STEAM ROOM FOR ANGER

marijen

Well I never knew people were allergic to painkillers. That’s too bad Meow, because NSAIDS aren’t good for the heart and other things.

Painkillers might provide a respite from pain, but they can do serious damage to your cardiovascular health.

A research team led by Michèle Bally, of the University of Montreal Hospital Research Center (CRCHUM), found that the use of nonsteroidal anti-inflammatory drugs (NSAIDs) can significantly raise the risk of having a heart attack — after just a few weeks of use.

The researchers published their findings in the BMJ, a peer-reviewed medical journal.

An expert interviewed by Healthline said that the findings add further insights into the existing body of evidence on the negative side effects that can come with routine painkiller use.

DancingElizabeth

Marijen - that is a VERY interesting study!!!

When I was having issues with (what I think was) radiation recall (or some kind of skin reaction due to having received radiation) - right breast turned red - my MO prescribed HIGH does of "Aleve". It didn't really do much. And, I was scared to death that this was IBC.

I know this is a different topic - but - along the lines of MO's not doing even research.

I had multiple ultrasounds - because my MO and RO - were stumped about what was causing my breast to be red.

After I did a little research, about skin sensitivity to the sun (even through clothing), I put SPF 50 on it. And, the redness - DISAPPEARED!!!!!

Go figure - SPF 50!!!! (after all of that!!!!)

Lula73

On the UTI topic, the Uricalm I was recommending is the one for Urinary Tract Health not the one for UTI symptom relief. Here’s a pic:

Cystex for UTI symptom relief and AZO for UTI symptom relief both have the analgesic in them, but Cystex also has an antibacterial agent in it that helps inhibit the progression of the infection. AZO does make a version called Urinary Tract Defense that has both in it like the Cystex, but their standard one that advertises Maximum pain relief from UTI does not. Uristat, Uricalm Max/Maximum Strength Uricalm only have the pain reliever in them.

Marijen- thanks for posting it. I did see that article but disregarded it as it’s mainly talking about people who are addicted to Norco/Vicodin/etc on high doses who detox by either weaning down or going cold turkey who then start taking it again and instead of starting with the lower doses go right back to the super high dose they were last on. Our bodies build up a tolerance to the meds so if you're on them for a long time (like someone who is addicted or someone with chronic pain) it takes more pills/higher dosages to have the same effect as time goes by. Detox takes the body back to/near a no tolerance level, so when an individual takes that super high dose after detox it can kill them. Recipe for disaster. We are in a very different situation where we have surgery and take the meds for pain for a few days to a couple weeks, stop/wean off them, then a few months or so later have another surgery and take them again for a few days to a couple weeks. Each time we are starting back at the lower dosage and we typically also are not on them long enough to build up a tolerance either. I hope this explanation helps put your mind at ease!

jaycee49

Lula, that Uricalm Cranberry looks interesting though none of my local pharmacies have it. Amazon? Could you look at the box and see how much D Mannose it has? The D Mannose I bought ("Now" brand at Amazon) says 500 mg on the front of the bottle and 1500 mg on the ingredient list. Confusing.

My MO appointment this morning was very good. PET scan June 6 is all clear. That sure changed my mood.

Meow13

I have a friend that swears by that.

marijen

Danzing Elizabeth, I had the same thing as you had, Radiation Recall or Delayed Breast Cellulis. I had the orange peel, bright red, triple size, six weeks after radiation and they had no clue what to do about me. They gave me Keflex, prednisone, and IBC biopsy. I went to twenty PT for LE visits. Then the next year on the first hot day it was back but not as bad. And back to PT from June to Dec for 10 more visits. How don't they know how to deal with this. The second time after trying everything I put NO-AD sun lotion on it and the redness disappeared over night. I also had to go to a different Medical Group for the PT because their own people didn't want to touch it - afraid they would spread cancer??! The active ingredient in NO-AD was Avobenzone 2%/

Thanks for that great explanation Lula. People that write these articles should be more careful! Lula you are right, there was only that one article, I didn't see anymore. Also opiods with benzo's slow the breathing and can cause death. We have to think for ourselves, 15 min appointments don't cut it. I can't get my doctor to discuss anything, instead she sends me off for tests when all I want to do is get more info. Like what cause swollen lymph nodes if it's not cancer. I looked it up of course.

PS the most popular and nicest girl I knew in Junior High died from opiod prescription for an ankle break (65). Be careful everyone!

