Breastcancer.org Podcasts: Listen to Experts Discuss
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Radiation Effects on Reconstruction -- Heard in the Halls: Voices From the 2016 San Antonio Breast Cancer Symposium, December 10, 2016
Breastcancer.org Chief Medical Officer and Founder Marisa Weiss, M.D. talks how radiation therapy can affect different types of breast reconstruction.
Running time: 4:28
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Quality of Life With Metastatic Disease -- Heard in the Halls: Voices From the 2016 San Antonio Breast Cancer Symposium, December 10, 2016
Leah Eshraghi, director of clinical research at the Dr. Susan Love Research Foundation, discusses the poster she presented on quality of life and disease collateral damage in women diagnosed with metastatic breast cancer.
Running time: 3:05
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Overcoming Hormonal Therapy Side Effects -- Heard in the Halls: Voices From the 2016 San Antonio Breast Cancer Symposium, December 10, 2017
Breastcancer.org Chief Medical Officer and Founder Marisa Weiss, M.D. talks about the importance of sticking with a hormonal therapy treatment plan and ways to deal with any side effects.
Running time: 1:50
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Sexual Health, Intimacy, and Metastatic Disease: Reclaiming Your Sexual Self, February 10, 2017
Sage Bolte is executive director of Life With Cancer and also serves as associate director of psychosocial program for the Inova Health System. She is an internationally recognized educator and speaker on sexual health, intimacy, and relationships among people diagnosed with cancer and other chronic diseases. She conducts lectures, workshops, and training to both patient and healthcare professional groups on the topic of the sexual self and cancer survivorship. Her goal is to help empower patients to reclaim their sexual selves in spite of the many physical and emotional changes they may experience from their cancer diagnosis and to help healthcare professionals feel more comfortable and knowledgeable to assess and address the sexual health needs of their patients.
Listen to the podcast to hear Sage talk about:
- how women diagnosed with metastatic disease can redefine sexual health so they're fulfilled and satisfied
- tips for women who are having vaginal pain/dryness, including stretching and strengthening exercises
- why it's important to remember libido starts in the brain, not necessarily the body
- how to start a conversation with a partner about what is pleasurable right now and how what's desired may change
Running time: 26:33
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Biosimilars: What Are They and What Are Their Advantages?, March 8, 2017
Dr. Philip Lammers, a medical oncologist, is the chief of the Division of Hematology/Oncology at Meharry Medical College and adjunct assistant professor of internal medicine at Vanderbilt University. He has several active research projects on ways to increase minority and underserved population representation in clinical trials. He also studies state-of-the art cancer treatments, including biosimilars.
Listen to the podcast to hear Dr. Lammers explain:
- what a biosimilar drug is, as well as the approval process for biosimilars
- how we can be sure that biosimilars are as safe as the reference products
- the advantages and disadvantages of biosimilars
- when we might see biosimilars on the market to treat breast cancer
Running time: 15:10
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Pausing Hormonal Therapy Treatment to Have a Child: The POSITIVE Trial, March 24, 2017
Ann Partridge, M.D., MPH., is founder and director of the Program for Young Women with Breast Cancer and the Adult Survivorship Program, as well as senior physician at the Dana-Farber Cancer Institute and associate professor of medicine at Harvard Medical School. She is a medical oncologist focusing on the care of women with breast cancer and has a particular interest in the psychosocial, behavioral and communication issues in breast cancer care and treatment.
Dr. Partridge is also the lead investigator of the U.S. arm of the POSITIVE trial. This study is looking at whether premenopausal women diagnosed with hormone-receptor-positive disease who stop taking hormonal therapy after about 1.5 to 2.5 years of treatment to get pregnant have a higher risk of the breast cancer coming back, which doctors call recurrence. Most women diagnosed with hormone receptor positive disease take hormonal therapy for 5 to 10 years after surgery. In the POSITIVE trial, the women who want to get pregnant are stopping hormonal therapy for up to 2 years to become pregnant, deliver the baby and breastfeed. The women then start hormonal therapy again.
