Starting Chemo March 2015

Options
1182183185187188390

Comments

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited July 2015

    Sloth- her desire, maybe, but she was am amazing woman, with so much talent. In innumerable areas. I just try to channel her sometimes and remind myself that we aren't/weren't the same person.

    I sought out a teacher in Oregon once I got here 5 years ago because I wanted to see if I could connect with her memory this way. It has worked out very well, and has provided me with different outlets than I had before, stress-wise and creativity-wise. Quilting makes me slow down. And I always feel she's somewhere nearby when I'm at my machine, calm, breathing.....ohm.........ohm........

  • SizzleStitch
    SizzleStitch Member Posts: 47
    edited July 2015

    Popping in to say Happy 4th to all. I have my son and grandson visiting from San Francisco...I am trying to adjust to life after chemo and trying really hard not to think about having BC all the time. It would be much easier if I had hair..and didn't look in the mirror.

    Katy, your quilt is lovely and I also love the one your mom made. My mom taught me to crochet when my only brother was dying of cancer 32 years ago. It is my turn-to craft when I need to feel my mom close and to relax :-).

    Beachbum, I am so sorry for your shingles. I had it several years ago and know it is difficult. I wish I could remember what they gave me to help with the discomfort.

    Take care everyone. Wishing you all easier days ahead. 💖

  • SueH58
    SueH58 Member Posts: 632
    edited July 2015

    Katy, your and your mother's quilts and unbelievable!!!!

    SpecialK, come on--how 'bout a booster....

  • wpmoon
    wpmoon Member Posts: 270
    edited July 2015

    saw this yesterday and thought I'd share. Exactly how I feel when people say "your eyebrows aren't that important. They'll grow back."

    image

  • KBeee
    KBeee Member Posts: 5,109
    edited July 2015

    I kept a brow pencil and eyeliner in my pocket. Drawing brows on is the first thing I do when I get up...even before I pee!!!! I do not mind myself bald,but I look creepy with no brows. I check every time I pass a mirror and touch up as needed throughout the day. I am really hoping mine come back. Last time they came back about half as thick as they were. If that happens again, they will be non existent!!!!!

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited July 2015


    I did have a shingles shot about 3 years ago. My mom got them after she broke her hip. I did not know it was only good for 5 years.......have to remember that.

  • SueH58
    SueH58 Member Posts: 632
    edited July 2015

    Holy constipation!!! Haven't had this problem since treatment 1. I guess I didn't reaize how much protein I was pouring into myself, and an occasional banana. I'll probably live through it, but it won't be fun.....

  • SpecialK
    SpecialK Member Posts: 16,486
    edited July 2015

    SueH58 - from what I understand, boosters for the shingles vaccine are not recommended because they do not seem to provide additional immunity.  It is literally a one-shot deal.

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited July 2015


    SpecialK, So you are saying if you get the shot at 60, getting it again after 65......it won't do any good?

  • BBwithBC45
    BBwithBC45 Member Posts: 727
    edited July 2015

    Wpmoon, thanks for posting that eyebrow thing. I had a good laugh.

    I still get startled when I look at myself in the mirror first thing in the morning. My brows started coming back, but mostly in the part closer to my nose. The outer parts are not there yet.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited July 2015

    mysunshine - yes, that is what I am saying. 

  • slothabouttown
    slothabouttown Member Posts: 449
    edited July 2015

    The eyebrows meme, hilarious! I think the no eyebrows makes me look "sicker" than the bald. I had seriously thick eyebrows BBC. Now I'm getting a 5 o'clock eyebrow shadow. Just got back from lunch with a friend I haven't seen in 20 years, I told her to just look for my dad in the hotel lobby. Between the bald head and Buddha belly there's a striking resemblance.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited July 2015

    Sloth- stop! Made me pee myself. "Look for my father". Arrgghhhhhh

  • ksusan
    ksusan Member Posts: 4,505
    edited July 2015
  • wpmoon
    wpmoon Member Posts: 270
    edited July 2015

    bb - I have the opposite problem. Near my nose is still sparse, but the rest is starting to fill in. Glad I could give you ladies a laugh!

  • molly1976
    molly1976 Member Posts: 403
    edited July 2015

    Sloth, I keep thinking I look like my dad, too! Especially because he died of cancer (metastasized melanoma) and was bald at the end from chemo and radiation.

    My brows and lashes held on for five weeks PFC but they are almost completely gone now, all in a week or so. Very annoying.

  • rleepac
    rleepac Member Posts: 755
    edited July 2015

    weekly hair update. I don't see much difference but everyone else says they can

    image

    image

  • ksusan
    ksusan Member Posts: 4,505
    edited July 2015

    WPmoon--ha! Same here, though it's the hairs of my chinny-chin-chin.

    I've told friends that when I catch sight of myself in the bathroom mirror at night, I think, "Oh, look! Somebody's great uncle has to pee again! Oy, my prostate!"

