Post your tech glitches, errors, issues, etc. here.

Anonymous

Mods,

About Ruby on Rails, I've heard of it, but never worked on it. It isn't dead. As a consultant I've had to work in unfamiliar environments sometimes needing to learn a language just enough to do what I need. I never considered myself a coder, but it helps that I can code. It's just part of everything I've done. Updating an older platform isn't a rare event. It takes better planning and implementation than what we've seen here.

moth

Serenitystat & mods. When I go to that screenshot page and click on the treatment pointed by the arrow, none of my currently listed trestments are there. It just wants to lead me through the process of adding new treatments

Beesie

Mods, I'm not an IT person (I've worked in the industry on the strategy side) but it didn't take me long to find out that your statement "Our current platform was custom built a long while ago on Ruby on Rails (a now nearly-unheard-of platform with a minority of techs who know the system well)." isn't quite accurate. Whoever is feeding you this information is trying to cover their butt, not provide honest information.

It appears that Ruby on Rails is still active (https://rubyonrails.org/) and relevant (Shopify, AirBnB and Bloomberg are all on Ruby on Rails). Is it appropriate for the BCO redesign? I have no idea, but suggesting that the platform is dead and that there are few techs who know the system doesn't appear to be right at all:

• Is It Worth Learning Ruby (On Rails) in 2022
  

• Is Ruby On Rails Still Worth Learning In 2022?

• What are the Benefits of Ruby on Rails? After Two Decades of Programming, I Use Rails

• State Of Ruby On Rails Web Development In 2022 "No developers" statement is an absolute myth. There are developers and you can find them very easily.

.

It's interesting to me that on this discussion board, you have a member (SerenityStat) who is an expert in one area of this redesign, the IT, and who is quickly able to offer up suggestions to address and/or explain many of the problems faced. She is also able to blow huge holes through many of the excuses. From other posts I've seen, she's not alone - we seem to have quite a few other IT professionals among our membership.

On the other side of the redesign, the strategy and planning, you have other discussion board members with expertise (myself included) who are confounded by the direction that BCO has taken. Obviously I don't have full insight into the BCO business model, but I've been hanging around here for 16 years and I can tell you that if I was your business strategy executive or consultant, I would have challenged the business model direction early on, questioning the viability. Maybe you have the research to back this up, but with all the medical portals already available to patients, and with some understanding of what people are looking for when they come to this site, I don't see how BCO will have a sustainable business with their chosen direction.

All this expertise right here among the membership. What a shame that BCO didn't tap into this 4 years ago when first thinking about this redesign and new direction for the future.

Now, back to our regular programming... the Glitches. The back-end redesign was done with the objective of enhancing the ability of members to provide diagnostic and treatment information so that BCO can provide personalized information. It's been touted as having better personalization options. So this isn't a discussion board issue; the glitches that so many people are mentioning here about the diagnosis input errors get to the literal heart of the redesign. Yet everyday when I read this thread (it's now the only thread I read on BCO), people are coming in with new and different problems. Not only do their entries not show up properly, not only do their edits not hold, but the input options don't allow people to accurately reflect their diagnosis and treatments. Were there any people involved in this who actually understand all the variations that are possible with a breast cancer diagnosis?

From the BCO press release: "The redesign reflects the varied experiences and needs of people with breast cancer and encompasses all aspects of the user experience — from a fresh and inclusive look, to improved technology and search functionality and additional personalization options." https://www.prnewswire.com/news-releases/breastcan...

From the Fast Company article: "But assuming you do make an account, you can actually enter your diagnosis and treatment information. Using this data, Breastcancer.org will show you only the most useful stories—which is both a practical and emotional concern. The backend of the site has been constructed to allow content to be personalized....Eventually, Breastcancer.org hopes to go even further, and allow you to import your own medical chart into this system. By referencing your specific health data, it could annotate your treatment with even more specific and specialized content, such as pointing to new experimental trials that your hospital might not be involved with. " https://www.fastcompany.com/90731551/the-new-breas...

wrenn

Although I was able to delete my personal data I am still waiting to hear about the outcome of this event the other night. I expected reassurance when that ended. *tapping fingers on desk.