Listen to the podcast to hear Dr. Partridge talk about:
- why the researchers decided to do this study
- the safeguards the study has in place so a developing baby won't be harmed by the hormonal therapy medicine
- other safety concerns associated with stopping hormonal therapy to get pregnant besides recurrence risk
The POSITIVE trial is currently recruiting participants. If you are a premenopausal woman who has been diagnosed with hormone-receptor-positive breast cancer and have been taking hormonal therapy medicine for fewer than 2 years and are interested in participating in the study, visit the ClinicalTrials.gov page for complete details. You also can call Dr. Partridge's office at the Dana-Farber Cancer Center at 617-632-3800 to discuss participating in the study.
Running time: 27:09
Visit the Fertility and Pregnancy Issues During and After Breast Cancer section for more information on pregnancy after treatment.
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Living Well With Metastatic Disease: Controlling Fear, Finding Joy, May 30, 2017
Teva Harrison is an artist, writer, and cartoonist who was diagnosed with stage IV breast cancer at age 37. She is the author of the bestselling, critically acclaimed graphic memoir, In-Between Days; the book was shortlisted for the Governor General's Literary Award for Non-Fiction.
Teva is a Canadian Magazine Award and National Magazine Award finalist whose writing and/or comics have appeared in The Walrus, Quill & Quire, Huffington Post, Carte Blanche, The Humber Literary Review, The Globe and Mail, and more. She is a regular commentator on radio, television, and in newspapers, including CBC Radio, the Toronto Star, The Globe and Mail, and The Agenda with Steve Paikin.
Born and raised in rural Oregon, Teva currently lives in Toronto with her husband.
Listen to the podcast to hear Teva talk about:
- how she changed her mind about being public about her diagnosis
- how she controls her fear and finds joy and beauty in her life
- the things she's saying yes to and how they are making her happy
- what leaving a legacy means to her
Running time: 25:09
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Personal Finance After a Breast Cancer Diagnosis: Advice From Suze Orman, June 26, 2017
Suze Orman has been called "a force in the world of personal finance" and a "one-woman financial advice powerhouse" by USA Today. A two-time Emmy Award-winning television host, New York Times mega bestselling author, magazine and online columnist, writer/producer, and one of the top motivational speakers in the world today, Orman is undeniably America's most recognized expert on personal finance.
Listen to the podcast to hear Suze discuss:
- the four documents that EVERYONE should have
- what a young parent with metastatic disease can do protect the financial future of her minor children
- when to start taking disability or Social Security payments if you've been diagnosed with stage IV breast cancer
- the differences between wills and trusts
Running time: 30:44
Listen now or read the transcript. -
Managing the Emotions of Metastatic Breast Cancer, July 14, 2017
For nearly 25 years, Kelly Grosklags has dedicated her practice to minimizing suffering through her work in oncology, palliative care and hospice. An experienced therapist, Kelly is a licensed clinical social worker and a board-certified diplomat in clinical social work. She also earned a fellowship in grief counseling from the American Academy of Health Care Professionals. Kelly speaks frequently about end-of-life issues, including care, grief and loss, both in person and on her website, Conversations With Kelly. Her passionate and supportive demeanor helps patients, caregivers and health professionals connect with the wisdom of making life more meaningful, coping with depression and anxiety, transforming fear into hope, healing versus curing, and the wisdom of dying a good death.
Listen to the podcast to hear Kelly talk about:
- taming the feelings of fear, anger, and loss of control that can come with a metastatic diagnosis
- strategies to deal with "scanxiety"
- how to allow yourself to ask for help
- how and how much to disclose about your diagnosis to your friends and at work
Running time: 46:06
Listen now or read the transcript. -
Controlling Pain During and After Breast Cancer Surgery, July 24, 2017
Beth Baughman DuPree performs breast cancer surgery and is vice president at the Holy Redeemer Health System, as well as an adjunct assistant professor of surgery at the University of Pennsylvania. She is a board certified general surgeon specializing in diseases of the breast. She also has obtained dual board certification in integrative and holistic medicine. She has won numerous awards for her medical work as well as her humanitarian endeavors. Dr. DuPree's skin-sparing mastectomies, performed in conjunction with plastic surgeon Robert Skalicky, were featured live on the Internet; the webcast and subsequent documentary received a Gracie Award.
