Is there a July 2011 group?

rabbit

hi Sandy

My 4th FEC was this past Wed. my 3rd was my worst for nausea I am sorry to say, but hopefully it won't be for you. The nausea only lasted several hours but it was very intense despite emend, aloxi, zofran, compazine yadda yadda!  And then a phenegran shot which finally helped. I remember I bounced back much quicker the 3rd time, as far as feeling ok overall and energy. I had pretty bad mouth sores on #3 too. And I think now on day 5 of FEC #4, I am getting mouth sores again even though I am doing the baking soda/salt mouth washes several times a day.  Let us know how you go, just take it easy until then, rest up  

Oh, to answer your question, I always feel pretty good the first few days after tx due to the steroids, but day 4-5 is a crash for me, but then I started feeling pretty good.  

bcisnofun

Hi everyone,

We just had a party for my in-laws 50th wedding anniversary.  I met a woman there who was stage 3 - 28 years ago.  11 years after that she found the other breast to be cancerous and removed that one as well.  But she's going strong.  Just wanted to share.

rabbit

bcisnofun, thanks for sharing that! It's amazing how many people I meet now that had bc and have survived very long, healthy lives. 28 yrs ago the txs were nowhere near where they are now, so that's pretty inspiring. 

I have been enjoying my Labor Day in bed with my mom watching tv LOL 

dexxy

meeting with the Radiation Oncologist tomorrow, wish me luck.  Then back in the chair on Thursday for round 4-then I'm done!

sandy115

Good luck tommorow Dexxy and so happy for you that you will be done chemo on Thurs.I will be half way tommorow.

rabbit

Sandy, me and you need to start a halfway house LOL for being halfway done!

dexxy, awesome news, I pray it goes smooth for you!  

misswim

Off to get shot up with radioactive dye. Scan is at 1. With the grace of god I will have answers tonight and they will be positive. Please send prayers for me.

rabbit

hi misswim, sending you positive good vibes, the waiting game will be over soon and you will see all will be good  

J-Bug

misswim: I wish you all the best today. 

Taxol #2 is Friday. So I am right there in that halfway house with rabbit and sandy! 

khs113

Will be thinking of you today and sending good thoughts.

ellenquilt

bcisnofun: Thanks for sharing the long time survivor story. I just love those. My mom is a 12 year survivor. Not sure what stage. I don't think she even knows.

Dexxy: Good luck for your last Chair Session! So nice to hear when we finish.  I'm in the game until next July.  

Misswim: Prayers and good thoughts heading your way.  Fingers and toes crossed as well.

So today is my first day back at the job full time.  I went to bed at  9, knowing I had to get up at 5.  However, I got up at 3.  Go figure.  Couldn't fall back asleep, so I read the Times, checked Facebook, walked the dog and put on my game face for work (read that as MAKEUP).  I left the house an hour earlier than I usually do so I got to work over an hour early, which was nice because I got to chill and relax before everyone in the office showed up.  I'm tired, but it's so good to be back in a routine that is not related to BC.  Since it's disgustingly humid out and raining and I have no A/C in the car, I opted for a no hair day and did the the hat thing.  I'm determined to play some headgames (literally) on my colleagues by showing up with hair (or without) and switching midway to the the other extreme.  Keep 'em guessing.  Blonde, Brunette, Redhead or hairless with a hat.  Should be fun to mix it up and keep it light.  Having fun at work already. I hope I don't fall over asleep at my desk after lunch. LOL

Good thoughts to all.  Catch you later.

bcisnofun

misswim - prayers going out now and at 1. 

congrats halfway club!  Sandy - will pray you get to go to New York to see your son. 

ellenquilt - could you share a little of your craziness with me?  I'm still a little embarrassed of the whole wig thing at work and wish I could just have fun with it.  You've got the right attitude!

dexxy - congrats!!!

Luebbsgurl

Happy Tuesday Ladies!!! Will try to catch up on everything tonight (i hope). Misswim...good luck.

I have been down for the count since Saturday evening. What a great holiday weekend..NOT...I spent it in bed sick with bone and muscle aches. On the positive side I am 1/2 way through this nasty chemo. Not sure why everything hit me so darn hard this time. I was just so nauseated, tired, and my body ached like I had the flu. Today is a little better and I am sitting here at my desk working.

Hope everyone had a relaxing holiday weekend. Saturday before I started to feel worse we went over to Josh's dad's house for dinner. A lady walked up to me and asked if I am on chemo. I looked down and said yes and she touched her hands to her head and said she just finished, she knows how I feel. OMG!!!! That did make me feel better. After 2 neighbors seen us talking they came up and whispered to Josh asking if I am on chemo and when he said yes, they struck up a conversation of their mother being on chemo for breast cancer. All I could say was Wow!!!