AliceBastable

serenitystat, I had already deleted everything in both diagnosis and treatment, but the treatment portion still shows when I post. Mods, what's next, deleting my account and just coming here to read?

Anonymous

Alice, moth - wrenn and I were able to delete our info after the redesign, but it seems the tech team broke that functionality as they tried to fix the glitches. Your options are 1) wait it out or 2) ask them to delete your info from the data source (and wait it out but not as long). I had text displaying in my signature after I cleared it in my personal information. I asked them to delete it. Eventually it was gone, but I don't know if it was intentional or by accident. They didn't send a follow-up email.

Beesie - I noticed that the expanded user profile wasn't working that well when they proudly announced the redesign. My treatment dates were all off. Seems it's now worse. And yes, these issues are outside of the discussion forum. The user profile GUI should have never passed testing.

wrenn - The certificate is valid now. You should see either a 🔒 or "private". But I would have expected an update from the mods when this was done. Also, the third-party certificate authority probably sent emails before the expiration date to prevent the error we saw.

Mods, It's been over 7 weeks (plus the time before Mar 1). There's a YT course on Ruby on Rails. It's only 4 hours. Your tech team has had plenty of time to get up to speed on Ruby on Rails. ETA - I think I learned Java in 4 weeks.

serendipity09

The website does not show my dx and tx's and now wants me to go through the process again. When the upgrade took place I had to re-enter my dx and tx's and they were correct. I haven't been on the site much lately to notice when the change happened. Noticed yesterday that my dx is no longer there and other than my initial chemo tx, the rest is listed as "other" Hope this makes sense.

AliceBastable

Serendipity09, This is the new BCO! NOTHING makes sense. We are through the looking glass.

Moderators

Thank you all for your reports.

We are aware of the continuous issues with saving and editing profile information. We are working on it.

Our weekly Release Notes page will be updated shortly to give you more information on what was accomplished this week.

Note: you can always submit experienced glitches at the above link as well.

Thank you for your continued dedication to the community.

--The Mods

wrenn

On the news this morning one of our local politicians was asked what he would do about a certain situation thatnhe was responsible for. He responded with a list of his accomplishments and ignored what was still happening that was wrong. The interviewer gave up in defeat as the politician just wanted to put out reports of the good stuff.

Not accountable and insulting to constituents.

Kikomoon

I’m posting here to see if my diagnosis is fixed. My Her2 status changed from positive to negative on its own. :

Kikomoon

Nope still not fixed! Mods how do I change this? It is confusing other members..

Kikomoon

mine is not the only profile that changed from her2+to her2-

Anonymous

kikomoon - I recommend you use the Signature (in Settings>Personal Information) to display your correct diagnosis. Keep in mind that you need to fill this in each time you edit your Personal Information because it doesn’t work properly. Don’t wait on the tech team.

Moderators

Kikomoon, we're aware of this profile glitch and we are so sorry for the confusion and frustration. It is being actively worked on by our tech team, but the tip that Serenitystat shared is an effective workaround to have your correct diagnosis displayed until the problems with the profile/diagnosis information are resolved.

The Mods

Anonymous

I took a look at the Release Notes.

1) So allowing the certificate to expire was planned? Seriously?

2) You are spending time to change styling elements for branding purposes, but not to make it easier for us to read without eyestrain?

3) Your rollback that was implemented due to errors caused even more subsequent errors.

4) Please review your earlier release notes because some fixed issues are not fixed.

5) Does your tech team have test usernames so they can post in a hidden topic to test their fixes rather than rely on us to find errors? We have cancer things to think about. I would prefer a dev environment, but apparently they don't.

