STFU (Shut the F*** UP)

Spookiesmom

Shells

Would an implanted pain pump help? Or how about a spinal cord stim? I'm just grasping at straws here, don't know where his pain originates. Have heard good things about both.

Shellshine

He's on a pain pump in the hospital. 

Teka - I hear you..feeling very guarded right now. Just did some editing. 

camillegal

Oh Shell I hope the plan they come up with helps him and u get thru all this. Having pain all the time sucks so bad and if u do drink yea I would think that would ve an easy fix in u'r head. So this has to be very difficu;t for him and u and u'r family. I'm glad u have soomeone to go to a meeting with to acclimate u'rself to something new. It might be a big help for u. I hope so. And u so deservea day to do whatever u have or want to do. I hope things settle down quicker than u thought it would for u'r calmness. 

Shellshine

Thanks Camette, today was very soothing. Nothing like scrubbing a floor to get one's house in order!

4sewwhat

Just want to say what a great group of ladies you all are! Hope today is a good day for everybody.



Good morning GmaFoley! Been up all night working. Going to bed now :0)>

juliaanna

Four-hope you have a pleasant sleep.

4sewwhat

Thanks fellow night owl! You too :0)

camillegal

U guys were up late? What do u do Lynn--do u work from home or have u told us and I forgot, I;m sorry.

4sewwhat

I do catering. Cooking spaghetti for 150 for tonights PTA meeting and making 250 cookies for boxed lunches HS band is having on Saturday. I am really a cake decorator. Do all that fancy schmancy European stuff too. But I got a really good deal on a hole in the wall store front a few years ago and do the lunches and stuff now too. It is not gonna send the kids to college but it keeps me off the streets. Well sort of :0)



I have a second kitchen at home so I can work here at night. Just don't tell the man!



It was nice last night feeling like things were kind of normal for a change! Not even feeling too tired today.



Oh and I flog on the side :0)>



Just kidding but most days lately it sounds like a great stress reliever!

Shellshine

Still awake at 1:30 am - just saw a scary as shit movie on HBO - Asylum Blackout - DON'T WATCH IT. It is the scariest most gross movie ever. I hope I get to sleep tonight!

Chevyboy

One time, out of desperation, I went to this meeting place....  It was supposed to be Alanon....  Well when I got in the room, all these men/guys were sitting around this huge table...

So I just sat down, and listened....  I wondered why there were NO women in there!  So when the first guy opened his mouth and said, "Hi, my name is Dave, and I'm an Alcoholic..."..... Everyone greeted him, and I just sat there, trying to act insignificant. 

By the time they all introduced themselves, and got around to me, I just said  "Hi you guys!  I'm not an alcoholic, and I was trying to find the Alanon meeting"....!  They all just laughed, and directed me to go down the hall into another room.... They SAID I could stay if I would like to, that they would be a lot more fun than those WOmen down there....!    But I just excused myself and turned tail and beat feet as fast as I could.

And the Alanon meeting  was probably good, but I came away thinking that those women had a much worse life than I did....   Even the classes for "Abused" women were just hard to sit through. 

I think learning to feel more compassion and empathy for someone who is going through that rough time, can get it all started again.   You can find so much help from your friends, and listening in a Church...  And maybe talking or asking for help and guidance.  Sometimes the ones that are hurting so much, will learn to accept your love  and quit rebelling their life.....  I don't know if it is possible through "our" efforts to "change" their lifelong patterns, but you can find forgiveness is so calming, and it opens doors to let those old feelings come back again.

When you look back on these troubles, it's like you can see what worked, and what you did to help.... it's like you DID Let Go and Let God.

But when you are going through all this.... You are not alone.  You have to watch out for others in your family also.  They don't need to know everything you are going through.   Just what will help BOTH of you.   There is always someone to talk to, even in the middle of the night... Or even one of us....! 

Sometimes you have to make choices.... both for you AND them....  and you can only hope and pray that it's the best or only choice.

So okay.... not that I have a CLUE of what I am talking about.... But that's why we're here....  to maybe help someone else through what we've been through before.

And Cammi!  I DIDn't steal their baby!  Ha, ha!  Little Ellie slept until Mama came home!   I listened to the Chickens though!  Man, they make a LOT of noise!  I thought it was kids playing in the alley, but it was just them quacking... oh wait, that's ducks...  They must be clucking? to each other!

Another trip to the Dentist garage, for a re-alignment... or re-lining or whatever.....   If that Dentist wasn't so cute, I would stay home...Ha!  JUST kidding!    No, he really is!  Hell, at my age, I can say ANYthing.... and no-one listens.

Chevyboy

This song gives me so much "Peace".... It takes me back to a time when things weren't going so good... And just listening and feeling what you went through, makes you so thankful that you came through it all... both of you.

http://www.youtube.com/watch?v=LwGvfdtI2c0&feature=related

GmaFoley

4sewwhat

My stupid iPad won't let me post nothin fun :0(

camillegal

GMA that was adorable.

