Breastcancer.org Podcasts: Listen to Experts Discuss

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  • Moderators
    Moderators Member Posts: 25,912
    edited March 2020

    COVID-19 and Breast Cancer Treatment

    March 26, 2020

    Brian wojciechowski md final 6340

    Brian Wojciechowski, M.D., practices medical oncology in Delaware County, Pennsylvania at Riddle, Taylor, and Crozer hospitals and also serves as Breastcancer.org's medical adviser. A native of South Philadelphia, he trained at Temple University School of Medicine and Lankenau Medical Center. Dr. Wojciechowski is a sought-after speaker on the topics of medical ethics and the biology of cancer.

    On the Breastcancer.org discussion boards and on our Facebook page, people are talking about doctor and treatment appointments being delayed or cancelled because of COVID-19. And many people whose appointments haven't been cancelled are scared to go out.

    Listen to the podcast to hear Dr. Wojciechowski talk about:

    • the general recommendations oncologists are following when deciding which treatments should be delayed
    • which breast cancer treatments can compromise the immune system and how long it takes the immune system to recover
    • the most important things someone being treated for breast cancer should know about COVID-19

    Running time: 21:10

    Listen now or read the transcript.

  • Moderators
    Moderators Member Posts: 25,912
    edited April 2020

    Breast Surgery and Reconstruction During COVID-19

    April 3, 2020

    Podcastthumb pottersprunt v01 040620

    Dr. Julie Sprunt is a board-certified Fellow of the American Academy of Surgeons who specializes in breast surgery, treating all breast conditions. After receiving her medical degree from the University of Texas Health Science Center, she did her residency in general surgery at the University of Texas at Austin and completed a breast surgical oncology fellowship at the University of Southern California.

    Dr. Elisabeth Potter is a board-certified plastic surgeon who received her medical degree from Emory University. She completed her plastic surgery residency at the University of Texas Southwestern Medical Center and her reconstructive plastic surgery and microsurgery fellowship at MD Anderson. Dr. Potter specializes in autologous breast reconstruction and has performed more than 750 DIEP flap surgeries.

    Drs. Potter and Sprunt work as a team to treat breast cancer and then reconstruction a woman's breast or breasts.

    Many people diagnosed with breast cancer are concerned because their breast cancer surgery or reconstruction surgery has been postponed because of the COVID-19 pandemic.

    Listen to the podcast to hear Drs. Potter and Sprunt explain:

    • why many breast cancer surgeries can be safely delayed
    • the American Society of Breast Surgeons recommendations for treatment during COVID-19
    • the American Society of Plastic Surgeons recommendations for reconstruction during COVID-19
    • what they want people who have been diagnosed with breast to know about breast surgery and reconstruction during COVID-19

    Running time: 23:45

    Listen now or read the transcript.
  • Moderators
    Moderators Member Posts: 25,912
    edited April 2020

    Staying Active During Quarantine: Tips for People With Breast Cancer

    April 8, 2020

    Mansfield sami small

    Sami Mansfield started her career as a cancer exercise specialist in 2003. Since being inspired by coaching her first client who had been diagnosed with cancer 15 years ago, her career has been dedicated to helping people with cancer — any type and any stage — live as well as possible. Sami's experience encompasses work in both community- and hospital-based cancer centers, nonprofit organizations, developing and consulting on clinical trials, and as a speaker presenting to both patients and healthcare professionals. She is a certified cancer exercise trainer, a CrossFit Level 1 coach with extensive exercise and nutrition experience, and the founder of Cancer Wellness For Life. She also offers functional movement basics classes on the We Build 4 Life YouTube channel.

    Because of the COVID-19 pandemic, gyms are closed and personal trainers can't visit their clients. So how can people with breast cancer stay active and continue their exercise programs?

    Listen to the podcast to hear Sami discuss:

    • how to motivate yourself to exercise when you're working out alone
    • how exercise can help both your physical and mental while being while you're isolating
    • tips on how to exercise if you have no equipment at home

    Running time: 23:07

    Listen now or read the transcript.

  • Moderators
    Moderators Member Posts: 25,912
    edited April 2020

    COVID-19 Insurance and Financial Issues for People With Breast Cancer

    April 10, 2020

    Morales joanna preferred

    Joanna Morales is a cancer rights attorney, author, speaker, and CEO of Triage Cancer, a national nonprofit organization connecting people to cancer survivorship education through educational events, a speakers bureau, and online materials and resources. Joanna has spent more than 24 years working on behalf of people with cancer, including 5 as an adjunct professor of law at Loyola Law School teaching a seminar in cancer rights law and 8 at the John Wayne Cancer Institute's Psychosocial Care Program and Positive Appearance Center.

