STFU (Shut the F*** UP)
Comments
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Pocket party at Sassys!!!!!!!!!!Ill bring the party favors...
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I'm just lurking. Feel like crap most of the time and scared. Maybe today ill get some answers.
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I'm bringing chips and dip.
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Veggy, sending lots of hugs while you wait. Hope you get your answers. Waiting is so stressful.
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Veggy will all flip from my pocket to yours. By then I'll need a rootbeer HA
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Off to see doc
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Sassy you scamp! So you plan to turn your appt about you into an appt about him? Better warn the nurses so they know you plan to mess up their schedule. I will bring the band for the pocket party.
Sorry I've been MIA. It's chemo+ 14 days and I still feel like shite. I'm also having pain in my hands and feet with some combo of neuropathy and hand-foot. I can't even slap anyone because it would hurt me worse than them. I talked to MO's office this am. I have labs this pm and chemo nurse will do an assessment and fax to MO to see before I leave. Just have to see what, if anything, she will change.
Okay, time to wake the band for a quick rehearsal before the party! -
I have the brownies and ice cream - made enough for both pockets !
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In your pocket Miss Sassafrass!
Miss RunningGutsCammi...2 more chemos...next one is a week from today
Miss IDontFeelGoodPhylloPieDough...this chemo also is hard on me...seems the more you get the harder to recover. ?.I also have the hand foot thing going on...Onc will reduce my juice next round as she does not want me to have any permanent damage
Hello to everyone else!
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OK Sas we're assembled
Julia I kn , that's wy I'll sit on her face, and I'll use Chemo Brain as a defense. Bwahahaha.
Chicki/Phylo---I really think it does get worse, I remember I kept on getting it after 6 monthse weekly by that time I hard ever got a good day, by 12 months I remember just goinghome OK for the rest of the day then it would hit the next morning- it was less and less all the time--I thrink u'r body just can take so much but when u get more and more it can't fight the SE like it did for a few months--I just remember starting chemo in June of 2007 and finishing rads in Aug of 2009--then another operation, in October, mine was weekly so it wasn't as much as u get-but it got brutal so I know Now my body is so mad at me it's figuring haha we'll get u so this is all crap--Now if someone new is reading this and hasn't started chemo don't pay attention to anything it's all (doable, as they say) hahaha
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Crap - I missed the damn party. Not fair. Is it over, yet?
Phylliette - so glad to hear from you.
OK - next pocket party is for Veggy - I'll bring virgin Mai Tais - the only virgin in there.
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CAMIPAYATTENTION:
I need the EXACT date and time of your doctor's appointment on Monday so that I can be AWAKE and IN YOUR POCKET.
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Just got home from labs. Counts were good so restarting Zelda tonight for 2 weeks. MO doubled my fentanyl and gabapentin. Hoping for the best..
Where is sassypants? I thought the band and snacks were good!
Thanks Mary and shellyfish! -
Its cancer in the liver.
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Veggy, i am so sorry.
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PhyloI'mcrazierthanu---I stupidly made an app't for 8:40AM--I just said yes like I have acsess to a car, especially at that time. Well my oldest DD took care of the ride for me--otherwise I'd have to take a cab hahaha The Cancer Society doesn't have anyone in this area code???? I'm crazier than u see. Somehow tha Cancer thing has to be mistaken cuz there is a big cancer center about 1 mile from here--I think the zip code doesn't get in the computwr right cuz it's unincorported. So I know it's a little early--so I'll just report in when I get back.
OK where's Sas.???
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Veggy,
I'm so sorry to hear your news. Do you have a plan yet? How can I help you? Hugs.
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Xeloda is the plan. My head is spinning from pain medication.