Tina 

misswim

Prelim results show no mets. Will have definative results this afternoon!

ellenquilt

Sounds good so far Misswim! Fingers and toes still crossed for you!

bcisnofun:  I'm crazy by nature, but you can have some. Me sending CRAZY to you --------->you

ANA_424

misswim - Just popped in to see how things were going with you. You have been on my mind so much these last few days. I truly believe you are going to have good results. So glad they look good so far!

dexxy

misswim-Yeah! fingers and toes still crossed.  thinking good thoughts

J-Bug

What is the highest white blood count any of you has had during treatment so far?

Mine was 47 on Friday. I was very surprised to hear that it got that high and wondered if anyone else had seen anything like that.

misswim

Mine was 28 once, and I felt it. I could literally feel the bone marrow pulsating in my veins.

misswim

Ok ladies, here is the deal......... bone scan negative for any metastatic disease No lesions were seen. They asked for an x-ray of my l-5 as it showed bone marrow uptake that the onc explained is due to the neulasta. My wbc is almost 20 today. But as far as bone mets, not a one. I am so relieved. I was such a wreck. The onc is not at all worried about the x-ray. Just wants a comparison as they already have x-rays of cervical and thoracic spine. So, I will go in for that , then first taxol.  I am very , very relieved. Hoping the x-ray is just a consequential thing.  Thank you for all your support and I will keep you posted!

Luebbsgurl

J-Bug-the highest mine was came in at 14.5. This last round I was down to 8.7 (which is still normal ranged) but they told me my onc looks at the "neutrophils which were at 4.8 which was also in the normal range..

Misswim-any new word yet? keeping you in my thoughts.

Tina 

misswim

Negative bone scan! Just an x-ray of the only area not x-rayed last month when my back started to bug m is what they asked for to follow up. That is because there was bone marrow uptake in L-5. Onc says that it is the Neulasta and not to worry. My WBC was almost 20 today. The onc says that makes perfect sense.

J-Bug

Congratulations misswim! Keep celebrating the victories. In the beginning of my diagnosis process I had a PET scan that showed three additional areas that had to be checked in my pelvis, spine and opposite breast. I have been warned numerous times by my surgeon and oncologist that with the size of my tumor, I could very likely turn out to be stage iv as a result of additional imaging or at the time of surgery. So I try to occasionally read and learn how successful treatment is for the stage iv people, so that it won't feel like the bottom is dropping out of my life if I am ever told that I am stage iv. 

I started a post on questions that I had about the area found on my spine if you are interested in it: http://community.breastcancer.org/forum/8/topic/773765?page=1#idx_18.

Another thread that I found when first diagnosed that was so helpful was a roll call to see how long people had been living with the stage iv diagnosis: http://community.breastcancer.org/forum/8/topic/707445?page=1. I keep this one in my favorite topics to refer to it when I need some inspiration.

I hope everyone enjoyed the gorgeous cool air today. I celebrated the day by buying a weeping willow on my way home from work and labs and visit with oncologist. They gave me 50% off. It's my first time buying a tree, but my husband and I have always both loved weeping willows. So for $30, I have a little piece of the dream! Have a good night everyone! 

rabbit

misswim, that's awesome news, I am so glad you can rest now and now stress about that! 

I'm having a bit of a rough time, here's what I wrote on my caringbridge site, sorry but I'm too tired to rewrite it:

I noticed yesterday a funny looking pocket of water on the left side of my neck, almost where my neck and collar bone connect, it's not a big bubble or anything, it's just a puffiness there, if I push on it, I can feel the fluid underneath, and it's very tender to touch.

So last night, called the on call Dr. and was told to wait it out, probably a reaction to the steroids. Well today, it's the same or worse and very tender so I called the physician's asst. She wants to make sure it's not a clot going on in my jugular vein, something to do with the fluid draining from the brain and the possibility of clotting. So tomorrow, for my bday, I get to meet with her and get an ultra sound of my jugular at 3pm!

Better safe than sorry....She said as long as I'm not having headaches or vision problems, not to worry, it's probably the steroids, but something we need to check out to be safe.

If it turns out to be the steroids, I will have to taper off them slowly, not so fast, my body HATES steroids!

I will keep you all udated tomorrow

xoxoxo  

J-Bug

I wish you the best rabbit! Hopefully you will have results to celebrate for your birthday.

rabbit

thanks J-Bug, I'm going to check out the posts you mentioned, they look interesting.

FrancesC

Misswim so Happy for you!

bcisnofun

misswim - thought of you all day yesterday.  So relieved with you on your great news.  Enjoy and rest. 

jbug - a weeping willow sounds beautiful and $30 seems like a steal.  Keep us posted on your white counts.  Can't infection cause a high white count?

Rabbit - will be thinking of and praying for you.  Keep us posted and hope you still enjoy your birthday. 

misswim

Off to the chemo spa- today is Taxol #1. LONGGGGGGG day. I m hving one x-ray from the neg bone scan yesterday, seeing the onc, then hitting the chair. I do feel a bit better after the scn came back ok. It was mentally exhausting abd I am tired. Came home to veggie organic sushi and veggie chili in my fridge last night. Yum. I ate well for the first time in  long time .

misswim

Rabbit hone- you are in my thoughts. I know all will be ok!