Listen to the podcast to hear Dr. DuPree discuss:
- the types of medicines used to control pain during breast cancer surgery
- non-opioid pain control options for people in recovery or who simply don't want an opioid
- the side effects of pain medications
- ways to control pain that don't involve medication
Running time: 23:11
Listen now or read the transcript -
Facing the End of Life, July 31, 2017
For nearly 25 years, Kelly Grosklags has dedicated her practice to minimizing suffering through her work in oncology, palliative care and hospice. An experienced therapist, Kelly is a licensed clinical social worker and a board-certified diplomat in clinical social work. She also earned a fellowship in grief counseling from the American Academy of Health Care Professionals. Kelly speaks frequently about end-of-life issues, including care, grief and loss, both in person and on her website, Conversations With Kelly. Her passionate and supportive demeanor helps patients, caregivers and health professionals connect with the wisdom of making life more meaningful, coping with depression and anxiety, transforming fear into hope, healing versus curing, and the wisdom of dying a good death.
Listen to the podcast to hear Kelly talk about:
- becoming comfortable with talking about the end of life
- why stopping treatment is not giving up
- hospice care -- what it is and when to start talking about it
- how to talk to children about the end of life
Running time: 34:05
Listen now or read the transcript.
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Nipple Reconstruction, September 21, 2017
Dr. Frank DellaCroce, or "Dr. D" as he has come to be known, is a founding partner of the Center for Restorative Breast Surgery and St. Charles Surgical Hospital in New Orleans. Board-certified in plastic surgery, Dr. D has performed thousands of reconstructive procedures, both for women diagnosed with breast cancer and women at high risk of the disease who choose to have prophylactic breast removal. He is a fellow of the American College of Surgeons and a member of numerous professional societies, including the American Society of Plastic and Reconstructive Surgery, the American Society for Reconstructive Microsurgery, and the World Society for Reconstructive Microsurgery. He also has been named one of the "Best Doctors in America."
Listen to the podcast to hear Dr. D discuss:
- the benefits and risks of nipple reconstruction
- the timing of nipple reconstruction
- how nipple reconstruction has evolved over the years
- how long the procedure takes and what recovery is like
Running time: 18:06
Listen now or read the transcript.
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Metastatic Breast Cancer: Now What?, September 22, 2017
Krista Curley was diagnosed 3 1/2 years ago with estrogen-receptor-positive metastatic breast cancer in her lymph system and bones at the age of 39. She had no previous diagnosis of cancer. Since her initial diagnosis, the cancer has spread further into her bones and to her liver, despite surgery, various hormonal therapies, and chemotherapy. Krista lives in Ontario, Canada and is married to Patrick, the love of her life. She is the mother of Ethan, who is 16, and Naomi, who is 10. She has a blog about living with metastatic disease called "Metastatic Breast Cancer: Now What?"
Listen to the podcast to hear Krista talk about:
- what writing the blog gives to her
- how she and her family find joy and humor in day-to-day life
- how she talked to her kids about metastatic disease
- the one thing she would tell people about metastatic breast cancer
Running time: 25:20
Listen now or read the transcript.
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Stories of Mastectomy and Reconstruction: Deidra, October 2, 2017
A former pharmaceutical sales rep, Deidra is a 3-time cancer survivor. She was diagnosed with melanoma in 1991 at age 32 in 1991. In 2006, she was diagnosed with non-Hodgkin lymphoma at age 47. Three days before Christmas in 2014 and 12 weeks before the wedding of her son, Pierce, she was diagnosed with hormone-receptor-positive breast cancer in two spots. She had double mastectomy and immediate DIEP flap reconstruction on January 18. She also had nipple reconstruction and tattooing. Her goal was to be able to dance at Pierce's wedding, and she did. She continues to take an aromatase inhibitor.
Deidra is one of three women whose stories are featured in the Breastcancer.org video series on reconstruction after mastectomy.
Listen to the podcast to here Deidra talk about:
- why she was honored to share her story
- what she would tell a woman who was recently diagnosed with breast cancer
- how she felt when she was relating her story on camera
- what dancing at Pierce's wedding meant to her
Running time: 20:17
Listen now or read the transcript. -
Stories of Mastectomy and Reconstruction: Mimi, October 5, 2017
Breast cancer was familiar to Mimi, even before she was diagnosed. Her mother has been diagnosed with breast cancer three times. She was treated with a double mastectomy, radiation and chemotherapy. Fifteen years later, she is cancer-free. Mimi's cousin Annette, her best friend, was diagnosed with breast cancer in 2009 and passed away from the disease that same year at age 42. Mimi herself was diagnosed with stage I breast cancer in April 2015 at age 45, the same age her mother was first diagnosed. She had a double mastectomy with immediate DIEP flap reconstruction. Later she also had a preventive hysterectomy because the cancer was hormone-receptor-positive. She took tamoxifen and an aromatase inhibitor but has since stopped.
