Has anyone started a Dec 2011 group?
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Happy to report my fever broke last night and I'm feeling a little better today! I'll take it! Like you markat, I'm taking it nice and easy this week. I'm acting like I even have a choice about that!
Hope everyone is well.
Gracie
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Well low grade fever rose higher so tomorrow's treatment has to be delayed. Feels like a UTI so on antibiotics. Still feeling terrible. I dont know, so many of you ladies even with the same treatment carry on I wonder what am I doing differently?
Maybe my family is right, maybe it is attitude.
Hoping I'm better by Monday, I was so anxious about getting stared, and hate having to delay.
Has anyone else had to delay?
Gracie sorry to hear of your fever, hope it resolves quickly. Rachel yours too.
What I have a dry cough that wakes me most nights. Onc says most likley post nasal drip.
I hope all have a peaceful evening. Be well and feel well, Laura -
Laura, don't be too hard on yourself. One of my friends is actually calling me Howie Mandel... I'm practically isolating myself over the fear of picking something up. We are undergoing chemo in the midst of winter, which, (I'm in PA, I see you're in NJ) has been wacky, weather wise. Today is was 58 degrees, yesterday it was 32 degrees. Half of my FB friends (not undergoing chemo!) are sick or their kids are sick.... A friend that text me last night that she prepared lasagna for me for tomorrow just posted on FB that she just came back from the pediatrician with her daughter and she was diagnosed with strep! I'm thinking of telling her to keep the lasagna! Lol
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Laura - I'm sorry you've come down with something. I hope the antibiotics take care of it soon and you can get back on track and feel better. We all deal with this differently - just keep putting one foot in front of the other on whatever path you've beaten and you'll get there.
Gracie - Glad your fever broke. Feel better!
Momof3 - I hadn't thought about that aspect of the warmer weather. Today I was just being thankful that I don't have to deal with the really cold weather that cracks my finger tips. It is hard to figure out how to keep people and their germs at bay.
Today was the boomarang effect of #3 I think. I got up fine, took a short walk to drop off the rent, and made it to work by 10. By 12:30, I felt like my battery had been pulled out and my stomach was so-so. One co-worker was after me about things that she needed. I need a diplomatic way to say, look, I agreed to take on these extra duties, but if I'm not feeling good, I set priorities as to what gets done first - like my weekly show, because I'm the only one who can do that. By the time I pre-emptively got some things out of the way, I was feeling a little better. I managed to take another short walk with my boyfriend (we work together) and finally left around 4:30... I slept for an hour. I had a meeting this evening, but didn't go. It's just weird... I don't feel sick, my mind is okay, but my body just doesn't want to do anything.
I am excited because a good friend from when I was living in Russia (in the 90s) is coming to the US to visit at the end of the month. I just hope I'm in good enough condition, and he doesn't pick up anything on the plane. I haven't seen him in over 10 years.
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Laura - don't feel bad. My experience is about to change too. I heard from the MO today checking on my pain which is almost gone thank God. Because of tht reaction they will be lowering my dose for the final three doses. On one hand that's great because I couldn't handle that pain again but on the other hand I'm not getting the intended dose. Not sure which is worse. So, I choose to trust their judgement. Not sure what else to do?
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Laura - So sorry your treatment has been delayed. That sounds weird, but I know you want to just get it started. Feel better.
Rachel - You stay pretty darn busy, no wonder your body is telling you "no"! That sounds so exciting about your friend from Russia coming to visit. Tell him to wear a mask on the plane!
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Thank you for your responses wonderful ladies. I'm actually hoping for a UTI as that would explain the burning bladder and back pain. Having had interstitial cystitis that has been a concern with the cytoxan all along.
Mardibra I questioned my onc over and over about delaying, and decided the same, I have to trust her judgement and experience. She recommended the 12 tx because I had such bad reactions to the AC.
Rachel you are so busy! Very exciting about your friend coming.
Momof3boys, maybe have her just leave that lasagna without a visit. Then heat the heck out of it.
Aside from the side effects, I think the worrying about germs and illness Is really difficult and so confining.
Ladies with young children must be on guard constantly. -
Oops! Goodnight all, be well.
