INSOMNIACS place to talk in the wee hours

Spookiesmom

I don't do Ducky anymore, thanks for posting.

sas-schatzi

Krips, I was working on Fentanyl. Not paying attention to other postings. First thing I see is Teka's post "Sad news about *Blondie".

Patty and LMG. If I hadn't used fentanyl, I would not have known about how different it was for affect on thinking and well being. Just knew Oxy made me a space cadet AND didn't work well. I went through this whole discussion with Phyliss. She obtained much better pain control with fentanyl. Hoping Patty has the same experience.

Transdermal patches for any drug are well known to be tolerated better. i.e  Clonidine---Catapres patches are so much more dependable than the Capoten oral dose. Nitoglycerin cream. Many years with patients having a positive experience with fentanyl convinced me it was worth a try.

When I requested it from my PCP she was great. Oh well I think I already told the story, but here goes. My PCP of years died of a brain tumor. Both the MO and  the one doc in the  PCP practice denied that  AI's could cause the pain I was describing. I reached the "jump off the cliff point". I went in for an antibiotic shot and met her for the first time. She was hired to replace my former PCP. I broke down. What should have been a 10 minute encounter was 1 1/2 hours. When I left I had Savella samples. Scripts for Fentanyl, Ativan, Valium, and Oxy.  Within 24 hours I was a new person. I named her St. PCP. A chance encounter at the right moment in time. Only have Ativan and Valium now. Ativan I use for sleep, but now use melatonin mostly by itself. Really sporadic. Valium I reserve for neck and TMJ.  Back to pre BC pain which is fine with me. Plus, still not sure what to make of the pain changes with the Thyroid meds.

That's likely to change, I have become sensitive to the dessicated thyroid( last dose tues ) and Cytomel is a problem. Think I've just taken my last dose of cytomel. Oh well, it was nice.

Teka

Spookie,

Please refer to my prior public post.

________________________________________________

I was only thinking of *Blondie*.

Rosevalley

Crap- poor Blondie. First food stamps... then no refill asking 18 pharmacies for her pain meds... can't get out of the house SOB no transportation.... kids... drama.... now a badly broken ankle. Chit! I feel so badly for her.

Patty - Glad that things are a little better. I don't know which doctor I would pick. Ask around to others with needs the same as yours to see how supportive they are with treatment. Age might not play too much, if he went to a really good residency and large med center.

sas-schatzi

Patty, You could ask them if you can interview each. No charge. OR you could schedule next appointment with one, then the next appointment with the other. if you do that tell them you are doing it, so, they won't surmise what/why you are doing split visits

 

 

dunesleeper

Hi. There sure were a lot of posts since I last checked in. I have a comment about the availability of pain meds. When I couldn't get mine (oxycodone and oxycontin) from the regular pharmacies I just got them filled at the hospital where I saw my MO. Since then I learned that Target would order it for me and have it in 2 days, so they are my new pharmacy. There is just no excuse to leave chronic pain patients without access to medication. I was shocked when I showed up at pharmacy after pharmacy with my prescription and was treated like a "drug seeker." Darn tootin' I'm seeking drugs! I wrote letters to several pharmacy headquarters and they even called me all apologetic and full of excuses. I call BS on their excuses. Now . . . I need to find sass's post about moist heat. However, for now, I have the drugs I need. Shout out to Target for their excellent customer service.

Spookiesmom

TEKA, I saw your post. You remember all that stuff. I'm sorry Blondie is in hospital. But maybe this could be a good thing, to get her proper pain med, and possibly Hospice,I'm done with Ducky. You know that.

Drop the issue please?

Rosevalley

Well for you gals that are ER+ PR+ Her2 negative there are some new things on the horizon. It seems everything I have read is for Her2+ folks and that's good - not knocking any new drugs mind you. The triple neg folks have it hard. But I just got off a new thread about Palbociclib (Ibrance) that is for ER+ PR+ Her2- folks like myself. It's an interesting read for those of us with mets stage 4.

Stay warm everyone.

Teka

Spookie,

Please refer to my last 2 public posts.

I never mentioned Ducky.

What issue? Please share with this well meaning thread member.

Spookiesmom

no further comments on this

Teka

*Owlettes*

dunesleeper

It appears that I am falling asleep already. I hope you all sleep well.

sas-schatzi

Teka that aunty acid pic is offensive. Please remove it. Thanks

Teka

Maybe You could repost to the *Warm and fuzzy* thread.

Rosevalley

Wow sore spots eh? I haven't a clue what happened but apparently mentioning anything ducky raises the roof. Ya'll won't last a minute here in Oregon where "Go DUCKS!!!" is plastered about every 1/2 block, all signs, most cars, shirts and bumpers etc.. The whole idea of fighting "ducks" is kind of silly. I hope you all get your feathers back down. I hope the Ducks WIN!!!!

Hugs to ALL!

dutchiris

Oregon has some crazy football uniforms. Some are neat and are odd.

sas-schatzi

teka hmmm I think it wouldn't fit there either. Thanks

Wren44

Rose, Yours are ducks, ours are seahawks. I think they're ospreys. And they're just as everywhere.

Blessings2011

Hello, dear Owlettes....

My brain and body are too fried to respond to everyone, but I just wanted to check in and say hi.