Mimi is one of three women whose stories are featured in the Breastcancer.org video series on reconstruction after mastectomy.
Listen to the podcast to hear Mimi discuss:
- how she made her decisions about surgery and reconstruction
- the positives she believes breast cancer brought to her life
- what she would say to a woman who was recently diagnosed with breast cancer
Running time: 16:51
Listen now or read the transcript. -
Stories of Mastectomy and Reconstruction: Peggy, October 18, 2017
A former first grade teacher, Peggy Johnson was diagnosed with breast cancer in November 2009 after she became concerned about some dimpling in her left breast. She had six rounds of chemotherapy, then a double mastectomy with immediate implant reconstruction in May 2010. She then had radiation therapy. After that treatment was completed, she had new implants inserted in December 2010. At that time, nipple reconstruction wasn't offered to her. In early 2016, at her annual exam with her breast surgeon, the surgeon discovered that one of her implants had ruptured and was leaking. Peggy was told she would have to have her implants replaced yet again. Instead, she decided to have DIEP flap reconstruction as well as nipple reconstruction and nipple tattooing in May 2016.
Peggy is one of three women whose stories are featured in the Breastcancer.org video series on reconstruction after mastectomy.
Listen to the podcast to hear Peggy talk about:
- why she decided to have DIEP flap surgery when her implant ruptured
- how keeping a journal helped her
- how she tries to be a resource for women diagnosed with breast cancer
Running time: 17:43
Listen now or read the transcript. -
December 5, 2017
Leisha Emens, associate professor of oncology at Johns Hopkins University School of Medicine and member of the Bloomberg~Kimmel Institute for Cancer Immunotherapy, discusses the state of immunotherapy to treat breast cancer.
Running time: 3:15
Listen now or read the transcript.
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December 6, 2017
Marc Hurlbert, chairperson of the Metastatic Breast Cancer Alliance (MBCA) and chief mission officer of the Breast Cancer Research Foundation, discusses some research presented in San Antonio by MBCA collaborators.
Running time: 3:00
Listen now or read the transcript. -
December 6, 2017
The targeted therapy Kisqali (chemical name: ribociclib) is approved to be used in combination with an aromatase inhibitor to treat advanced-stage or metastatic hormone-receptor-positive, HER2-negative breast cancer that hasn't been treated with hormonal therapy yet in postmenopausal women. Dr. Debu Tripathy, professor of medicine and chairperson of the Department of Breast Medical Oncology at the University of Texas MD Anderson Cancer Center, discusses the results of the MONALEESA-7 study he presented at the 2017 San Antonio Breast Cancer Symposium showing that Kisqali can help treat premenopausal and perimenopausal women diagnosed with the same type of breast cancer.
Listen to the podcast to hear Dr. Tripathy explain:
- why the study is important
- why ovarian suppression helps make the treatments more effective
- the side effects caused by Kisqali
- why he thinks this study will change practice
Running time: 7:25
Listen now or read the transcript. -
December 7, 2017
Kelly Shanahan, MD, a former obstetrician/gynecologist, was diagnosed with early-stage breast cancer in 2008 and then diagnosed with metastatic disease in 2013, on her birthday. Here she talks about how empowering it was to participate in the #ThisIsMBC Serenity Project, which gives women and men living with metastatic breast cancer an opportunity to tell their personal stories through a series of unique pictures and inspiring videos.
Running time: 4:01
Listen now or read the transcript. -
December 7, 2017
Terry Lynn Arnold, founder of The IBC Network Foundation who was diagnosed with triple-negative inflammatory breast cancer in 2007, talks about how her organization is raising awareness of and funding research on this rare type of breast cancer.