DancingElizabeth

Jaycee49 - That is Excellent news!!!!!!!!!!!!!!!!!!!!!!!

DancingElizabeth

Marijen - YES - I don't know if you remember - but - I was actually previously under name of "Scared67" and your advice on one of the radiation boards - REALLY helped when I was going thru that crazy time with my redness issues!!! (I'm just remembering - now)

marijen

Oh that’s great Dancing Elizabeth. It was just a fluke discovery. I was putting the suncream on so when I walked it would provide more protection through my clothes.

Great news Jaycee!

marijen

Dancing Elizabeth, I just remembered I told my MO about the NO-AD and she wasn’t the least bit interested.

marijen

Drug Class Review

http://www.health.utah.gov/pharmacy/ptcommittee/fi...

runor

I like Marijen's new narcotic free pain medication (digging in purse for hammer, oh here it is! BONK!) No pain.

Jaycee, you didn't burst my bubble. I am well aware that taking an antibiotic would muck up a culture. I just reached the point where I refused to jump through the hoops and waiting for a culture while a mild infection became a raging nightmare. I did not care what my bacteria was sensitive to. I said, give me some pill that will pretty much kill anything, and I usually had a broad spectrum antibiotic. Also, my repeat infections were generally attributed to the same bug because I did take many cultures for many years until I said, NOT DOING THIS, GIVE ME A PRESCRIPTION AND DO NOT MAKE ME COME IN HERE EVERY FLIPPIN TIME! I do not need a culture to tell me I have an infection, I can FEEL it.

Neuropathy in the bladder? Will the madness never end? Once I took an antidepressant and had an all over bad body reaction to it and one of the side effects was bladder spasms and it felt like I had lost control of my bladder, it hurt, it was the most miserable thing! No anti-depressants for me. When things get bad I just ask Hub to apply Marijen's new non-narcotic pain killer, and deal with the lump on my head later.

marijen

So funny runor as usual! Nothing like a good laugh at the end of the day! Anti-d’s bite for sure. I took one cymbalta and was sick for a week. What makes doctors push them anyways, the duh factor? Don’t know what’s wrong with you so duhtake some of these! Mother’s little helpers. I’m still looking for that link but in the meantime a club will have to do.

Lula73

jaycee- great news on the PET scan!!🎉 I checked out the NOW brand Mannose-D you mentioned. That's ALOT of pills to take and it looks like they're on the big side. The 1500mg comes from taking 3 500mg tablets. Then you are supposed to take them 3 times a day. That's 9 pills a day just for urinary tract health! I cannot even imagine. Of course I'm also a horrible pill taker and tell my DH that choking on my pills is what will kill me in the end, so no surprise there -LOL! I'm guessing that dosage is for treating a UTI though based on what I read in various studies? The Uricalm urinary health dose is 50mg D-Mannose + 400m cranberry extract (which also contains D-Mannose). Here's a pic of the back of the box:

Marijen- Interestingly, death “caused by" opioid use in non-addicted individuals is usually not caused by the opioid part of the med. it's usually caused by the acetaminophen part. Acute liver failure from overdose of acetaminophen. Especially when people unknowingly take Tylenol on top of the Norco/Vicodin.

jaycee49

Thank you, Lula. I have to apologize to you and runor both for being snotty earlier. I always get nasty while waiting for scan results and then get (sort of) nice after I get them, especially if they are good. I need to figure out what I am going to try next to avoid another UTI when the 10 days of Cipro are up. That will be Sunday. Maybe D Mannose? Uricalm? There are so many possibilities and combinations, a trial and error approach would take forever.

runor, I know you know that a culture is required to see what antibiotic will work. I may opt for your approach. Most of the bacteria I have had have been susceptible to Cipro and I always end up with extra of that. I'll just keep it around and take as needed. There is actually research that shows this approach is viable for many women. I also got a supply of low dose (125 mg) Amoxicillin for suppression. It s a children's chewable. Then there is a 100 mg Cipro I may ask about, also for suppression. I just don't know how much more Cipro caused CNS damage I can stand.

runor

Jaycee, I in no way felt you were snotty. I'll have to watch myself to see if snottiness is a new effect of all this cancer bullshit. I have heard myself once or twice threaten to kill someone and not feel the least worried or remorseful because "I have cancer and am going to die anyway, so shooting you and going to jail for it, pffft, no biggy." One could call this snottiness I suppose.