    In this podcast, Joanna explains the most important aspects of the Coronavirus Aid, Relief, and Economic Security (CARES) Act for people with cancer, as well as:

    • how the new paid sick leave and family and medical leave programs work
    • what to do if you've been laid off and have lost your employer-sponsored health insurance
    • why it's important to communicate with your creditors if you can't pay your bills right now

    Running time: 30:02

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  • Moderators
    Moderators Member Posts: 25,912
    edited April 2020

    What My Patients Are Asking: Does A Cancer's Stage Change If It Spreads or Comes Back Years Later?

    April 24, 2020

    Brian wojciechowski md final 6340

    Our guest is Dr. Brian Wojciechowski, who practices medical oncology in Delaware County, Pennsylvania at Riddle, Taylor, and Crozer hospitals and also serves as Breastcancer.org's medical adviser. A native of South Philadelphia, he trained at Temple University School of Medicine and Lankenau Medical Center. Dr. Wojciechowski is a sought-after speaker on the topics of medical ethics and the biology of cancer.

    In one of our Discussion Board threads, people were talking about how a breast cancer is staged, especially if an early-stage cancer spreads or comes back in a place away from the breast. Both the American Cancer Society and the National Cancer Institute websites say that the stage of a breast cancer at first diagnosis doesn't change. So a woman who was diagnosed in 2010 with stage II disease and then had a recurrence in the bones in 2015 would technically be "stage II with metastatic recurrence to bone," which is not how most people think and talk about metastatic disease.

    Dr. Wojciechowski reached out to the American Cancer Society about this, and he joins us today to help us all understand this a little bit better.

    Listen to the podcast to hear Dr. Wojciechowski each explain:

    • the technical differences between stage IV breast cancer and metastatic breast cancer
    • how prognosis differs for someone diagnosed de novo stage IV and someone who was diagnosed stage II with a metastatic recurrence 2 years later
    • how he talks to his patients about a breast cancer's stage

    Running time: 17:23

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  • Moderators
    Moderators Member Posts: 25,912
    edited May 2020

    Update: Breast Surgery and Reconstruction During COVID-19

    April 29, 2020

    Podcastthumb pottersprunt v01 040620

    Dr. Julie Sprunt is a board-certified Fellow of the American Academy of Surgeons who specializes in breast surgery, treating all breast conditions. After receiving her medical degree from the University of Texas Health Science Center, she did her residency in general surgery at the University of Texas at Austin and completed a breast surgical oncology fellowship at the University of Southern California.

    Dr. Elisabeth Potter is a board-certified plastic surgeon who received her medical degree from Emory University. She completed her plastic surgery residency at the University of Texas Southwestern Medical Center and her reconstructive plastic surgery and microsurgery fellowship at MD Anderson. Dr. Potter specializes in autologous breast reconstruction and has performed more than 750 DIEP flap surgeries.

    Drs. Potter and Sprunt work as a team to treat breast cancer and then reconstruct a woman's breast or breasts.

    On April 21, 2020, the American Society of Plastic Surgeons released guidelines on how breast reconstruction surgery can begin again. The American Society of Breast Surgeons also issued updated guidelines on treating people with breast cancer during the pandemic.

    Listen to the podcast to hear Drs. Potter and Sprunt explain:

    • why resuming both breast cancer surgery and breast reconstruction surgery will depend on where a woman lives
    • how the surgery process has changed as a result of COVID-19
    • how postoperative procedures have changed as a result of COVID-19

    Running time: 27:50

    Listen now or read the transcript.

  • Moderators
    Moderators Member Posts: 25,912
    edited May 2020

    COVID-19 and Metastatic Breast Cancer

    May 13, 2020

    Mertz shirley

    During her professional career, Shirley Mertz was a political science teacher and high school principal. Before her retirement, Shirley was diagnosed with metastatic breast cancer, 12 years after being diagnosed with early-stage disease. After receiving targeted treatment, Shirley experienced a durable remission. She decided in 2005 to use her skills and intellect to advocate for research to end deaths from metastatic breast cancer; to lobby for access to affordable, quality healthcare; and to empower metastatic patients to make informed healthcare decisions to have the best outcomes. In 2009, to spread knowledge about metastatic disease, Shirley organized and led a group of patients to Congress, asking for a resolution to designate October 13 as National Metastatic Breast Cancer Awareness Day. The resolution passed unanimously.