Running time: 1:48
Listen now or read the transcript. -
Acupuncture Helps Ease Joint Pained Caused by Aromatase Inhibitors Dawn Hershman, M.D.
December 8, 2017
Joint pain is one of the most common side effects of aromatase inhibitors and may be a big reason why women stop taking these medicines early. Dr. Dawn Hershman, leader of the Breast Cancer Program at the Herbert Irving Comprehensive Cancer Center at New York-Presbyterian/Columbia University Medical Center, presented research at the 2017 San Antonio Breast Cancer Symposium showing that acupuncture can ease aromatase inhibitor-caused joint pain, even after the acupuncture treatment sessions stop.
Listen to the podcast to hear Dr. Hershman explain:
- how much acupuncture eases joint pain
- why she believes acupuncture could help many women stick to their hormonal therapy treatment plans
- the cost of acupuncture relative to other treatments
- the few and mild side effects of acupuncture
Running time: 13:26
Listen now or read the transcript. -
December 8, 2017
Preserving fertility after chemotherapy is an important issue for many, many younger women diagnosed with early-stage breast cancer. Dr. Matteo Lambertini, medical oncologist at the Institute Jules Bordet Brussels, presented research at the 2017 San Antonio Breast Cancer Symposium showing that ovarian suppression with a gonadotropin-releasing hormone analogue such as Lupron, Trelstar, or Zoladex, can safely protect ovarian function and may help preserve fertility in younger women being treated with chemotherapy for early-stage disease.
Listen to the podcast to hear Dr. Lambertini explain:
- why earlier studies on this topic had mixed results
- the results of the study
- the side effects of gonadotropin-releasing hormone analogues
- the strategies he recommends to his younger patients diagnosed with early-stage breast cancer who want to have a child after chemotherapy
Running time: 9:09
Listen now or read the transcript. -
December 8, 2017
Jennifer Litton, associate professor of breast Medical Oncology at the University of Texas MD Anderson Cancer Center, discusses the results of the EMBRACA study she presented at the 2017 San Antonio Breast Cancer Symposium showing that talazoparib, an experimental targeted therapy medicine, improved the time until the cancer grew in women with a BRCA1 or BRCA2 mutation who had been diagnosed with metastatic HER2-negative breast cancer compared to chemotherapy.
Listen to the podcast to hear Dr. Litton explain:
- how talazoparib works
- whether talazoparib will offer benefits to women with other mutations linked to a higher risk of breast cancer
- how the side effects differed between talazoparib and chemotherapy
- why quality of life was better in women who were treated with talazoparib
Running time: 9:58
Listen now or read the transcript. -
December 8, 2017
Research has shown that women who are overweight or obese have a higher risk of breast cancer, especially after menopause. Still, research results have been mixed on whether losing weight would decrease a postmenopausal woman's breast cancer risk. Rowan Chlebowski, research professor in the Department of Medical Oncology and Therapeutics Research at City of Hope, discusses an analysis of data from the very large Women's Health Initiative Observational Study that found that overweight or obese postmenopausal women who lost just a modest amount of weight -- as little as 10 or 15 pounds -- had a lower risk of breast cancer.
Listen to the podcast to hear Dr. Chlebowski explain:
- why he wanted to do this study
- why this study was different than earlier studies
- his advice to postmenopausal women
Running time: 7:48
Listen now or read the transcript. -
HER2-Positive Breast Cancer Recurrence
December 15, 2017
Dr. Marleen Meyers is a medical oncologist and clinical assistant professor of medicine at NYU Langone. She also serves as director of the Perlmutter Cancer Center Survivorship Program. She received her medical degree from the NYU School of Medicine and has been in practice for more than 20 years.
Listen to the podcast to hear Dr. Meyers talk about:
- what HER2-positive breast cancer is and how its aggressiveness ranks compared to other types of breast cancer
- factors doctors consider when estimating a person's risk of recurrence
- specific ways to reduce the risk of HER2-positive disease recurrence
- how she helps her patients manage the fear of recurrence
Running time: 17:06
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February 26, 2018
Beth Fairchild was diagnosed with de novo metastatic breast cancer in 2014 at age 34. The diagnosis was a surprise to her because her mammogram results from the month before were negative, and she had never had a lump in her breast. Beth was familiar with breast cancer though. Her mother was diagnosed with breast cancer at age 44, and her paternal grandmother died from breast cancer at age 33.
