STFU (Shut the F*** UP)

duckyb1

Worked in Big Pharm for 20 years......2 daughters still do.......inserts are there for a reason.......plus I was in Research so I know what meds can and can't do.....so you do what you have to do..........also we have some SE's that are not even on the insert....right......who knows better then us........hugs all

IllinoisLady

Almost always about three pages behind so I'm just stopping in to say and hoping that all is well with each of you and if not.....that it soon gets that way.

Lilli

sas-schatzi

Cami, glad your fine was worried.

Read three pages , forgot three pages. Oh well. L&H's to everyone

Alyson

Morning all

Hope the mouth is better Phillydilly.

I am really hoping that I feel better before we leave on Sunday. Have rheumatoid arthritis and fibromyalgia which I am sure were worsened by Letrozole. I am off that now but still on the trial so checked regularly. Anyway the RA has been extreme lately and some days I find things hard going, problem is I look fine and people don't know I feel like crap. Sorry to moan. And to make me feel great I have truncial and arm LE.

Anyway must start moving as I am getting my hair done this morning- have to keep up with you girls and look good.

Big hugs

gardengumby

cm - there is a letrozole/femara thread.  One woman who posts there takes 1/2 of a pill a day.  I cannot recall if she does it with the blessing of her doctor or not.  And I absolutely cannot understand how she can chop that itsy bitsy little pill in half!!!

I had proposed to my MO that I take an occasional "vacation" from letrozole - like one month a year.  She was adamantly opposed based on studies done on men who have prostate cancer and recurrence rates for those who take vacations.

She did, however, imply that the dosage for letrozole may be higher than necessary.  She said that once they reach a dose that works and does not cause any "severe" damage, they stop and make that the recommended dose.  They don't continue researching to see if a smaller dose would work just as well and cause even less damage.  I'm still on the full dose.  If my aches and pains continue to worsen, though, I might ask her at the next visit if I could go to every other day.  I won't try to do it without her blessing, though, as I think my husband would just sit on me and force feed it. 

Scottiee1

Alyson, sorry yiu're feeling like crap.....hope it clears before Sunday. I don't know if you are interested or will have the time but one of the gals on my Canadian thread and 2013 Survivor thread lives in Oakville .....she's great!!! She is a woman close to our age and lives with her husband, both are retired now and children out of the home. Just a thought...😎

gardengumby

Alyson - is your flight one long LOOONNNNGGGG flight from NZ to Vancouver, or is there a stop somewhere - oh, like Hawaii?  Will you be wearing compression on the flight?  What do they do for truncal LE?

Chevyboy

Hi gals....!  Good to see everyone.  Alyson, I wear compression stockings all the time, except in bed.  They really help my swelling, and veins.... I think if I were flying, I would REALLY make sure I had them on.... especially for long flights.

Ducky, I had to research everywhere for the "possible" SE's of Tamoxifen..... Looking for deafness or hearing loss.  It isn't listed anywhere on any insert...  But I could find different links on the Internet about that very thing.    I just stopped taking it.  The FDA also wrote back, after I sent them all the links, and info.... but as far as I know, hearing loss is still not listed.....  And you are right, WE know SE's are all different for each of us....

I don't know if even KNOWing about hearing loss, as a possible SE would have stopped me.  And by the time it happened, it was too late.  Same as having a stroke or cataractso or  anything else.... We just take our chances, hoping for the best. 

Thinking of you Blondie.... Hi Scottieeeeeeeeee!

savgigi

Ducky, I laughed out loud, too about the package inserts.

April, I have CRS disease (Can't Remember S**T) so I may have told you this already. I have been on Aromasin for 4 months and when I went to my MO last week I asked him if I had shown him my new t-shirt. It reads "I Hate This Blankety-Blank Aromasin". He could fill in the blanks with his favorite cuss words. Well, that got his attention and after we talked about my pain and loss of flexibility (including being unstable on stairs), he took me off it and I will try Arimidex after Labor Day. I have been off Aromasin since 8/13 and still have joint pain and stiffness. I can walk 3 miles with no trouble but cannot get up out of a chair without pain and groaning.

If 60% of us have joint pain, I want to know who the 40% is so I can whomp up on them

camillegal

Flowers I'm sorry that all these SE's are creeping up on u--I think all of us have similiar SE's even tho we might be taking different meds. It's awful. There are some people who just sail right thru, but it sure doesn't look like it according to what I read on here. I don't know where they do the studies, but like 98% on these threads feel not good. So talk to u'r Onc. but they usually put u on the one they think is the very best for u'r circumstance, and they don't like u to change anything--I did take a month off of Aromasin myself and Dr. wasn't happy, but my damage has been done so I went back on it. blah And how can u cut these pills in half, I need my glasses on to see them and drop them all the time they are so tiny--how could they do so much damage.???

Oh Alyson I hope u'r better and Chevy knows wear all crap when flying (especially) and get up and walk a little if u can--it's a long flight.

Alyson

Just quick note. Fight is 14 hours not stops and its over 12 hours to Hawaii anyway. I have all my compression things and doc has give me a collar sling so I can keep my hand up especially while I sleep. Will look great. Arm up and a walking stick LOL.

I am running roung like a headless chook. Sat down to write list and check emails etc. I suffer badly from CRS hehe.

juliaanna

Scottie, Nice to see you again.