Lynne u work hard and at home to--but I hope it's worth it--That can really catch on to be a great career. I don't know where u get the energy, but bless you.

Chevy u have enough effort to feed chickens and at our age we should be happy.. so I shall never tease u about the talking and all the menutia of this chicken thing blah blah blah, Yes I will and I'm LION cuz I'll never let it go. But u stuck out a lot of years on the fence and I give u credit and I feel bad for u Shell this is not easy it crawls into every aspect of u'r life if u let it. U ladies are quite courageous and u'r DH are very lucky to have u. I could never do that, hell I didn't do it.

I have to call in my meds--I wish they were all due at the same time, they're all due at funky times chit.

hahaha I told u I was going out to dinner Sat. nite for my Brothers BD- IDK about 35-40 people--he's 80 OMG 80 my brother it scary but in my head I have out on 3 outfits so far jewelrey, shoes and all HMMM I still have to decide see how difficult this is for me.-Skirt, dress, pants--I don't know yet most importantly I have to have comfortable shoes --so important and so difficult---my feet change all the time within hrs. so it's a pain.Sometimes only on change but I'll have to wear my wraps for sure on my feet. That does help.

Well again 3 cups of coffee and I'm ready for a nap.WTF Imagine if I didn't drink any coffee, un;ess my DD is drugging me. Oh I watch to many crime shows.

4sewwhat

Shell. Now I wanna go watch the movie!



Chevy. Too bad it wasn't a sexaholics meeting. That mighta been interesting!



I hate that all you nice ladies is dealing with all this cow poopie. I sure hope better daze ahead for all of us real soon and other than stupid cancer and being broke I don't gotz much to bitch about. Even my teenagers don't cause me too much trouble, oops shouldn't jinx meeself. Knocking on wood rite now

camillegal

Oh Lynn thank God u have good kids, that's  big deal especially nowadays--Mine are in their 40's and I have to say they are good to me, a little overprotective that's aggrevating if it was up to them I'd be in the ER every other day--I think they just want to get rid of me sometimes, but basically they're OK. And I hve the same problem of being broke, I hate it--I never had big money but always enough to live comfortably at my choosing not anymore so I always compkain--that what I do best complain. So just ognore me, most do. LOL

GmaFoley

Cami - my energy comes from Nuvigil... I only have to take a half of the low dose to keep me awake at the early hours. Discussed yesterday with the doc that one of the SEs is high bp and asked if I got off of it would it help.. She said keep on what works and that it had like a 3% effectiveness??? on raising BP???   Sometimes I wish I would tape what she says.

4sewwhat

Cami,

They really are good kids. Too smart for my own good but I tell them they need to get good jobs so they can afford to out me in a good home where they won't steal my chocolate bars and be mean to me!



The oldest is ranked 1st in his class outta 500 and some and the first thing he does everyday is his homework. How do you complain about that? He won't drive though. I know he is kinda scared cuz lots a traffic around here but then he also says "I don't want to have to run stupid errands for you!". Really? Little turd! He plays clarinet.



The second is near photographic memory which can be really annoying! He remembers everything and is too smart for his own good. Several perfect test scores on state exams. Doesnt apply himself as well tho creative genius that doesn't know when to come in out of the rain.Talented too. Freshman and just made sr. Improv troup..plays guitar, French horn, trumpet and sings and dances too. I keep threatening to pimp him to nickelodeon or Disney. I'm just not pushy enough to be a stage mom. Sure would help being broke though! Broke really blows!



Third just turned 11 and is my problem child. Dennis the menace meets Pig Pen! He was born with part of his brain missing and we cut him slack for too long. Just so happy he could do everything that we let him do anything and created our own monster. But when they sent him home and said he might never walk talk or even roll over, we would have let him swing from the chandelier just because he could. Paying the price now but he is a great kid, just a little pig heade. Don't know where he gets that! He sings and dances and tried his hand at drums but didn't like teacher telling him what to do. Did I say pig headed?



Fourth. Finally got the girl! She is 9 going on 29! Her pic is on blog with a cold cap on! She sings, dances ballet, jazz, modern and hip hop and has been playing guitar for 2 years. Smart too but too whiney about her homework. She doesn't like it when I tell her she is getting bitchy in her old age!



Ok I'm done braggin'. Overprotective is good and I know mine want to get rid of me some days! And can I just say again BROKE SUCKS.



Off to bake more cookies. Pictures of some of my cakes at www.BoxCarToGo.com. Food pics are just clip art stuff but cakes are mine. Naughty ones aren't there though :0) yes I do those too!



Have a great day!

Forgot to mention #1 is 6'1" with bright red curly hair and #2 is 6'2-3" and wears size 15 sneakers. Lord help me feed them!