  • DavisD
    DavisD Member Posts: 338
    edited July 2015

    Lookin good Bekah!

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited July 2015

    Lee- (Indygal) I just wanted to let you know I've been thinking of you all weekend, sending you positive and calming thoughts for Tuesday. This must have been a really long weekend for you. Please know that I am standing in a protective circle around you with your other bco sisters. You have got this, ok????

  • wpmoon
    wpmoon Member Posts: 270
    edited July 2015

    I'm feeling down in the dumps today. But wanted to say I'm so grateful for you ladies and for this board. It's helped immensely to have people understand the struggles.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited July 2015

    Whitney- I'm grateful too, and wanted to say how inspiring you are to me. I love your writing; you have a true gift. I hope that when you are down on days like today a little writing in your journal helps.

    If that doesn't work, try cake! Haha.

    I will keep you in my thoughts today and hope a little directed mojo keeps you above ground. Beware the rabbit hole.

  • SueH58
    SueH58 Member Posts: 632
    edited July 2015

    As we've said before and will continue to say, "never trust a fart." Good thing I'm at home

  • IndyGal35
    IndyGal35 Member Posts: 340
    edited July 2015

    Whitney, that meme was amazing!

    Bekah, that hair is coming in something fierce! Wow! It makes me hopeful!

    Sue, I can't remember - are you in Milwaukee? (I had the best milkshake of my life there several years ago.)

    Thanks so much for the warm thoughts, Katy. I'm trying very hard to keep the fear under control. If cancer is a crap sandwich, worry is certainly the bread.

  • Carrie37
    Carrie37 Member Posts: 331
    edited July 2015

    I hope you all were able to enjoy the holiday weekend with your family. I had a good weekend but I am so tired! I noticed some hair coming in! Very exciting! Then today I realized that I need to shave my legs. Seriously, how is that fair?!?!?!! I try to smile and push through it. Telling myself that my hair will grow back. But I am with you Whitney, just feeling in the dumps. Cancer is such bullshit. I hate the way I look, thinning eye brows, etc. My nails are killing me. My legs hurt. I have a striking resemblance to my older brother. We share the same hair color. Ugh! Actually, I got to spend two days with my five month old nephew who has more hair then me. Kinda funny but I feel like he understands me. Here he is

    image

  • Trvler
    Trvler Member Posts: 3,159
    edited July 2015

    Carrie: Your nephew is adorable!

  • Italychick
    Italychick Member Posts: 2,343
    edited July 2015

    Was it on this forum or another one that I read that chemo affects the leg muscles for a while after chemo ends?' I can't remember where I see things anymore. Reading that made me hopeful some of my "neuropathy issue" may actually be muscle related and will go away. I do know that my husband has been rubbing my leg muscles, particularly at the top of the calf behind the knee, and my legs have been feeling way better.

    I rode 61 miles yesterday, shocked myself! Hope everybody had a great 4th of July weekend!

    sueH58, I will never fart again without worry lol! My grandma (who lived to be 92 until she got killed by being over medicated after a surgery, her heart stopped in her sleep) got everything fixed. When she leaked pee, she went and got that sphincter muscle tightened up.

    Bekah, the back of your head is coming in amazing! You probably don't think so because you can't see that part, but it is way thicker than anybody else's I have seen. Pretty soon you will be able to go without anything.

    Whitney, hang in there. What's on your mind making you down in the dumps?

  • Carrie37
    Carrie37 Member Posts: 331
    edited July 2015

    Thanks Allison!

    Theresa, I sure hope these leg issues go away. I can't take this for the rest of my life! Good for you on the ride!

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited July 2015

    Carrie- he is adorable!!!

    T- over a 100 miles! That is just so amazing. I realized I don't have the energy to drive 100 miles today! And I actually thought I was doing pretty good, considering. I guess it's all relative.

    But your inspiration is not relative. It is absolute. Keep it up. Just knowing you and your astounding energy, physical and mental, are in my orbit, helps me immensely, every day.

    Katy

  • Meme117
    Meme117 Member Posts: 194
    edited July 2015

    Nice hair stories, I hope mine grows in fast. I also have the fuzz. I'm now worried about my eyebrows and lashes, mine have only thinned. It's so not fair that they can fall out weeks PFC.

    I didn't do any July 4th activities, doesn't feel like the fourth. I did rest watching Wild, America Sniper and Fifty Shades and the UsA women's soccer.

    Sloth my one dog also wears the thunder shirt but he still is so nervous with the fireworks. Do you give a regular Benadryl?

    I'm also feeling a bit down, thinking of chemo on Tuesday and then getting ready for surgery and rads while still doing the herceptin. I just feel so done already and there is so much more to do, it's exhausting. I truly hate the thought of driving to the MOs office anymore. My legs also hurt and my finger nails, I feel pain every time something touches them.

Categories