Spookiesmom

I guess I'm in the 40% no joint pain. Please don't whump me?



BUT



The hot flashes and insomnia have been killer!!



I hate it, but am taking Effexor for those SE. Seems to be helping

camillegal

Oh Spookie we won't whump on u just grit our teeth at u. BUT u do have SE's they are al a PITA

I didn't need to take any pain meds today, just achy not bad pain but I'm so tired and if I fall asleep now at 1ayem I will be awake and most are sleeping cuz I check here. Tomorrow night the school is having a back to school Picnic and My DD and GS will be in some booth for tattoos, I'm sure it won't be a late night there but the kids like it.

savgigi

I would never whomp on you spookie . I don't have the vicious hot flashes like you.

Spookiesmom

Truly, sometimes I never know. Is it a hot flash? It's a million degrees hot with insane humidity. And then one night I woke up with a blood sugar of 45. Yippee. That nite all the above applied.



My inner child is playing with a blow torch.

savgigi

I figured out the hot flashes hit about an hour and a half after taking the Aromasin. As long as I was not hot from my shower, hair dryer and hot rollers, they weren't bad. But a few times the hot flashes coincided with all that internal and external heat and I thought I would pass out. I live in Savannah, not too far north of you I think, so I know all about the insane humidity.

duckyb1

It all sucks.......

savgigi

yes, indeed, ducky - it sucks for sure

Shellshine

Dagnabit Duckster - you are one smart cooooookie.

camillegal

Good Morning Hoolies--I hope Friday finds all of u having strength and tummies in better shape and maybe not so tired. In other words I hope everyone's week-end start well and stays that way.

StaceyLeeH

Morning holligans any one up?? I am waiting for radiation. Frustrated I got here 1/2 hour early and I am still sitting in the waiting area. Going to be late again to work.



Lov and hugs xoxo

camillegal

Stacey they are usually pretty much on time. so now u't stuck pacing

duckyb1

Stacey had 38 treatments......never waited more then 5 minutes any day......thank heavens my kids insisted on driving me even though I was perfectly capable of driving myself.......always concerned they would have to wait.....they never did....the whole treatment from valet parking to leaving took about 25 minutes.....very efficient...

april485

Ladies, My boss told me I can leave at 1:00 today cause SHE said I look like shit...now you know it is bad..lol. She called me in to her office and asked me when my last client appt was and I told her 12:00 and she said " I want you to go home after that and get some rest and I will see you on Monday" Holy cow, aliens have taken over cause she has been incredible since my diagnosis and before that..well, not so much...lol!

So, I am heading out of here to rest. I have plans tonight to go out to dinner with friends but I am canceling cause I feel that lousy and I don't want to bring the group down. They will all be in a great mood and laughing and joking and I am so down lately that I will be sitting there like a bump on a log. I used to be the "life of the party" type. Now, I just want to be home in my jammies on the couch with the remote watching HGTV...lol

Anyway, some people are blessed and don't get the joint pain from the AI's and others of us just do. I have hot flashes, but nothing I can't handle cause I had them worse during menopause (or at least more often) and remember it well so was ready for that.

Typing this hurts my hands so gonna save it for work. Have a great and pain-free weekend ladies. Me? Taking my percocet and gonna veg.

duckyb1

April......how I pray just for 1 day to feel no aches and pains.....sometimes when very still and not moving I feel "normal" once more and think.......oh Lord did you answer my prayer,... and then I try to get off the chair, or out of bed, and sure enough....not this day......well maybe if I pray a little harder it will be tomorrow..........just 1 day Lord.......just 1 day.......

gardengumby

Good morning ladies.  We were in bed last night before 7 and I still don't feel like I got enough sleep!!  Oh god, I wish I was retiring today!!  But soon!  In regard to the joint pain.  I've been on letrozole (generic femara) for almost 2 years now.  I keep thinking the joint pain is going to even out, but it just keeps getting worse.  Is that what everyone else has experienced, too?

Alyson, you have a good, safe flight now, ya hear?  You should drop down to Seattle from Vancouver, so we could meet up.  Maybe next trip.  One of these days hubby and I hope to visit NZ, but who knows when.  With me retiring this year we are going to be broke, broke, broke for at least the near term.  It seems we either have time or money, but never both!!  With me working, it's been money - now it'll be time.  I'm looking forward to the time as I'm truly truly sick of working.

Spookiesmom

Garden, boy, I hear you on retirement. I was counting the years and days till I could. This coming Nov was when I was going to go.



Then my stupidvisor pi$$ed me off so much I told them to "Take this job and shove it" walked out after 23+ years. Not exactly the brightest way to do it. Have lots of time, little money.



I don't regret it for one nano second. I feel so much better not working. If there's anyway you can get out now, do it!

gardengumby

November 1 is the day.  We meet with the retirement office the 18th of next month.    Then I'll tell the world.  Until then, I'm being quiet like a mouse - pretty much.

Wren44

Garden, we're in the time but no money group. We had a friend who worked for Kroger grocery stores. He started as stock boy and had lots of time but no money. They would promote him until he was assistant manager and had money but no time. He would quit and go back to stock boy. It's true that your expenses go down when you stop working. Driving to the job and buying lunches and coffee adds up.