    In 2013, Shirley was a founding member of the Metastatic Breast Cancer Alliance and currently serves as its chairperson. She is also president of the Metastatic Breast Cancer Network, a patient advocate member of the Translational Breast Cancer Consortium and the AURORA USA clinical study, and a member of the board of directors of the Global Advanced Breast Cancer Alliance based in Lisbon. Shirley is often invited to speak at conferences about the challenges and needs of patients. Among her numerous awards, Shirley was honored at the White House in 2011 as a Champion of Change in Breast Cancer by President Obama.

    In this podcast, Shirley talks about what it's like to live with metastatic breast cancer during the COVID-19 pandemic.

    Listen to the podcast to hear Shirley discuss:

    • her personal journey with breast cancer
    • the ways in which the stresses of COVID-19 and metastatic breast cancer are similar
    • how people with metastatic disease are coping with treatment and scan delays

    Running time: 38:31

    Listen now or read the transcript.

  • Moderators
    Moderators Member Posts: 25,912
    edited May 2020

    Numbness After Mastectomy and Breast Reconstruction

    May 28, 2020

    Dellacroce suit

    Dr. Frank DellaCroce, or "Dr. D" as he has come to be known, is a founding partner of the Center for Restorative Breast Surgery and St. Charles Surgical Hospital in New Orleans. Board-certified in plastic surgery, Dr. D has performed thousands of reconstructive procedures, both for women diagnosed with breast cancer and women at high risk of the disease who choose to have prophylactic breast removal. He is a fellow of the American College of Surgeons and a member of numerous professional societies, including the American Society of Plastic and Reconstructive Surgery, the American Society for Reconstructive Microsurgery, and the World Society for Reconstructive Microsurgery. He also has been named one of the "Best Doctors in America."

    In this podcast, Dr. DellaCroce talks about why numbness happens after mastectomy or breast reconstruction and factors that can affect how much sensation returns.

    Listen to the podcast to hear him explain:

    • the differences between immediate and delayed reconstruction and how each procedure can affect the potential for sensation to return
    • the difference between implant reconstruction and autologous reconstruction and how each procedure can affect the potential for sensation to return
    • how the type of mastectomy can affect the potential for sensation to return
    • why we need more research on using nerve grafts to possibly help sensation return

    Running time: 42:43

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  • Moderators
    Moderators Member Posts: 25,912
    edited June 2020

    Breast Cancer and Race: Disparities and Mental Health Effects

    June 5, 2020

    Fayanju lola preferred small

    Dr. Lola Fayanju is assistant professor of surgery at the Duke University School of Medicine. In addition to treating people with breast cancer surgery, Dr. Fayanju's research interests include using big data and sophisticated analyses to reduce disparities in outcomes after breast cancer diagnoses and to improve the value of breast cancer care. When she was a general surgery resident at Washington University in St. Louis, her research found that women treated by safety-net primary care doctors in the greater St. Louis area were more likely to be diagnosed with more advanced-stage breast cancer than women who had private insurance. She also looked at the reasons behind this disparity, and her work led to an overhaul of the referral process for underserved women in the St. Louis area.

    Breast cancer is a crisis in its own right. Then came the COVID-19 pandemic, which caused many doctors' offices and treatment facilities to close, so breast cancer screenings and treatments have been delayed for months. When some areas were just starting to schedule appointments again, many people experienced additional trauma due to the killing of George Floyd and potentially even more limited access to medical facilities. All of this fear, anxiety, and uncertainty can lead to sky high stress and despair levels, especially for people of color who have been diagnosed with breast cancer.

    In this podcast, Dr. Fayanju talks about some of the disparities we see in breast cancer, as well as some ways to ease stress and despair.

    Listen to the podcast to hear her explain:

    • some of the disparities in breast cancer care and some of the reasons behind the disparities
    • the idea of choice and how that affects the diversity of enrollment in clinical trials
    • the resources she recommends to her patients who are feeling stress and anxiety

    Running time: 22:25

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  • Moderators
    Moderators Member Posts: 25,912
    edited June 2020

    Quarantine Fatigue: How to Stay Vigilant About Your Safety During the COVID-19 Pandemic

    June 17, 2020

    Gollan jackie

    Dr. Jackie Gollan is associate professor of psychiatry and behavioral science and a clinical psychologist at Northwestern University's Feinberg School of Medicine in Chicago. As a clinician, she uses evidence-based psychotherapy to treat people for depression and anxiety. Her research focuses on how habits interfere with our goals; this includes how people make decisions to approach or avoid situations.