Laura -
Well I went home from work early yesterday with terrible head congestion. No fever but I called the MO and she called me in an antibiotic. I work in a pulmonary office where germs run rampant all day and it seems every time the step-kids come over they are sick. I know what you all mean, I feel like I try to quarantine myself and have turned into Monk with the antibacterial stuff. I really think this is a virus that needs to run its course. I still feel like crap today but I'm at work. Would like to save some of my vacation for an actual vacation!
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Good Morning Ladies.
So sorry some of you are running into some illnesses..it really stinks..trust me I know..this last tx #3 was the first time (knock on wood) I haven't caught something..#4 and final coming next Monday..so hopefully I can get through this week healthy! My son is 5 and goes to daycare and brings home everything..last week a cold..haven't caught it yet thank goodness..hopefully i won't!
Hang in there all of you..we will get through this!!!!
Rachel...you my friend need to take a break and listen to your body..you're exhausting me just reading everything you are doing...listen to your body and rest...and tell the demanding mean lady at work to relax and shut her pie hole! unless she is going through chemo and all of this she can't begin to even remotely imagine what it does to us..she makes me mad Rachel..
Hope you all are feeling a little better today.
Heather
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Rachel - ditto what Heather said! I am the original workaholic but we need rest more than anything right now.
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Heatherb8 - Thank you for giving me my best laugh in a long time! She's really a really nice person usually, but when she's in managing mode, watch out!
My boss made me come home today (sort of... he realized I was stressing out and asked what things they could take off my plate) - but not after I did an interview I was looking forward to. He's been really supportive and wants to make sure I'm in shape for the long haul. The hard part is figuring out what work can be picked up by others. Especially my new show. Plus, in this economy, even though I have every right to take it easy, I do worry about finding out down the line that little comments like "complained about workload" might find their way into my file should I annoy the wrong person.
I just created a new thread "A Letter to My Friends" under getting through treatment - yeah, I should have come home and slept, but that's where my creative energy went. I hope it helps express what we're all going through. At this point, I still thank the stars that I have the energy I do, and that my SEs are nowhere near what they could be, but this tx has shown me that there is a very fine line between being 'fine' and wiping out.
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A lot of my friends keep pressuring me to get out more, but I just don't feel like it. So add me to the germaphobe Monk list. With the kids and winter I feel like I should be wearing a SARS mask everywhere lol. I've been lucky so far, knock on wood.
Mardi and Laura I hope you guys are doing ok! I'm terrified that my counts will be bad next week. We have a trip planned the week before tx5 so I want to feel decent and don't want it to get pushed back.
I agree with the others Rachel, take it easy on yourself. I understand your worry about work, but just be careful.
I felt great today...like almost pre chemo great. I was able to get some deep cleaning done. I noticed that my feet were hurting though, probably in shock that I was up doing stuff
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markat - glad you are feeling great!
I had my bloodwork done today and my counts were good...except my platelets are low. They always seem to be the bad guy on my reports. I get the Neulasta and it seems to be doing the trick for my white blood counts.
My problem right now is I have alot of stress at home surrounding a 16 year old step daughter. I am not really involved in it, but I have to deal with it just the same. I feel so bad for my DH right now. She is putting him through hell, like he needs that and a wife with cancer. I try to give him advice, I did raise 2 girls by myself who turned out pretty good. But for the most part I stay out of it because she's not my child. I don't think she cares what kind of stress she is creating and right now I need my DH and to focus on my health. UGH!!!! I just needed to unload. Thanks again for allowing it!
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Rachel..If you see "complained about workload" on your performance review..you are allowed to comment..by stating.."worked my ass off while my ass was kicked from chemo..please refer to previous performance reviews prior to being diagnosed with breast cancer and all the treatments that accompany the diagnosis" just saying! I got your back sister! I will check out your thread!!
Markat..better to be safe than sorry..I myself can't stay in the house..I run a lot and have paid the price a couple times, but this last time all was well...Glad you are feeling well!
Kelly..sorry you are having to deal with the BS..I sure hope it settles down for you..this crap is hard enough..
hope you all have a good night!
Heather
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Feeling pretty good myself. If it wasn't for the pain on days 3-6, Taxol would be a breeze for me as compared to AC. I'm terrified of the next tx. Something tells me that a lower dose isn't going to decrease or eliminate the pain. This sucks!