An artist and tattoo professional, Beth and her husband own five tattoo studios. Her focus is on permanent cosmetics, scar camouflage, and areola restoration for people diagnosed with breast cancer. Beth is the current president of METAvivor, a nonprofit organization dedicated to increasing awareness of metastatic breast cancer and funding research on metastatic disease. Beth also is one of the creators of the Serenity Project, a metastatic breast cancer support campaign that gives patients an opportunity to tell their personal metastatic breast cancer stories through a series of photos and videos.
Listen to the podcast to hear Beth talk about:
- what the Serenity Project is
- the inspiration for the Serenity Project and how it became reality
- what the participants have said about the project
- what public reaction has been to the project
Running time: 19:47
Listen now or read the transcript.
Listen to Beth's other podcast, Permanent Cosmetics, Scar Camouflage, and Nipple Tattooing.
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Permanent Cosmetics, Scar Camouflage, and Nipple Tattooing
March 2, 2018
Beth Fairchild was diagnosed with de novo metastatic breast cancer in 2014 at age 34. The diagnosis was a surprise to her because her mammogram results from the month before were negative and she had never had a lump in her breast. Beth was familiar with breast cancer though. Her mother was diagnosed with breast cancer at age 44 and her paternal grandmother died from breast cancer at age 33.
An artist and tattoo professional, Beth and her husband own five tattoo studios. Her focus is on permanent cosmetics, scar camouflage and areola restoration for people diagnosed with breast cancer. Beth is the current president of METAvivor, a non-profit organization dedicated to increasing awareness of metastatic breast cancer and funding research on metastatic disease. Beth tattoos permanent cosmetics, such as eyebrows or eyeliner, as well as nipples and areolas for women who have had breast cancer surgery.
Listen to the podcast to hear Beth explain:
- how to find a professional who can do permanent cosmetics
- what scar camouflage is
- how she approaches the nipple tattooing process
- what nipple tattooing and areola restoration has done for her clients
Running time: 22:18
Listen now or read the transcript.
Listen to Beth's podcast about the Serenity Project.
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Benefits and Drawbacks of At-Home Genetic Tests
March 9, 2018
Cristina Nixon is a licensed certified genetic counselor with the Cancer Risk Assessment and Genetics Program at Main Line Health in Pennsylvania. In addition to counseling patients, she also assists with research, including a study looking at multi-gene panels in BRCA1/BRCA2-positive families. Cristina also has completed the City of Hope's intensive course in cancer risk assessment.
In the wake of the March 6, 2018 U.S. Food and Drug Administration authorization of the 23andMe Personal Genomic Service Genetic Health Risk Report for BRCA1/BRCA2 (Selected Variants) test, we talked to Cristina about at-home genetic testing.
Listen to the podcast to hear Cristina explain:
- the differences between an at-home genetic test, such as the 23andMe BRCA genetic test, and a genetic test that is ordered by your doctor, as well as the benefits and drawbacks of each
- how the cost of a genetic test ordered by a doctor isn't much more than the cost of an at-home genetic test
- why genetic counseling is so important when having genetic testing
- what she wants people to know about at-home genetic tests
Running time: 20:00
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Doctor-Patient Communication for People With Metastatic Disease
March 26, 2018
Dr. Timothy Pluard is medical director at the Saint Luke's Cancer Institute and the Koontz Center for Advanced Breast Cancer in Kansas City, Missouri. A medical oncologist, Dr. Pluard specializes in offering comprehensive care, including treatments that use advanced genomics and immunotherapy to women diagnosed with metastatic breast cancer. He also incorporates nutrition planning, spiritual counseling, exercise physiology, massage, yoga, palliative care, and emotional support into patient care. He also advises patients on participating in clinical trials on leading-edge treatments for advanced-stage breast cancer. Many of Dr. Pluard's patients have praised his communication skills.
Listen to the podcast to hear Dr. Pluard discuss:
- how he tailors his communication to each individual patient and that person's unique situation
- how he talks to patients about disappointing news, such as cancer progression or a treatment that stops working
- what makes someone a good communicator
- his tips on how to make doctor-patient communication the best it can be
Running time: 18:47
Listen now or read the transcript.
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