    As the quarantine and restrictions related to COVID-19 stretch into their fourth month — though some areas are loosening some restrictions — we may find ourselves not wearing a mask every single time we leave the house or being a bit more casual about washing our hands. This reaction is called "caution fatigue."

    In this podcast, Dr. Gollan explains caution fatigue and give us some tips on how to overcome it.

    Listen to hear Dr. Gollan explain:

    • the differences between caution fatigue, alarm fatigue, and information overload
    • how to recognize if you're experiencing caution fatigue
    • how to overcome caution fatigue

    Running time: 20:30

    Listen now or read the transcript.

  • Moderators
    Moderators Member Posts: 25,912
    edited July 2020

    Talzenna Patient-Reported Outcomes

    June 23, 2020

    Litton jennifer

    Dr. Jennifer Litton, a board-certified medical oncologist and professor of breast medical oncology at the University of Texas MD Anderson Cancer Center in Houston, where she is chief of the Section of Clinical Research and Drug Development for Breast Cancer. She also is a member of the Breast Immuno-Oncology Task Force of the National Cancer Institute.

    At the American Association for Cancer Research virtual annual meeting, Dr. Litton presented results from the EMBRACA trial, looking at using Talzenna (chemical name: talazoparib), a type of medicine called a PARP inhibited, to treat advanced-stage HER2-negative breast cancer in people with a BRCA1 or BRCA2 mutation. She joins us today to talk about the results, especially the patient-reported outcomes, which showed that people treated with Talzenna had better quality of life than people treated with chemotherapy.

    Listen to the podcast to hear Dr. Litton explain:

    • what a PARP inhibitor is and how it works
    • how quality of life was better for people treated with Talzenna compared to chemotherapy
    • why she thinks Talzenna is a good treatment option for people diagnosed with metastatic HER2-negative breast cancer who also have a BRCA1 or a BRCA2 mutation

    Running time: 14:04

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  • Moderators
    Moderators Member Posts: 25,912
    edited July 2020

    Sexual Side Effects of Breast Cancer Treatment

    July 10, 2020

    Kelly shanahan %282%29

    Dr. Kelly Shanahan is a metastatic patient advocate and METAvivor board member. She had to give up her OB/GYN practice because of side effects from metastatic breast cancer treatment. At the 2019 San Antonio Breast Cancer Symposium, Dr. Shanahan was one of the moderators of a panel sponsored by Breastcancer.org and Sermonix Pharmaceuticals on the sexual side effects that breast cancer treatment can cause. As a dual citizen of this discussion — she's both a metastatic patient who has experienced some of these side effects and an OB/GYN who used to treat people for these side effects — she's uniquely qualified to help us all understand the topic and offer solutions.

    Listen to the podcast to here Dr. Shanahan explain:

    • her personal journey with breast cancer
    • why anti-estrogen medicines and chemotherapy can cause vaginal dryness, vaginal atrophy, and pain during intercourse
    • some of the causes of loss of libido
    • solutions to some of the most common sexual side effects, including vaginal dryness and thinning, pain, lack of desire, and hot flashes

    Running time: 37:20

    Listen now or read the transcript.
  • Moderators
    Moderators Member Posts: 25,912
    edited July 2020

    Acupuncture to Ease Breast Cancer Treatment Side Effects

    July 22, 2020

    Fish dory ellen

    Dory Ellen Fish is a board-certified, state-licensed acupuncturist with 25 years of experience in 5 Element and Traditional Chinese Medicine acupuncture. She holds a diplomate in acupuncture from the National Commission for the Certificate of Acupuncture and Oriental Medicine. For the past 15 years, much of her continuing education has been focused on cancer care. She completed the acupuncture course in oncology for cancer patients at Memorial Sloan Kettering Hospital and the Oncology Training for Acupuncture course at MD Anderson. Dory Ellen has lectured and taught at various universities, hospitals, and organizations. Her clinical practice is in Bryn Mawr, Penn.

