Trials coming for TNBC vaccine developed in Jacksonville FL

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  • Moderators
    Moderators Member Posts: 25,912
    edited September 2015

    KeepingtheFaith1, first, welcome to BCO and second, thanks for sharing the information! We appreciate it!

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  • StefLove
    StefLove Member Posts: 322
    edited September 2015

    Just called the Jacksonville number and left a message. This poor office must be getting so many calls!

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  • countryfrenchrose
    countryfrenchrose Member Posts: 48
    edited October 2015

    how can I find out if I can participate? I am triple negative dx July 3015

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  • Addie29
    Addie29 Member Posts: 307
    edited October 2015

    call the mayo clinic.

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  • member66
    member66 Member Posts: 14
    edited October 2017

    Did the trial up now? was you selected? Do you have a contact e mail to them?

    Thanks a lot

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  • Connie1230
    Connie1230 Member Posts: 192
    edited October 2017

    I am a TNBC patient at Mayo in Jacksonville. Assuming this is the same clinical trial my MO wanted me in, it has never started and there is no start date scheduled. She (my MO) recommended that I consider doing a clinical trial at Moffitt in Tampa on the same drug that Mayo was going to do the trial on. She and I both contacted them and I am in the clinical trial. The last I heard, there were still spots available in this trial; that was in August. For this particular trial, you need to have completed treatment at least 2 months previously but not more than 1 yr. ago. I go every 4 weeks for 6 mos. and every 6 mos after for 3 years for injections. I will have my 3rd series of injections in November.

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  • waytooanxiousmommy
    waytooanxiousmommy Member Posts: 144
    edited December 2017

    I was just diagnosed with TNBC and curious about when this vaccine will be available to everyone. I know TNBC reoccurs fast and more often than other breast cancer and a vaccine would be great. I hope that it works. How has your experience been so far?



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  • Connie1230
    Connie1230 Member Posts: 192
    edited December 2017

    The clinical trial has pretty much been symptom free. Itching and redness for an hr or so after the injections and that's it. I do have one side effect that appears to be rare; the hair on my legs disappeared again about 6 weeks ago. There's been no problem with the hair on my head

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