday. Those darn muscle aches come on hard and fast! Thankfully I was prepared with my meds and heating pad so it was okay. Today is good so far. Hope everyone else has a beautiful day... xo

GracieM2007

Micmel, hope your appointment is an easy one today. I

Love your bedroom, sooo pretty! Love the color combo!!!

Grannax thinking of you this morning, praying you get good news!

Mae, I love polka dots! One of my favorite dresses of all time was white background with black polka dots!

I know I’ve missed a lot of people but am reading all of your posts and pray for all of you!

Sheila, I’m so sorry you’ve had such a hard week! Am with you in spirit! This will get a little better for you I hope, that’s what I’m praying for for you, a little relief from the anxiety and for better news!!

50sgirl

SheilaMarie, I know you feel like you have been lost this past year, but it sounds to me like you have everything covered. You need to give yourself credit. You have been through a horrific year, but here you are, asking all the right questions, doing all the right things. Foundation One is just one of several companies that perform genetic testing. That fact that you did have genetic testing is good regardless of the company. Clinical trials can be done anytime, but it it really a personal decision. They are not for everyone. There are a few people on these boards who jump in with both feet and participate in several trials one right after another early in their treatment. Others wait until later in their treatments. Some, probably most, on these boards never participate in trials. Note that I am on my third line of treatment and have not considered a trial. Will I do it some day? I honestly don't know. I talk a good game, but will I ever do it? We shall see. As far as a second opinion is concerned, that can be done at any time and can be done multiple times. Sometimes the second opinion is the same as the primary one, and it can give you the comfort and confidence that you are on the right track. Sometimes the second opinion differs, and it gives you the opportunity to ask what the advantages of each option offered are. You can ask both doctors to give you that information so you can make an informed decision. That is not to say you have to get a second opinion. It is just important to know that it is available to you. It is okay to have meltdowns. We all have them from time to time. Several years ago someone posted her method of handling them. When she felt a meltdown coming on, she set a timer for what she considered a reasonable amount - 5 minutes, 15 minutes, 30 minutes, whatever. She allowed herself to cry or scream or throw herself on the floor until the timer went off. Then she would pull herself together and try to get on with her day. It worked for her, but it won't work for everyone. Antidepressants have been helpful for many people. When I feel particularly stressed, I try a technique I learned at Dana Farber's Metastatic Breast Cancer Forum two years ago. I sit in a chair, close my eyes and try to relax my body. I take a slow deep breath and say to myself "I am" as I inhale. Then, as I slowly exhale, I say to myself "peace". I repeat this several times and really do feel more relaxed when I am done. I know, I know, it sounds silly to breathe in and out with silent "I am" "peace", but it works for me. I am glad to hear that you have started your new treatment plan and that you are feeling pretty well today. I hope that it destroys those nasty tumors and gives you few or no side effects. I hope you continue to post here so we know how you are doing.

Hugs and prayers from, Lynne

MuddlingThrough

Clearing off my computer desk today, I came across a poem I have read for years when I need to be calm. I read it a lot when I was working but read it today from a different perspective.

The Peace of Wild Things by Wendell Berry

When despair for the world grows in me

and I wake in the night at the least sound

in fear of what my life and my children's lives may be,

I go and lie down where the wood drake

rests in his beauty on the water, and the great heron feeds.

I come into the peace of wild things

who do not tax their lives with forethought

of grief. I come into the presence of still water.

And I feel above me the day-blind stars

waiting with their light. For a time

I rest in the grace of the world, and am free.

50sgirl

MuddlingThrough, Thank you for sharing that lovely poem. I can see why it has been so special to you and understand the sense of calm and peace it brings to you.

Hugs and prayers from, Lynne

Lynnwood1960

Muddlingthrough, that was beautiful. I’ve been reading some but not posting much. Kind of in a funk, the anniversary of my dads death is coming next month, and these are the weeks that he fought so hard to live. This is always a difficult time for me and watching Meghan McCain cry for her father has just about taken me over the edge. I SO feel her pain because I have lived it. Very nostalgic for the past lately.

MuddlingThrough

I'm sorry for this period of sadness and remembrance Lynnwood. It has been hard to see the services for Sen. McCain. Earlier this year I watched the Billy Graham services just a short time after my dx. Hard.

Micmel

muddling ~Very true.... loved the poem.

Waving hello to Lynne (50’s) And Shelia.

Daniel86

Leslie has been out of surgery for a couple of hours now. She is a little shaken up because she didnt get full sedation as planned and she was awake throughout the whole operation. She is handling the pain well so far. Thanks for the well wishes and thoughts.

Daniel

Micmel

Daniel ~ thank you so much for letting us know. Phew! But what an ordeal for her. And for you. Hold her hand for us and put a kiss right on her forehead from her sisters here. Taking the time to let us know means everything. I know spending time with her. Is THE priority! Sending hugs and well wishes. Love to Leslie and your family ! Much love ~M~

Micmel

Lynnwood~ I adore Meghan McCain.. I am heartbroken for her. I felt so terrible watching her writhing sadness. I couldn't do a thing to help her. Losing her hero.. a real man and father. I can't imagine her pain... I totally understand why you would be feeling so sad. I'm so sorry that you're hurting... please know you're loved here. Even if you're not posting much. Just knowing we love you may help. Wrapping you in love and support. ~M~

MuddlingThrough

Looking out my window at DH trying so hard to get his grandpa's tractor to start. Our 14 year old dog is nearby, his formerly brown face now all white is "helping". It is just too sweet. DH has loved that tractor, from the

50's so much and enjoyed plowing and bush-hogging the fields with it and spending waaaaay too much money to keep it going, but I.Get. It.

Micmel

That’s a precious thought Muddling. For sure. Love that’s love my friend. In its purest form. Including the dog. Thank you for warming my heart! hugs ~M~

Grannax2

I have bad news girls. There is progression and it's in my liver. I thought y90 would keep that from happening for a longer time.

I'm too emotional and disappointed to write much. Pray that the new tumor can get y90. I have a referral to my I R to see if this new one can be helped by y90 or other types of local treatment.

I will be on Afinator/ aromasin. 💞😢

50sgirl

Grannax, I already sent you a PM, but I wanted you to know that I added Y90 to those prayers I told you about. We will help you through this.

Hugs and prayers from, Lynne

Lynnwood1960

Grannax, very sorry to hear that you have progression. I have already started my prayers for you. I have no words to make you feel better, I wish I did, but know that all of us here care about you and feel your sadness.

illimae

Oh grannax, I’m sorry. I hope you get the Y90 thing and that the change in treatment helps to regain control. ❤️

Micmel

Grannax~I hope that they can get a handle on it quickly they know it's there now onto attacking that sucker. I can understand your need to digest and process these new crappie facts. Still many tricks in their baskets and Arsenal's for sure. Hang on to us... we love you. I'm thinking about you and hoping you'll get some answers soon about the Y90.... hugging you and sending love through the miles.. much love ~M~

runor

Grannax, so sorry to hear this. No words. Hugz.