    Listen to the podcast to hear Dory Ellen explain:

    • what acupuncture is
    • the benefits of acupuncture
    • the risks of acupuncture, including the risk of lymphedema
    • her top three recommendations for someone who wants to try acupuncture for the first time

    Running time: 27:38

    Listen now or read the transcript.

  • Moderators
    Moderators Member Posts: 25,912
    edited August 2020

    Breast Cancer Risk and Race

    August 6, 2020

    Fayanju lola preferred small

    Dr. Lola Fayanju is assistant professor of surgery at the Duke University School of Medicine. In addition to treating people with breast cancer surgery, Dr. Fayanju's research interests include using big data and sophisticated analyses to reduce disparities in outcomes after breast cancer diagnoses and to improve the value of breast cancer care. When she was a general surgery resident at Washington University in St. Louis, her research found that women treated by safety-net primary care doctors in the greater St. Louis area were more likely to be diagnosed with more advanced-stage breast cancer than women who had private insurance. She also looked at the reasons behind this disparity, and her work led to an overhaul of the referral process for underserved women in the St. Louis area.

    In a June 2020 New England Journal of Medicine article, at least two widely used tools estimating breast cancer risk have been found to offer lower risk estimates for women of color.

    Listen to the podcast to hear Dr. Fayanju explain:

    • how these tools were created
    • why an artificially lower risk of breast cancer can be harmful for women of color
    • the factors that she thinks need to be incorporated into risk calculators for minority women
    • how women of color can accurately figure out their risk of breast cancer and develop an appropriate screening plan with their doctor

    Running time: 25:12

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  • Moderators
    Moderators Member Posts: 25,912
    edited September 2020

    COVID-19 and Breast Cancer Care: Follow-Up Questions

    August 24, 2020

    Brian wojciechowski md final 6340

    On July 30, 2020, Breastcancer.org hosted a virtual town hall to hear from medical experts and patients about the effect of COVID-19 on breast cancer care. During the town hall, the medical experts answered many questions, but didn't have time to answer all of them. In this podcast, Breastcancer.org medical adviser Dr. Brian Wojciechowski answers the rest of the questions.

    If you'd like more information, visit our special report on COVID-19 and breast cancer care.

    Dr. Wojciechowski practices medical oncology in Delaware County, Pennsylvania at Riddle, Taylor, and Crozer hospitals. He trained at Temple University School of Medicine and Lankenau Medical Center. Dr. Wojciechowski is a sought-after speaker on the topics of medical ethics and the biology of cancer.

    Listen to the podcast to hear Dr. Wojciechowski explain:

    • what we know about how stress and anxiety can affect the immune system
    • how people diagnosed with metastatic breast cancer can protect themselves in public spaces
    • whether or not it is safe to get a chemotherapy port flushes
    • questions to asks surgeons and other doctors to ensure the proper safety protocols are in place

    Running time: 21:14

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  • Moderators
    Moderators Member Posts: 25,912
    edited October 2020

    COVID-19 Testing Confusion

    September 15, 2020

    Kruse megan

    Dr. Megan Kruse is a breast medical oncologist at the Cleveland Clinic.

    On Aug. 24, 2020, the Centers for Disease Control and Prevention (CDC) modified its COVID-19 testing guidelines to say that people who don't have symptoms don't need to be tested, even if they've been exposed to the virus. Many experts questioned the change, and on Aug. 26, the director of the CDC issued a statement saying that, "testing may be considered for all close contacts of confirmed or probable COVID-19 patients." It's the "may be considered" language that seems to be confusing people.

    Dr. Kruse joins us to help clear up any confusion about COVID-19 testing recommendations.

    Listen to the podcast to hear Dr. Kruse explain:

    • how she's talking to her patients about COVID-19 testing
    • how someone who is immunocompromised should approach COVID-19 testing
    • why testing recommendations for people being treated for breast cancer have to be nuanced

    Running time: 9:36

    Editor's Note: This episode was recorded before September 18, 2020, when the CDC again changed its recommendations on COVID-19 testing to say that people without symptoms should talk to their doctor about being tested if they may have been exposed to the virus.

    Listen now or read the transcript.
  • Moderators
    Moderators Member Posts: 25,912
    edited October 2020

    Verzenio Reduces Recurrence Risk for Certain Early-Stage Breast Cancers

    September 21, 2020

    Johnston stephen

    Dr. Stephen Johnston is professor of breast cancer medicine and consultant medical oncologist at The Royal Marsden NHS Foundation Trust and The Institute of Cancer Research in London.