Spookiesmom

Shells

A good pain doc should know about an implanted. Permanent. Pain pump. It's under the skin, has remote separate contrôler. Runs a small continuous drip, usually morphine. Or has he tried fentanyl patches?

4sewwhat

Gma. You can tape what she says. I have done that at doc appts. What kind of phone do you have? Or get a little recorder. Or I take my list of questions in writing, two copies and go over them making notes on my copy as they answer.



Did I mention my docs love me and out my first name down as PITA? (pain in their ...). Actually they do love me, of course they do, why shouldn't they. Just because they threaten to drive to my house and unplug my Internet so I can't come up with any more questions!

StaceyLeeH

Hi my beautiful, smart, funny, classy hooligans...



Days behind but I caught up...



Mary so glad your daughter is okay. So glad your first infusion went okay!! No fun feeling puky though... Are meds helping yoU?? You are such a fighter F-Cancer!!!



Blondie well I agree with Shells and Juliaanna maybe a aspira drain would help you the best and any results given from the fluid they pulled off. In your pocket always



Welcome 4seewhat... You definetly fit in this crew!!! Your blog is great thank u for sharing!!



Sass so glad u are slightly better!! I know I was late in reading but I missed reading your posts.



Ugh my skin broke out in this almost chicken pox appearing rash just on the right side of my body... Dermatologist thought a hypersensitivity or folicularitis. It showed up right after last radiation therapy. No one can tell me what it is... Had a biopsy and results are still not back. Go in for my drug targeted chemo today... See what the oncologist thinks... So frustrated just looks awful just right arm and right mid line to right lateral line abd. My fellow hooligans any ideas??



ChickaD hope you are feeling better... In your pocket in Nov. you will do great!!!



Chevy hope to see you soon?! Is Alison still in town??



Hugs xoxoxo

Sweet Pea

Di2012

StaceyLee.....did your doctor mention Shingles......did you ever have chicken pox?

Some cases it is in several dermatones rather than just one.

I had shingles in my late 40's and it was the worst most painful  thing for about 6 weeks and I had it over several dermatones on my right side from low back to under belly (I was Morbidly Obese at the time) and my "private land" and the crease of my right leg. The first sign for me was chicken pox like blisters sores right at my waist line so I thought it was my pant's/jeans labels giving me an irritation.

To all---> get a shingles shot, if you ever had chicken pox.  

Di

I got one because I never want to experience that again....give me a surgery any day!

duckyb1

Stacey......wow check for shingles......before I had Rads I got the shingles vaccine......it was advised by my RO, and my PCP........Medicare covered it....now not sure about anyone under 65, but it is worth it........seen shingles and it is painful........

Chevyboy

Morning gals!  Waiting for Alyson to call!  I can't meet her, because we had appointments, but we'll catch up on the phone!  I don't know how long she will be here Sweet Pea, but maybe we can meet some other time?

And look up shingles online!  It shows pictures....! 

So make sure you find out!  You can treat it, but you have to know what it is!

Wren44

Yes, do bring up shingles. They have drugs that help if given early. DH got it on his head and forehead. They were worried about his eye, but got it stopped before then.

Wren44

My SIL just e-mailed to say that they "flushed his lungs" about her son-in-law who has emphysema and is on a ventilator. How do they do that without drowning him? Anyone know?

sas-schatzi

Stacey, It does sound like Shingles, but odd the dermatologist woundn't commit. But my dermatoligist is the same way. Many things go through biopsy and cultering before final diagnosis. I did have a contact dermatitist after colin resection. The area did look similar to Shingles. Honey crusted and weeping. Painless if I remember correctly. Since it was directly below the tegaderm dressing removed at discharge and betadine applied , it was easier to make the contact dermatitis diagnosis. 

Yours is more deciminated. It's also following dermatone planes in that it hasn't crossed the midline. It will be interesting to see if they give you Chemo today and continue rads.

Babe you should consider reverse isolation. I know OCD, but skin is disrupted and lymph has been interrupted. Immune system comprimised. Until they have a clue, you need to be protected. That's a bit of a key. It's unknown. If it is Shingles they can give you Achylivoir IV.

sas-schatzi

Lilli--cute furbaby, very cute.

Foley GERDS. Coffee would be a good thing to cut first__OH NO NOT COFFEE LOL. It can be done. Basically, caffiene stuff. We each have foods or meds that make the stomach over produce acid.

Look at dailymed.org to review your drugs for being troublemakers.

Trivial pursuit: found something on the Proton Pump Inhibitors PPI--prilosec(omeprazole), protonix, aciphex, Nexium(second generation prilosec) a few weeks ago that surprised me. They need to be weaned over several weeks. Found that odd b/c that's the first time I read that, and PPI's have been around for almost 20 years(?). 

Spookiesmom

PPIs can also contribute to bone loss, osteoporosis.