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Veggy I missed that on here, I just read it on the other thread--WTF-OK OK Now we're all going to say all kinds of things--but what most important is what u tell us about this when u can talk fully about it. U know Shell, Sas and Julia will be on this and I do know some things abou this we are all here for u each and every one of us. Just one thing I'll say for now I know 2 women who got it in their liver and that was about 3 yrs ago and they are doing OK--so let's take this one a t a time----(((PRAYERS))) (((HUGS))))
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Veggy, So, sorry, but we do have two here that have experience with zelda and you said you have been lurking on the zelda board. XOXOXO sassy
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Hugs Veggy. Will be here for you.
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I just watched a show and learned the liver is the only organ that can regenerate itself..Miss Veggy...I say we have Pie Phyllo Dough lady shoot it with a paintball gun and grow a new healthy one...I'll even stay by your side and water it!
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Veggy
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Have sent hugs to Veggy
Cami, I had a fundoplication a couple of years ago because my stomach had decided to migrate up into the chest.
It was the best thing I have ever done. I felt better within 24hrs and could even sleep on my back something I hadn't done for a long time. Still have to be careful with food because I have some ulcers and my RA meds don't help that. Do it if thats what is suggested.SAS be careful what you say about southlanders. We might snipe at each other but do stick together if anyone says something to the other. We do have phones in this part of the world and make the best coffee.
Today I just hate LE
Big hugs
Big hugs.
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Veggy
😘Hugs😘 -
Allyson Thank you ffor telling me, cuz this is all so new to me. Thank you! That what sas was talking about too. Now I want Sas to assist tho. LOL
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Veggy - huge hugs coming your way
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Little veggieplate, you are invited to my house so we can have a Zelda party! As Chicklet said, we can remove the broken part of your liver with my paintball gun and Chickie can water you as you grow the new piece! We can all sit on the porch and yell at the people that walk by. Like in To kill a Mockingbird, when Scout walks past Miss Whoever's house and the lady yells " Jean Marie, you ugly little girl!" Wouldn't that be fun? Or maybe just whistle at the guys!
So Chickie you have to come and anyone else that would like to participate in healing rowdiness. Don't forget the band is still here from sassy's party. The drummer has a thing for me, I think.
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I'm here --Thank you for everyone in my pocket today. Dear Dr Gi was so typical to himself. We were sitting talking and I said --Okay we are done with me --yes?--A nod--going to not do quotes so this may be hard to follow
Okay are you in pain>>he-looks at paper work and says I'm ok, I duck under and catch is eye>>I say, I know you are in pain, I can see it in your face , eyes, and I've seen you wince. I've seen you avoid picking something off the floor . Tell me the truth are you in pain. He looks up and says yes>>me-are you being followed>>him--yes, and tells me who. Not my fav, but a highly respected doc. Me-are you in Physical therapy. Him -yes. Me -are you swimming- Him yes. Me-Is your pain controlled . Him Yes. Me-- are you telling me the truth. Him-yes. Me-okay. Totally sounds out there. But I trust him , he trusts me. His eyes glistened and his face flushed. He holds everything so close. His reaction told me a moment of sharing meant allot. it was a huggable moment , but couldn't be done.
Cami--I asked also if your strange scenario brought anything to mind. His reaction was the same as mine- flipping--I previuosly said a volulus. He said same.
The problem with a volulus is it can be critical if it doesn't flip back. Glad that Alyson posted. What I don't get is why 3 surgeons passed on the scenario.
Cami--since you didn't send exact scan results, I have to use the following words. If you get acute abdominal pain and relief methods don't work as usual....you must seek medical care ASAP. Because if an organ flips and the flip isn't relieved in a quick time it can cut off blood supply. It's analogus to someone doing balloon twisting. The problem with an organ is it can die or go gangernous very quick. Sounds scary. Well , babe, you have a history of high pain tolerance. Sometimes high pain tolerance can get you into serious trouble. "DO you GET that Babe"(Jack Nickolsens tone).
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Alyson, it's not that you have phones in your world. It's you have phones that can call to other parts of the world at a reasonable cost. Thanks so much about posting to Cami.
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