    At the European Society for Medical Oncology Virtual Congress 2020, Dr. Johnston presented results from the monarchE trial. This study compared treating people diagnosed with early-stage hormone-receptor-positive, HER2-negative breast cancer with a high risk of recurrence with either standard hormonal therapy after surgery or two years of Verzenio (chemical name: abemaciclib) in addition to standard hormonal therapy.

    Listen to the podcast to hear Dr. Johnston explain:

    • the characteristics that make early-stage hormone-receptor-positive, HER2-negative breast cancer have a high risk of recurrence
    • an overview of the study and its early results
    • side effects caused by Verzenio seen in the study
    • the future of using Verzenio to treat early-stage hormone-receptor-positive, HER2-negative breast cancer with a high risk of recurrence

    Running time: 27:08

    Listen now or read the transcript.
  • Moderators
    Moderators Member Posts: 25,912
    edited October 2020

    Flu Vaccines and Holiday Safety During the COVID-19 Pandemic

    October 7. 2020

    Robilotti elizabeth 06

    Infectious disease expert Dr. Elizabeth Robilotti is assistant attending physician and associate medical epidemiologist at the Memorial Sloan Kettering Cancer Center.

    Listen to the podcast to hear her discuss:

    • why a flu vaccine is so important during the COVID-19 pandemic, especially for people diagnosed with breast cancer
    • why you can't contract the flu from the flu vaccine
    • how to safely celebrate the fall and winter holidays

    Running time: 13:07

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  • Moderators
    Moderators Member Posts: 25,912
    edited October 2020

    Breast Cancer Research at ESMO 2020

    October 12, 2020

    Method michael

    Dr. Michael Method is an oncologist and also senior medical adviser and global lead for adjuvant breast cancer treatment research at Lilly Oncology.

    While ESMO 2020 was virtual this year, there was still quite a bit of breast cancer research presented. Dr. Method joined us to talk about some of the most notable studies.

    Listen to the podcast to hear him discuss:

    • studies looking at using the CDK4/6 inhibitors Verzenio (chemical name: abemaciclib) and Ibrance (chemical name: palbociclib) to treat early-stage hormone-receptor-positive, HER2-negative breast cancer
    • a study using the immunotherapy Tecentriq (chemical name: atezolizumab) to treat early-stage triple-negative breast cancer before surgery

    Running time: 27:16

    Listen now or read the transcript.
  • Moderators
    Moderators Member Posts: 25,912
    edited October 2020

    Does Chemotherapy Choice Affect How Well Tecentriq Works Against Breast Cancer?

    October 20, 2020

    Emens leisha

    Dr. Leisha Emens is professor of medicine in hematology/oncology at the University of Pittsburgh Hillman Cancer Center. She is also co-leader of the Hillman Cancer Immunology and Immunotherapy Program and director of translational immunotherapy for the Women's Cancer Research Center. She is internationally recognized for her research on using immunotherapy to treat breast cancer.

    At the European Society for Medical Oncology Virtual Congress 2020, Dr. Emens presented final overall survival results from the IMpassion130 study, showing that the combination of Tecentriq, which has the chemical name atezolizumab, and Abraxane, which has the chemical name nab-paclitaxel, improved overall survival by 7.5 months compared to Abraxane alone for people diagnosed with metastatic PD-L1-positive, triple-negative breast cancer. But another trial — the IMpassion131 study — found that combining Tecentriq with Taxol, a different form of paclitaxel, was no better than Taxol alone in treating the same type of breast cancer — metastatic triple-negative disease.

    Listen to the podcast to hear Dr. Emens explain:

    • the differences in the designs of the two studies
    • how Abraxane is different from Taxol
    • possible reasons for the difference in results
    • what this means for patients

    Running time: 16:58

    Listen now or read the transcript.
  • Moderators
    Moderators Member Posts: 25,912
    edited November 2020

    Weslinne's Story: Diagnosed With Breast Cancer During COVID-19

    October 14, 2020

    Cespedes weslinne small

    Weslinne Cespedes, who lives in Brooklyn, was diagnosed with stage III triple-negative breast cancer at age 30 in March of this year, just as New York City was deciding when and what to shut down because of the COVID-19 pandemic.