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markat - Happy you had a good day but sorry your feet were shocked by it!
Kelly - Happy your blood work was good, but am so sorry about the family drama, you do not need that at this time of your life.
Heather - Glad you are getting out, I'm one of the Monk crowd until my bloodwork tomorrow!
Rachel - I am going to check out your new thread!
Everyone have a restful night!
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Waiting for a call back. Fever keeps going up. Chills and sweats all night.
It's been a while since I was hospitalized. I'm scared. Not even sure what to bring with me.
Those of you that had the misfortune to have to be admitted, any suggestions?
Thank you, Laura -
Laura
My prayers are all for you to kick whatever it is, be strong we are all with you!
Cindy -
Sorry you are having fevers Secret...sending cooling thoughts and white blood cells your way! I've been fighting a cold all week. No fevers thank God. I swear my nose is like a fawcet though. Don't know if it's an SE of the Taxotere or what but this afternoon I looked ridiculous at work....walking around with my beet red nostril glaring from too much wiping, my nose dripping faster than I can get a Kleenex to it, and my eyes tearing like I'm crying! Yes, breast cancer is the gift that keeps on giving...
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Laura, I hope you are home soon. I can't tell you what to bring to the hospital but reading material and a laptop. I am sorry to hear you have to go in. My thoughts are with you.
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Laura prayers for a speedy recovery. Keep us updated.
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Healing thoughts coming your way, Laura!
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Laura - I hope you're feeling better and that you don't have to head to the ER.
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Hey ya'll. I finally feel somewhat normal again. Taxol sucks more than AC, just sayin. I have been down all week with pain like you would not believe. Between the hot flashes and sweating, unbelievable pain and mouth sores and thrush, I just wanted to jump off a bridge. I was not sure if it SE or getting sick. My DH took me to the MO today and guess what? I am allergic to the toxicity of taxol. Ha Ha Ha!
They are going to decrease my next Taxol by 20% to see if that helps. I now have Dilaudid for pain that does not seem to work either, but then again I am down to mild achey. I can deal with this. The mouth sores/throat is unreal. It is like shards of glass. I have 2 things for that,
BTW, I lost 16 lbs in a week not being able to eat. Jeeze!
I hope everyone has a good weekend! Hugs to all!!
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Laura - Hoping you did not need a trip to the hospital. Please keep us updated. You are in my thoughts.
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Laura..I was admitted after tx 1..i didn't have anything with me of course. If you are neorupenic you really can't bring anything in from home until your wbc is up..so I would keep it minimal..throw in a couple pairs of undies in your purse, book or laptop..i felt so awful I didn't want to do anything and didn't really care what the hell I had on..I hope you don't get admitted!
Heather
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Heather you are almost done of this chemo stuff! Congratulations you must be ecstatic. I am going in for number 4 of 6 on Wednesday. Wishing I was going in for 6 of 6:(. I am starting my first taxotere. Can anyone tell me what to expect?
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Gator - I hope the decrease helps so you donb't have the pain next tx. I'll be sending good thoughts your way.
Laura - Let us know how you are....I hope you don't require that hospitalization after all.
I really hate to hear about any of us having such a hard time....damn BC!
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So are most of the ladies in this group more than halfway through with chemo? I just completed # 4, which would have been 4 of 6 TAC, but my MO added on two more, based upon a study released at the San Antonio conference, so now I have 4 cycles.
I's so sorry that some of you are having side effects and some are challenged by winter germs. I have been fortunate in that respect. So I feel bad complaining about my issues -- my side effects haven't been too challenging. My biggest challenge is managing the psychological/emotional part of this. Each day is another day of going through the motions. Some days I can be positive, but many just suck. I have a young daughter and I was doing a great job of being a good mom, but now I feel myself getting impatient with her. Just what she needs, a mom with cancer who is also grumpy! I see a therapist once a week to complain, moan, have my pity party, and try to gather some strength. But I'm sure everyone is with me on this one, I just friggin' want this to be over and get on with my life. Even if getting on with my life means moving on to surgeries, etc. I really don't know how I'm going to get through a few more months of this. I feel like I'm trapped in a bad dream and can't wake up!
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