Moderators

We are very unhappy as well that this is happening and we're working on transitioning to a new platform. Too many unacceptable issues, currently. We are in agreement and are working on it.

kathindc

Even BCO thinks there are ‘Too many unacceptable issues.” With that statement, BCO should go back to any announcements they have made announcing this improved web site and eat crow letting people know of the myriad issues that its members have faced.

I hope there was a clause in your contract with this “tech” company regarding a penalty for unsatisfactory work.

Also, if it’s possible, don’t you think it’s time to bite the bullet and get a new company that knows what it’s doing? As some of our very knowledgeable members have pointed out, there was nothing wrong with the old platform, just a team that didn’t want to be bothered with it is what I’ve gathered

Anonymous

Mods,

I don't think you really read what I wrote.

When the security certificate expired, you were surprised.

Yet, you made it sound planned with no word on why you needed to make this change.

When we ask for a bigger font, less white space, and more pronounced bold font, you either ignore it or reply with an excuse.

Yet, you're able to make styling changes for branding.

The above is not a tech problem. It's you.

We are not in agreement.

Moderators

Reading closely, and passing to the tech team.

ceanna

serenitystat, thank you for being the voice of reason, logic, and fact here, and using your tech abilities to hold BCO accountable, since they seem to fail to do that themselves.

I have not been able to trust much of what the mods have posted here and what Hope Wohl has placed in announcements and publicity pieces. To be so misleading to your members is not only disrespectful, but dishonest. BCO has been trying to put a shiny face on the "fresh new look" and it has been an epic fail!!!!!!!!!

BCO, Hope Wohl, Jane Hollingsworth, and the rest of the BCO Board and team, please hold yourselves accountable for this fiasco, give us accurate information and updates, involve us, put a tech team in place to get it fixed immediately, and let's get back to the "community" approach of helping others and building relationships.

wrenn

gaslightersRus

Anonymous

wrenn - yes 🙃

ceanna - I'm trying not to be harsh (or is it nasty?), but having to adjust the brightness and font size just for this site is a constant reminder. That BCO ignores us and doesn't care about the significant decrease in posts is frustrating. Many longtime members have stopped posting or reduced their activity. I considered leaving, but I couldn't leave their excuses unquestioned.

The discussion board, not BCO articles, brought me here. It's sad to see it diminished by each redesign. I worry about migrating to another platform.

Anonymous

Mods,

I don't think it's been reported, but some translations in the diagnostic/treatment details are missing. Don't ask me to document this. It's simple enough for some techie to review the translations file to find all the ones that are missing and ask someone at BCO for the proper text to use.

Moderators

Thanks Serenity, we are aware of the missing translation issue and are working on it

AliceBastable

To put on all our tombstones:

WE ARE WORKING ON IT...

Beesie

alicebastable, I'm thinking I'M OUTTA HERE!

I just signed in for the first time in days; with all the posts about not being able to delete diagnosis and treatment info, I decided to check my profile. I deleted everything in there - we'll see if the deletions take hold - but I also noticed this:

Who knew? I'm only 18 years old! Yet I have a lifetime of experience; I've lived quite the life for an 18 year old. Somehow I also didn't remember that my birthday is March 31st (it's not!). What a shame, I missed celebrating this year!

It's good to know that BCO now have an improved and more robust back-end system for entering personal information. Imagine the mess we'd be encountering if they didn't! 🙄😩🤪

Anonymous

Beesie,

Happy Birthday! You’re young. I’m 602 years old. 😂

wrenn

I'm 18 post menopausal. I'll take it. They've switched me to Taurus. Off to google how I should be behaving

Beesie

wrenn, you and me both. We should notify the medical journals - they might want to study us.

SerenityStat, I laughed so much when I saw your post that I started to cough (damn the congestion from seasonal allergies) and almost choked. BCO clearly has become dangerous to my health. I will say that for your age, you are still sharp as a tack. The medical journals will probably be interested in you too.