    Listen to the podcast to hear Weslinne talk about:

    • how finding a lump in her breast led to her diagnosis
    • how the COVID-19 pandemic added to the stress of cancer treatment
    • how she started chemotherapy and planned her wedding during the pandemic
    • how she feels the diagnosis changed her
    • what she wants people to know

    Running time: 39:38

    Listen now or read the transcript.

  • Moderators
    Moderators Member Posts: 25,912
    edited November 2020

    Ira's Story: Living as a Trans Man With a BRCA1 Mutation

    November 17, 2020

    Feinstein ira headshot small

    Ira Feinstein is an American author currently living in Chicago. Cut Off will be his first book. Growing up in Georgia and Michigan, Ira lived as Carla before gender transitioning at age 38. Carla lost both of her parents by age 11 — her father died unexpectedly of a heart attack and 2 years later, her mother died from breast cancer. A number of years after her mother's death, Carla learned that she carried a BRCA1 mutation, which gave her a much higher than average risk of breast and ovarian cancer. Carla had a preventive double mastectomy and hysterectomy before gender transitioning.

    Listen to the podcast to hear Ira talk about:

    • living with a BRCA1 mutation, both as a woman and a trans man
    • the decision to have preventive surgery
    • his experiences as a trans man dealing with the medical community
    • his advice for other people dealing with a genetic mutation
    • Cut Off, his first book

    Running time: 28:16

    Listen now or read the transcript.
  • Moderators
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    edited December 2020

    Hypofractionated Radiation Therapy

    November 23, 2020

    Shah chirag

    Dr. Chirag Shah is a radiation oncologist and director of breast radiation and clinical research in the department of radiation oncology at the Cleveland Clinic. His primary research interests are breast cancer, sarcoma, and innovative radiation treatment schedules, as well as lymphedema. He has participated in numerous clinical trials.

    Listen to the podcast to hear Dr. Shah explain:

    • the difference between hypofractionated radiation schedules and older, longer radiation schedules, as well as why accelerated schedules were created
    • the benefits and possible risks of a hypofractionated radiation schedule
    • how to advocate for yourself if your radiation oncologist doesn't recommend a hypofractionated schedule

    Running time: 11:06

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  • Moderators
    Moderators Member Posts: 25,912
    edited December 2020

    SABCS 2020: Easing Depression in Young Breast Cancer Survivors

    December 10, 2020

    Ganz patty

    Dr. Patricia Ganz is a medical oncologist who is distinguished professor of medicine as well as professor of health policy and management at UCLA. She also serves as director of the Center for Cancer Prevention and Control Research at the Jonsson Comprehensive Cancer Center. Dr. Ganz is a member of the Breastcancer.org Professional Advisory Board.

    At the 2020 San Antonio Breast Cancer Symposium, she presented results from a study looking at using mindfulness meditation and survivorship education classes to ease depression in younger women treated for breast cancer.

    Listen to the podcast to hear Dr. Ganz explain:

    • how the breast cancer experience is different for younger and older women
    • why the researchers chose to study mindfulness meditation and survivorship classes to ease depression
    • how someone who is interested could participate in the UCLA Mindfulness Center mindfulness meditation classes

    Running time: 19:07

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  • Moderators
    Moderators Member Posts: 25,912
    edited December 2020

    SABCS 2020: Supplement Use After Breast Cancer

    December 14, 2020

    Harrigan maura

    Maura Harrigan is an oncology research registered dietitian and project manager at the Yale School of Medicine. She also serves as a registered dietitian nutritionist in the Survivorship Clinic at the Yale Cancer Center.

    At the 2020 San Antonio Breast Cancer Symposium, results were presented from a study on dietary supplement use by breast cancer survivors and how these supplements may interact with tamoxifen and the aromatase inhibitors. Maura is the lead researcher on the study.

    Listen to the episode to hear Maura discuss:

    • why telling your doctor and/or a registered dietitian with oncology expertise about any and all the supplements you take is so important
    • why people may be getting more of a particular supplement than they realize
    • her advice for women who've been treated for breast cancer and are considering taking supplements

    Running time: 35:31

    Listen now or read the transcript.

  • Moderators
    Moderators Member Posts: 25,912
    edited December 2020

    Using Cold Caps During Breast Cancer Treatment

    December 17, 2020

    Heba1

    Heba Abdalla is a member of the Breastcancer.org community who was diagnosed with de novo metastatic breast cancer at age 36 when she was pregnant with her third child. Being diagnosed de novo means that the cancer was metastatic at first diagnosis.