Sis (77 years old and a post-stroke patient) is still in the Rehab facility recovering from her hip replacement surgery. Her pain is significant, she is depressed, she is tired, and often refuses to do her therapy (She wouldn't do ANY in the hospital.) She is not getting stronger. They are saying she cannot be discharged to her home with only an Alzheimer's patient (BIL) as a caregiver, and she will not allow anyone in her home to assist her. So thankful she has 3 adult children who can make those kinds of decisions. NOT ME! I can still do the medical management part.

Dad (93 years old and a post-polio patient) is a rock star in his Rehab facility. Two hours after hip replacement surgery, the Therapist came in and asked him if he were ready for therapy ("since the glue was dry on his new hip".) The local anesthetics were just wearing off, and when the Therapist rolled Dad over onto his good side, he was kind of groaning and panting. Asked what his pain was on the pain scale, through gritted teeth he said "Two". (Insert rolling eyeballs here...) Then he sat up, stood up, and walked with a walker. That same night he walked 30 steps down the hallway. At the Rehab facility, he walks all the way around the building, and asks the Therapists if they want him to do more. He knows that therapy is his ticket to independence.

In the meantime, we are cleaning his house and getting it ready for him to come home. Unfortunately, he's a hoarder, so we are faced with a monumental task. DH and I have been putting in 12 hour days over there. Tonight, the neighbor across the street came over with two plates of BBQ for us. What a treat!!!

A month ago, I would not have been able to do this. I went on oxygen all night starting Christmas Day. Within a few days my energy level was up, my pain level was down, I felt stronger, and I could actually get out of bed before noon, get dressed, run errands, and stay up all day. It makes such a difference when your O2 sats are 95% instead of 79% all night. My poor bonked brain wasn't getting any oxygen. Of course, we don't know WHY I wasn't getting any oxygen, and why my brain is not telling my body to breathe at night. I may need more tests, but at least this way I am functional.

SO sorry to hear about so many of you needing pain meds and not being able to get them. I went through a ten-week pain management program at Kaiser, and that must have convinced my docs that I am not a drug seeker, as my Norco (formerly Vicodin) and Valium refills are always approved. On bad days, I take them together.

Sending out lots of hugs and good wishes and especially prayers for those who need them badly right now.

Nighty night!!!! xoxoxo

PattyPeppermint

blessings. - wow your dad had an awesome attitude and 93. Oh my longevity indeed. Glad the oxygen has helped you so much

SAS - thanks and thanks again. Sunday am tried the heating oafs and warm wet towels... Wow what a difference then just the heating pad. I actually was able to get up and go to church with my family which rarely happens. Sweet. About fentanyl patches : you got me wondering. I have a mo appt on the 20th but not sure my mo will even be there since he is retiring. I am calling his nurse later today when they open to discuss pain med refills and I am going to ask about the patch again. Still reading and retreading the rest of your info. Thanks again

Luvmygoats / thanks to you also. You ladies are a wonderful resource.

Chevy / I think it was you ... Thanks for letting us know about Blondie. Dang , I only thought I have had it hard. So wish there was something I could do to help her. Hoping this hospital stay they can help her find the right resources. Maybe hospice as had been suggested by others.

Today is dhs 50th bday. We are waiting to celebrate it next weekend. But ds2 asked me to set the alarm 30 min early so he can decorate with streamers and balloons and start breakfast for dh. Aww.. Ds is so sweet.

Hello to all

Hootie hoo

PattyPeppermint

SAS. Oh yeah love the idea of interviewing the other 3 mo's. Not sure what they'll say but can't hurt to ask right. If not , will def try to schedule rotating appts (and tell them why ) as you suggested. Wow. Seriously how can you know so much.

M0mmyof3

Happy that both my hubby's and my NFL teams won this weekend! Both games looked pretty bad for them at first but they managed to pull it off.

Chevyboy

M0mmyof3

awwwwww

Chevyboy

Morning gals! Blessings, your Dad sounds amazing! He must be a lot of fun to be around!

Glad you can at least BREATHE! Yes, oxygen level is what keeps us going! I think our bodies are always trying to heal themselves... But so many things we do, or have taken might make other parts of us screw up..... At least that's my theory... And maybe your body is getting back to normal now? Or is accepting everything you are doing! I'm just glad you are better...

MY NEW CAR HAS AN ISSUE!!!!! Damn! We stopped and washed my car, with one of those high-pressure hoses? Well it lifted a tiny bit of paint right off the bottom of the right quarter panel!!!!!!!! I know what that IS, because on the car-fax report, it said slight damage to "right-quarter-panel REPAIRED".... So that meant during it's year as a rental car some DINK parked too close to one of those curb things! So since it was repainted there, a couple little spots washed right off the damn thing!

But I looked in the glove box, saw the right code for the exact paint... and ordered it online, along with a "primer." Amd I will somehow, get DOWN there, and smooth it out, then spray on the primer, THEN the matching spray! And NEVER USE THE HIGH PRESSURE HOSE DOWN THERE AGAIN!!!

Oh well... I'm such a whiner... Now I have to order car mats for the front seat... to protect the mats that came with it... and that's all folks!

Chevyboy

FOR BLESSINGS!

Teka

*Good Morning Owlettes*

M0mmyof3

Hubby's laundry is done, now its time to kick back and relax.

Rosevalley

Sassy- what brand of melatonin do you take?

Teka

Still no word on Blondie surgery!

The STFU (Shut the F*** UP) thread has information if wish to reach out to Blondie.