I believe in past I did have a broad spectrum that was most often the Amoxicillin that you mentioned. And the idea that you have to take a pill twice a day for 7 days is NOT always the case. The jury is out on this and I was told years ago that they were finding if you took a pill at the first sign of pain, then maybe two or three more over a day or two (however long it takes) you are fine to quit when you feel better. 7 days not necessary. Knowing that sure cut down on the yeast infections! I can take a day or two or three of antibiotics and not get a yeast infection but 7 days and I've got antoher battle on my hands for sure.

Lita57

I've been really snotty w.dh and dd for the past month. Can't help it. Cancer does indeed change one's personality, along with the wbr I had months ago.

I've been able to hold my temper in public pretty much, even tho I've wanted to put the malocchio (evil eye in Italian) on scores of idiots.

L

marijen

Not so Lita, again Benzo's and Hydrocodone (probably other narcotics) together slow the breathing. It depends on other factors like how much and individual health, etc. I'm too tired to find the research. Trust me.

marijen

On antibiotics

https://www.webmd.com/brain/news/20130826/fda-stre...

marijen

Runor, I actually had a doctor that said he did that. Takes a few antibiotics at the first sign. He was the best, always laughing. Went back to Oklahoma.

Lula73

marijen- I didn't think you were snotty in your posts. All is good! I hope you didn't think I was snotty with the 9 pills thing - LOL!

Jaycee-Questions for you on the UTIs: 1) how long between stopping the antibiotic and another UTI shows up on average? 2) have you noticed any patterns (ie sexy time at night, then UTI come morning or afternoon)? If you wanted to, you can start the Uricalm now. No need to wait. One thing I read was to not drink a bunch right before or right after taking it. Wait about an hour, then drink all you want.

marijen

Lula, Not Me! : I think you meant Jaycee? I don’t get UTIs. At least not for 7 years.

DancingElizabeth

Raising my hand - on the snotty!!!

I've been standing up for myself - more to my DH and my dad. As - I feel they tend to be wayyyyyy too hard on me. It's funny that I married someone - who could punch my buttons - like my dad does.

Anyway - told my DH to "F*ck-*ff" the other day. I really couldn't help it!!! It just came out!!! And, Arimidex - is not exactly a happy pill. LOL.

I think I'm making up - for all the other times - that I should have stood up for myself....

Lula73

marijen- yep, you’re right! Letrozole brain strikes again!!😂

Dancingelizabeth- you go, girl! I think this whole cancer diagnosis/any major life threatening illness readjusts your thoughts on life. A lot of the stuff we used to think mattered we find really doesn’t and we no longer are willing to spend time putting up with other people’s crap. Sometimes my DH thinks I’ve gone off the deep end.

Egads007

Not me. I’m expecting to hit perfection by 5 years out.

Perfectly what, haven’t figured out yet. One thing at a time.

marijen

I have permanent letrozole brain.

runor

Lita, mia famiglia! Go ahead and put the evil eye on whatever idiot you encounter. As far as I'm concerned the world is plum overrun with them and they need a good thinning out. Since it is illegal to run over them with your car when you see them on the sidewalk and considered bad form to crush them beneath the wobbly wheels of your grocery cart as they plug up the isles with their own carts that they leave out in the middle of nowhere, their unwashed offspring running to and fro, screaming, touching everything, picking their noses, yup, EVIL EYE them all!

biscuits

Jaycee49...I wondered if any of your doctors had mentioned Methenamine (Hiprix) to you? If not, you might read about it’s usefulness in keeping UTI’s at bay. My mother suffered for years until a urologist prescribed it for her. What a difference it made in her life. I just wanted to mention it to you..

smwusaf

Jaycee - great news on the pet scan!

I agree, I think the waiting for results makes me super cranky. I really don't like that about myself but I'm becoming easier on myself about it too.

jaycee49

Lula, I get a new one in about 7-10 days after finishing a course of antibiotics. Sex is not an issue for me since I am unable to have "regular" sex anymore. There are plenty of enjoyable alternatives. This morning, I ordered some Uricalm Cranberry from Walgreen's online to have delivered to my local store. I'll probably start taking the D Mannose I have here soon. The diarrhea side effect scares me a little.

Biscuits, there is a whole thread on UTI's here. Very good info there, including about Hiprex. No doctor has ever mentioned it. I guess I'll mention it to them. It is an antibiotic so I wonder if resistance can occur.