    Heba has been on several different treatments, including some that are known to cause hair loss. She has used cold caps during treatment three times and in this episode of the Breastcancer.org podcast, she'll tell us about her experience with them.

    Listen to the episode to hear Heba talk about:

    • her diagnosis and first treatments
    • how she learned about cold caps
    • why she wanted to use cold caps
    • how well cold caps worked for her
    • what she wants other people considering cold caps to know

    Running time: 29:51

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  • Moderators
    Moderators Member Posts: 25,912
    edited January 2021

    Understanding the COVID-19 Vaccines

    December 24, 2020

    Elsahly hana

    Dr. Hana El Sahly is associate professor of molecular virology and microbiology in the Vaccine and Treatment and Evaluation Unit at the Baylor College of Medicine in Houston. Dr. El Sahly is the chairperson of the U.S. Food and Drug Administration (FDA) Vaccines and Related Biological Products Advisory Committee, the committee that makes vaccine recommendations to the FDA, and was also the lead investigator for the phase III trial for the Moderna COVID-19 vaccine. Because of her role in studying the Moderna vaccine, Dr. El Sahly recused herself from the committee's review of COVID-19 vaccines. In this podcast, she talks to us about both the Pfizer-BioNTech and Moderna COVID-19 vaccines that have been granted emergency authorization by the FDA.

    Listen to the podcast to hear Dr. El Sahly explain:

    • how mRNA vaccines work
    • the differences between the Pfizer-BioNTech and Moderna vaccines
    • the safety and effectiveness of the vaccines for people with weakened immune systems
    • why someone who's been vaccinated still needs to wear a mask and practice social distancing

    Running time: 19:22

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  • Moderators
    Moderators Member Posts: 25,912
    edited January 2021

    Why Health Literacy Is Important for People With Breast Cancer

    January 6, 2021

    Sheng jenni

    Dr. Jenni Sheng is assistant professor of oncology at the Johns Hopkins University School of Medicine. Dr. Sheng mainly treats people diagnosed with breast cancer and helps them live with, through, and beyond cancer by working with her patients to create the best treatment plans and manage any side effects treatment may cause.

    Dr. Sheng is also a research member of GRASP — Guiding Researchers and Advocates to Scientific Partnerships — a nonprofit that connects cancer researchers and advocates so they can learn from each other.

    Listen to the episode to hear Dr. Sheng explain:

    • what health literacy is and how having good health literacy skills can help people diagnosed with breast cancer
    • how people can improve their health literacy skills
    • how to navigate online sources of health information

    Running time: 21:51

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  • Moderators
    Moderators Member Posts: 25,912
    edited January 2021

    SABCS 2020: Pregnancy After a Breast Cancer Diagnosis

    January 13, 2021

    Lambertini matteo

    Fertility after breast cancer treatment is an important issue for many, many younger women diagnosed with breast cancer. At the 2020 San Antonio Breast Cancer Symposium, research was presented showing that while breast cancer survivors of child-bearing age are less likely to get pregnant than the average woman, most have healthy babies and pregnancy has no effect on their long-term survival. Dr. Matteo Lambertini, adjunct professor of medical oncology at the University of Genova - IRCCS Policlinico San Martino Hospital, is corresponding author of the study.

    Listen to the episode to hear Dr. Lambertini explain:

    • why the researchers did the study
    • a summary of the study and the results
    • why it is important for women and doctors to know that pregnancy after breast cancer treatment is safe for both a woman and her baby
    • his advice to young women who have been diagnosed with breast cancer and want to have a child after treatment

    Running time: 11:14

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  • Moderators
    Moderators Member Posts: 25,912
    edited January 2021

    SABCS 2020: Doctors May Not Recognize the Severity of Radiation Side Effects

    January 19, 2021

    Jagsi reshmajpg

    Dr. Reshma Jagsi is the Newman Family Professor and deputy chair of the department of radiation oncology and director of the Center for Bioethics and Social Sciences in Medicine at the University of Michigan.

    At the 2020 San Antonio Breast Cancer Symposium, she presented results from a study looking at how well doctors recognized radiation treatment side effects among people treated for breast cancer.

    Listen to the episode to hear Dr. Jagsi explain:

    • why the researchers decided to look at this topic
    • why certain groups, including younger women and women who are Black or of a race other than Asian or white, were more likely to have their doctors assess their side effects as less severe than they really were
    • how patients can help make sure their doctors understand the severity of any side effects they're having

    Running time: 12:59

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